#USH2025
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ggeleoc.bsky.social
Annoucement: International Symposium on Usher Syndrome USH2025 June 19th - 21st; Nijmegen, the Netherlands.
www.ush2025.org/en/
Abstract deadline: April 11h
Registration: www.ush2025.org/en/inschrijv...
April 1, 2025 at 6:38 PM
profmariya.bsky.social
Big up to my new PhD student Mutian Lian from @ucleye.bsky.social who presented his first poster on #UsherSyndrome at his first ever scientific conference🙌🏼! The first of many!! #USH2025 #CureUsher
June 21, 2025 at 2:31 PM
profmariya.bsky.social
Very proud of my post doc Dr Maria Toms who presented today at #USH2025 in Nijmegen, Netherlands on our research on developing a non-viral #GeneTherapy for #USH2A. Thanks to the organisers for a stimulating meeting, and its accessibility 👏🏼 @moorfieldsbrc.bsky.social @ucleye.bsky.social @crick.ac.uk
Dr Maria Toms presenting at USH2025. She is standing at a podium on the left, screens projecting her slides in the background, and a sign language interpreter live on a video screen relaying all information to Usher patients in the audience.
June 20, 2025 at 2:35 PM
profmariya.bsky.social
It was my pleasure to speak at the #patient day for #USH2025 in Nijmegen today. I was able to share details of the multicentre international phase 2 #Ultevursen clinical trial run by #SepulBio for individuals with exon 13 mutations in the #USH2A gene.
June 21, 2025 at 7:32 PM
usherireland.org
Today is the 1st ever UN-recognised International Day of Deafblindness. According to stats shared at USH2025 in the NL, it’s believed over 700,000 pple globally are living with Usher syndrome - the leading genetic cause of deafblindness - with around 12,000 babies born each year with USH globally.
Shows a collection of striking individual black and white portraits of several individuals on stands in a church.
June 27, 2025 at 6:27 PM
ush2025.bsky.social
𝗨𝗦𝗛𝟮𝟬𝟮𝟱 𝗖𝗼𝗻𝗴𝗿𝗲𝘀𝘁𝗶𝘃𝗮𝗹 – 𝗗𝗼𝗻’𝘁 𝗺𝗶𝘀𝘀 𝗶𝘁! 📅 June 21, 2025 | USH community day! 🔹 Plenary session: symposium highlights, research updates & more 🔹 1-on-1 Meet the Scientist🔹 USH Market, workshops & lectures 🎟️ €75 (incl. lunch, coffee, interpreters & more)
Book now: www.ush2025.org/en/inschrijv...
photo id all logos on visual USH2025
February 21, 2025 at 8:30 PM
rick-brouwer.bsky.social
De registratie voor het 𝗨𝗦𝗛𝟮𝟬𝟮𝟱 𝗖𝗼𝗻𝗴𝗿𝗲𝘀𝘁𝗶𝘃𝗮𝗹, dat plaatsvindt op zaterdag 21 juni, de derde dag van USH2025, is nu geopend. 🧡
Meer informatie over het Congrestival vind je op onze website: www.ush2025.org/

#ush2025 #stopush #scientificconference #congrestival #ushersyndroom
January 25, 2025 at 9:35 PM
ush2025.bsky.social
Last chance! Abstract submission for #USH2025 closes March 28! 📅USH2025 | June 19-20, 2025 | Nijmegen, Netherlands 🔬Focus: Genetics, pathophysiology, disease modeling, therapeutics & clinical research 👉Register now and submit your abstract www.ush2025.org/en/inschrijv... #ushersyndrome #research
Inschrijven – USH2025
www.ush2025.org
March 11, 2025 at 4:10 PM
ush2025.bsky.social
#ushersyndrome #ushersyndroom #symposium #ushcommunity #ush2025
February 21, 2025 at 8:31 PM
usherireland.org
Our recap of #USH2025 - International Symposium on Usher Syndrome is now live, highlighting the exciting research & innovative work currently underway to find treatments for this rare disease: usherireland.org/ush2025

#UsherSyndrome #Genetics #IRD #Research #IRDs #HearingLoss #RP
A collage of six images: five young adults from the youth panel sitting on stage with the USH2025 screen behind them; the Congrestival programme resting on someone’s lap; Carol and Deborah, founders of Usher Syndrome Ireland, standing side by side in front of a stage; a photo from the Can I Catch Your Eye exhibition; Prof Ronald Pennings, Dr Erwin van Wijk, and Carol Brill in front of a research poster; and a graph showing the number of Usher syndrome research publications from 1936 to 2021, with a sharp increase in recent years. Centre caption reads: “USH2025 – What We Learned.”
July 24, 2025 at 7:32 AM