#pelvicfloordysfunction #ehlersdanossyndrome #midnightballerina

Ok this is ridiculous right?! 🧏🏻‍♀️Or is it just me 🙋🏻‍♀️🤷🏻‍♀️🤦🏻‍♀️I have to spend $400 to get 🧬 tests to prove the type of #EhlersDanosSyndrome
I have?! What if you don’t have $400? You live on SSI. That’s insulting. #julydisabilitypridemonth
I have #cv-EDS and been denied 🙅🏻‍♀️ care my entire life!

www.instagram.com/reel/DJ9PKbT...
This is what we have imagine working in the entertainment industry and having #ehlersdanossyndrome🦓 #neurocardiogenicsyncope
#arrhythmias
#absenceseizures
#nofamilymedicallicprofpresent_contractssigned
#DISABLED_AUHDGIFTEDARTISTMUSICIAN