How did the Lived Experience Advisory Panel shape your wellbeing outcomes? The IMPACT panel report offers a useful comparison for making that influence visible: pubmed.ncbi.nlm.nih.gov/37787414/ Educational, not medical advice.
Development of a Lived Experience Panel to inform the design of embedded pragmatic trials of dementia care interventions - PubMed
The IMPACT LEP provides a model for engaging PLWD and care partners in the research process as collaborators.
pubmed.ncbi.nlm.nih.gov
September 6, 2026 at 9:25 PM
How did the Lived Experience Advisory Panel shape your wellbeing outcomes? The IMPACT panel report offers a useful comparison for making that influence visible: pubmed.ncbi.nlm.nih.gov/37787414/ Educational, not medical advice.
Interesting event for anyone living w/ #diabetes in #Louth
When: Wednesday 23.9.26
Time: 6:15pm
Where: #FairwaysHotel A91 E6KC
The local Louth #peersupport group may also be there so a chance to have da craic w/ them😉
#plwd #Dundalk #Drogheda #Ardee #diabetestechnology #diabeteseducation
When: Wednesday 23.9.26
Time: 6:15pm
Where: #FairwaysHotel A91 E6KC
The local Louth #peersupport group may also be there so a chance to have da craic w/ them😉
#plwd #Dundalk #Drogheda #Ardee #diabetestechnology #diabeteseducation
September 1, 2026 at 9:50 AM
Interesting event for anyone living w/ #diabetes in #Louth
When: Wednesday 23.9.26
Time: 6:15pm
Where: #FairwaysHotel A91 E6KC
The local Louth #peersupport group may also be there so a chance to have da craic w/ them😉
#plwd #Dundalk #Drogheda #Ardee #diabetestechnology #diabeteseducation
When: Wednesday 23.9.26
Time: 6:15pm
Where: #FairwaysHotel A91 E6KC
The local Louth #peersupport group may also be there so a chance to have da craic w/ them😉
#plwd #Dundalk #Drogheda #Ardee #diabetestechnology #diabeteseducation
New video premieres in 10! Hope to see ya'll there ❤️
www.youtube.com/watch?v=plwd...
www.youtube.com/watch?v=plwd...
NASCAR saved my life...
http://patreon.com/ibolt07 to see it early A teenage fan's perspective of Clint Bowyer's early career, hopefully watching and waiting for the day he would score his first win, and an essay in defense of an often-maligned sport, to an audience that may not give it a chance... Inspired by: https://www.youtube.com/@EllyProductions49 https://www.youtube.com/channel/UCSlNqrCPpZqRbgiDKslODRQ See also: https://youtu.be/ijvYtguWVvw?feature=shared Support the channel: http://paypal.me/iBolt07 http://ko-fi.com/iBolt07 http://patreon.com/iBolt07 Social: https://bsky.app/profile/ibolt07.bsky.social My other channels: https://www.youtube.com/channel/UCaPVrrbJq21MOY2xVYeVIcg https://www.youtube.com/channel/UCJ6CGB0rr1dMOs9wNDqZZoA
www.youtube.com
June 6, 2024 at 11:51 PM
New video premieres in 10! Hope to see ya'll there ❤️
www.youtube.com/watch?v=plwd...
www.youtube.com/watch?v=plwd...
Hey ya'll
My new video premieres in an hour! Yes, it's about NASCAR, but please don't let that deter you! I'm really proud of this video and made it with respect to people who don't understand NASCAR and what people like about it! Come check it out at 8pm edt!
www.youtube.com/watch?v=plwd...
My new video premieres in an hour! Yes, it's about NASCAR, but please don't let that deter you! I'm really proud of this video and made it with respect to people who don't understand NASCAR and what people like about it! Come check it out at 8pm edt!
www.youtube.com/watch?v=plwd...
NASCAR saved my life...
http://patreon.com/ibolt07 to see it early A teenage fan's perspective of Clint Bowyer's early career, hopefully watching and waiting for the day he would score his first win, and an essay in defense of an often-maligned sport, to an audience that may not give it a chance... Inspired by: https://www.youtube.com/@EllyProductions49 https://www.youtube.com/channel/UCSlNqrCPpZqRbgiDKslODRQ See also: https://youtu.be/ijvYtguWVvw?feature=shared Support the channel: http://paypal.me/iBolt07 http://ko-fi.com/iBolt07 http://patreon.com/iBolt07 Social: https://bsky.app/profile/ibolt07.bsky.social My other channels: https://www.youtube.com/channel/UCaPVrrbJq21MOY2xVYeVIcg https://www.youtube.com/channel/UCJ6CGB0rr1dMOs9wNDqZZoA
www.youtube.com
June 6, 2024 at 10:43 PM
Hey ya'll
My new video premieres in an hour! Yes, it's about NASCAR, but please don't let that deter you! I'm really proud of this video and made it with respect to people who don't understand NASCAR and what people like about it! Come check it out at 8pm edt!
www.youtube.com/watch?v=plwd...
My new video premieres in an hour! Yes, it's about NASCAR, but please don't let that deter you! I'm really proud of this video and made it with respect to people who don't understand NASCAR and what people like about it! Come check it out at 8pm edt!
www.youtube.com/watch?v=plwd...
Here is a scoping review by Lara Calabrese & co. on epistemic injustice and dementia, open access link.springer.com/article/10.1...
I'm still here and my opinion matters: a scoping review on the experience of epistemic injustice among people living with dementia - Current Psychology
Current Psychology - Epistemic injustice refers to wrongs done to individuals in their capacity as knowers, often due to prejudice or stereotypes. People living with dementia (PLWD) are...
link.springer.com
May 13, 2026 at 11:33 PM
Here is a scoping review by Lara Calabrese & co. on epistemic injustice and dementia, open access link.springer.com/article/10.1...
Cont. #ayearinreview #philsky #philpsy Contributed to a scoping review on experiences of #epistemicinjustice in dementia led by Lara Calabrese link.springer.com/article/10.1...
I'm still here and my opinion matters: a scoping review on the experience of epistemic injustice among people living with dementia - Current Psychology
Current Psychology - Epistemic injustice refers to wrongs done to individuals in their capacity as knowers, often due to prejudice or stereotypes. People living with dementia (PLWD) are...
link.springer.com
December 19, 2025 at 8:37 PM
Cont. #ayearinreview #philsky #philpsy Contributed to a scoping review on experiences of #epistemicinjustice in dementia led by Lara Calabrese link.springer.com/article/10.1...
Somalia: Voices at the margin: Minorities, Women, PLWD and Survivors disproportionately affected - Quarterly Deep Dive (April to June 2025) #Refugees
Somalia: Voices at the margin: Minorities, Women, PLWD and Survivors disproportionately affected - Quarterly Deep Dive (April to June 2025)
reliefweb.int
July 11, 2025 at 2:04 AM
Somalia: Voices at the margin: Minorities, Women, PLWD and Survivors disproportionately affected - Quarterly Deep Dive (April to June 2025) #Refugees
Functional analysis-based interventions have a significant positive impact on global BPSD in plwd (moderate quality evidence) - should be used as first line treatment. Evidence from an overview of systematic reviews:...
November 24, 2024 at 5:58 AM
Functional analysis-based interventions have a significant positive impact on global BPSD in plwd (moderate quality evidence) - should be used as first line treatment. Evidence from an overview of systematic reviews:...
Essay & book review submissions open until Aug 16.
We welcome reviews of short-story collections, hidden gems or under-recognised titles, especially by African women, members of the LGBTQIA+ community, PLWD and other marginalised communities.
Details: willthisbeaproblem.co.ke/submissions/
We welcome reviews of short-story collections, hidden gems or under-recognised titles, especially by African women, members of the LGBTQIA+ community, PLWD and other marginalised communities.
Details: willthisbeaproblem.co.ke/submissions/
August 8, 2025 at 8:49 AM
Essay & book review submissions open until Aug 16.
We welcome reviews of short-story collections, hidden gems or under-recognised titles, especially by African women, members of the LGBTQIA+ community, PLWD and other marginalised communities.
Details: willthisbeaproblem.co.ke/submissions/
We welcome reviews of short-story collections, hidden gems or under-recognised titles, especially by African women, members of the LGBTQIA+ community, PLWD and other marginalised communities.
Details: willthisbeaproblem.co.ke/submissions/
Creating VR companions to reduce loneliness in dementia patients: New research developed a virtual companion for people living with dementia in long-term care.
https://doi.org/10.3390/jcm13185574
#vr #xr #virtualreality #vrresearch
https://doi.org/10.3390/jcm13185574
#vr #xr #virtualreality #vrresearch
Development and Initial Testing of an Artificial Intelligence-Based Virtual Reality Companion for People Living with Dementia in Long-Term Care
Background/Objectives: Feelings of loneliness are common in people living with dementia (PLWD) in long-term care (LTC). The goals of this study were to describe the development of a novel virtual companion...
buff.ly
October 2, 2024 at 8:19 AM
Creating VR companions to reduce loneliness in dementia patients: New research developed a virtual companion for people living with dementia in long-term care.
https://doi.org/10.3390/jcm13185574
#vr #xr #virtualreality #vrresearch
https://doi.org/10.3390/jcm13185574
#vr #xr #virtualreality #vrresearch
Published in the Journal Springer Nature by Prof Fiona C Warren et al: TaIlored ManagEment of Sleep (TIMES) for people with dementia and mild cognitive impairment in primary care in England tinyurl.com/ks58tfaa @apexcomms.bsky.social,,@nihrspcr.bsky.social, exeterctu.bsky.social
TaIlored ManagEment of Sleep (TIMES) for people with dementia and mild cognitive impairment in primary care in England: protocol for a feasibility cluster-randomised controlled trial - Pilot and Feasi...
Background People living with dementia (PLWD) and mild cognitive impairment (MCI), and their family carers, often experience sleep disturbance which can impair daily living and care. There are limited...
tinyurl.com
March 13, 2026 at 11:39 AM
Published in the Journal Springer Nature by Prof Fiona C Warren et al: TaIlored ManagEment of Sleep (TIMES) for people with dementia and mild cognitive impairment in primary care in England tinyurl.com/ks58tfaa @apexcomms.bsky.social,,@nihrspcr.bsky.social, exeterctu.bsky.social
The Radical Importance of Boundaries & Consent
by Dáithí
#blog on how crucial boundaries trust-building & attunement are for a plwd
how the body remembers rhythm safety & touch
Exploring what consent can look like in this context
massagefordementia.co.uk/the-radical-...
#massage #dementia #guestblog
by Dáithí
#blog on how crucial boundaries trust-building & attunement are for a plwd
how the body remembers rhythm safety & touch
Exploring what consent can look like in this context
massagefordementia.co.uk/the-radical-...
#massage #dementia #guestblog
February 14, 2026 at 11:37 AM
The Radical Importance of Boundaries & Consent
by Dáithí
#blog on how crucial boundaries trust-building & attunement are for a plwd
how the body remembers rhythm safety & touch
Exploring what consent can look like in this context
massagefordementia.co.uk/the-radical-...
#massage #dementia #guestblog
by Dáithí
#blog on how crucial boundaries trust-building & attunement are for a plwd
how the body remembers rhythm safety & touch
Exploring what consent can look like in this context
massagefordementia.co.uk/the-radical-...
#massage #dementia #guestblog
You’re in for a treat!
I’ve got 2 guest blogs coming
1st up: Daithi’s powerful piece on #boundaries #attunement & #consent
creating safety & supporting inner healing for plwd
#blog #watchthisspace #safety #dementiainformed #massage #dementia #dementiaawareness #meetmewhereiam #acceptance
I’ve got 2 guest blogs coming
1st up: Daithi’s powerful piece on #boundaries #attunement & #consent
creating safety & supporting inner healing for plwd
#blog #watchthisspace #safety #dementiainformed #massage #dementia #dementiaawareness #meetmewhereiam #acceptance
February 11, 2026 at 5:59 PM
You’re in for a treat!
I’ve got 2 guest blogs coming
1st up: Daithi’s powerful piece on #boundaries #attunement & #consent
creating safety & supporting inner healing for plwd
#blog #watchthisspace #safety #dementiainformed #massage #dementia #dementiaawareness #meetmewhereiam #acceptance
I’ve got 2 guest blogs coming
1st up: Daithi’s powerful piece on #boundaries #attunement & #consent
creating safety & supporting inner healing for plwd
#blog #watchthisspace #safety #dementiainformed #massage #dementia #dementiaawareness #meetmewhereiam #acceptance
I always get greeted as I arrive that I smell lovely 😊 by the wonderful Admiral Nurses team
Essential oils are wafting & we're ready to support plwd & their supporters
Always thrilled to chat about the benefits of massage & aromatherapy making a difference to mood wellbeing & relationships #dementia
Essential oils are wafting & we're ready to support plwd & their supporters
Always thrilled to chat about the benefits of massage & aromatherapy making a difference to mood wellbeing & relationships #dementia
February 6, 2026 at 10:51 AM
I always get greeted as I arrive that I smell lovely 😊 by the wonderful Admiral Nurses team
Essential oils are wafting & we're ready to support plwd & their supporters
Always thrilled to chat about the benefits of massage & aromatherapy making a difference to mood wellbeing & relationships #dementia
Essential oils are wafting & we're ready to support plwd & their supporters
Always thrilled to chat about the benefits of massage & aromatherapy making a difference to mood wellbeing & relationships #dementia
Sometimes to look after my body I use 1-handed techniques to prevent getting the "burn"
This is esp true when I treat plwd in their beds which are often too wide to lean over comfortably
Looking after our health to support others in looking after theirs
#massage #dementia #cpd #boundaries #selfcare
This is esp true when I treat plwd in their beds which are often too wide to lean over comfortably
Looking after our health to support others in looking after theirs
#massage #dementia #cpd #boundaries #selfcare
January 12, 2026 at 9:23 AM
Sometimes to look after my body I use 1-handed techniques to prevent getting the "burn"
This is esp true when I treat plwd in their beds which are often too wide to lean over comfortably
Looking after our health to support others in looking after theirs
#massage #dementia #cpd #boundaries #selfcare
This is esp true when I treat plwd in their beds which are often too wide to lean over comfortably
Looking after our health to support others in looking after theirs
#massage #dementia #cpd #boundaries #selfcare
I agree with Hannah
We can use creative ways to communicate nonverbally
"I believe all people who come into contact with PLWD would benefit from this" Hannah Hathway, Senior Practitioner, #NHS
#Pioneers #massage #dementia #bristol #Avon #somerset #dementiainformed #nonverbalcommunication #connect
We can use creative ways to communicate nonverbally
"I believe all people who come into contact with PLWD would benefit from this" Hannah Hathway, Senior Practitioner, #NHS
#Pioneers #massage #dementia #bristol #Avon #somerset #dementiainformed #nonverbalcommunication #connect
December 3, 2025 at 7:41 AM
I agree with Hannah
We can use creative ways to communicate nonverbally
"I believe all people who come into contact with PLWD would benefit from this" Hannah Hathway, Senior Practitioner, #NHS
#Pioneers #massage #dementia #bristol #Avon #somerset #dementiainformed #nonverbalcommunication #connect
We can use creative ways to communicate nonverbally
"I believe all people who come into contact with PLWD would benefit from this" Hannah Hathway, Senior Practitioner, #NHS
#Pioneers #massage #dementia #bristol #Avon #somerset #dementiainformed #nonverbalcommunication #connect
I'm off to #Bristol today & yes I'm cited!
F2F training on dementia-informed massage approaches
but more than that
after some false starts last year I finally get to run my newest course Aromatherapy for PLWD the 1st of its kind in the UK
#dementia #massage #aromatherapy #MeetMeWhereIAm #enable
F2F training on dementia-informed massage approaches
but more than that
after some false starts last year I finally get to run my newest course Aromatherapy for PLWD the 1st of its kind in the UK
#dementia #massage #aromatherapy #MeetMeWhereIAm #enable
March 12, 2025 at 6:40 AM
I'm off to #Bristol today & yes I'm cited!
F2F training on dementia-informed massage approaches
but more than that
after some false starts last year I finally get to run my newest course Aromatherapy for PLWD the 1st of its kind in the UK
#dementia #massage #aromatherapy #MeetMeWhereIAm #enable
F2F training on dementia-informed massage approaches
but more than that
after some false starts last year I finally get to run my newest course Aromatherapy for PLWD the 1st of its kind in the UK
#dementia #massage #aromatherapy #MeetMeWhereIAm #enable
One of the joys of my job is connecting with other people in the same field sharing passions, connections, hearing speakers, building a supportive community with professionals who in turn support plwd & their carers
That's why I'm so looking forward this on Monday
#dementia #connection #together
That's why I'm so looking forward this on Monday
#dementia #connection #together
December 12, 2024 at 6:31 AM
One of the joys of my job is connecting with other people in the same field sharing passions, connections, hearing speakers, building a supportive community with professionals who in turn support plwd & their carers
That's why I'm so looking forward this on Monday
#dementia #connection #together
That's why I'm so looking forward this on Monday
#dementia #connection #together
Yesterday I joined a conversation about touch & intimacy for plwd
It's going to be interesting
but this much I do know
we can be loving, sometimes intimate, as well as boundaried, respectful & professional
#MeetMeWhereIAm #jointhehandsonrevolution #PersonLed #nourish #dementia
It's going to be interesting
but this much I do know
we can be loving, sometimes intimate, as well as boundaried, respectful & professional
#MeetMeWhereIAm #jointhehandsonrevolution #PersonLed #nourish #dementia
November 28, 2024 at 6:36 AM
Yesterday I joined a conversation about touch & intimacy for plwd
It's going to be interesting
but this much I do know
we can be loving, sometimes intimate, as well as boundaried, respectful & professional
#MeetMeWhereIAm #jointhehandsonrevolution #PersonLed #nourish #dementia
It's going to be interesting
but this much I do know
we can be loving, sometimes intimate, as well as boundaried, respectful & professional
#MeetMeWhereIAm #jointhehandsonrevolution #PersonLed #nourish #dementia
Love these resources
They focus on what plwd can still do helping us notice their abilities
eg w a person in the pearl phase adjust how we touch w firm gentle guiding hands to reassure, build...
They focus on what plwd can still do helping us notice their abilities
eg w a person in the pearl phase adjust how we touch w firm gentle guiding hands to reassure, build...
November 24, 2024 at 6:12 AM
Love these resources
They focus on what plwd can still do helping us notice their abilities
eg w a person in the pearl phase adjust how we touch w firm gentle guiding hands to reassure, build...
They focus on what plwd can still do helping us notice their abilities
eg w a person in the pearl phase adjust how we touch w firm gentle guiding hands to reassure, build...
Exploring robot-led activities between people living with dementia and family care partners
Frontiers
www.frontiersin.org/journals/rob...
Frontiers
www.frontiersin.org/journals/rob...
Frontiers | Exploring robot-led activities between people living with dementia and family care partners
IntroductionWhile shared activities foster connection between people living with dementia (PLWD) and their care partners, emotional distress and daily caregi...
www.frontiersin.org
May 1, 2026 at 7:34 AM
Exploring robot-led activities between people living with dementia and family care partners
Frontiers
www.frontiersin.org/journals/rob...
Frontiers
www.frontiersin.org/journals/rob...
This study analyzing 26,523 days of data from environmental sensors and a contactless sleep tracking system in 70 people living with dementia (PLWD) revealed that higher bedroom #temperature and less bright indoor daytime light was associated with disrupted sleep. academic.oup.com/sleep/articl...
Sleep as a Window into Brain Health: Clinical Implications of Sleeping Brain Wave-Structure Associations
Haoqi Sun, Wolfgang Ganglberger, M Brandon Westover, Robert J Thomas; Sleep as a Window into Brain Health: Clinical Implications of Sleeping Brain Wave-Str
academic.oup.com
May 15, 2025 at 8:52 PM
This study analyzing 26,523 days of data from environmental sensors and a contactless sleep tracking system in 70 people living with dementia (PLWD) revealed that higher bedroom #temperature and less bright indoor daytime light was associated with disrupted sleep. academic.oup.com/sleep/articl...
Odd as research concludes PLWD should be a priority for Covid vaccination due to high risk. All about saving money? Going to £cost if people end up in hospital seriously ill with Covid
bmjopen.bmj.com/content/15/3...
bmjopen.bmj.com/content/15/3...
bmjopen.bmj.com
October 5, 2025 at 7:24 AM
Odd as research concludes PLWD should be a priority for Covid vaccination due to high risk. All about saving money? Going to £cost if people end up in hospital seriously ill with Covid
bmjopen.bmj.com/content/15/3...
bmjopen.bmj.com/content/15/3...
“Considerations in wound care of patients living with dementia”
“Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: Associations with informal caregivers' stress and well-being.”
“wound care for PLWD in the home care setting”
“Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: Associations with informal caregivers' stress and well-being.”
“wound care for PLWD in the home care setting”
October 15, 2025 at 7:59 AM
“Considerations in wound care of patients living with dementia”
“Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: Associations with informal caregivers' stress and well-being.”
“wound care for PLWD in the home care setting”
“Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: Associations with informal caregivers' stress and well-being.”
“wound care for PLWD in the home care setting”