#WorldDuchenneDay
7 septembre – Journée mondiale de la myopathie de Duchenne
 
Généthon lance la phase pivot de son essai de thérapie génique : une étape historique vers un traitement contre la maladie.
 
👉
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September 7, 2025 at 12:24 PM
Today is #worldduchenneday, to create awareness about this deadly disease especially for men, that still needs a lot of research to find a cure. @DuchenneDay
Last year I made short documentary about how 4 Dutch men and their support team live with it:
youtu.be/tjaoMlSSr1o?...
Standing Strong (Samen Sterk)
YouTube video by JWBcreation | Jan-Willem Bult
youtu.be
September 7, 2026 at 11:47 AM
In the edit at full speed for a new short #documentary to premiere this Sunday 7 September on World #Duchenne Awareness Day.
Watch it via the media platforms of Duchenne Parent Project Nederland: duchenne.nl
#duchenneparentproject #duchenneday #worldduchenneday
September 3, 2025 at 11:33 AM