Maybe helpful: patients or patientgroups or advocacy groups have lists in their profile often with best accounts to follow.
January 11, 2025 at 1:16 AM
Maybe helpful: patients or patientgroups or advocacy groups have lists in their profile often with best accounts to follow.
Really neat initiative: Assessing Needs and Expectations for Inclusive Development in Rare Disease Research. #RareDisease #PatientGroups can share their views on this form for the next 6 weeks: erdera.org/news/erdera-...
ERDERA launches survey to put rare-disease patients at the heart of research - ERDERA
ERDERA’s patient-engagement working group has opened an online survey to gauge how rare-disease patient organisations experience their role in publicly funded research, including projects financed und...
erdera.org
May 28, 2025 at 6:38 AM
Really neat initiative: Assessing Needs and Expectations for Inclusive Development in Rare Disease Research. #RareDisease #PatientGroups can share their views on this form for the next 6 weeks: erdera.org/news/erdera-...
Patient advocates and scientists are demanding a clear, standardized allergen label to eliminate confusion and enhance safety for consumers.
Learn more here!
#US #HealthCommunication #CitizenPortal #PatientGroups #ConsumerEducation #FoodSafety
Learn more here!
#US #HealthCommunication #CitizenPortal #PatientGroups #ConsumerEducation #FoodSafety
Patients and behavioral scientists call for single, simple PAL phrase and major education push
Consumer advocates, FDA behavioral researchers and clinicians urged a single standardized precautionary allergen label wording, extensive consumer testing and clinician education before any threshold-based system is rolled out.
citizenportal.ai
February 19, 2026 at 6:04 AM
Patient advocates and scientists are demanding a clear, standardized allergen label to eliminate confusion and enhance safety for consumers.
Learn more here!
#US #HealthCommunication #CitizenPortal #PatientGroups #ConsumerEducation #FoodSafety
Learn more here!
#US #HealthCommunication #CitizenPortal #PatientGroups #ConsumerEducation #FoodSafety
𝐇𝐚𝐯𝐞 𝐲𝐨𝐮 𝐜𝐨𝐧𝐬𝐢𝐝𝐞𝐫𝐞𝐝 #𝐩𝐥𝐚𝐢𝐧𝐥𝐚𝐧𝐠𝐮𝐚𝐠𝐞𝐬𝐮𝐦𝐦𝐚𝐫𝐢𝐞𝐬 𝐟𝐨𝐫 𝐲𝐨𝐮𝐫 𝐚𝐫𝐭𝐢𝐜𝐥𝐞?
These valuable article enhancements improve access to research, help readers identify and save key information, and expand readership to #patientgroups, #policymakers, and #practitioners.
See how it's done! 👉 bit.ly/4czHw55
#HEOR
These valuable article enhancements improve access to research, help readers identify and save key information, and expand readership to #patientgroups, #policymakers, and #practitioners.
See how it's done! 👉 bit.ly/4czHw55
#HEOR
Time to access matters: patient gains from faster CAR T-cell reimbursement in Europe
Despite clinical efficacy and cost-effectiveness, time to reimbursement for chimeric antigen receptor (CAR) T-cell therapies varies greatly across Europe. We examined these differences, and quantif...
bit.ly
April 27, 2026 at 2:11 PM
𝐇𝐚𝐯𝐞 𝐲𝐨𝐮 𝐜𝐨𝐧𝐬𝐢𝐝𝐞𝐫𝐞𝐝 #𝐩𝐥𝐚𝐢𝐧𝐥𝐚𝐧𝐠𝐮𝐚𝐠𝐞𝐬𝐮𝐦𝐦𝐚𝐫𝐢𝐞𝐬 𝐟𝐨𝐫 𝐲𝐨𝐮𝐫 𝐚𝐫𝐭𝐢𝐜𝐥𝐞?
These valuable article enhancements improve access to research, help readers identify and save key information, and expand readership to #patientgroups, #policymakers, and #practitioners.
See how it's done! 👉 bit.ly/4czHw55
#HEOR
These valuable article enhancements improve access to research, help readers identify and save key information, and expand readership to #patientgroups, #policymakers, and #practitioners.
See how it's done! 👉 bit.ly/4czHw55
#HEOR
2/2
' #Same-DayAccessHubs will NOT be mandated in North West London as the ICB BOWS to PRESSURE from #GPs and #Patients.
And whose"brainless",idea was the EXPENSIVE, UNWANTED, #AccessHubs?🤔
Dr Penny Dash no less!😖
No wonder she wants rid of #PatientGroups!🙄😬
www.pulsetoday.co.uk/news/breakin...
' #Same-DayAccessHubs will NOT be mandated in North West London as the ICB BOWS to PRESSURE from #GPs and #Patients.
And whose"brainless",idea was the EXPENSIVE, UNWANTED, #AccessHubs?🤔
Dr Penny Dash no less!😖
No wonder she wants rid of #PatientGroups!🙄😬
www.pulsetoday.co.uk/news/breakin...
ICB shelves same-day hub plans due to GP and patient backlash
Same-day access hubs will not be mandated in North West London as the ICB bows to pressure from GPs and patients.
www.pulsetoday.co.uk
July 10, 2025 at 4:24 PM
2/2
' #Same-DayAccessHubs will NOT be mandated in North West London as the ICB BOWS to PRESSURE from #GPs and #Patients.
And whose"brainless",idea was the EXPENSIVE, UNWANTED, #AccessHubs?🤔
Dr Penny Dash no less!😖
No wonder she wants rid of #PatientGroups!🙄😬
www.pulsetoday.co.uk/news/breakin...
' #Same-DayAccessHubs will NOT be mandated in North West London as the ICB BOWS to PRESSURE from #GPs and #Patients.
And whose"brainless",idea was the EXPENSIVE, UNWANTED, #AccessHubs?🤔
Dr Penny Dash no less!😖
No wonder she wants rid of #PatientGroups!🙄😬
www.pulsetoday.co.uk/news/breakin...