December 24, 2025 at 10:05 PM
June 10, 2025 at 1:14 PM
Being visually impaired means you don’t see your #cat on the top of the dresser until you are right next to it. #visuallyimpaired #legallyblind #stargardts #boo #cheza
June 26, 2025 at 12:24 AM
Being visually impaired means you don’t see your #cat on the top of the dresser until you are right next to it. #visuallyimpaired #legallyblind #stargardts #boo #cheza
Roanoke woman (That's me!) shares impact of assistive eyewear for low-vision users wfirnews.com/news/roanoke...
#visuallyimpaired #lowvision #fiberartist #eSight #eSightGo #clientsuccesscoach #stargardts #juvenilemaculardegeneration
#visuallyimpaired #lowvision #fiberartist #eSight #eSightGo #clientsuccesscoach #stargardts #juvenilemaculardegeneration
March 5, 2025 at 8:57 PM
Roanoke woman (That's me!) shares impact of assistive eyewear for low-vision users wfirnews.com/news/roanoke...
#visuallyimpaired #lowvision #fiberartist #eSight #eSightGo #clientsuccesscoach #stargardts #juvenilemaculardegeneration
#visuallyimpaired #lowvision #fiberartist #eSight #eSightGo #clientsuccesscoach #stargardts #juvenilemaculardegeneration
Bind off going very slow but steady. Not even 1/2 way done but I am hungry and I have a work call in less than 20 min. Will get back at it again after that. #shawl #knit #knitting #miyukibeads #picotedge #fiberartist #visuallyimpaired #stargardts
April 5, 2025 at 3:36 PM
Bind off going very slow but steady. Not even 1/2 way done but I am hungry and I have a work call in less than 20 min. Will get back at it again after that. #shawl #knit #knitting #miyukibeads #picotedge #fiberartist #visuallyimpaired #stargardts
Ocugen’s OCU410ST gene therapy aims to slow vision loss in Stargardts. Early results show good safety and signs of reduced retinal damage, supporting a larger phase 2/3 trial: https://retinauk.org.uk/news/slowing-sight-loss-in-stargardts-ocugens-gene-therapy-trial-offers-promising-early-results/
April 2, 2026 at 2:30 PM
Ocugen’s OCU410ST gene therapy aims to slow vision loss in Stargardts. Early results show good safety and signs of reduced retinal damage, supporting a larger phase 2/3 trial: https://retinauk.org.uk/news/slowing-sight-loss-in-stargardts-ocugens-gene-therapy-trial-offers-promising-early-results/
My adult son has suffered Stargardts since 1992 and says because he pays attention to sounds in his environment, he has more confidence.
December 4, 2024 at 1:23 PM
My adult son has suffered Stargardts since 1992 and says because he pays attention to sounds in his environment, he has more confidence.
Excited for this new learning experience! #visuallyimpaired #legallyblind #braille #free #Hadley #stargardts #maculardegeneration
September 25, 2025 at 2:50 PM
Excited for this new learning experience! #visuallyimpaired #legallyblind #braille #free #Hadley #stargardts #maculardegeneration
Having object permanence problems and going blind with Stargardts at the same time is going to be super fun. What could go wrong?
December 14, 2024 at 5:02 PM
Having object permanence problems and going blind with Stargardts at the same time is going to be super fun. What could go wrong?
It's good to see Michael Owen putting Stargardts in the spotlight. It's the same condition my son has. It's also good I can now provide a BBC link rather than the Daily Mail: www.bbc.co.uk/news/disabil...
Footballer Michael Owen on son's sight loss: 'I'd swap eyes with him if I could'
The father and son on getting to grips with a degenerative eye condition.
www.bbc.co.uk
January 25, 2024 at 8:16 AM
It's good to see Michael Owen putting Stargardts in the spotlight. It's the same condition my son has. It's also good I can now provide a BBC link rather than the Daily Mail: www.bbc.co.uk/news/disabil...
I love when EZ Pass texted me 1. We don’t have any toll roads in our area and 2. I haven’t been able to drive for 25 years and no cars are in my name. Bring it on, scammers!! #legallyblind #stargardts
May 25, 2025 at 1:38 AM
I love when EZ Pass texted me 1. We don’t have any toll roads in our area and 2. I haven’t been able to drive for 25 years and no cars are in my name. Bring it on, scammers!! #legallyblind #stargardts
I was diagnosed with #Stargardts Macular Degeneration when I was 6. Declared legally blind at 20 and discovered eSight when I was 43. I was hired in 2023 as a Coach.
youtu.be/FIqxVBarPvM
youtu.be/FIqxVBarPvM
Double Tap at CSUN 2025: eSight, Envision & Humanware
YouTube video by Double Tap - Your daily accessible technology show
youtu.be
March 12, 2025 at 11:34 PM
I was diagnosed with #Stargardts Macular Degeneration when I was 6. Declared legally blind at 20 and discovered eSight when I was 43. I was hired in 2023 as a Coach.
youtu.be/FIqxVBarPvM
youtu.be/FIqxVBarPvM
We are delighted to have so many fantastic organisations joining us at the Retina UK Conference on 19–20 September, at the Holiday Inn, London.
It is still not to late to register for our Annual Conference. Follow this link to find out more: https://retinauk.org.uk/event/annual-conference/
It is still not to late to register for our Annual Conference. Follow this link to find out more: https://retinauk.org.uk/event/annual-conference/
September 10, 2025 at 12:30 PM
We are delighted to have so many fantastic organisations joining us at the Retina UK Conference on 19–20 September, at the Holiday Inn, London.
It is still not to late to register for our Annual Conference. Follow this link to find out more: https://retinauk.org.uk/event/annual-conference/
It is still not to late to register for our Annual Conference. Follow this link to find out more: https://retinauk.org.uk/event/annual-conference/
This is what makes me so damn angry. With all the wealth hoarded we could actually make things so much better for people. My son has Stargardts. He needs to go to a better school. Can I afford it? Can I balls! With the amount avoided in tax and spent on weapons, we could make sure everyone is OK.
September 25, 2024 at 1:34 AM
This is what makes me so damn angry. With all the wealth hoarded we could actually make things so much better for people. My son has Stargardts. He needs to go to a better school. Can I afford it? Can I balls! With the amount avoided in tax and spent on weapons, we could make sure everyone is OK.
✨ Speaker Spotlight – Annual Conference #2 ✨
Join us for “The Participant Perspective – Reflections on Taking Part in Clinical Studies.” Hear from people with lived experience and clinical experts about research participation and its impact on the inherited sight loss community.
Join us for “The Participant Perspective – Reflections on Taking Part in Clinical Studies.” Hear from people with lived experience and clinical experts about research participation and its impact on the inherited sight loss community.
August 10, 2026 at 1:01 PM
✨ Speaker Spotlight – Annual Conference #2 ✨
Join us for “The Participant Perspective – Reflections on Taking Part in Clinical Studies.” Hear from people with lived experience and clinical experts about research participation and its impact on the inherited sight loss community.
Join us for “The Participant Perspective – Reflections on Taking Part in Clinical Studies.” Hear from people with lived experience and clinical experts about research participation and its impact on the inherited sight loss community.
Stargardts Treatment Market Research Report- 2029 www.databridgemarketresearch.com/reports/glob...
Stargardts Treatment Market Research Report- 2029
The Stargardts Treatment Market will surge at a 30% CAGR worth $1349.06 million by 2029. It's divided by Drug Type, Diagnosis, Treatment, End-Users and Distribution Mode
www.databridgemarketresearch.com
February 3, 2025 at 4:48 PM
Stargardts Treatment Market Research Report- 2029 www.databridgemarketresearch.com/reports/glob...
Stargardts Treatment Market Research Report- 2029 www.databridgemarketresearch.com/reports/glob...
Stargardts Treatment Market Research Report- 2029
The Stargardts Treatment Market will surge at a 30% CAGR worth $1349.06 million by 2029. It's divided by Drug Type, Diagnosis, Treatment, End-Users and Distribution Mode
www.databridgemarketresearch.com
January 14, 2025 at 2:49 PM
Stargardts Treatment Market Research Report- 2029 www.databridgemarketresearch.com/reports/glob...
Introducing Game Day Vision CIC A fantastic initiative created by Andrew Birch, who has #Stargardts disease "As my eye condition has worsened I have lost confidence in attending events like sports matches on my own and I prefer to go with somebody who is fully sighted"
Game Day Vision | Enriching Lives Through Shared Experiences
Game Day Vision - Empowering visually impaired individuals to access live sporting and cultural events with confidence!
buff.ly
January 31, 2025 at 11:00 AM
Introducing Game Day Vision CIC A fantastic initiative created by Andrew Birch, who has #Stargardts disease "As my eye condition has worsened I have lost confidence in attending events like sports matches on my own and I prefer to go with somebody who is fully sighted"
Few weeks ago, I became the first person in the UK to have the entire ABCA4 gene injected into the retina.
I don't know what my vision will look like on the other side. But I know the first thing I want to do.
Go to the cinema.
If you're navigating Stargardt's, this one's for you.
#Stargardts #ABCA4
I don't know what my vision will look like on the other side. But I know the first thing I want to do.
Go to the cinema.
If you're navigating Stargardt's, this one's for you.
#Stargardts #ABCA4
March 17, 2026 at 4:37 AM
Few weeks ago, I became the first person in the UK to have the entire ABCA4 gene injected into the retina.
I don't know what my vision will look like on the other side. But I know the first thing I want to do.
Go to the cinema.
If you're navigating Stargardt's, this one's for you.
#Stargardts #ABCA4
I don't know what my vision will look like on the other side. But I know the first thing I want to do.
Go to the cinema.
If you're navigating Stargardt's, this one's for you.
#Stargardts #ABCA4
Had to break out the calculator today. I was diagnosed with #Stargardts 39 years ago in 1986. Even though I still have functional vision, and my eSight Go for when I need/want it, I have decided to start taking #Braille classes.
September 16, 2025 at 1:06 AM
Had to break out the calculator today. I was diagnosed with #Stargardts 39 years ago in 1986. Even though I still have functional vision, and my eSight Go for when I need/want it, I have decided to start taking #Braille classes.
I don’t use FB often but why does the font have to be so small. Bluesky is superior in almost every way. #legallyblind #stargardts
August 2, 2025 at 1:33 AM
I don’t use FB often but why does the font have to be so small. Bluesky is superior in almost every way. #legallyblind #stargardts
All my spreadsheets are at 193% with a font of 20. #stargardts
April 30, 2025 at 12:02 PM
All my spreadsheets are at 193% with a font of 20. #stargardts
The sucky part about not being able to drive: I either have to get STBX to take me to his parents house this weekend while he is there or, I take off work on Tues or Wed and have my son take me. It is 2 hrs away so not a “quick trip”. #legallyblind #visidallyimpaired #stargardts
April 14, 2025 at 6:19 PM
The sucky part about not being able to drive: I either have to get STBX to take me to his parents house this weekend while he is there or, I take off work on Tues or Wed and have my son take me. It is 2 hrs away so not a “quick trip”. #legallyblind #visidallyimpaired #stargardts
#NORD could not have done my job w/o this group.
#OculotaneousAlbinism #Achromatopsia #Stargardts
Anisomatropia #AutonomicDysreflexia
#RIPcjq
#OculotaneousAlbinism #Achromatopsia #Stargardts
Anisomatropia #AutonomicDysreflexia
#RIPcjq
February 28, 2025 at 3:43 PM
#NORD could not have done my job w/o this group.
#OculotaneousAlbinism #Achromatopsia #Stargardts
Anisomatropia #AutonomicDysreflexia
#RIPcjq
#OculotaneousAlbinism #Achromatopsia #Stargardts
Anisomatropia #AutonomicDysreflexia
#RIPcjq