🩸 Facts about ITP:
Pathophysiology & General Concepts
#HemeHub #Hematology #ITP #PrimaryITP #Thrombocytopenia #BleedingDisorders #MedicalEducation #MedEd #HemeOnc
Pathophysiology & General Concepts
#HemeHub #Hematology #ITP #PrimaryITP #Thrombocytopenia #BleedingDisorders #MedicalEducation #MedEd #HemeOnc
November 10, 2026 at 4:13 AM
🩸 Facts about ITP:
Pathophysiology & General Concepts
#HemeHub #Hematology #ITP #PrimaryITP #Thrombocytopenia #BleedingDisorders #MedicalEducation #MedEd #HemeOnc
Pathophysiology & General Concepts
#HemeHub #Hematology #ITP #PrimaryITP #Thrombocytopenia #BleedingDisorders #MedicalEducation #MedEd #HemeOnc
Congratulations to Hemophilia News Today columnist G. Shellye Horowitz, one of 10 artists named a 2026 Rare Artist Awardee!
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
November 5, 2026 at 5:09 PM
Congratulations to Hemophilia News Today columnist G. Shellye Horowitz, one of 10 artists named a 2026 Rare Artist Awardee!
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
Congratulations to Hemophilia News Today columnist G. Shellye Horowitz, one of 10 artists named a 2026 Rare Artist Awardee!
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
November 5, 2026 at 5:00 PM
Congratulations to Hemophilia News Today columnist G. Shellye Horowitz, one of 10 artists named a 2026 Rare Artist Awardee!
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
Read the story behind IV Couture: https://bit.ly/4izQnFp
#RareArtist #RareDiseaseWeek #Hemophilia #BleedingDisorders #Bionews
#Romania has come a long way in recent years, & there is a real reason to be optimistic about what comes next. Thank you to the Fundeni team & Asociatia Romana de Hemofilie (ARH) for their openness and commitment to people with #BleedingDisorders. 💪
November 3, 2026 at 4:29 PM
#Romania has come a long way in recent years, & there is a real reason to be optimistic about what comes next. Thank you to the Fundeni team & Asociatia Romana de Hemofilie (ARH) for their openness and commitment to people with #BleedingDisorders. 💪
The discussion focused on how to strengthen #BleedingDisorders care in Romania, including:
✅ a national network of treatment centres
✅ home-based treatment
✅ a functional national registry
✅ equitable access to prophylaxis & modern therapies
✅ a national network of treatment centres
✅ home-based treatment
✅ a functional national registry
✅ equitable access to prophylaxis & modern therapies
November 2, 2026 at 10:30 AM
The discussion focused on how to strengthen #BleedingDisorders care in Romania, including:
✅ a national network of treatment centres
✅ home-based treatment
✅ a functional national registry
✅ equitable access to prophylaxis & modern therapies
✅ a national network of treatment centres
✅ home-based treatment
✅ a functional national registry
✅ equitable access to prophylaxis & modern therapies
⏳ Have you registered for the #EHCExhibition & #EHCRoundTable on Women & Girls with #BleedingDisorders, hosted by MEP Nicolás González Casares? 🗓️ 17-19 Nov 📍 EU Parliament, Brussels 🔗 Register now 👉 buff.ly/7Zl5VVd
Bleeding Disorders in Women: EHC at the European Parliament
EHC exhibition at the European Parliament, 17-19 November 2026, on women and girls with bleeding disorders. Register now.
buff.ly
November 3, 2026 at 11:00 AM
⏳ Have you registered for the #EHCExhibition & #EHCRoundTable on Women & Girls with #BleedingDisorders, hosted by MEP Nicolás González Casares? 🗓️ 17-19 Nov 📍 EU Parliament, Brussels 🔗 Register now 👉 buff.ly/7Zl5VVd
✅ 🌍 #NewTech2026 has come to a close in Bucharest! A big thank you to all speakers, EHC NMOs, HCPs & patients who made this final edition a success. See you in 2027 for the #EHCLeadershipAndInnovation Conference in Brussels! #BleedingDisorders
November 1, 2026 at 10:37 AM
✅ 🌍 #NewTech2026 has come to a close in Bucharest! A big thank you to all speakers, EHC NMOs, HCPs & patients who made this final edition a success. See you in 2027 for the #EHCLeadershipAndInnovation Conference in Brussels! #BleedingDisorders
The EHC #NewTech2026 Conference has officially started in Bucharest, Romania. It’s time to explore all the updates on emerging #BleedingDisorders treatments, new technologies, & what these advances could mean for the future of care!
October 31, 2026 at 7:36 AM
The EHC #NewTech2026 Conference has officially started in Bucharest, Romania. It’s time to explore all the updates on emerging #BleedingDisorders treatments, new technologies, & what these advances could mean for the future of care!
📸 The #EHC2026 Conference photos are here! Relive three days of the #BleedingDisorders community coming together in Istanbul, from the sessions to the exhibition area. Browse the full album 👉 buff.ly/Pijxzy9
October 28, 2026 at 11:30 AM
📸 The #EHC2026 Conference photos are here! Relive three days of the #BleedingDisorders community coming together in Istanbul, from the sessions to the exhibition area. Browse the full album 👉 buff.ly/Pijxzy9
🔹 Future perspectives and European policy priorities, with the participation of the European Commission (DG SANTE)
🔹 Q&A and discussion
Full programme: buff.ly/noRNbtx
#EHCRoundTable #WomenWithBleedingDisorders #BleedingDisorders
🔹 Q&A and discussion
Full programme: buff.ly/noRNbtx
#EHCRoundTable #WomenWithBleedingDisorders #BleedingDisorders
October 27, 2026 at 10:00 AM
🔹 Future perspectives and European policy priorities, with the participation of the European Commission (DG SANTE)
🔹 Q&A and discussion
Full programme: buff.ly/noRNbtx
#EHCRoundTable #WomenWithBleedingDisorders #BleedingDisorders
🔹 Q&A and discussion
Full programme: buff.ly/noRNbtx
#EHCRoundTable #WomenWithBleedingDisorders #BleedingDisorders
🗣️ The #EHCRoundTable “Breaking the Silence” programme is now available, covering:
🔹 Early diagnosis of #BleedingDisorders in women & girls
🔹 The patient journey from first period to menopause
🔹 Challenging misconceptions and giving women a choice
🔹 Early diagnosis of #BleedingDisorders in women & girls
🔹 The patient journey from first period to menopause
🔹 Challenging misconceptions and giving women a choice
October 27, 2026 at 10:00 AM
🗣️ The #EHCRoundTable “Breaking the Silence” programme is now available, covering:
🔹 Early diagnosis of #BleedingDisorders in women & girls
🔹 The patient journey from first period to menopause
🔹 Challenging misconceptions and giving women a choice
🔹 Early diagnosis of #BleedingDisorders in women & girls
🔹 The patient journey from first period to menopause
🔹 Challenging misconceptions and giving women a choice
📣 Register for the #EHCExhibition & #EHCRoundTable on Women & Girls with #BleedingDisorders, hosted by MEP Nicolás González Casares at the European Parliament in Brussels! 🌟 17 Nov, 12:30-14:00 CET: Exhibition opening 🗣️ 17 Nov, 14:00-16:00 CET: Round Table 🖼 17-19 Nov: Exhibition open to visitors
October 27, 2026 at 10:00 AM
📣 Register for the #EHCExhibition & #EHCRoundTable on Women & Girls with #BleedingDisorders, hosted by MEP Nicolás González Casares at the European Parliament in Brussels! 🌟 17 Nov, 12:30-14:00 CET: Exhibition opening 🗣️ 17 Nov, 14:00-16:00 CET: Round Table 🖼 17-19 Nov: Exhibition open to visitors
📍 #EHCRoundTable seats are limited & registrations are reviewed, so register soon. EHC National Member Organisations can also apply for a travel grant. 👉 Register for our opening events: buff.ly/S86yMaO
#BleedingDisorders #EHCExhibition #WomenWithBleedingDisorders #WomensHealth #EUHealth
#BleedingDisorders #EHCExhibition #WomenWithBleedingDisorders #WomensHealth #EUHealth
Bleeding Disorders in Women: EHC at the European Parliament
EHC exhibition at the European Parliament, 17-19 November 2026, on women and girls with bleeding disorders. Register now.
buff.ly
October 27, 2026 at 10:00 AM
📍 #EHCRoundTable seats are limited & registrations are reviewed, so register soon. EHC National Member Organisations can also apply for a travel grant. 👉 Register for our opening events: buff.ly/S86yMaO
#BleedingDisorders #EHCExhibition #WomenWithBleedingDisorders #WomensHealth #EUHealth
#BleedingDisorders #EHCExhibition #WomenWithBleedingDisorders #WomensHealth #EUHealth
📄 The executive summary of the #EHCRoundTable on #BleedingDisorders & #CardiovascularCare, hosted by MEP Aurelijus Veryga, is out! ❤️ How do we protect the hearts of people living with bleeding disorders? Read the key messages 👉 buff.ly/ZrvXO5U
October 26, 2026 at 8:30 AM
📄 The executive summary of the #EHCRoundTable on #BleedingDisorders & #CardiovascularCare, hosted by MEP Aurelijus Veryga, is out! ❤️ How do we protect the hearts of people living with bleeding disorders? Read the key messages 👉 buff.ly/ZrvXO5U
Last month I had the honor of interviewing NBDF CEO Phil Gattone and speaking about accessing health care to the NCBDF Fallfest.
It’s such a blessing to have partners that collaborate & work together to ensure patients have the best access to care!
#bleedingdisorders #advocacy #education
It’s such a blessing to have partners that collaborate & work together to ensure patients have the best access to care!
#bleedingdisorders #advocacy #education
October 25, 2026 at 4:24 AM
Last month I had the honor of interviewing NBDF CEO Phil Gattone and speaking about accessing health care to the NCBDF Fallfest.
It’s such a blessing to have partners that collaborate & work together to ensure patients have the best access to care!
#bleedingdisorders #advocacy #education
It’s such a blessing to have partners that collaborate & work together to ensure patients have the best access to care!
#bleedingdisorders #advocacy #education
A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
October 23, 2026 at 10:31 AM
A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
October 23, 2026 at 7:30 AM
A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
Udeležujem se Vrha o globalni politiki in dostopu #GPAS2026 #wfhemophilia
Diskusija gre v smeri krepitve zagovorniških prizadevanj in spodbujanja smiselnih sprememb politik za skupnost bolnikov z motnjami strjevanja krvi.
Več na:
www.facebook.com/share/p/19iR...
#hemophilia #bleedingdisorders
Diskusija gre v smeri krepitve zagovorniških prizadevanj in spodbujanja smiselnih sprememb politik za skupnost bolnikov z motnjami strjevanja krvi.
Več na:
www.facebook.com/share/p/19iR...
#hemophilia #bleedingdisorders
October 20, 2026 at 7:09 PM
Udeležujem se Vrha o globalni politiki in dostopu #GPAS2026 #wfhemophilia
Diskusija gre v smeri krepitve zagovorniških prizadevanj in spodbujanja smiselnih sprememb politik za skupnost bolnikov z motnjami strjevanja krvi.
Več na:
www.facebook.com/share/p/19iR...
#hemophilia #bleedingdisorders
Diskusija gre v smeri krepitve zagovorniških prizadevanj in spodbujanja smiselnih sprememb politik za skupnost bolnikov z motnjami strjevanja krvi.
Več na:
www.facebook.com/share/p/19iR...
#hemophilia #bleedingdisorders
TODAY! Health equity means reaching everyone. VillageReach President and CEO Dr. Ahmed Ogwell (Dr. Ahmed OGWELL - FAPH) delivers the keynote at #GPAS2026: 9 a.m. EDT / 2 p.m. BST / 3 p.m. CAT. Free and virtual.
Register: https://ow.ly/BVA650ZYYcF #BleedingDisorders
Register: https://ow.ly/BVA650ZYYcF #BleedingDisorders
October 20, 2026 at 12:30 PM
TODAY! Health equity means reaching everyone. VillageReach President and CEO Dr. Ahmed Ogwell (Dr. Ahmed OGWELL - FAPH) delivers the keynote at #GPAS2026: 9 a.m. EDT / 2 p.m. BST / 3 p.m. CAT. Free and virtual.
Register: https://ow.ly/BVA650ZYYcF #BleedingDisorders
Register: https://ow.ly/BVA650ZYYcF #BleedingDisorders
The BDCC Board spent this weekend brainstorming & planning for our 2027 advocacy & education programs. Our team is committed to providing leadership in health policy & mobilizing grassroots advocates to fight for access to care.
#bleedingdisorders #raredisease #advocacy #education #boardofdirectors
#bleedingdisorders #raredisease #advocacy #education #boardofdirectors
October 18, 2026 at 10:12 PM
The BDCC Board spent this weekend brainstorming & planning for our 2027 advocacy & education programs. Our team is committed to providing leadership in health policy & mobilizing grassroots advocates to fight for access to care.
#bleedingdisorders #raredisease #advocacy #education #boardofdirectors
#bleedingdisorders #raredisease #advocacy #education #boardofdirectors
❤️ Our family-focused #Haemcast series with #LFWBD explores what it's really like to live with a bleeding disorder — and there's more to come soon.
🎧 Available across #podcast platforms and via link
🔗 https://loom.ly/A4UWu6M
#bleedingdisorders #families
🎧 Available across #podcast platforms and via link
🔗 https://loom.ly/A4UWu6M
#bleedingdisorders #families
October 14, 2026 at 12:01 PM
❤️ Our family-focused #Haemcast series with #LFWBD explores what it's really like to live with a bleeding disorder — and there's more to come soon.
🎧 Available across #podcast platforms and via link
🔗 https://loom.ly/A4UWu6M
#bleedingdisorders #families
🎧 Available across #podcast platforms and via link
🔗 https://loom.ly/A4UWu6M
#bleedingdisorders #families
The#WorldMentalHealthDay theme "Lived experiences heard: Real voices, real change" speaks to us. In our research, people impacted by #bleedingdisorders tell us they need more #mentalhealth support. #Livedexperience can inform positive change in policies, services & care.
#HemeSky #MedSky
#HemeSky #MedSky
October 10, 2026 at 8:30 AM
The#WorldMentalHealthDay theme "Lived experiences heard: Real voices, real change" speaks to us. In our research, people impacted by #bleedingdisorders tell us they need more #mentalhealth support. #Livedexperience can inform positive change in policies, services & care.
#HemeSky #MedSky
#HemeSky #MedSky
📣 #WorldMentalHealthDay: EHC launches its #MentalHealth Toolkit for the #BleedingDisorders community, built on the lived experience of 325 patients, carriers & caregivers in 27 countries. For patients, carriers, caregivers, HCPs & EHC NMOs 👉️ buff.ly/m1xyzPX
October 10, 2026 at 7:00 AM
📣 #WorldMentalHealthDay: EHC launches its #MentalHealth Toolkit for the #BleedingDisorders community, built on the lived experience of 325 patients, carriers & caregivers in 27 countries. For patients, carriers, caregivers, HCPs & EHC NMOs 👉️ buff.ly/m1xyzPX
We're proud to share the news that Dr Kate Khair has joined the board of #bleedingdisorders charity Save One Life.
She shares some of what has brought her there on the Haemnet #blog.
https://loom.ly/fYr3h78
@katekhair.bsky.social #HemeSky #MedSky
She shares some of what has brought her there on the Haemnet #blog.
https://loom.ly/fYr3h78
@katekhair.bsky.social #HemeSky #MedSky
October 5, 2026 at 8:00 AM
We're proud to share the news that Dr Kate Khair has joined the board of #bleedingdisorders charity Save One Life.
She shares some of what has brought her there on the Haemnet #blog.
https://loom.ly/fYr3h78
@katekhair.bsky.social #HemeSky #MedSky
She shares some of what has brought her there on the Haemnet #blog.
https://loom.ly/fYr3h78
@katekhair.bsky.social #HemeSky #MedSky