Are you searching for support, information or connections in the rare disease community? Raremap helps you find charities, patient organisations and more: raremap.co.uk/
September 1, 2026 at 8:00 AM
Are you searching for support, information or connections in the rare disease community? Raremap helps you find charities, patient organisations and more: raremap.co.uk/
We're delighted to be included on Raremap, a new guide to the UK's rare disease research ecosystem developed by @lifearc.bsky.social and @rdrukhub.bsky.social.
Explore: 🔗 : buff.ly/yQx6pYT
#RareDiseases #RareDiseaseResearch
Explore: 🔗 : buff.ly/yQx6pYT
#RareDiseases #RareDiseaseResearch
July 22, 2026 at 4:04 PM
We're delighted to be included on Raremap, a new guide to the UK's rare disease research ecosystem developed by @lifearc.bsky.social and @rdrukhub.bsky.social.
Explore: 🔗 : buff.ly/yQx6pYT
#RareDiseases #RareDiseaseResearch
Explore: 🔗 : buff.ly/yQx6pYT
#RareDiseases #RareDiseaseResearch
The @lifearc.bsky.social Centre for Rare Mitochondrial Diseases is pleased to feature in #Raremap – a new directory connecting rare disease organisations.
Raremap makes it easier to find partners & collaborators across the rare disease ecosystem.
Visit Raremap: raremap.co.uk
#mito #RareDisease
Raremap makes it easier to find partners & collaborators across the rare disease ecosystem.
Visit Raremap: raremap.co.uk
#mito #RareDisease
Home - Raremap
Your guide to the rare disease research ecosystem in the UK Raremap has been created to help you find out more about the organisations in the UK rare disease ecosystem, what they do and how they inter...
raremap.co.uk
August 4, 2026 at 2:46 PM
The @lifearc.bsky.social Centre for Rare Mitochondrial Diseases is pleased to feature in #Raremap – a new directory connecting rare disease organisations.
Raremap makes it easier to find partners & collaborators across the rare disease ecosystem.
Visit Raremap: raremap.co.uk
#mito #RareDisease
Raremap makes it easier to find partners & collaborators across the rare disease ecosystem.
Visit Raremap: raremap.co.uk
#mito #RareDisease
The rare disease landscape can be complex to navigate – that's why we've collaborated with @lifearc.bsky.social to launch Raremap. It's a searchable directory of rare disease organisations so you can find out who does what
and how to connect. Visit Raremap now: tinyurl.com/3atbumrt
and how to connect. Visit Raremap now: tinyurl.com/3atbumrt
July 15, 2026 at 8:15 AM
The rare disease landscape can be complex to navigate – that's why we've collaborated with @lifearc.bsky.social to launch Raremap. It's a searchable directory of rare disease organisations so you can find out who does what
and how to connect. Visit Raremap now: tinyurl.com/3atbumrt
and how to connect. Visit Raremap now: tinyurl.com/3atbumrt
The Lily Foundation are proud to feature in Raremap – a brand new directory of rare disease organisations
What a brilliant resource to drive progress for those living with rare conditions
Find out more:
https://raremap.co.uk/
#RareDisease #MitochondrialDisease #Raremap #MitoAware
LifeArc
What a brilliant resource to drive progress for those living with rare conditions
Find out more:
https://raremap.co.uk/
#RareDisease #MitochondrialDisease #Raremap #MitoAware
LifeArc
Home - Raremap
Your guide to the rare disease research ecosystem in the UK Raremap has been created to help you find out more about the organisations in the UK rare disease ecosystem, what they do and how they interact with each other. Categories of organisations, groups and networks There are many different groups and organisations all involved […]
raremap.co.uk
July 31, 2026 at 3:30 PM
The Lily Foundation are proud to feature in Raremap – a brand new directory of rare disease organisations
What a brilliant resource to drive progress for those living with rare conditions
Find out more:
https://raremap.co.uk/
#RareDisease #MitochondrialDisease #Raremap #MitoAware
LifeArc
What a brilliant resource to drive progress for those living with rare conditions
Find out more:
https://raremap.co.uk/
#RareDisease #MitochondrialDisease #Raremap #MitoAware
LifeArc
It's brilliant to have so many organisations joining Raremap. If you work in rare diseases and are not part of the directory yet, apply to be added now.
We're delighted to be included on Raremap, a new guide to the UK's rare disease research ecosystem developed by @lifearc.bsky.social and @rdrukhub.bsky.social.
Explore: 🔗 : buff.ly/yQx6pYT
#RareDiseases #RareDiseaseResearch
Explore: 🔗 : buff.ly/yQx6pYT
#RareDiseases #RareDiseaseResearch
July 23, 2026 at 1:40 PM
It's brilliant to have so many organisations joining Raremap. If you work in rare diseases and are not part of the directory yet, apply to be added now.
Are you searching for support, information or connections in the rare disease community?
Raremap helps you find charities, patient organisations and more: raremap.co.uk/
Raremap helps you find charities, patient organisations and more: raremap.co.uk/
September 2, 2026 at 8:01 AM
Are you searching for support, information or connections in the rare disease community?
Raremap helps you find charities, patient organisations and more: raremap.co.uk/
Raremap helps you find charities, patient organisations and more: raremap.co.uk/
We need your help to build a resource that reflects the full scope of work happening across rare diseases in the UK. If your organisation isn't on Raremap yet, request to be added now: raremap.co.uk/join/
August 18, 2026 at 8:33 AM
We need your help to build a resource that reflects the full scope of work happening across rare diseases in the UK. If your organisation isn't on Raremap yet, request to be added now: raremap.co.uk/join/
We need your help to build a resource that reflects the full scope of work happening across rare diseases in the UK. If your organisation isn't on Raremap yet, request to be added now: raremap.co.uk/join/
August 18, 2026 at 8:00 AM
We need your help to build a resource that reflects the full scope of work happening across rare diseases in the UK. If your organisation isn't on Raremap yet, request to be added now: raremap.co.uk/join/
Looking for collaboration, funding and support opportunities for your rare disease research?
Explore Raremap to find the connections you need: raremap.co.uk
Explore Raremap to find the connections you need: raremap.co.uk
August 5, 2026 at 8:36 AM
Looking for collaboration, funding and support opportunities for your rare disease research?
Explore Raremap to find the connections you need: raremap.co.uk
Explore Raremap to find the connections you need: raremap.co.uk
Looking for collaboration, funding and support opportunities for your rare disease research? Explore Raremap to find the connections you need: raremap.co.uk/
August 5, 2026 at 8:00 AM
Looking for collaboration, funding and support opportunities for your rare disease research? Explore Raremap to find the connections you need: raremap.co.uk/
Is your organisation on Raremap yet? Join the living resource that makes the UK rare disease landscape easier to navigate.
Visit Raremap now and request to be added: raremap.co.uk/join/
Visit Raremap now and request to be added: raremap.co.uk/join/
July 28, 2026 at 10:56 AM
Is your organisation on Raremap yet? Join the living resource that makes the UK rare disease landscape easier to navigate.
Visit Raremap now and request to be added: raremap.co.uk/join/
Visit Raremap now and request to be added: raremap.co.uk/join/
Is your organisation on Raremap yet? Join the living resource that makes the UK rare disease landscape easier to navigate. Visit Raremap now and request to be added: raremap.co.uk/join/
July 28, 2026 at 8:00 AM
Is your organisation on Raremap yet? Join the living resource that makes the UK rare disease landscape easier to navigate. Visit Raremap now and request to be added: raremap.co.uk/join/
The rare disease landscape can be complex to navigate – that's why we've collaborated with @rdrukhub.bsky.social to launch Raremap. It's a searchable directory of rare disease organisations so you can find out who does what and how to connect. Visit Raremap now: https://t.ly/nY3Rz
July 15, 2026 at 8:03 AM
The rare disease landscape can be complex to navigate – that's why we've collaborated with @rdrukhub.bsky.social to launch Raremap. It's a searchable directory of rare disease organisations so you can find out who does what and how to connect. Visit Raremap now: https://t.ly/nY3Rz