#PatientRepresentation
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citizenptnewsct.bsky.social
Yale's VEIL lab is revolutionizing ALS research by amplifying patient voices and funding $10,000 grants for real-life needs, all while tackling racial disparities in healthcare.

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#CT #CitizenPortal #RacialDisparities #HealthEquity #PatientRepresentation
Yale VEIL lab urges focus on equity and lived experience in ALS research
Chelsea of Yale's VEIL lab described work on lived experience, representation, a $10,000 "Possibilities Grant" program and a documentary project to bring underrepresented patient voices into ALS research and care.
citizenportal.ai
November 4, 2026 at 9:32 PM
citizenptnewsok.bsky.social
Oklahoma's Medical Marijuana Authority is gearing up for a leadership change as Adria Berry steps down, but the new interim director promises continuity and a focus on improving standards for patient care.

Learn more here!

#OK #CitizenPortal #PublicHealth #PatientRepresentation
Interim executive director named, promises continuity as Adria Berry departs
OMA’s interim executive director announced leadership transition following Executive Director Adria Berry’s departure (last day 10/30/2026), pledged operational continuity and standardized inspections, and invited council input as the agency prepares for new permanent leadership.
citizenportal.ai
October 27, 2026 at 4:31 AM
europeanlung.bsky.social
💙Today we had the last of our Patient Organisation presentations in the World Village Auditorium!

It was a great turn out and chance for orgs to network and share ideas. Thank you to all that got involved! 💛

#ERSCongress #PatientRepresentation
September 30, 2025 at 2:31 PM
amenduk.bsky.social
Anyone else really looking forward to #BES2025 next week in beautiful Harrogate?! We are! Don’t forget to come and visit Gill and me 😉 @socendocrinology.bsky.social @britishthyroid.bsky.social @addisonsdisease.bsky.social #awarenessraising #patientrepresentation
a man and a woman are jumping in the air while a man holds their hands up in the air .
ALT: a man and a woman are jumping in the air while a man holds their hands up in the air .
media.tenor.com
March 6, 2025 at 6:34 AM
citizenptnewsma.bsky.social
Massachusetts health officials are launching a vital campaign to find guardians for patients who lack representation, ensuring everyone has a voice in their care.

Learn more here

#MA #CitizenPortal #HealthCareAccess #VulnerablePopulations #PatientRepresentation
Massachusetts health officials launch outreach campaign to recruit guardians for vulnerable patients
Health and Human Services develops campaign to recruit guardians for patients without representation
citizenportal.ai
June 26, 2025 at 11:04 AM
dalilatm.bsky.social
This is wonderful! #Lupus #PatientRepresentation Have a fantastic time! 🥳 Looking forward to the highlights 🤩🦋 #LUPUS2025
lupuschat.bsky.social #LupusChat @lupuschat.bsky.social · May 20
We’re headed to Toronto for #LUPUS25! Both @caringforlupus.bsky.social & @tiffanyandlupus.bsky.social
will be representing the lupus community as advocates thanks to the sponsorship of @ladaorg.bsky.social. Stay tuned as we share highlights from the 16th International Congress of SLE! 💜✨ #LupusChat
A banner for the 16th International Congress of Systemic Lupus Erythematosus in Toronto from May 21-24.
May 21, 2025 at 9:04 AM
eaccme.bsky.social
🚨 Thursday 28 May at hashtag#UEMSCongress2026 📚✨

🔹 AC Forum: Patient representation at medical congresses 👥- I. Drossart & N. Dass, J. de Graaf & A. Almeida

#UEMSCongress2026 #UEMS #CME #CPD #PatientRepresentation
May 28, 2026 at 9:50 AM