#endo1000
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endo1000.bsky.social
We are ENDO1000, a research project based at the University of Edinburgh into endometriosis. We will be recruiting 1000 participants with the condition in Autumn 2025, to help us learn more about diagnosis, treatment, and influencing factors. Read more: www.endo1000.com
Endo1000 | The UK-wide Endometriosis Research Project
www.endo1000.com
November 19, 2024 at 10:05 AM
endo1000.bsky.social
Meet the ENDO1000 team!

Francesca Hearn-Yates, PhD Researcher, on how her research fits in with ENDO1000. Head to the ENDO1000 website for more info about the team and sign up to our mailing list to stay up to date! (Link in bio)

#womenshealth #oneinten #talkendo #endo1000 #endometriosis
January 17, 2025 at 11:18 AM
apcmicrobiomeirel.bsky.social
Irish women can now take part in #ENDO1000. APC Microbiome Ireland at UCC is leading microbiome analysis for this major endometriosis research resource.

[NEWS LINK]

#Endometriosis #Microbiome #EUMetriosis

@endo1000.bsky.social @uccresearch.bsky.social @anatneuroucc.bsky.social
Four researchers at an endometriosis research event standing in front of a stylized hexagonal network backdrop with UCC, ENDO1000 and EUmetriosis logos, smiling and wearing coats and conference lanyards.
September 14, 2026 at 10:00 AM
endo1000.bsky.social
Meet the ENDO1000 team!

Say hello to Research Assistant, Martha Brown 👋 Head to the ENDO1000 website for more info about the team and sign up to our mailing list to stay up to date! (Link in bio)

#womenshealth #oneinten #talkendo #endo1000 #endometriosis
February 6, 2025 at 11:00 AM
endo1000.bsky.social
This #GivingTuesday we want to recognise and thank all of our amazing ENDO1000 ambassadors. Endometriosis is a hard condition to live with and we are incredibly grateful that they choose to spend their energy on sharing the mission of ENDO1000. Thank you!
A group of women on a navy background with red splatters and the text, in white "Thank you to our ENDO1000 Ambassadors"
December 3, 2024 at 10:50 AM
cmvm-edinburghuni.bsky.social
We proudly support ENDO1000, tackling the 8–10 year delay in diagnosing endometriosis in the UK.

Many suffer dismissal of symptoms. Led by Prof Andrew Horne, the team seeks earlier detection and better treatment. Your support is vital. Learn more at www.endo1000.com.
@endo1000.bsky.social
Two photos showing presenters on a small stage at an ENDO100 gathering.
May 26, 2025 at 9:57 AM
horne-research.bsky.social
We show #endometriosis treatments are failing to address fatigue, a key quality-of-life issue
🔹 2,907 responses
🔹 54% say GnRH agonists worsened fatigue
🔹 Most treatments showed little benefit
📄 Read the research: raf.bioscientifica.com/view/journal... @endo1000.bsky.social @edinuni-irr.bsky.social
May 16, 2025 at 12:31 PM
edinuni-irr.bsky.social
IRR People: Laura María Quesada Ojeda

In celebration of International Day of Women and Girls in Science #February11, we spoke to ENDO1000 Research Technician Laura María Quesada Ojeda about her work in women’s health and the current research she is supporting.

Read our interview: edin.ac/4qtGGKC
Laura smiling and wearing an ENDO1000 branded lab coat in the EXPPECT lab
February 11, 2026 at 12:15 PM
edinuni-irr.bsky.social
We are excited to announce we are recruiting patients for our ENDO1000 project! 🎉

Head over to the ENDO1000 website for more information and to sign up for the study: edin.ac/49UMqad

Your data could make all the difference to improving the lives of people living with endometriosis.
Endo1000 logo, a scientist looking through a microscope.
January 26, 2026 at 2:42 PM
horne-research.bsky.social
🔬 Just out in JAMA: our new review on endometriosis.
We explore the spectrum of symptoms & evidence-based treatments—medical and surgical.
jamanetwork.com/journals/jam...
#Endometriosis #WomensHealth #ClinicalResearch #JAMA #OBGYN #PelvicPain @endo1000.bsky.social @edinuni-irr.bsky.social @jama.com
Endometriosis: A Review
This narrative review summarizes the epidemiology, pathophysiology, diagnosis, and treatment of endometriosis.
jamanetwork.com
May 5, 2025 at 6:20 PM
horne-research.bsky.social
Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting work from our PhD student Katherine Edgley on the use of wearable technology in #endometriosis @edinuni-irr.bsky.social @endo1000.bsky.social
May 22, 2025 at 11:06 PM
endo1000.bsky.social
ENDO1000 Clinical lead Lucy Whitaker talking about her other research into non-hormonal treatments!
edinuni-irr.bsky.social Institute for Regeneration and Repair @edinuni-irr.bsky.social · Mar 18
Our #EndometriosisAwarenessMonth series continues with Dr Lucy Whitaker sharing her current work on non-hormonal treatment for endometriosis.

Interested in finding out more about these clinical trials? Visit www.exppectedinburgh.co.uk/
#Endome#Endometriosiss#WomensHealth
March 18, 2025 at 3:24 PM
p-saunder.bsky.social
Major endometriosis study reveals impact of gluten, coffee, dairy and alcohol. @endo1000.bsky.social @horne-research.bsky.social @uoe-sps.bsky.social
April 5, 2025 at 11:47 AM
endo1000.bsky.social
Last week we sent some goodies to a long time supporter to help her raise money for us. A huge thanks to Claire for her efforts! If you’d like to know more about how you can raise money for our vital research project, head to www.endo1000.com/donate/
#endometriosis #1in10 #womenshealth #talkendo
Several items of ENDO1000 branded items, including stickers in tattoo aftercare packs, a charity collection pot, a pen, a pin badge, a large sticker, and a reusable coffee cup are placed together on a dark surface against a white wall in an ENDO1000 supporter’s tattoo shop
January 27, 2025 at 10:51 AM
endo1000.bsky.social
It was an absolute pleasure to meet up with some of our southerly ambassadors in London last night to meet in person and get inspired for next steps. We’re excited to keep pushing the ENDO1000 project towards our goal of raising £1M to fund this crucial research #endometriosis #1in10 #talkendo
A group of 10 women, including Black, Asian, and white women, and a man take a group photograph in a restaurant. They stand or sit smiling in front of a wooden table which has several ENDO1000 branded cups and two poster boards on it.
January 28, 2025 at 10:13 AM
endo1000.bsky.social
Last week co-director Andrew Horne presented the ENDO1000 project at the international Endometriosis 2025: Your Mother Should Know, Your Doctor Should Know Better conference in New York. Great to see so many international colleagues committed to expanding understanding and tackling this condition!
Andrew Horne stands behind a speakers podium holding a slide advancer and gesturing with his hands towards the presentation screen behind him. On the screen is an overview of the ENDO1000 project. There is another man sat on stage to the left of Andrew.
March 3, 2025 at 3:13 PM
brigidharty.bsky.social
Going to be in Edinburgh this August? Come to see Jessica Knappet on the 19th, in support of the amazing @endo1000.bsky.social www.eventbrite.co.uk/e/perfect-da... #Comedy #Endometriosis #Research
Perfect Day LIVE with Jessica Knappett and ENDO1000 featuring special guest
Join star of Taskmaster and Drifters, Jessica Knappett, for a LIVE episode of Perfect Day podcast featuring a special guest.
www.eventbrite.co.uk
July 7, 2025 at 3:59 PM
endo1000.bsky.social
The team are taking a break for the festive period. We’re really proud of what we’ve achieved so far with the ENDO1000 project, and we can’t wait to come back rested and ready to go in January 2025.
Wishing everyone a restful end of year!
#endometriosis #1in10
On a plain red background, the ENDO1000 logo in white at the top, the text "We're taking a break, see you in 2025!" in navy writing, and navy splatter effect across the bottom.
December 18, 2024 at 1:48 PM
apcmicrobiomeirel.bsky.social
September at APC: recent PhD viva successes, our symposium, Siobhain O’Mahony and ENDO1000, a welcome for new Group Leader Michael N. Sack, and new research papers.

More on APC: buff.ly/uOUaq85

#Microbiome #Research
October 5, 2026 at 8:55 AM
edinuni-irr.bsky.social
Looking for shows this festival season? Comedian Jessica Knappett is collaborating with IRR's @endo1000.bsky.social and performing a live recording of her podcast Perfect Day on Tues 19 Aug!

All ticket sales support our endometriosis research. Get yours today:
www.eventbrite.co.uk/e/perfect-da...
July 8, 2025 at 2:18 PM
edinuni-irr.bsky.social
Next up in our #EndometriosisAwarenessMonth series, Professor Andrew Horne talks about his team's current endometriosis research.

Interested in finding out more about ENDO1000 and ESpriT2? Visit www.exppectedinburgh.co.uk/
#Endome#Endometriosiss#WomensHealth
March 24, 2025 at 12:02 PM
p-saunder.bsky.social
This survey study examines which dietary modifications or supplements were perceived as beneficial for pain management by individuals with endometriosis.
#rndometriosis. Delighted to share our latest findings. @endo1000.bsky.social @horne-research.bsky.social
April 1, 2025 at 8:48 AM
endo1000.bsky.social
Meet the ENDO1000 team!

Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬

Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
June 16, 2025 at 10:00 AM
edinuni-irr.bsky.social
Tenth Day of Research - The ENDO1000 study recruited its first 10 participants🩸

ENDO1000 is a UK-wide research project from IRR that will collect data and biological samples from 1000 individuals with endometriosis.

Discover more about the project: www.endo1000.com/

#12DaysOfResearch
green bauble and a 10 "The ENDO1000 study recruited its first 10 participants" the participant resource pack with smart watch and medical equipment
December 19, 2025 at 4:00 PM
endo1000.bsky.social
Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals 🏅

So far they have raised an incredible £1,580, donate at the link in our bio!
Three runners stand on a path with their arms around each other, they are smiling and have medals around their necks. They are wearing red ENDO1000 tops. Four runners stand with their arms around each other smiling. They are all wearing red ENDO1000 tops.
May 26, 2025 at 9:45 AM