Kicking off this feed with my favourite thing I did in 2024: the kids' book I wrote about #SotosSyndrome for the #ChildGrowthFoundation: childgrowthfoundation.org/product/my-s...

Our 'What is Sotos Syndrome?' infographic is a really useful one page resource about Sotos syndrome at: childgrowthfoundation.org/what-is-sotos-syndrome

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos

Share yours or your loved ones uniqueness and help us support those affected by #Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome by completing this short form forms.office.com/e/s7fFCHgQLZ

#Sotos

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We are in the final stages of producing our new information booklet on Sotos syndrome. Can you help us by sharing your words and experiences of #Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome? forms.office.com/e/s7fFCHgQLZ

We are looking for short, positive quotes about Sotos syndrome to include in this new booklet.

#Sotos

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Kickstarting a week of 'A day in the life of' stories for #ChildrensGrowthAwarenessWeek we have 8 year old Kiwi who has Sotos syndrome www.childgrowthfoundation.org/kiwi-day-in-the-life 💛

#ADayInTheLifeOf #SotosSyndrome #GrowthCondition #GrowthConditions #CGAW #CGAW2025

💡 Spotlight on: Sotos syndrome 💡

Post 11 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 10 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 9 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 8 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 7 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 6 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 5 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 4 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 3 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 2 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

💡 Spotlight on: Sotos syndrome 💡

Post 1 of 11

#Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome #Sotos #Overgrowth #GrowthCondition #GrowthConditions #SpotlightOn #SotosSyndromeAwarenessDay

It's #Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrometag/SotosSyndromeAwarenessDay" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndromeAwarenessDay ✨

An important day in the child growth community to raise awareness of #SotosSyndrome and the children, young people, adults and their families with this #Overgrowth condition 💙

Keep an eye out for our Spotlight on: #Sotos syndrome this afternoon 💡

#GrowthCondition

Throughout 2025 we are running a monthly #SpotlightOn series, shining a spotlight on a different growth condition each month, and later this week week we'll be spotlighting #Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome 💡

We'll be sharing this #Sotos spotlight on 6 September, to mark this year's #SotosSyndromeAwarenessDay ✨