#SilverRussellSyndrome
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childgrowthuk.bsky.social
This #SRS Virtual Cuppa & Chat is on Wednesday 15th October, 12-1pm on Zoom.

Email support@childgrowthfoundation.org to register. Please note places are limited to a maximum of 10 attendees.

#SilverRussellSyndrome #RussellSilverSyndrome #RSS

4/4
October 2, 2025 at 3:45 PM
childgrowthuk.bsky.social
These supportive sessions are run by the CGF’s nursing team, Sally and Lisa, and are a lovely opportunity to meet virtually with other parents and carers in the growth community, sharing experiences and asking questions in a safe, welcoming space.

#SilverRussellSyndrome #RussellSilverSyndrome

3/4
October 2, 2025 at 3:45 PM
childgrowthuk.bsky.social
Whether you have a diagnosis or suspected diagnosis of #SRS please join us to share your experiences and support each other.

Everyone is welcome, whatever stage of the journey you are on.

#SilverRussellSyndrome #RussellSilverSyndrome #RSS

2/4
October 2, 2025 at 3:45 PM
childgrowthuk.bsky.social
Our upcoming Virtual Cuppa & Chat will be the second in our series of topic specific events, and will be dedicated to talking about Silver-Russell syndrome (SRS).

#SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS

1/4
October 2, 2025 at 3:45 PM
childgrowthuk.bsky.social
Join this SRS Virtual Cuppa & Chat is on Wednesday 15th October, 12-1pm on Zoom.

Email support@childgrowthfoundation.org to register. Please note places are limited to a maximum of 10 attendees.

#SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS

4/4
September 21, 2025 at 9:45 AM
childgrowthuk.bsky.social
These supportive sessions are run by CGF’s nurses Sally and Lisa and are a lovely opportunity to meet virtually with other parents and carers in the growth community, sharing experiences and asking questions in a safe, welcoming space.

#SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS

3/4
September 21, 2025 at 9:45 AM
childgrowthuk.bsky.social
Whether you have a diagnosis or suspected diagnosis of SRS come please join us to share your experiences and support each other.

Everyone is welcome, whatever stage of the journey you are on.

#SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS

2/4
September 21, 2025 at 9:45 AM
childgrowthuk.bsky.social
Our upcoming Virtual Cuppa & Chat will be the second in our series of topic specific events, and will be dedicated to talking about Silver-Russell syndrome (SRS).

#SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS

1/4
September 21, 2025 at 9:45 AM
childgrowthuk.bsky.social
Our next terrific #ADayInTheLifeOf story, and final one for #ChildrensGrowthAwarenessWeek, shares the story of 6 year old Austin with #SilverRussellSyndrome (#SRS) www.childgrowthfoundation.org/austin-day-in-the-life

#InternationalChildrensGrowthAwarenessDay #CGAW #GrowthCondition #GrowthConditions
September 20, 2025 at 3:45 PM
childgrowthuk.bsky.social
This transition resource contains important and useful advice, information and support for young people and young adults with Silver-Russell syndrome (SRS) / Russell-Silver syndrome (RSS) 📖

childgrowthfoundation.org/transition-srs

#SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS

2/2
August 30, 2025 at 9:46 AM
childgrowthuk.bsky.social
'Transition: #SilverRussellSyndrome - Guidance and support for moving into adult services' is the first in a range of condition specific resources from the CGF for those moving from paediatric to adult services >>>

childgrowthfoundation.org/transition-srs

#RussellSilverSyndrome #SRS #RSS

1/2
August 30, 2025 at 9:46 AM
childgrowthuk.bsky.social
This transition resource contains important and useful advice, information and support for young people and young adults with #SRS 📖

childgrowthfoundation.org/transition-srs

#SilverRussellSyndrome #RussellSilverSyndrome #RSS

2/2
July 1, 2025 at 11:29 AM
childgrowthuk.bsky.social
'Transition: #SilverRussellSyndrome - Guidance and support for moving into adult services' is the first in a range of condition specific resources from the CGF for those moving from paediatric to adult services >>>

childgrowthfoundation.org/transition-srs

#RussellSilverSyndrome #SRS #RSS

1/2
July 1, 2025 at 11:29 AM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Further information & resources

CGF Support Line:
childgrowthfoundation.org/supportline
020 8995 0257
support@childgrowthfoundation.org

Post 10 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:54 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Further information and resources

Facebook group: Silver-Russell syndrome (SRS) peer support

facebook.com/groups/silverrussellsyndrome

Post 9 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:48 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Further information and resources

childgrowthfoundation.org/srs

Transition to adult services support:
childgrowthfoundation.org/transition-srs

Post 8 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition
May 28, 2025 at 5:42 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Guidance

childgrowthfoundation.org/srs-consensus-2016

Post 7 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:36 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Treatment available

Post 6 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:30 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Treatment available

Post 5 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:24 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

How is it diagnosed?

Post 4 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:18 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Signs of Silver-Russell syndrome

Post 3 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:12 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

What is #SilverRussellSyndrome?

Silver-Russell syndrome (SRS), also called Russell-Silver syndrome (RSS), is a rare condition causing growth restriction.

Post 2 of 10

#SpotlightOn #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:06 PM
childgrowthuk.bsky.social
💡 Spotlight on: Silver-Russell syndrome 💡

Post 1 of 10

#SpotlightOn #SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS #GrowthCondition #GrowthConditions
May 28, 2025 at 5:00 PM
childgrowthuk.bsky.social
Throughout 2025 we're running a monthly 'Spotlight on' series, shining a spotlight on different growth conditions each month.

Next week we'll be spotlighting Silver-Russell syndrome (SRS), also known as Russell-Silver syndrome (RSS) 💡

#SilverRussellSyndrome #RussellSilverSyndrome #SRS #RSS
May 21, 2025 at 2:15 PM