💙 World Kidney Day | Kidney Health for All
👉 On this World Kidney Day, voices from the global PKD community come together to share a clear message: Kidney Health for All means equal access to care for everyone affected by PKD.
#PKDInternational #WorldKidneyDay
👉 On this World Kidney Day, voices from the global PKD community come together to share a clear message: Kidney Health for All means equal access to care for everyone affected by PKD.
#PKDInternational #WorldKidneyDay
March 12, 2026 at 8:47 AM
💙 World Kidney Day | Kidney Health for All
👉 On this World Kidney Day, voices from the global PKD community come together to share a clear message: Kidney Health for All means equal access to care for everyone affected by PKD.
#PKDInternational #WorldKidneyDay
👉 On this World Kidney Day, voices from the global PKD community come together to share a clear message: Kidney Health for All means equal access to care for everyone affected by PKD.
#PKDInternational #WorldKidneyDay
A heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings.
#PKDInternational #ERASciencemeetings
#PKDInternational #ERASciencemeetings
December 4, 2025 at 1:25 PM
A heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings.
#PKDInternational #ERASciencemeetings
#PKDInternational #ERASciencemeetings
📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
December 2, 2025 at 9:13 AM
📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
November 12, 2025 at 2:58 PM
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
As we mark this season of hope and renewal, PKD International extends our warmest wishes for Easter to all individuals, families, and partners in the PKD community around the world.
#PKDInternational #TogetherForPKD #PKDCommunity #StrongerTogether #ADPKD #ARPKD
#PKDInternational #TogetherForPKD #PKDCommunity #StrongerTogether #ADPKD #ARPKD
April 18, 2025 at 10:09 AM
As we mark this season of hope and renewal, PKD International extends our warmest wishes for Easter to all individuals, families, and partners in the PKD community around the world.
#PKDInternational #TogetherForPKD #PKDCommunity #StrongerTogether #ADPKD #ARPKD
#PKDInternational #TogetherForPKD #PKDCommunity #StrongerTogether #ADPKD #ARPKD
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.
#PKDInternational #EndPKD #ADPKD #PKDResearch
#PKDInternational #EndPKD #ADPKD #PKDResearch
September 1, 2025 at 7:41 AM
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.
#PKDInternational #EndPKD #ADPKD #PKDResearch
#PKDInternational #EndPKD #ADPKD #PKDResearch
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
#PKDInternational
September 8, 2025 at 7:36 AM
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
#PKDInternational
💛 Why Are Kidneys So Important?
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
August 1, 2025 at 7:35 AM
💛 Why Are Kidneys So Important?
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
🇪🇺 Flavia Galletti will be attending the EURORDIS Membership Meeting 2025 on behalf of AIRP (Associazione Italiana Rene Policistico) helping to strengthen the PKD voice within the EURORDIS community. 🌷
#PKDInternational #ADPKD #ARPKD
#PKDInternational #ADPKD #ARPKD
May 6, 2025 at 8:09 AM
🇪🇺 Flavia Galletti will be attending the EURORDIS Membership Meeting 2025 on behalf of AIRP (Associazione Italiana Rene Policistico) helping to strengthen the PKD voice within the EURORDIS community. 🌷
#PKDInternational #ADPKD #ARPKD
#PKDInternational #ADPKD #ARPKD
#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD.
👉 pkdinternational.org
👉 pkdinternational.org
October 21, 2025 at 1:05 PM
#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD.
👉 pkdinternational.org
👉 pkdinternational.org
💛 Today, February 28, is @rarediseaseday.bsky.social
🧬 It is a global moment to shine a light on rare diseases — and on the urgent need for earlier diagnoses, appropriate care pathways, continued research, and sustained support for patients and families.
#PKDInternational
🧬 It is a global moment to shine a light on rare diseases — and on the urgent need for earlier diagnoses, appropriate care pathways, continued research, and sustained support for patients and families.
#PKDInternational
February 28, 2026 at 9:55 AM
💛 Today, February 28, is @rarediseaseday.bsky.social
🧬 It is a global moment to shine a light on rare diseases — and on the urgent need for earlier diagnoses, appropriate care pathways, continued research, and sustained support for patients and families.
#PKDInternational
🧬 It is a global moment to shine a light on rare diseases — and on the urgent need for earlier diagnoses, appropriate care pathways, continued research, and sustained support for patients and families.
#PKDInternational
📺 Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond.
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
July 15, 2025 at 7:43 AM
📺 Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond.
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
WORLD KIDNEY DAY | KNOWLEDGE IS POWER
On @worldkidneyday, our President Flavia Galletti reminds us of the critical need for kidney disease awareness.
#WorldKidneyDay2025 #AreYourKidneysOK #pkdinternational #KidneyHealthmatters #ADPKD #ARPKD
On @worldkidneyday, our President Flavia Galletti reminds us of the critical need for kidney disease awareness.
#WorldKidneyDay2025 #AreYourKidneysOK #pkdinternational #KidneyHealthmatters #ADPKD #ARPKD
March 13, 2025 at 8:44 AM
WORLD KIDNEY DAY | KNOWLEDGE IS POWER
On @worldkidneyday, our President Flavia Galletti reminds us of the critical need for kidney disease awareness.
#WorldKidneyDay2025 #AreYourKidneysOK #pkdinternational #KidneyHealthmatters #ADPKD #ARPKD
On @worldkidneyday, our President Flavia Galletti reminds us of the critical need for kidney disease awareness.
#WorldKidneyDay2025 #AreYourKidneysOK #pkdinternational #KidneyHealthmatters #ADPKD #ARPKD
Diagnosing #ARPKD in children is challenging.
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
Urinary peptide signature distinguishes autosomal recessive polycystic kidney disease from other causes of chronic kidney disease - TheRaCil
Burgmaier et al, Clinical Kidney Journal, May 2025.
theracil.eu
September 26, 2025 at 7:34 AM
Diagnosing #ARPKD in children is challenging.
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
🎤 Our President @flaviagalletti.bsky.social and Uwe Korst, Co-founder and Board Member of PKD International, share their thoughts from the #ERKNet Meeting currently underway in Leuven! 🇧🇪
💛 We’re very happy and proud to be here.
#PKDInternational #ARPKD #ADPKD
@erknet.bsky.social
💛 We’re very happy and proud to be here.
#PKDInternational #ARPKD #ADPKD
@erknet.bsky.social
May 20, 2025 at 3:22 PM
🎤 Our President @flaviagalletti.bsky.social and Uwe Korst, Co-founder and Board Member of PKD International, share their thoughts from the #ERKNet Meeting currently underway in Leuven! 🇧🇪
💛 We’re very happy and proud to be here.
#PKDInternational #ARPKD #ADPKD
@erknet.bsky.social
💛 We’re very happy and proud to be here.
#PKDInternational #ARPKD #ADPKD
@erknet.bsky.social
Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties.
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
July 25, 2025 at 7:48 AM
Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties.
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
✨ As the year comes to a close, we would like to send our heartfelt wishes to the global PKD community.
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
December 31, 2025 at 9:50 AM
✨ As the year comes to a close, we would like to send our heartfelt wishes to the global PKD community.
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
💛 By donating funds to #PKDInternational, you help accelerate research, raise global awareness, and amplify the voices of patients and caregivers everywhere. Your financial contribution supports education, advocacy, and patient support initiatives 👉 lnkd.in/dG7k48Zc
July 11, 2025 at 7:43 AM
💛 By donating funds to #PKDInternational, you help accelerate research, raise global awareness, and amplify the voices of patients and caregivers everywhere. Your financial contribution supports education, advocacy, and patient support initiatives 👉 lnkd.in/dG7k48Zc
🤝💛 Proud to collaborate with Niervereniging Nederland
🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇
🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇
August 5, 2025 at 8:05 AM
🤝💛 Proud to collaborate with Niervereniging Nederland
🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇
🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇
🌍 PKD International joins @rarediseaseday.bsky.social to amplify the voices of people living with ARPKD around the world and to reaffirm a clear message: awareness is the first step toward change — in research, in care, and in quality of life.
www.rarediseaseday.org
#PKDInternational
www.rarediseaseday.org
#PKDInternational
February 20, 2026 at 1:59 PM
🌍 PKD International joins @rarediseaseday.bsky.social to amplify the voices of people living with ARPKD around the world and to reaffirm a clear message: awareness is the first step toward change — in research, in care, and in quality of life.
www.rarediseaseday.org
#PKDInternational
www.rarediseaseday.org
#PKDInternational
#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
October 1, 2025 at 7:41 AM
#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
🎥🧪 SGLT2 Inhibitors: Should They Be Used in ADPKD?
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
July 1, 2025 at 10:28 AM
🎥🧪 SGLT2 Inhibitors: Should They Be Used in ADPKD?
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
🌍✨ Live from the #ERKNet Annual Meeting
🎉 The event kicked off this morning in Leuven, Belgium!
🧑🔬👥 Our President, @flaviagalletti.bsky.social will be attending until Wednesday, May 21st, alongside scientists from across Europe and patient representatives.
@erknet.bsky.social #PKDInternational
🎉 The event kicked off this morning in Leuven, Belgium!
🧑🔬👥 Our President, @flaviagalletti.bsky.social will be attending until Wednesday, May 21st, alongside scientists from across Europe and patient representatives.
@erknet.bsky.social #PKDInternational
May 19, 2025 at 2:52 PM
🌍✨ Live from the #ERKNet Annual Meeting
🎉 The event kicked off this morning in Leuven, Belgium!
🧑🔬👥 Our President, @flaviagalletti.bsky.social will be attending until Wednesday, May 21st, alongside scientists from across Europe and patient representatives.
@erknet.bsky.social #PKDInternational
🎉 The event kicked off this morning in Leuven, Belgium!
🧑🔬👥 Our President, @flaviagalletti.bsky.social will be attending until Wednesday, May 21st, alongside scientists from across Europe and patient representatives.
@erknet.bsky.social #PKDInternational
Good morning from Leuven 🇧🇪, where we're attending the 9th Annual #ERKNet Meeting these days! 🧬
🙌 With our President @flaviagalletti.bsky.social, we’re joined by Uwe Korst, co-founder and Board Member of PKD International.
@erknet.bsky.social #PKDInternational #RareDiseases #KidneyHealth
🙌 With our President @flaviagalletti.bsky.social, we’re joined by Uwe Korst, co-founder and Board Member of PKD International.
@erknet.bsky.social #PKDInternational #RareDiseases #KidneyHealth
May 20, 2025 at 6:53 AM
Good morning from Leuven 🇧🇪, where we're attending the 9th Annual #ERKNet Meeting these days! 🧬
🙌 With our President @flaviagalletti.bsky.social, we’re joined by Uwe Korst, co-founder and Board Member of PKD International.
@erknet.bsky.social #PKDInternational #RareDiseases #KidneyHealth
🙌 With our President @flaviagalletti.bsky.social, we’re joined by Uwe Korst, co-founder and Board Member of PKD International.
@erknet.bsky.social #PKDInternational #RareDiseases #KidneyHealth
We’re proud to introduce one of our member organisations:
@AIRPonlus is the Italian association for patients affected by all forms of #PKD. It raises awareness, supports patients and their families, promote research and work to improve care and quality of life.
#PKDInternational #ADPKD #ARPKD
@AIRPonlus is the Italian association for patients affected by all forms of #PKD. It raises awareness, supports patients and their families, promote research and work to improve care and quality of life.
#PKDInternational #ADPKD #ARPKD
April 16, 2025 at 10:06 AM
We’re proud to introduce one of our member organisations:
@AIRPonlus is the Italian association for patients affected by all forms of #PKD. It raises awareness, supports patients and their families, promote research and work to improve care and quality of life.
#PKDInternational #ADPKD #ARPKD
@AIRPonlus is the Italian association for patients affected by all forms of #PKD. It raises awareness, supports patients and their families, promote research and work to improve care and quality of life.
#PKDInternational #ADPKD #ARPKD