Day 2 highlights #CTOS2025 w/Exec. Dir. Sara Rothschild, Sr. Dir. Data Mgmt & Research Denisse Evans, & Data Analyst Jerry Call, discussing LRG posters with GIST researchers, & oncologists. Register for Updates from CTOS w/ Dr. Sobczuk bit.ly/CTOS-updates #GISTResearch #PatientReportedData

What kind of data is collected in a #PatientRegistry ? From diagnosis and mutations to treatments, side effects, and quality of life, each data point helps drive research and improve rare disease care. Learn more: bit.ly/PatientRegis...
#PatientReportedData #GIST #MoveTowardACure #GISTcancer

At #CTOS2025 Sr. Dir. of Research Denisse Evans presented pediatric and young adult data from the LRG Patient Registry, emphasizing the importance of mutational testing and timely surgery for improving outcomes. #PatientReportedData