A question on #MetachromaticLeukodystrophy #Screening tabled by Mary Glindon on 11-09-2026 has been answered by Dame Diana Johnson. https://questions-statements.parliament.uk/written-questions/detail/2026-09-11/29121
October 12, 2026 at 9:10 AM
A question on #MetachromaticLeukodystrophy #Screening tabled by Mary Glindon on 11-09-2026 has been answered by Dame Diana Johnson. https://questions-statements.parliament.uk/written-questions/detail/2026-09-11/29121
Newborn Screening Expands to Include Two Rare Genetic Conditions - https://www.growingyourbaby.com/newborn-screening-expands-to-include-two-rare-genetic-conditions/ #newbornscreening #infanthealth # DuchenneMuscularDystrophy #metachromaticleukodystrophy
Newborn Screening Expands to Include Two Rare Genetic Conditions
Duchenne muscular dystrophy and metachromatic leukodystrophy have been added to federal newborn screening guidelines, allowing for earlier diagnosis and treatment opportunities.
www.growingyourbaby.com
January 7, 2026 at 5:20 PM
Newborn Screening Expands to Include Two Rare Genetic Conditions - https://www.growingyourbaby.com/newborn-screening-expands-to-include-two-rare-genetic-conditions/ #newbornscreening #infanthealth # DuchenneMuscularDystrophy #metachromaticleukodystrophy
ACMG publishes new Therapeutics Bulletin: “Lenmeldy (atidarsagene autotemcel) for individuals with early metachromatic leukodystrophy (MLD)” in GIM Open, the College’s gold open access journal: bit.ly/3zRe6iI #Therapeutics #metachromaticleukodystrophy #GIMOpen #medicalgenetics
August 21, 2025 at 1:47 PM
ACMG publishes new Therapeutics Bulletin: “Lenmeldy (atidarsagene autotemcel) for individuals with early metachromatic leukodystrophy (MLD)” in GIM Open, the College’s gold open access journal: bit.ly/3zRe6iI #Therapeutics #metachromaticleukodystrophy #GIMOpen #medicalgenetics
ALD and MLD are in the conditions being screened for in the programme 💙
To find out more about the study: www.generationstudy.co.uk
#adrenoleukodystrophy #metachromaticleukodystrophy
To find out more about the study: www.generationstudy.co.uk
#adrenoleukodystrophy #metachromaticleukodystrophy
Generation Study - Generation Study
www.generationstudy.co.uk
May 14, 2025 at 2:38 PM
ALD and MLD are in the conditions being screened for in the programme 💙
To find out more about the study: www.generationstudy.co.uk
#adrenoleukodystrophy #metachromaticleukodystrophy
To find out more about the study: www.generationstudy.co.uk
#adrenoleukodystrophy #metachromaticleukodystrophy
April 10, 2025 at 10:40 AM
#NewbornScreeningAwarenessMonth
Learn more about newborn screening with @erdera.bsky.social #ScientificPill here: erdera.org/article/harm...
...and about newborn screening for #MetachromaticLeukodystrophy in our video interview here: www.youtube.com/watch?v=pd7m...
#MLD #Leukodystrophy
Learn more about newborn screening with @erdera.bsky.social #ScientificPill here: erdera.org/article/harm...
...and about newborn screening for #MetachromaticLeukodystrophy in our video interview here: www.youtube.com/watch?v=pd7m...
#MLD #Leukodystrophy
ERN-RND: The Importance of Newborn Screening for Metachromatic Leukodystrophy (MLD)
YouTube video by ERN-RND
www.youtube.com
September 25, 2025 at 8:12 AM
#NewbornScreeningAwarenessMonth
Learn more about newborn screening with @erdera.bsky.social #ScientificPill here: erdera.org/article/harm...
...and about newborn screening for #MetachromaticLeukodystrophy in our video interview here: www.youtube.com/watch?v=pd7m...
#MLD #Leukodystrophy
Learn more about newborn screening with @erdera.bsky.social #ScientificPill here: erdera.org/article/harm...
...and about newborn screening for #MetachromaticLeukodystrophy in our video interview here: www.youtube.com/watch?v=pd7m...
#MLD #Leukodystrophy
"This gene therapy shows a high efficacy, enabling an almost normal cognitive and motor development for the children, if it is applied in the presymptomatic stage of the disease", says Lucia Laugwitz about #MetachromaticLeukodystrophy. Thus, it is important for newborn screening. #WorldHealthDay
ERN-RND: The Importance of Newborn Screening for Metachromatic Leukodystrophy (MLD)
YouTube video by ERN-RND
youtu.be
April 7, 2025 at 10:59 AM
"This gene therapy shows a high efficacy, enabling an almost normal cognitive and motor development for the children, if it is applied in the presymptomatic stage of the disease", says Lucia Laugwitz about #MetachromaticLeukodystrophy. Thus, it is important for newborn screening. #WorldHealthDay
A question on #MetachromaticLeukodystrophy tabled by Gregory Stafford on 01-06-2026 has been answered by Mrs Sharon Hodgson. https://questions-statements.parliament.uk/written-questions/detail/2026-06-01/5800
July 1, 2026 at 11:10 AM
A question on #MetachromaticLeukodystrophy tabled by Gregory Stafford on 01-06-2026 has been answered by Mrs Sharon Hodgson. https://questions-statements.parliament.uk/written-questions/detail/2026-06-01/5800
A question on #MetachromaticLeukodystrophy tabled by Gregory Stafford on 01-06-2026 has been answered by Preet Kaur Gill. https://questions-statements.parliament.uk/written-questions/detail/2026-06-01/5801
June 9, 2026 at 4:40 PM
A question on #MetachromaticLeukodystrophy tabled by Gregory Stafford on 01-06-2026 has been answered by Preet Kaur Gill. https://questions-statements.parliament.uk/written-questions/detail/2026-06-01/5801
A question on #MetachromaticLeukodystrophy tabled by Stuart Andrew on 15-12-2025 has been answered by Ashley Dalton. https://questions-statements.parliament.uk/written-questions/detail/2025-12-15/99743
January 7, 2026 at 5:20 PM
A question on #MetachromaticLeukodystrophy tabled by Stuart Andrew on 15-12-2025 has been answered by Ashley Dalton. https://questions-statements.parliament.uk/written-questions/detail/2025-12-15/99743
A question on #MetachromaticLeukodystrophy tabled by Stuart Andrew on 15-12-2025 has been answered by Ashley Dalton. https://questions-statements.parliament.uk/written-questions/detail/2025-12-15/99741
January 7, 2026 at 5:20 PM
A question on #MetachromaticLeukodystrophy tabled by Stuart Andrew on 15-12-2025 has been answered by Ashley Dalton. https://questions-statements.parliament.uk/written-questions/detail/2025-12-15/99741
A question on #MetachromaticLeukodystrophy #MedicalTreatments tabled by Dr Rosena Allin-Khan on 29-08-2025 has been answered by Karin Smyth. https://questions-statements.parliament.uk/written-questions/detail/2025-08-29/70805
September 8, 2025 at 9:10 AM
A question on #MetachromaticLeukodystrophy #MedicalTreatments tabled by Dr Rosena Allin-Khan on 29-08-2025 has been answered by Karin Smyth. https://questions-statements.parliament.uk/written-questions/detail/2025-08-29/70805
A question on #MetachromaticLeukodystrophy #Screening tabled by Dr Rosena Allin-Khan on 29-08-2025 has been answered by Ashley Dalton. https://questions-statements.parliament.uk/written-questions/detail/2025-08-29/70804
September 5, 2025 at 9:01 AM
A question on #MetachromaticLeukodystrophy #Screening tabled by Dr Rosena Allin-Khan on 29-08-2025 has been answered by Ashley Dalton. https://questions-statements.parliament.uk/written-questions/detail/2025-08-29/70804