#iSCADregistry
LightNews LightNews
victorchang.edu.au
@SCADAlliance ’s Dr Esther Kim dialled in from the US to provide an update on the @iSCADregistry revealing plans are underway to to trial first ever treatment for SCAD. A big thanks to all who attended including @SCADResearchAus Inc’s Sarah Ford.
January 29, 2025 at 5:40 AM
victorchang.edu.au
Unlocking the cause of #SCAD heart attacks is one of our key missions. Our scientists have already identified the key genes driving this disease, and are being helped by SCAD survivors from across the country.
@SCADResearch @SCADalliance @iSCADregistry @SCADResearchAus
January 29, 2025 at 5:40 AM
victorchang.edu.au
We've joined a global effort to uncover the genetic cause of SCAD and accelerate preventative treatments for this little-known disease behind a quarter of all heart attacks in women under 50:@SCADalliance @SCADResearchAus @iSCADregistry @kovacic_jason

victorchang.edu.au/news/scad-regi…
International SCAD registry - Victor Chang Cardiac Research Institute
Victor Chang Cardiac Research Institute scientists are now part of a global effort trying pinpoint the cause of the SCAD and accelerate preventative treatments.
www.victorchang.edu.au
December 10, 2024 at 3:05 AM
victorchang.edu.au
Congratulations to Professor Jason Kovacic and FMD patient Karena on completing the @clevemarathon for @FMDartery, raising awareness of FMD and SCAD 👏👏
@pdmace2 @SCADResearchAus @iSCADregistry @SCADalliance
December 10, 2024 at 3:02 AM
scadalliance.bsky.social
RECORDING NOW AVAILABLE...
The 2026 Sanger #SCAD Symposium recording is now "live." Learn from in-depth presentations by #iSCADregistry PIs and guests. Watch through this link: cp.events/attendee/1hr...

#SCADheart #scadalliance #sangerscad #CardioSky #MedSky
May 17, 2026 at 10:03 PM
scadalliance.bsky.social
REGISTER NOW for the *Virtual* 2026 Sanger SCAD Symposium, cohosted by @AtriumSHVI and #scadalliance on May 16th: cp.events/1hrqygnr Check out this great faculty, featuring the investigators of @iSCADregistry (CME credit available)
#SCADheart #SCAD #MedSky #CardioSky
April 21, 2026 at 4:44 AM
scadalliance.bsky.social
#SCAD #heartattack included in a series of articles on medical misogyny. Thank you @jasonkovacic.bsky.social and @victorchang.edu.au
#SCADheart #iSCADregistry #cardiosky #medsky

www.smh.com.au/national/lik...
‘Like someone took a hot poker and stabbed it through my heart’: Women left behind by medical research
Australian medical research currently does not account for the needs of women, a scoping review from the Department of Health and Aged Care has found.
www.smh.com.au
February 11, 2025 at 2:09 AM
scadalliance.bsky.social
Hope you are doing well, and thanks so much for sharing important information on #SCAD!
#SCADheart #SCAD #heartattack #HeartMonth #WearRedDay #scadalliance #iSCADregistry #CardioSky #MedSky
February 9, 2025 at 6:42 PM
scadalliance.bsky.social
#SCADheart #SCAD #heartattack #HeartMonth #scadalliance #iSCADregistry #CardioSky #MedSky
laurengroner.bsky.social Lauren Kriger Groner @laurengroner.bsky.social · Feb 7
Healthy 🚺 early 30s w acute substernal chest pain

#YesCCT:
🫀Long-segment LAD narrowing
🫀No atherosclerotic CAD
🫀LAD territory transmural hypoperfusion (MI)

Dx: Type 2 Spontaneous Coronary Artery Dissection (confirmed on cath)

Think about SCAD in a young 🚺 wo traditional risk factors! #WearRedDay
February 9, 2025 at 6:39 PM
scadalliance.bsky.social
As the cause of heart attack in up to a third of women under 50, and the #1 cause in pregnant women, #SCAD is important for everyone to learn about. Thank you for the great coverage.
#SCADheart #scadalliance #iscadregistry #cardiosky #medsky
February 9, 2025 at 6:35 PM
scadalliance.bsky.social
Featuring Dr. Harmony Reynolds, director of the Soter Center for Women's Cardiovascular Research at NYU Langone Health
#SCADheart #SCAD #heartattack #HeartMonth #WearRedDay #scadalliance #iSCADregistry
#CardioSky #MedSky
February 9, 2025 at 6:25 PM
scadalliance.bsky.social
#SCADheart #SCAD #heartattack #HeartMonth #WearRedDay #scadalliance #iSCADregistry
#CardioSky #MedSky
February 9, 2025 at 6:19 PM
scadalliance.bsky.social
Thanks for shining the light, @erinmichos.bsky.social ❤️

#SCADheart #SCAD #heartattack #HeartMonth #WearRedDay #scadalliance #iSCADregistry
#CardioSky #MedSky
February 9, 2025 at 6:17 PM
scadalliance.bsky.social
HAPPY ❤️ MONTH!
To our healthcare friends and allies: We patients appreciate your dedication to ensuring our good health. The RED we wear today is in tribute to you too! #scadheart #scad #heartattack #iscadregistry #WearRedDay #OurHearts
SCAD Alliance celebrates National Wear Red Day, sponsored by NHLBI, February 7th, 2025. Spontaneous coronary artery dissection is a nonatherosclerotic form of heart attack caused by a tear within an artery, and occurs mostly in women average age 42.
February 7, 2025 at 3:40 PM
scadalliance.bsky.social
Soon after the #PTSD paper posted, the #iSCADregistry team published on migraine and #SCAD, led by Dr. Bryan Wells at #Emory

journals.sagepub.com/doi/epub/10....

#scadheart #Scadalliance #cardiosky #medsky
journals.sagepub.com
December 4, 2024 at 2:17 AM
scadalliance.bsky.social
Interested in #SCAD? Your #GivingTuesday gift will support the #iSCADregistry, a multi-center clinical study sponsored by #scadalliance. Details here: mailchi.mp/scadalliance...
Scroll to donate at footer. Thanks for considering!
#SCADheart #CardioSky #MedSky
December 3, 2024 at 5:49 PM
scadalliance.bsky.social
The first paper the #iSCADregistry team published was on #PTSD and its impact on #SCAD survivors. Pls share this important work to raise awareness and understanding of patients’ #psychosocial needs. #scadheart #cardiosky #medsky #jaha

www.ahajournals.org/doi/epub/10....
Posttraumatic Stress Disorder After Spontaneous Coronary Artery Dissection: A Report of the International Spontaneous Coronary Artery Dissection Registry
www.ahajournals.org
November 30, 2024 at 11:13 PM
scadalliance.bsky.social
GRATEFUL this #Thanksgiving to all the PIs, clinicians, research coordinators, site staff, PERFUSE team, and patients who work selflessly to make the #iSCADregistry a reality. Learn more ... clinicaltrials.gov/study/NCT044...
#SCADheart #CardioSky #MedSky
logo of the iSCAD Registry, an independent, multi-center spontaneous coronary artery dissection (SCAD) clinical study sponsored by @scadalliance
November 29, 2024 at 5:57 AM
scadalliance.bsky.social
BREAKING: Excellent update by the #iSCADregistry PI team. This article was initiated during a combined #SCAD CME/patient symposium weekend hosted by Dr. Esther Kim at Atrium Health Sanger Heart & Vascular. #SCADheart #CardioSky #MedSky
www.sciencedirect.com/science/arti...
Spontaneous Coronary Artery Dissection: Current Knowledge, Research Gaps, and Innovative Research Initiatives: JACC Advances Expert Panel
Despite marked advancements in the recognition and diagnosis of spontaneous coronary artery dissection (SCAD) over the past decade, knowledge of the b…
www.sciencedirect.com
November 22, 2024 at 2:29 AM
scadalliance.bsky.social
Progress in #SCAD research is fueled by the earnest collaboration of clinicians and patients. “Navigating Vascular Disease in Women: About the Patient for the Patient by the Patient” says it all! Thanks to @prodriguezmd.bsky.social @dkadiandodov.bsky.social
#AHA24 #SCADheart #iSCADregistry
(l to r) Francisco Ujueta, MD; Patricia Rodriguez Lozano, MD; Jennifer Sumner, PhD; Daniella Kadian-Dodov, MD; Pam Mace, FMDSA; Katherine K. Leon, SCAD Alliance; Ali Moran Baird, DNP.
November 21, 2024 at 12:09 AM
scadalliance.bsky.social
SCAD is often overlooked or misdiagnosed. This article will convince you it’s time to spread the word. #SCAD is a devastating form of heart attack that strikes healthy women and men (~80/20%) in their prime (age 42-52). #MedSky #SCADheart #iSCADregistry

www.womenshealthmag.com/health/a4662...
Thousands Of Women Have Had This Type Of Heart Attack—And No One Can Tell Them Why
The first case was reported in 1930, and doctors still struggle to find answers.
www.womenshealthmag.com
November 19, 2024 at 10:46 PM
katherinekleon.bsky.social
I had a #SCAD heart attack and double bypass in 2003. We know so much more today, but have lots of work to do. Help spread awareness and understanding by sharing this #JACC Advances article, authored by #iSCADregistry.
#CardioSky #MedSky #SCADheart

www.sciencedirect.com/science/arti...
Spontaneous Coronary Artery Dissection: Current Knowledge, Research Gaps, and Innovative Research Initiatives: JACC Advances Expert Panel
Despite marked advancements in the recognition and diagnosis of spontaneous coronary artery dissection (SCAD) over the past decade, knowledge of the b…
www.sciencedirect.com
November 22, 2024 at 8:12 PM