#PNHCommunity
You’re not alone with PNH. Support groups offer connection, hope, and strength for patients and caregivers. Find yours today: pnhglobalalliance.org/resources/gl... 💜
#PNHSupport #PNHCommunity #LivingWithPNH #SupportGroups
May 30, 2025 at 1:37 PM
Tomorrow is #WorldBloodDonorDay! 🩸
Blood donations are vital for people with PNH and many others. If you're able, consider donating — it truly makes a difference.
#DonateBlood #PNH #PNHCommunity #BloodDonation
June 13, 2025 at 12:58 PM
🌟 Welcome PNH Patients Support–India! 🎉
Founded in 2020 as an informal group, they support PNH patients in India by sharing stories, advice, and advocacy. They’re working to bring medicines to India and push for PNH to be recognised as a rare disease.

#PNHGlobalAlliance #PNHIndia #PNHCommunity
August 22, 2025 at 7:00 AM
🧡 On the month of World Mental Health Day, we’re reminded that mental health matters every day. Living with PNH can be tough, but no one should face it alone. Together we raise awareness, break stigma & support each other. 💜 #MentalHealthMatters #PNHCommunity
October 24, 2025 at 8:01 AM
Excited to announce the Global PNH Advocacy Forum near Barcelona, Sept 12–14, 2025!
Join advocates, alliance members & global reps to connect, share, and strengthen PNH advocacy worldwide.
#PNHAdvocacy #PatientAdvocacy #PNHCommunity #PNH
July 18, 2025 at 11:57 AM