#myelomasky
Interesting study by the Munshi group at DFCI. Whole genome sequences of 72 hyperdiploid myeloma patients, tracing back the early origins of hyperdiploidy and mapping additional mutations. ashpublications.org/blood/articl... #hemesky #myelomasky 🔬🩸
ashpublications.org
November 23, 2024 at 8:18 AM
Just spent an incredible 2 days lobbying state senators up in Sacramento on a bill to protect patients from medical debt. Thank you, Leukemia and Lymphoma Society for this amazing opportunity. #cancersky #myelomasky
June 25, 2025 at 11:27 PM
Some of our Stage 3/4/mets cancer support group at #nokings Chemo doesn't stop these bad asses from having our voices heard. #cancersky #myelomasky
June 15, 2025 at 1:08 AM
Two friends passed from cancer yesterday. That makes 5 friends since my diagnosis with 1 still in hospice. Fuck you, cancer.💀 #cancersky #myelomasky
June 1, 2025 at 3:27 AM
It's my re-birthday today. Thank you to Dr. Robert Vescio at Cedars-Sinai in Los Angeles. #multiplemyeloma #cancer #myelomasky
May 16, 2025 at 6:20 PM
As a myeloma patient, my risk of succumbing to infection has greater odds than my demise resulting from the cancer itself. The current regime cutting everything that made America great in order to give tax breaks to billionaires should worry everyone, not just cancer patients. #myelomasky #cancersky
April 8, 2025 at 9:47 PM
Interesting paper #myelomasky
The bone marrow NK-cell profile predicts MRD negativity in patients with multiple myeloma treated with daratumumab-based therapy url:https://ashpublications.org/blood/article-abstract/doi/10.1182/blood.2024026455/535791/The-bone-marrow-NK-cell-profile-predicts-MRD
June 20, 2025 at 1:02 AM
There is a growing community under the MyelomaSky feed
January 22, 2025 at 10:37 PM
Forgot to say this was in multiple myeloma #MyelomaSky
December 8, 2024 at 12:17 AM
Circling the desert waiting for a chance to land in San Diego. The pre #ASH24 rush is already started before I even land for what I just realized is my 25th ASH meeting. Loki g forward to seeing friends and colleagues, and building the MyelomaSky community on this platform
December 5, 2024 at 5:14 PM
Nice to see my most influential mentor @leifbergsagel.bsky.social join this site, he got me on the other site well over a decade ago, Leif check out the MyelomaSky feed for myeloma content and there are starter packs
December 4, 2024 at 3:35 PM
It is amazing to see the growth, just a month ago the MyelomaSky feed would often be empty with no new post in the last 7 days, now there is a constant stream and for me unlike X I see patient comments that remind us why we do the work we do
November 28, 2024 at 3:58 AM
Bluesky is proof we need to get rid of smoldering multiple myeloma, #SMM is a commonly used tag in social media and some other things I likely didn't want to see setting up the MyelomaSky feed. Time for accurate diagnosis to make it just #MGUS or #myeloma
November 23, 2024 at 1:16 AM
Wow Al is fast (I think our starter packs are near mirrors - go.bsky.app/BtBs6xj), welcome Nikhil, so nice to have an ever growing group of myeloma people. There is a MyelomaSky feed that should pick up most content, but the server seems slow this week with all the growth
November 23, 2024 at 12:43 AM
Just pushed an update to the #myeloma MyelomaSky feed to filter out some inappropriate content. Let me know if you see things that need to be removed
November 22, 2024 at 4:58 PM
Add the MyelomaSky feed to your feeds and you should see most myeloma related content
November 19, 2024 at 7:24 PM
@auclairdan.bsky.social welcome, ice to see you my friend. For myeloma content follow the MyelomaSky feed. Looking forward to see you at ASH
November 17, 2024 at 2:45 PM
So far this is one of my favorite things with BlueSky and the MyelomaSky feed is seeing so many comments from patients.
November 16, 2024 at 3:19 PM
Added #IMS24 to the MyelomaSky feed

Are you ready for #IMS24?🤩 In just a few weeks, professionals from around the globe will gather to explore the latest in #myeloma research. Don’t be left behind! Whether in Rio de Janeiro or virtually, be part of the experience. Register today! ➡️ rb.gy/1h136x
September 8, 2024 at 10:23 PM
Oh right, IMS might drive more myeloma peeps to this platform beyond a few others like @adamssperling.bsky.social, for finding myeloma content add the MyelomaSky feed, should pick up anything with myeloma, #myeloma, #mmsm, #smm, #mgus, and a few other tags
September 8, 2024 at 5:04 PM
MyelomaSky as I like the bloodsky name you used. It should pick up posts with the following: multiple myeloma, myeloma, #myeloma, #mmsm, #smm, and #mgus. Did you add bloodsky to the regex also?
February 4, 2024 at 3:56 PM
Thanks for sharing this, setup a feed for multiple myeloma content, myelomasky, will populate with posts containing: multiple myeloma, myeloma, #myeloma, #smm, #mgus, or #msmm
February 3, 2024 at 9:15 PM
Awesome, and thanks for linking the instructions I’ve wanted a similar myelomasky feed
Anyone for setting up a hematology research feed? I think that these feeds really have the potential to convince people to make the change as it makes rebuilding your network less daunting. @paralkarlab.bsky.social @timtriche.bsky.social i was thinking blood.sky maybe? do you have other suggestions?
How to Make a Feed in BlueSky

And here’s some instructions on how to make a feed. Before you start, (a) search goodfeeds.co to check if there’s already an existing feed that’s similar, (b) make your feed’s title informative (i.e., not #ZRiyXent), and (c) make its tags short and easy to remember!
February 3, 2024 at 8:37 PM