#PatientsInResearch
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ihieurope.bsky.social
🚨 Starting soon! 🚨
🔥 Our Fireside Chat with patient advocate Peter Kapitein gets underway at 10:30! Hear about Peter's life's mission to connect patients, researchers & clinicians to further research and care. #PatientsInResearch #IHITransformingHealth #PatientAdvocacy #NothingForUsWithoutUs
Peter Kapitein, patient advoacte and CEO of Inspire2Live
November 25, 2025 at 9:07 AM
ihieurope.bsky.social
🤝Meaningful #PatientEngagement in research has to be built in from the start. Hear how the GREG project implemented a systematic approach to patient involvement including a workshop for researchers on how to best engage with patients for impactful results. 👉 bit.ly/4pQSx7a
#PatientsInResearch
July 29, 2026 at 8:32 AM
ihieurope.bsky.social
👋 Happy Monday! This week, we're focusing on #PatientsInResearch. ⚡ Our projects seek to involve patients in decision-making from the earliest stages, because #CollaborativeResearch brings the best results! Read what @mkdmilan.bsky.social, director of @europeliver.bsky.social, has to say:
Milan Mishkovikj, director of the European Liver Patients' Association, has this to say about IHI collaborative patient research: "This research is a beacon of hope, empowering individuals and transforming lives and systems. It reminds us that through collaboration, innovation and compassion, we can overcome challenges and create a world where liver health is not just a dream but a reality for all."
September 1, 2025 at 6:41 AM
ihieurope.bsky.social
🤝 IHI is integrating patients' perspectives into our work, to build #CollaborativeResearch that delivers meaningful & impactful results for patients. Hear from Laure Chotel who contributed to a mid-term review of a project 👇
💡 Find out more about how IHI engages #PatientsInResearch europa.eu/!FwJk7T
Laure Chotel, a patient in IHI's patient pool who contributed to a mid-term review of one of IHI's project, says: "Being involved at European level with IHI was quite meaningful for me. I wanted to discover how European projects work and it was exciting for me."
September 3, 2025 at 1:07 PM
inhaireland.bsky.social
Attending the HRB Grant Holders Conference & wearing 3 hats today...Grant recipients, HRB Public Reviewers and representing the PPI Ignite Public Advisory Board. #Ppi #BetterResearch #PatientVoice #PatientsInResearch #Collaboration #Partnership
February 13, 2025 at 11:35 AM
ihieurope.bsky.social
👋 It's day 2 of our #PatientsInResearch week & we're focusing on co-creation & integrating #PatientVoices into #HealthResearch to transform results. Ken Tait is contributing to diabetes complications research & says patients need to be at the ❤️ of research. #NothingForUsWithoutUs #PatientCentricity
Ken Tait, patient involved in the Hypo-Resolve project. 'I like to think that what we brought to the table was a different dimension to the research. What I found fantastic was that we were a really sought-after voice, rather than just using us for feedback. We need to be at the heart of research, at the co-design and co-creation of it.'
September 2, 2025 at 8:07 AM
ihieurope.bsky.social
📝 Can data capture on heart patients' experiences & quality of life be improved?
🫀iCARE4CVD reviewed 390 studies to see how patient surveys called PROMs & PREMs are being used in heart care.
👉 link.europa.eu/pkpmCR
#PatientsInResearch #HeartHealth #HeartResearch #HeartFailureAwarenessDays #HorizonEU
Image of an elderly patient clutching his heart while a doctor writes on a clipboard.
April 29, 2026 at 7:50 AM
ihieurope.bsky.social
👩‍🎓 Happy belated birthday to #EUPATI, who turned 5 last month! This organisation drives #PatientEmpowerment through #Education, leading to impactful contributions to #HealthResearch.
👉 Find out more: eupati.eu
👉 Find out about IHI's #PatientsInResearch: europa.eu/!FwJk7T
Maria Dutarte of EUPATI says: "What started as an IMI project in 2012 has flourished into a passionate, thriving community enhancing patient involvement through education! We stand as a living example of IHI's strong vision for patient-centric health research and of the need to involve patients at every stage of medicines R&D, including in new and emerging areas."
September 5, 2025 at 3:39 PM
ihieurope.bsky.social
🧠 It's Day #4 of our #PatientsInResearch week and we're focusing on the impacts on patients' lives. Angela Bradshaw of Alzheimer Europe shared how taking part in IMI & IHI projects have led to real impact on people with Alzheimer's.
#SocietyInScience #IHITransformingHealth #ResearchImpact
Angela Bradshaw of Alzheimer Europe says: "We've seen how the outputs of IMI projects have translated into changes at clinical practice and had real-world impact. I would like to thank IMI and IHI for committing to meaningfully involving patient organisations and allowing us to bring society into science."
September 4, 2025 at 3:25 PM