In our final video from the #KnowYourNormal series: Maggie Cameron of The EHE Foundation tells her story of how her sarcoma diagnosis was discovered while undergoing routine scans for a different medical condition!

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Namuwonge's first symptom was an unexplained swelling on her right leg. She had never heard of sarcoma before her diagnosis. Hear her story and follow the Uganda Alliance of Patients’ Organizations(UAPO) for more!

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Kamil of the Polish Sarcoma and Melanoma Patients Association was lucky. His doctor immediately recognized the warning signs in his x-ray, and referred him to an oncologist straight away. He was diagnosed with sarcoma 2 weeks later.

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Angelika Sandakly of INFO SARCOMES shares the story of her son's first symptom that led to his sarcoma diagnosis.

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If a lump is growing, even if painless, ask for imaging. If bone or soft-tissue pain wakes you at night or lingers longer than a month, push for an answer. These red flags can lead you to a critical early diagnosis.
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HEALTH CARE PROVIDERS: Don’t dismiss it. Learn the red flags for potential sarcoma & help your patients get clear answers, quickly.

Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.”

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💜 LMS patients, share your story:

When did you first sense something was wrong?
Who helped you keep pushing for answers?
What do you wish every newly diagnosed patient knew about LMS?

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Together we can shorten the road from “Something’s wrong” to an accurate diagnosis—and open the door to timely life-saving treatment.

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The golf‑ball rule: any lump 4-5 cm or larger—especially if deep and growing—deserves imaging. If you find a lump like this, or you’re experiencing night bone pain, insist on scans and a sarcoma‑specialist referral.

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Ever had a doctor tell you “It’s nothing”? What did you do? Seek a second opinion; keep a diary of symptoms; or bring a partner to your next appointment? Share how you made yourself heard.
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For years, Kelli's husband was told his back pain was just muscular tension and he was advised to get massages. Eventually Kelli pushed him to get the symptoms checked further and a massive tumor was discovered.

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The first sign of #sarcoma isn't always obvious. Carol Haslam of Sarcoma Cancer Ireland said she noticed "a bit of an ache" in her hand. When she sought care, she was referred to a specialist who discovered she had #SynovialSarcoma.
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We have lots of stories to share this month! Here's a sneak peek of what's to come. Hear their stories, share your own, and spread the word!

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