For info on childhood dementia check out this paper in the journal Brain published last year
#childhooddementia #research #genomics #neuroscience academic.oup.com/brain/articl...
#childhooddementia #research #genomics #neuroscience academic.oup.com/brain/articl...
November 18, 2024 at 7:49 AM
For info on childhood dementia check out this paper in the journal Brain published last year
#childhooddementia #research #genomics #neuroscience academic.oup.com/brain/articl...
#childhooddementia #research #genomics #neuroscience academic.oup.com/brain/articl...
🌟 Dr Chris Knifton discusses accessible training for neurodivergent carers & raises awareness of childhood dementia at the ARC East Midlands Symposium. @arc-em.bsky.social #DementiaCare #ChildhoodDementia #Accessibility
youtu.be/lx6Pdf6M4Jo
youtu.be/lx6Pdf6M4Jo
Supporting Neurodivergent Carers with Accessible Dementia Info & conversations on Childhood Dementia
YouTube video by Dementia Researcher
youtu.be
November 22, 2024 at 11:35 AM
🌟 Dr Chris Knifton discusses accessible training for neurodivergent carers & raises awareness of childhood dementia at the ARC East Midlands Symposium. @arc-em.bsky.social #DementiaCare #ChildhoodDementia #Accessibility
youtu.be/lx6Pdf6M4Jo
youtu.be/lx6Pdf6M4Jo
My wonderful husband is doing a charity ride later this year to raise money for childhood dementia research:
www.instagram.com/reel/DUCumRZ...
www.instagram.com/reel/DUCumRZ...
_ride379_ on Instagram: "The donation page is live! Click the link in my bio to donate and be in the running for a $100 visa gift card. All ya need to do is…"
The donation page is live! Click the link in my bio to donate and be in the running for a $100 visa gift card. All ya need to do is donate $25 or more before Feb 11th 8pm. #littleheroesfoundation #charityride #fundraiser #southaustralia #childhooddementia
www.instagram.com
January 28, 2026 at 8:04 AM
My wonderful husband is doing a charity ride later this year to raise money for childhood dementia research:
www.instagram.com/reel/DUCumRZ...
www.instagram.com/reel/DUCumRZ...
CLN2 is a rare genetic disease. Children develop normally at first — then around age 2–4 come seizures, loss of speech and movement, blindness, and progressive loss of skills, as neurons are destroyed. #BattenDisease #childhooddementia #raredisease
June 2, 2026 at 9:23 AM
CLN2 is a rare genetic disease. Children develop normally at first — then around age 2–4 come seizures, loss of speech and movement, blindness, and progressive loss of skills, as neurons are destroyed. #BattenDisease #childhooddementia #raredisease
Our CEO, Sara, attended a parliamentary event today in Scotland
The Childhood Dementia Awareness Raising event was held at the Scottish Parliament. The event included a presentation about 'Childhood Dementia in Scotland 2025: A Report for the Scottish Government' 💬
#ChildhoodDementia #Leukodystrophy
The Childhood Dementia Awareness Raising event was held at the Scottish Parliament. The event included a presentation about 'Childhood Dementia in Scotland 2025: A Report for the Scottish Government' 💬
#ChildhoodDementia #Leukodystrophy
December 11, 2025 at 3:30 PM
Our CEO, Sara, attended a parliamentary event today in Scotland
The Childhood Dementia Awareness Raising event was held at the Scottish Parliament. The event included a presentation about 'Childhood Dementia in Scotland 2025: A Report for the Scottish Government' 💬
#ChildhoodDementia #Leukodystrophy
The Childhood Dementia Awareness Raising event was held at the Scottish Parliament. The event included a presentation about 'Childhood Dementia in Scotland 2025: A Report for the Scottish Government' 💬
#ChildhoodDementia #Leukodystrophy
www.myscrappydays.com/news.php?slu... — 🧠 Childhood Dementia: when dementia strikes children🌟 A surprising nameWhen we hear the word dementi… #Childhooddementia #Rarediseases #Battendisease #Sanfilipposyndrome #NiemannPickdisease #Geneticdisorders #Dementiainchildren #Neurodegenerativediseases
Childhood Dementia: Understanding the Silent Tragedy of Childhood
🧠 Childhood Dementia: when dementia strikes children🌟 A surprising nameWhen we hear the word dementi
www.myscrappydays.com
November 10, 2025 at 6:58 PM
www.myscrappydays.com/news.php?slu... — 🧠 Childhood Dementia: when dementia strikes children🌟 A surprising nameWhen we hear the word dementi… #Childhooddementia #Rarediseases #Battendisease #Sanfilipposyndrome #NiemannPickdisease #Geneticdisorders #Dementiainchildren #Neurodegenerativediseases
🧠 Tiny brains, BIG hopes! @sydney.edu.au Lecturer Ann-Na Cho's brain-on-a-chip tech could transform research into childhood dementia & more – no animal models needed. A breakthrough for young lives & big cures! 👶🔬
#NCRIS #ANFFNetwork #MedTech #BrainResearch #ChildhoodDementia #BiomedicalEngineering
#NCRIS #ANFFNetwork #MedTech #BrainResearch #ChildhoodDementia #BiomedicalEngineering
Little brains to help our kids
Dr Ann-Na Cho’s hBMS system harnesses the power of microfluidics to create realistic brain organoids to unlock the secrets of childhood dementia. Dementia doesn’t just affect adults; children and teen...
anff.org.au
May 14, 2025 at 12:53 AM
🧠 Tiny brains, BIG hopes! @sydney.edu.au Lecturer Ann-Na Cho's brain-on-a-chip tech could transform research into childhood dementia & more – no animal models needed. A breakthrough for young lives & big cures! 👶🔬
#NCRIS #ANFFNetwork #MedTech #BrainResearch #ChildhoodDementia #BiomedicalEngineering
#NCRIS #ANFFNetwork #MedTech #BrainResearch #ChildhoodDementia #BiomedicalEngineering
Join an 'Introduction to Childhood Dementia' webinar on 20th May from 12.30-13:30 (BST/UK time) 💻
To find out more, including how to register to attend: https://alextlc.org/news/childhood-dementia-webinar/
#ChildhoodDementia #Leukodystrophy
To find out more, including how to register to attend: https://alextlc.org/news/childhood-dementia-webinar/
#ChildhoodDementia #Leukodystrophy
May 3, 2026 at 1:00 PM
Join an 'Introduction to Childhood Dementia' webinar on 20th May from 12.30-13:30 (BST/UK time) 💻
To find out more, including how to register to attend: https://alextlc.org/news/childhood-dementia-webinar/
#ChildhoodDementia #Leukodystrophy
To find out more, including how to register to attend: https://alextlc.org/news/childhood-dementia-webinar/
#ChildhoodDementia #Leukodystrophy
Alex TLC and our support is discussed within the report. The report also mentions the Inherited White Matter Disorders (IWMD) Service and our role as lead patient representative 💙
To read the report: https://alextlc.org/news/childhood-dementia-care-report/
#ChildhoodDementia #Leukodystrophy
To read the report: https://alextlc.org/news/childhood-dementia-care-report/
#ChildhoodDementia #Leukodystrophy
January 9, 2026 at 3:01 PM
Alex TLC and our support is discussed within the report. The report also mentions the Inherited White Matter Disorders (IWMD) Service and our role as lead patient representative 💙
To read the report: https://alextlc.org/news/childhood-dementia-care-report/
#ChildhoodDementia #Leukodystrophy
To read the report: https://alextlc.org/news/childhood-dementia-care-report/
#ChildhoodDementia #Leukodystrophy
Not just for the aged: What you need to know about dementia in young adults and kids #alzheimer039sdiseasefoundationmalaysia #caregivingchallenges #childhooddementia #kualalumpur #liyananajwainchemat #youngonsetdementia
Not just for the aged: What you need to know about dementia in young adults and kids
KUALA LUMPUR, Sept 4 — When most people think of dementia, they picture a frail elderly person in their late 60s, struggling to recall a simple detail.But here’s the...
www.malaymail.com
September 4, 2025 at 12:20 AM
Not just for the aged: What you need to know about dementia in young adults and kids #alzheimer039sdiseasefoundationmalaysia #caregivingchallenges #childhooddementia #kualalumpur #liyananajwainchemat #youngonsetdementia
Not just for the aged: What you need to know about dementia in young adults and kids #alzheimer039sdiseasefoundationmalaysia #caregivingchallenges #childhooddementia #kualalumpur #liyananajwainchemat #youngonsetdementia
Not just for the aged: What you need to know about dementia in young adults and kids
KUALA LUMPUR, Sept 4 — When most people think of dementia, they picture a frail elderly person in their late 60s, struggling to recall a simple detail.But here’s the...
www.malaymail.com
September 4, 2025 at 12:15 AM
Not just for the aged: What you need to know about dementia in young adults and kids #alzheimer039sdiseasefoundationmalaysia #caregivingchallenges #childhooddementia #kualalumpur #liyananajwainchemat #youngonsetdementia
From heartbreak to global change! Join Megan Maack, CEO of @Child_Dementia, in uniting over 100 conditions for research! #ChildhoodDementia #RareDisease #Advocacy rarerevolutionmagazine.com/rare-insider...
Megan Maack of Childhood Dementia Initiative
Women in RARE Megan Maack of Childhood Dementia Initiative - overcoming challenges and driving meaningful change in this field.
rarerevolutionmagazine.com
July 14, 2025 at 9:08 AM
From heartbreak to global change! Join Megan Maack, CEO of @Child_Dementia, in uniting over 100 conditions for research! #ChildhoodDementia #RareDisease #Advocacy rarerevolutionmagazine.com/rare-insider...