#asco20
Here’s what happens when a person with cancer encounters a #paywall #ASCO20 #bcsm #lcsm #btsm #gyncsm #melsm #crcsm @OncoAlert
November 18, 2024 at 8:25 AM
woohoo!! @ConquerCancerFd surpassed the million $ mark for the cancer and #COVID19 fund! Fellow #advocates we can chip in too! #ASCO20 #bcsm #btsm #lcsm #gyncsm #melsm #mmsm @oncoalert
November 18, 2024 at 8:26 AM
I cannot send enough ❤️ to EVERYONE involved with HER2CLIMB, for so many reasons but especially for the courage to include those w/ active #brainmets. #ASCO20 #bcsm @OncoAlert
November 18, 2024 at 8:25 AM
Can’t wait to #GRASPcancer at #ASCO20 and other meetings. @Maimah’s @tigerlilycares #ListenUpMBC was also incredibly powerful. I’d also like to see a one-on-one mentor program at future meetings, for first time attendees. #bcsm
November 18, 2024 at 10:36 AM
Whew! I wasn't planning on this turning into a rant, but as you can see I am passionate that people with cancer should be at the #research table, from the beginning and through out the process. #NothingAboutUsWithoutUs #ASCO20 #bcsm @OncoAlert fin/
November 18, 2024 at 10:24 AM
And don't say you can't find an advocate. WE ARE HERE! If your institution doesn't have a patient advocate group, go to an organization like @metavivor or @lbcc or @SusanGKomen Advocates in Science. Or, OMG, you can look on Twitter!!
#ASCO20 #bcsm @OncoAlert 7/
November 18, 2024 at 10:10 AM
And when the paper is published make sure every trial hero gets a copy without having to deal with a freaking #paywall!!! Paywalls are the bane of advocates. Someone should sponsor a site where we can access results about us! #ASCO20 #bcsm @OncoAlert 6/
November 18, 2024 at 9:56 AM
We can help you disseminate results, which leads to another point: ALL trial heroes should get regular updates on what the trial is showing. You wouldn't have data without them so share it! In a timely manner. #ASCO20 #bcsm @OncoAlert 5/
November 18, 2024 at 9:18 AM
We can help you recruit #ClinicalTrial volunteers (or as I call them - heroes). We have extensive #SoMe and real world networks. We are certainly motivated to help you succeed because our lives literally depend on #research. #ASCO20 #bcsm @OncoAlert 4/
November 18, 2024 at 9:05 AM
We can ensure your materials speak to the study population - which leads to another point: 1 advocate may not be enough. There needs to be #diversity in advocates, reflecting the populations that will be using the study drug or treatment. #ASCO20 #bcsm @OncoAlert 3/
November 18, 2024 at 8:52 AM
Trying to access oral abstract videos, getting “you do not currently have access” message. It’s ok - will move on to another “session” & try again - after a cup of homemade chai. #WhenLifeGivesYouErrorMessagesMakeTea (if before 5, after 5 drink 🍷) #asco20 #oncoalert
November 18, 2024 at 8:39 AM
And now can’t access anything except abstracts. Going to drink that homemade chai in the sun and try again later. #ASCO20 #OncoAlert #bcsm
November 18, 2024 at 8:39 AM
Hey Gil @weoncologists - having trouble accessing anything other than abstracts of #ASCO20, but I’ll get you an #OncoAlert video later - after chai because it’s too early for 🍷 on the west coast of the US!
November 18, 2024 at 8:39 AM
That feeling when you’re getting your #metastaticbreastcancer meds out of the cupboard before powering through #ASCO20 abstracts and your entire bottle slips out of fingers numbed by permanent neuropathy - and you realize the lid was not on tight #bcsm
November 18, 2024 at 8:39 AM
While it’s not the same as hugging friends in person while addressing #CancerDisparity at #ASCO20, I can still listen and learn with @tigerlilycares #ListenUpMBC confab! #bcsm
November 18, 2024 at 8:39 AM
Love how Dr. @tmprowell is taking time from all her #ASCO20 duties to educate about #MetastaticBreastCancer during @tigerlilycares #ListenUpMBC confab! She is a true ally and advocate for all people living with cancer.
November 18, 2024 at 8:39 AM
"did you have #advocates involved in the design of your trial?" and its correlate "were they disease AND stage appropriate?" We PWC can help you make your trials better. We can help define meaningful endpoints, and "tolerable" AEs. #ASCO20 #bcsm @OncoAlert 2/
November 18, 2024 at 8:39 AM
#AskReuters #ASCO20 clearly normal cancer care and screening is not happening d/t #COVID19. Do you think this will lead to more #metastatic cancer diagnosis and increased deaths down the road?
November 18, 2024 at 8:26 AM
Really glad this #ListenUpMBC confab during #ASCO20 is being recorded so I can catch all the breakout sessions later, but the one I’m watching has some the most kickass women I know: @Maimah @jamilkali @RickiDOVE @BraveBeauty26 @marissadt28 @christeeny513 @itsnot_pink @tmprowell
November 18, 2024 at 8:26 AM
In looking at #ASCO20 posters I have 1 thing to say to investigators: get a virtual conference friendly template because IRL 5x3 foot poster format does NOT work on a laptop/computer monitor/iPad and certainly not a phone! #MyEyesAreKillingMeAndItIsOnly3HoursIn
November 18, 2024 at 8:26 AM
gotta thank @marklewismd - his tip about using tweetdeck on laptop is making virtual #ASCO20 life so much easier! #bcsm #lcsm #btsm #gyncsm #crcsm
Not helping my numb a$$ so going to take a dog walking break, which I couldn't do if this were IRL! Score 1 for a #VirtualConference!
November 18, 2024 at 8:26 AM
While I couldn't access #ASCO20 videos/slides, Gryffindor and I went for a walk. As these abstracts/posters/videos will be available for 6 mo, we should all take time to smell the roses, or calla lillies, or whatever these pretty flowers are. Advantage of #VirtualConference
November 18, 2024 at 8:26 AM
West Coaster up at the crack of dawn for the #ASCO20 opening session! @oncoalert #bcsm
November 18, 2024 at 8:26 AM
thank you for your service as @ASCO president Dr. Skip Burris @ASCOPres, and thank you for all you do for people with cancer. Wish we #advocates could give you a hug in person. #ASCO20 #bcsm @OncoAlert
November 18, 2024 at 8:26 AM
as someone who was on gemcitabine - and is still #NotDeadYet 6.5 yrs after a #MBC diagnosis, I thank you @ASCOPres @BurrisSkip #ASCO20 #bcsm @OncoAlert
November 18, 2024 at 8:26 AM