Hi hi here's a link at some amazing ideas you can do for your charity stream. I was going to name a few but this page has a lot more! donordrivecontent.com/curesma/file...
donordrivecontent.com
November 24, 2024 at 3:13 PM
Hi hi here's a link at some amazing ideas you can do for your charity stream. I was going to name a few but this page has a lot more! donordrivecontent.com/curesma/file...
gofund.me/4f893b46
If you’re able to share, please make sure the post is public so it reaches more people. Your kindness means the world to us—thank you from the bottom of my heart. ♥️
#gofundme #SMA #donate
#cureSMA #MomLife #BraveGirls #dogmom #rescuedog #PleaseShare #Medicaid #SpreadTheWord
If you’re able to share, please make sure the post is public so it reaches more people. Your kindness means the world to us—thank you from the bottom of my heart. ♥️
#gofundme #SMA #donate
#cureSMA #MomLife #BraveGirls #dogmom #rescuedog #PleaseShare #Medicaid #SpreadTheWord
Donate to Support Ashley and Her Girls in Their Time of Need, organized by Jeff Mlagan
Hi, my name is Jeff, and I’m raising funds to support a family who mean… Jeff Mlagan needs your support for Support Ashley and Her Girls in Their Time of Need
gofund.me
March 10, 2025 at 6:09 PM
gofund.me/4f893b46
If you’re able to share, please make sure the post is public so it reaches more people. Your kindness means the world to us—thank you from the bottom of my heart. ♥️
#gofundme #SMA #donate
#cureSMA #MomLife #BraveGirls #dogmom #rescuedog #PleaseShare #Medicaid #SpreadTheWord
If you’re able to share, please make sure the post is public so it reaches more people. Your kindness means the world to us—thank you from the bottom of my heart. ♥️
#gofundme #SMA #donate
#cureSMA #MomLife #BraveGirls #dogmom #rescuedog #PleaseShare #Medicaid #SpreadTheWord
Drop by Lisabet Sarai's site to learn about the great cause she's hosting today!
ymlpcl2.com/14078jewmaka...
ymlpcl2.com/14078jewmaka...
Charity Sunday: For the joys we take for granted – #CureSMA #Research #CharitySunday
Welcome to this month’s Charity Sunday. As you probably know by now, I devote the last Sunday of each month to showcasing some ...
ymlpcl2.com
February 23, 2025 at 2:56 PM
Drop by Lisabet Sarai's site to learn about the great cause she's hosting today!
ymlpcl2.com/14078jewmaka...
ymlpcl2.com/14078jewmaka...
Hi! I’ve got a super easy advocacy ask for you. Easy b/c it takes just a minute to do & b/c advocating for additional funding for SMA is a no-brainer. 😉
Choose your state, fill in how info, and submit.
My kids say *thank you*!! 💜🧡
#CureSMA
You can sign on here: www.curesma.org/wp-content/u...
Choose your state, fill in how info, and submit.
My kids say *thank you*!! 💜🧡
#CureSMA
You can sign on here: www.curesma.org/wp-content/u...
www.curesma.org
February 13, 2025 at 1:25 AM
Hi! I’ve got a super easy advocacy ask for you. Easy b/c it takes just a minute to do & b/c advocating for additional funding for SMA is a no-brainer. 😉
Choose your state, fill in how info, and submit.
My kids say *thank you*!! 💜🧡
#CureSMA
You can sign on here: www.curesma.org/wp-content/u...
Choose your state, fill in how info, and submit.
My kids say *thank you*!! 💜🧡
#CureSMA
You can sign on here: www.curesma.org/wp-content/u...
Please share & donate to support this amazing family in their time of need. Thank you so much!! ❤️
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
Donate to Support Ashley and Her Girls in Their Time of Need, organized by Jeff Mlagan
Hi, my name is Jeff, and I’m raising funds to support a family who mean… Jeff Mlagan needs your support for Support Ashley and Her Girls in Their Time of Need
gofund.me
March 17, 2025 at 6:46 PM
Please share & donate to support this amazing family in their time of need. Thank you so much!! ❤️
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
Please donate and share to support this wonderful family. Every little bit helps. Thank you!! ❤️❤️❤️
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
Donate to Support Ashley and Her Girls in Their Time of Need, organized by Jeff Mlagan
Hi, my name is Jeff, and I’m raising funds to support a family who mean… Jeff Mlagan needs your support for Support Ashley and Her Girls in Their Time of Need
gofund.me
March 12, 2025 at 1:22 AM
Please donate and share to support this wonderful family. Every little bit helps. Thank you!! ❤️❤️❤️
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
#GoFundMe #Fundraiser #Donate #Hope #CommunitySupport #HelpingHands #Medical #DisabilityAwareness #SpecialNeeds #SMA #CureSMA #MomStrong #Dog #RescueDog #DogsAreFamily #TherapyDog
gofund.me/3b5f54c2
Honored to join @CureSMA to recognize their work empowering families and advocating for those living with spinal muscular atrophy. I will keep pushing for all Disabled Adult Children to ensure their benefits if they get married. They shouldn’t have to choose between benefits and love.
September 19, 2025 at 10:00 PM
Honored to join @CureSMA to recognize their work empowering families and advocating for those living with spinal muscular atrophy. I will keep pushing for all Disabled Adult Children to ensure their benefits if they get married. They shouldn’t have to choose between benefits and love.
SMA Europe was pleased to join the Cure SMA Annual SMA Conference in Orlando, 23–28 June 2026. Federica Fontana presented our work on EUPESMA 2025, community-driven research priorities, and the SMA Emergency Card template.
Thank you to Cure SMA and the global SMA community!
#SMA #CureSMA #Advocacy
Thank you to Cure SMA and the global SMA community!
#SMA #CureSMA #Advocacy
July 14, 2026 at 9:30 AM
Send a message here www.votervoice.net/CureSMA/Camp...
Help Individuals with SMA Save for their Financial Futures
The Supplemental Security Income (SSI) Program is an economic lifeline for individuals with SMA and other disabilities in helping to meet basic living needs such as food, clothing, and shelter. H...
www.votervoice.net
September 19, 2023 at 2:06 PM
Send a message here www.votervoice.net/CureSMA/Camp...
The Supplemental Security Income (SSI) Program is an economic lifeline for individuals with SMA and other disabilities in helping to meet basic living needs such as food, clothing, and shelter.
www.votervoice.net/CureSMA/Camp...
www.votervoice.net/CureSMA/Camp...
Increase the Asset Limits and Eliminate the Marriage Penalty within the Supplemental Security Income Program
The Supplemental Security Income (SSI) Program is an economic lifeline for individuals with SMA and other disabilities in helping to meet basic living needs such as food, clothing, and shelter. H...
www.votervoice.net
April 2, 2025 at 9:10 PM
The Supplemental Security Income (SSI) Program is an economic lifeline for individuals with SMA and other disabilities in helping to meet basic living needs such as food, clothing, and shelter.
www.votervoice.net/CureSMA/Camp...
www.votervoice.net/CureSMA/Camp...
August is SMA Awareness Month. SMA affects motor nerve cells and can affect breathing, eating, crawling, and walking. We recognize people living with SMA, as well as the families and caregivers who support them. www.curesma.org/sma-awarenes... #SMAAwarenessMonth #CureSMA
August 10, 2026 at 4:02 PM
August is SMA Awareness Month. SMA affects motor nerve cells and can affect breathing, eating, crawling, and walking. We recognize people living with SMA, as well as the families and caregivers who support them. www.curesma.org/sma-awarenes... #SMAAwarenessMonth #CureSMA
February 28, 2026 at 6:59 PM
Happening now at #CORD conference, a powerful panel including some incredible patient advocates! #rarediseases
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
November 26, 2024 at 6:31 PM
Happening now at #CORD conference, a powerful panel including some incredible patient advocates! #rarediseases
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
ICYMI: A mother’s fight for a $2M SMA 🧬 treatment & a look inside FAA medical certification for pilots ✈️. Tune in! 🎙️👇 @wjct @FCConair @CureSMA @UMiamiHealth @MayoClinic @asuhealth @swoelfel @AANmember @heatherschatz
news.wjct.org/show/whats-h...
news.wjct.org/show/whats-h...
The price of love; health care in the air
On this week's program, Dr. Joe Sirven explores the true price of love.
news.wjct.org
February 15, 2025 at 9:05 PM
ICYMI: A mother’s fight for a $2M SMA 🧬 treatment & a look inside FAA medical certification for pilots ✈️. Tune in! 🎙️👇 @wjct @FCConair @CureSMA @UMiamiHealth @MayoClinic @asuhealth @swoelfel @AANmember @heatherschatz
news.wjct.org/show/whats-h...
news.wjct.org/show/whats-h...
Tune in Sat 2/15 at 4 PM ET on
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
snoopy is holding a flower in his hand and saying thank you for today .
ALT: snoopy is holding a flower in his hand and saying thank you for today .
media.tenor.com
February 15, 2025 at 12:42 PM
Tune in Sat 2/15 at 4 PM ET on
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
Tune in Sat 2/15 at 4 PM ET on
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
February 11, 2025 at 9:37 PM
Tune in Sat 2/15 at 4 PM ET on
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
@wjct
@FCConair
! A mother’s fight for a $2M SMA treatment
@CureSMA
@UMiamiHealth
& a look inside FAA medical certification for pilots w/
@MayoClinic
Speicher. Don’t miss it!
@heatherschatz
@asuhealth
@swoelfel
@AANmember
Last minute errands before the CureSMA conference at Disneyland. Also Donna isn’t sunburnt… she turns bright red when she’s hot… she’s fine. #alliewheelz #SpinalMuscularAtrophy #Disney
June 23, 2025 at 7:45 PM
Last minute errands before the CureSMA conference at Disneyland. Also Donna isn’t sunburnt… she turns bright red when she’s hot… she’s fine. #alliewheelz #SpinalMuscularAtrophy #Disney
I wanted to share this excellent resource from the CureSMA website. They have easy to use online forms to assist with writing and sending letters of advocacy in support of protecting Medicaid to your representatives in Congress. Use your voice www.curesma.org/advocacy-act...
Advocacy Action Center - Cure SMA
www.curesma.org
February 27, 2025 at 4:06 AM
I wanted to share this excellent resource from the CureSMA website. They have easy to use online forms to assist with writing and sending letters of advocacy in support of protecting Medicaid to your representatives in Congress. Use your voice www.curesma.org/advocacy-act...
Add a comment to my #CharitySunday blog post.
Every one becomes a donation to a great cause.
lisabetsarai.blogspot.com/2025/02/char...
Every one becomes a donation to a great cause.
lisabetsarai.blogspot.com/2025/02/char...
Charity Sunday: For the joys we take for granted – #CureSMA #Research #CharitySunday
Welcome to this month’s Charity Sunday. As you probably know by now, I devote the last Sunday of each month to showcasing some ...
lisabetsarai.blogspot.com
February 26, 2025 at 12:35 PM
Add a comment to my #CharitySunday blog post.
Every one becomes a donation to a great cause.
lisabetsarai.blogspot.com/2025/02/char...
Every one becomes a donation to a great cause.
lisabetsarai.blogspot.com/2025/02/char...
Please sign! The current asset limit for those on SSI is $2000. It's been that way since 1989. We need to tell the US government to give our fellow citizens a raise! www.votervoice.net/CureSMA/Camp...
Increase the Asset Limits and Eliminate the Marriage Penalty within the Supplemental Security Income Program
The Supplemental Security Income (SSI) Program is an economic lifeline for individuals with SMA and other disabilities in helping to meet basic living needs such as food, clothing, and shelter. H...
www.votervoice.net
April 1, 2025 at 8:25 PM
Please sign! The current asset limit for those on SSI is $2000. It's been that way since 1989. We need to tell the US government to give our fellow citizens a raise! www.votervoice.net/CureSMA/Camp...
SMA Europe joined the Cure SMA Conference, joining key talks on SMA research.
Big thanks to Cure SMA for a great event! Let’s keep the momentum going:
🔗 Milan, 29–30 August 2025: sma-europe.eu/sma-care-symposium
🔗 Budapest, March 2026: https://congress.sma-europe.eu/
#WeAreOne #SMA #SMACommunity
Big thanks to Cure SMA for a great event! Let’s keep the momentum going:
🔗 Milan, 29–30 August 2025: sma-europe.eu/sma-care-symposium
🔗 Budapest, March 2026: https://congress.sma-europe.eu/
#WeAreOne #SMA #SMACommunity
July 21, 2025 at 12:02 PM
SMA Europe joined the Cure SMA Conference, joining key talks on SMA research.
Big thanks to Cure SMA for a great event! Let’s keep the momentum going:
🔗 Milan, 29–30 August 2025: sma-europe.eu/sma-care-symposium
🔗 Budapest, March 2026: https://congress.sma-europe.eu/
#WeAreOne #SMA #SMACommunity
Big thanks to Cure SMA for a great event! Let’s keep the momentum going:
🔗 Milan, 29–30 August 2025: sma-europe.eu/sma-care-symposium
🔗 Budapest, March 2026: https://congress.sma-europe.eu/
#WeAreOne #SMA #SMACommunity