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Over 16 years of living with ALS, Dagmar Munn says she has changed the way she responds when her body does not move the way she expects: https://bit.ly/4e39UN4

#ALS #LivingWithALS #ChronicIllness #ALSNewsToday #Bionews
Adapting to ALS by embracing a slower pace — "the ALS slow lane" — to reduce fatigue and stop comparing to my former self.
September 28, 2026 at 5:05 PM
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Daily life adapts: https://bit.ly/403tku9

Small adjustments to routines, nutrition, movement, and support can make everyday living more manageable.

#ALS #LivingWithALS #DailyLife #CaregiverSupport #ChronicIllness #RareDisease #Bionews #ALSNewsToday
March 16, 2026 at 4:04 PM
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Start with the basics: https://bit.ly/40fh5uj

#ALS #ALSTreatment #ALSawareness #LivingWithALS #CaregiverSupport #RareDisease #PatientSupport #BioNews #ALSNewsToday
March 6, 2026 at 5:04 PM
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Start with the basics: https://bit.ly/40fh5uj

#ALS #ALSTreatment #ALSawareness #LivingWithALS #CaregiverSupport #RareDisease #PatientSupport #BioNews #ALSNewsToday
April 13, 2026 at 4:05 PM
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Setting Intentions: https://bit.ly/4oA7dpi

Columnist Dagmar Munn shares how a daily intention helps her stay grounded while living with ALS.

#ALSNewsToday #LivingWithALS #ALSToolKit #SelfCare #Mindfulness #ALSSupport #ALSCommunity #Bionews
March 27, 2026 at 10:02 PM
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Read the full column here: https://bit.ly/3UpjCSV

What does holding on look like after 16 years of living with ALS? Sometimes, it's finding hope in the smallest moments. 💙

#ALS #LivingWithALS #ALSAwareness #Caregiving #CaregiverSupport #ChronicIllness #RareDisease #ALSNewsToday #Bionews
August 10, 2026 at 5:56 PM
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Embrace gentle balance: https://bit.ly/3J9GIrr

Over an unusually busy weekend, Kristin Neva found meaningful stillness amid the warmth and activity, carefully balancing time outdoors with loved ones and quiet reflection at home.

#ALS #LivingWithALS #ChronicIllness #ALSNewsToday #Bionews
November 17, 2025 at 9:02 PM
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Embrace gentle balance: https://bit.ly/3J9GIrr

Over an unusually busy weekend, Kristin Neva found meaningful stillness amid the warmth and activity, carefully balancing time outdoors with loved ones and quiet reflection at home.

#ALS #LivingWithALS #ChronicIllness #ALSNewsToday #Bionews
December 20, 2025 at 11:01 PM
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the weird and wonderful world of caregiving for a spouse #LivingWithALS includes trying to track down a pathologist who can meet the organ harvesting requirements to ensure that their desire to contribute to the NIH NeuroBioBank actually happens

#CaregivingChronicles #EndALS #TeamJosé
November 20, 2024 at 6:00 PM
alsnewstoday.bsky.social
A place where you can feel understood: https://bit.ly/4ahpB1V

Visit our ALS and Relationships forum to explore existing conversations or start a post of your own.

#ALS #ALSAwareness #ALSCommunity #LivingWithALS #CaregiverSupport #ALSNewsToday #RareDiseaseCommunity #Bionews
Valentine's Day heart background with the text: "Valentine's Day, Relationships, Intimacy - when health shifts the script."
February 14, 2026 at 5:03 PM
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The way you process today belongs entirely to you.

#LivingWithALS
September 9, 2026 at 5:30 PM
alsnewstoday.bsky.social
The way you process today belongs entirely to you.

#LivingWithALS
August 19, 2026 at 8:30 PM
alsnewstoday.bsky.social
The way you process today belongs entirely to you.

#LivingWithALS
July 30, 2026 at 5:30 PM
alsnewstoday.bsky.social
Explore the details on how a wearable robotic glove is helping a man living with ALS regain his hand function and grip: https://bit.ly/4wADf8w

#ALS #RoboticGlove #LivingWithALS #ALSNewsToday #Bionews
Soft robotic glove restored grip and independent feeding for a man with severe ALS; wearable uses inflatable cushions controlled by muscle signals
July 13, 2026 at 6:13 PM
alsnewstoday.bsky.social
Today is Chronic Disease Day: https://bit.ly/4vYCkyV

Living with ALS often means adapting to changes that affect everyday life, from mobility and communication to routines and independence.

#ChronicDiseaseDay #ALS #LivingWithALS #ALSAwareness #ALSNewsToday #BioNews
Navigating life after a diagnosis; chronic disease changes your relationship with life. Silhouette, maze-like glowing brain.
July 10, 2026 at 4:06 PM
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The way you process today belongs entirely to you.

#LivingWithALS
July 9, 2026 at 8:30 PM
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Rest is productive. Some days with ALS don’t go as planned. Even getting dressed can feel overwhelming, and the simplest tasks may take every ounce of energy: https://bit.ly/4oXgBod

#ALS #ALSAwareness #LivingWithALS #ALSNewsToday #Bionews
July 2, 2026 at 3:06 PM
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Living with ALS means learning to hold onto moments of hope, no matter how small: https://bit.ly/3QvULvt

ALS can take away many of life’s simple pleasures, making it difficult to look ahead with excitement.

#ALS #LivingWithALS #ALSCaregiver #ALSNewsToday #Bionews
Motivational quote about finding beauty despite ALS losses — Kristin Neva; purple floral background, ALSNewsToday.com
July 1, 2026 at 5:04 PM
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The way you process today belongs entirely to you.

#LivingWithALS
June 19, 2026 at 5:31 PM
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The ALS News Today Forums bring together people living with ALS, caregivers, family members, and loved ones for meaningful conversations, practical support, shared experiences, and even moments of laughter: https://bit.ly/4uIXfo0

#ALS #ALSCommunity #LivingWithALS #ALSNewsToday #Bionews
ALS News Today forums — a supportive community for people with ALS and caregivers to connect and share experiences.
June 19, 2026 at 5:03 PM
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Over the next two weeks, we’re inviting members of the ALS Conversations group to share a moment that stands out to them: https://bit.ly/4wWQrFX

#ALS #ALSCommunity #LivingWithALS #ALSNewsToday #Bionews
Blue promo for "Funny Moments" — ALS Conversations Group (ALS News Today Forums) — "HAHA!" speech bubble and smiling woman portrait.
June 1, 2026 at 4:30 PM
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The way you process today belongs entirely to you.

#LivingWithALS
May 29, 2026 at 8:30 PM
alsnewstoday.bsky.social
The way you process today belongs entirely to you.

#LivingWithALS
May 9, 2026 at 5:30 PM
alsnewstoday.bsky.social
Recognize early signs: https://bit.ly/3OfSXVU

Symptoms often begin subtly and can vary from person to person. Tracking changes and discussing concerns with a healthcare provider can help guide next steps.

#ALS #ALSSymptoms #ALSAwareness #LivingWithALS #RareDisease #Bionews #ALSNewsToday
May 6, 2026 at 4:06 PM
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Read This Powerful Reflection: https://bit.ly/4lsbUPL

#LifeIsFragile #ALSCommunity #LivingWithALS #ALSNewsToday #Bionews
April 29, 2026 at 10:02 PM