May 17, 2025 at 11:36 PM
Sólo hay que ver este vídeo de la declaración de Rajoy para saber de qué PPie cojea el juez Hurtado.
June 9, 2025 at 6:56 PM
Sólo hay que ver este vídeo de la declaración de Rajoy para saber de qué PPie cojea el juez Hurtado.
#12waysofERASE
Budgets should include payment for PPIE & costs of participants’ requirements.
People living with chronic illness are often expected to provide PPIE to a study for free. Their knowledge is invaluable yet somehow no financial value is attached to it.
Budgets should include payment for PPIE & costs of participants’ requirements.
People living with chronic illness are often expected to provide PPIE to a study for free. Their knowledge is invaluable yet somehow no financial value is attached to it.
#12waysofERASE
#2 Listen to the #LongCOVID community; they are the experts.
1/5
The first dose of Remdesivir was given on 28/10/2024 but we started listening to patients in June 2020. We needed to understand what was going on from people who were at the heart of it.
#2 Listen to the #LongCOVID community; they are the experts.
1/5
The first dose of Remdesivir was given on 28/10/2024 but we started listening to patients in June 2020. We needed to understand what was going on from people who were at the heart of it.
December 3, 2024 at 9:23 AM
#12waysofERASE
Budgets should include payment for PPIE & costs of participants’ requirements.
People living with chronic illness are often expected to provide PPIE to a study for free. Their knowledge is invaluable yet somehow no financial value is attached to it.
Budgets should include payment for PPIE & costs of participants’ requirements.
People living with chronic illness are often expected to provide PPIE to a study for free. Their knowledge is invaluable yet somehow no financial value is attached to it.
I planted a p”u”ppie today. They are kinda like poppies but they bark when they bloom.
#blueskydogs #dogsofbluesky #puppies #flowers
#blueskydogs #dogsofbluesky #puppies #flowers
January 27, 2025 at 12:32 AM
I planted a p”u”ppie today. They are kinda like poppies but they bark when they bloom.
#blueskydogs #dogsofbluesky #puppies #flowers
#blueskydogs #dogsofbluesky #puppies #flowers
Webinar: Evaluating impact in Patient and Public Involvement and Engagement (PPIE).
Join us for this FREE 90-minute session on the different approaches to evaluating PPIE in health research, led by PPIE experts.
📆Tues 21 Oct 2025, 1-2.30pm
Register: tinyurl.com/5xvmpdmw
@nihrspcr.bsky.social
Join us for this FREE 90-minute session on the different approaches to evaluating PPIE in health research, led by PPIE experts.
📆Tues 21 Oct 2025, 1-2.30pm
Register: tinyurl.com/5xvmpdmw
@nihrspcr.bsky.social
September 30, 2025 at 8:59 AM
Webinar: Evaluating impact in Patient and Public Involvement and Engagement (PPIE).
Join us for this FREE 90-minute session on the different approaches to evaluating PPIE in health research, led by PPIE experts.
📆Tues 21 Oct 2025, 1-2.30pm
Register: tinyurl.com/5xvmpdmw
@nihrspcr.bsky.social
Join us for this FREE 90-minute session on the different approaches to evaluating PPIE in health research, led by PPIE experts.
📆Tues 21 Oct 2025, 1-2.30pm
Register: tinyurl.com/5xvmpdmw
@nihrspcr.bsky.social
First pie of the season from our apple tree 🥧
September 8, 2024 at 5:00 PM
First pie of the season from our apple tree 🥧
Starter pack on #PublicInvolvement #PPI #PPIE #Coproduction and #ParticipatoryResearch.
Kindly put together by @louca-mai.bsky.social 🌟
Kindly put together by @louca-mai.bsky.social 🌟
November 20, 2024 at 5:01 PM
Starter pack on #PublicInvolvement #PPI #PPIE #Coproduction and #ParticipatoryResearch.
Kindly put together by @louca-mai.bsky.social 🌟
Kindly put together by @louca-mai.bsky.social 🌟
Υιppie! Good job, kobold.
>Gain 1x [Hour in the Rock Garden]
>Gain 1x [Hour in the Rock Garden]
December 5, 2025 at 7:14 PM
Υιppie! Good job, kobold.
>Gain 1x [Hour in the Rock Garden]
>Gain 1x [Hour in the Rock Garden]
Congratulations to members of our Diversity in Research Group, whose paper with recommendations for involving underserved communities has been published oxfordbrc.nihr.ac.uk/public-contr... #ResearchInclusion #PPIE @nihr.bsky.social @oxhealthbrc.bsky.social @nihrarcs.bsky.social
Public contributors make recommendations for involving underserved communities in research | NIHR Oxford Biomedical Research Centre
oxfordbrc.nihr.ac.uk
January 20, 2026 at 8:47 AM
Congratulations to members of our Diversity in Research Group, whose paper with recommendations for involving underserved communities has been published oxfordbrc.nihr.ac.uk/public-contr... #ResearchInclusion #PPIE @nihr.bsky.social @oxhealthbrc.bsky.social @nihrarcs.bsky.social
Want to know more about our #youth #mentalhealth #coproduction research project Youth LIVES? Check out our graphic by the wonderful Tamara-Jade Kaz and our website sites.google.com/york.ac.uk/y... #citizenscience #PPI #PPIE #sciart
December 3, 2024 at 10:01 PM
Want to know more about our #youth #mentalhealth #coproduction research project Youth LIVES? Check out our graphic by the wonderful Tamara-Jade Kaz and our website sites.google.com/york.ac.uk/y... #citizenscience #PPI #PPIE #sciart
Congratulations to Dr Keith Geraghty on this well-deserved award from the University of Manchester.
His work has previously been supported by @meassociation.org.uk , @irishmecfsassoc.bsky.social and crowdfunding. Last time I heard he was looking for funding to support him.
#MEcfs #CFS #PwME
His work has previously been supported by @meassociation.org.uk , @irishmecfsassoc.bsky.social and crowdfunding. Last time I heard he was looking for funding to support him.
#MEcfs #CFS #PwME
January 9, 2026 at 4:08 PM
Congratulations to Dr Keith Geraghty on this well-deserved award from the University of Manchester.
His work has previously been supported by @meassociation.org.uk , @irishmecfsassoc.bsky.social and crowdfunding. Last time I heard he was looking for funding to support him.
#MEcfs #CFS #PwME
His work has previously been supported by @meassociation.org.uk , @irishmecfsassoc.bsky.social and crowdfunding. Last time I heard he was looking for funding to support him.
#MEcfs #CFS #PwME
Finishing 2024 on a high note: delighted to be appointed Professor at LSHTM.
Thanks to many many people for support & advice along the way. 🙏
Looking forward to more exciting research, collaborations with amazing scientists, work with my fantastic team & PPIE colleagues.
Exciting times ahead! 🎉
Thanks to many many people for support & advice along the way. 🙏
Looking forward to more exciting research, collaborations with amazing scientists, work with my fantastic team & PPIE colleagues.
Exciting times ahead! 🎉
December 9, 2024 at 4:20 PM
Finishing 2024 on a high note: delighted to be appointed Professor at LSHTM.
Thanks to many many people for support & advice along the way. 🙏
Looking forward to more exciting research, collaborations with amazing scientists, work with my fantastic team & PPIE colleagues.
Exciting times ahead! 🎉
Thanks to many many people for support & advice along the way. 🙏
Looking forward to more exciting research, collaborations with amazing scientists, work with my fantastic team & PPIE colleagues.
Exciting times ahead! 🎉
#PublicInvolvement (#PPI #PPIE), #Coproduction and #ParticipatoryResearch in health and care research starter pack: go.bsky.app/PWEAnFR
November 17, 2024 at 10:13 PM
#PublicInvolvement (#PPI #PPIE), #Coproduction and #ParticipatoryResearch in health and care research starter pack: go.bsky.app/PWEAnFR
Happy to see this out in one of my fave journals - led by @crismontenegro.bsky.social We unpack distinct contributions of PPIE & qual sociology, suggest why they are at times conflated, and why they shouldn't be.
Engagement and qualitative sociology in health research: proximal, but incongruent
@crismontenegro.bsky.social & @judegreen.bsky.social
link.springer.com/article/10.1...
@crismontenegro.bsky.social & @judegreen.bsky.social
link.springer.com/article/10.1...
Engagement and qualitative sociology in health research: proximal, but incongruent - Social Theory & Health
This paper argues that sociology’s distinctive value in health research lies not in amplifying experiential accounts but in analysing the social structures and norms that shape them—a contribution oft...
link.springer.com
July 14, 2025 at 9:05 AM
Happy to see this out in one of my fave journals - led by @crismontenegro.bsky.social We unpack distinct contributions of PPIE & qual sociology, suggest why they are at times conflated, and why they shouldn't be.
💬 "Include us, not just study us." Dr Clíona Farrell shares how PPIE made a dementia research conference more impactful for everyone involved. #PPIE #DementiaResearch @ukdri.ac.uk
www.dementiaresearcher.nihr.ac.uk/blog-how-ppi...
www.dementiaresearcher.nihr.ac.uk/blog-how-ppi...
Dr Clíona Farrell - Blog – How PPIE involvement can Improve a Conference
Guest blog by Dr Clíona Farrell on how PPIE made a research conference more inclusive, impactful, and accessible for all. A must-read for every scientist.
www.dementiaresearcher.nihr.ac.uk
March 28, 2025 at 10:02 AM
💬 "Include us, not just study us." Dr Clíona Farrell shares how PPIE made a dementia research conference more impactful for everyone involved. #PPIE #DementiaResearch @ukdri.ac.uk
www.dementiaresearcher.nihr.ac.uk/blog-how-ppi...
www.dementiaresearcher.nihr.ac.uk/blog-how-ppi...
📣 @nihrarcs.bsky.social #PPI webinar: Evaluating #PublicInvolvement with children & young people 🌟17/2/26
Presenters incl me, @helenabnett.bsky.social & @hertsypag.bsky.social + hosted by @skourkos.bsky.social & @elspethma.bsky.social
Info & booking: www.eventbrite.co.uk/e/involving-...
Presenters incl me, @helenabnett.bsky.social & @hertsypag.bsky.social + hosted by @skourkos.bsky.social & @elspethma.bsky.social
Info & booking: www.eventbrite.co.uk/e/involving-...
January 19, 2026 at 4:25 PM
📣 @nihrarcs.bsky.social #PPI webinar: Evaluating #PublicInvolvement with children & young people 🌟17/2/26
Presenters incl me, @helenabnett.bsky.social & @hertsypag.bsky.social + hosted by @skourkos.bsky.social & @elspethma.bsky.social
Info & booking: www.eventbrite.co.uk/e/involving-...
Presenters incl me, @helenabnett.bsky.social & @hertsypag.bsky.social + hosted by @skourkos.bsky.social & @elspethma.bsky.social
Info & booking: www.eventbrite.co.uk/e/involving-...
As part of our grant application process, therefore, we include budgets for work contributed by PPIE representatives. Why should they contribute their knowledge, expertise and skills for free?
But it doesn’t/shouldn’t stop here…
Participants’ needs also require a budget.
But it doesn’t/shouldn’t stop here…
Participants’ needs also require a budget.
December 3, 2024 at 9:23 AM
As part of our grant application process, therefore, we include budgets for work contributed by PPIE representatives. Why should they contribute their knowledge, expertise and skills for free?
But it doesn’t/shouldn’t stop here…
Participants’ needs also require a budget.
But it doesn’t/shouldn’t stop here…
Participants’ needs also require a budget.
No patient (or doctor) can speak for all patients. This also applies to PPIE.
January 30, 2026 at 7:54 AM
No patient (or doctor) can speak for all patients. This also applies to PPIE.
Apologies for the technical language, but what the fuck? "Ethics committees should not refer researchers to ask advice from EDI committees.”. This has worrying implications for PPIE engagement.
July 2, 2025 at 11:10 AM
Apologies for the technical language, but what the fuck? "Ethics committees should not refer researchers to ask advice from EDI committees.”. This has worrying implications for PPIE engagement.
👉Early career NIHR Cambridge BRC-associated researcher?
👉 Interested in applying for up to £1000 for support inclusive #PPIE activity?
👉 Find out more: bit.ly/42sUI6x
@cuhnhs.bsky.social @cambridgeuni.bsky.social @nihr.bsky.social @royalpapworth.bsky.social @jameslindalliance.bsky.social #funding
👉 Interested in applying for up to £1000 for support inclusive #PPIE activity?
👉 Find out more: bit.ly/42sUI6x
@cuhnhs.bsky.social @cambridgeuni.bsky.social @nihr.bsky.social @royalpapworth.bsky.social @jameslindalliance.bsky.social #funding
NIHR Cambridge BRC PPIE Funding call - NIHR Cambridge Biomedical Research Centre
bit.ly
April 3, 2025 at 3:10 PM
👉Early career NIHR Cambridge BRC-associated researcher?
👉 Interested in applying for up to £1000 for support inclusive #PPIE activity?
👉 Find out more: bit.ly/42sUI6x
@cuhnhs.bsky.social @cambridgeuni.bsky.social @nihr.bsky.social @royalpapworth.bsky.social @jameslindalliance.bsky.social #funding
👉 Interested in applying for up to £1000 for support inclusive #PPIE activity?
👉 Find out more: bit.ly/42sUI6x
@cuhnhs.bsky.social @cambridgeuni.bsky.social @nihr.bsky.social @royalpapworth.bsky.social @jameslindalliance.bsky.social #funding
🌟 What impact can #PPIE have on a career?
In a new blog, Trainee Clinical Psychologist Olivia Gorvett reflects on how her experiences with a young people’s research group shaped her understanding of #coproduction, #research and #livedexperience.
tinyurl.com/y67tv3rb
In a new blog, Trainee Clinical Psychologist Olivia Gorvett reflects on how her experiences with a young people’s research group shaped her understanding of #coproduction, #research and #livedexperience.
tinyurl.com/y67tv3rb
September 25, 2026 at 2:15 PM
🌟 What impact can #PPIE have on a career?
In a new blog, Trainee Clinical Psychologist Olivia Gorvett reflects on how her experiences with a young people’s research group shaped her understanding of #coproduction, #research and #livedexperience.
tinyurl.com/y67tv3rb
In a new blog, Trainee Clinical Psychologist Olivia Gorvett reflects on how her experiences with a young people’s research group shaped her understanding of #coproduction, #research and #livedexperience.
tinyurl.com/y67tv3rb
The words you choose and how you use them matter.
We try hard to get it right and our PPIE reps have provided such valuable insight into all of our patient facing and study training materials.
No doubt we will get it wrong sometimes but we will always correct ourselves if that is the case.
We try hard to get it right and our PPIE reps have provided such valuable insight into all of our patient facing and study training materials.
No doubt we will get it wrong sometimes but we will always correct ourselves if that is the case.
December 9, 2024 at 10:17 AM
The words you choose and how you use them matter.
We try hard to get it right and our PPIE reps have provided such valuable insight into all of our patient facing and study training materials.
No doubt we will get it wrong sometimes but we will always correct ourselves if that is the case.
We try hard to get it right and our PPIE reps have provided such valuable insight into all of our patient facing and study training materials.
No doubt we will get it wrong sometimes but we will always correct ourselves if that is the case.
Our first face to face SPROCKET PPIE meeting brought young people, parents and charity partners together to explore systems thinking and choose our shared values.
🎢 Equity
🔍 Solution focused
🚀 Ambitious about change
Visual minutes and photos by Raquel Durán
🎢 Equity
🔍 Solution focused
🚀 Ambitious about change
Visual minutes and photos by Raquel Durán
September 21, 2026 at 11:04 AM
Our first face to face SPROCKET PPIE meeting brought young people, parents and charity partners together to explore systems thinking and choose our shared values.
🎢 Equity
🔍 Solution focused
🚀 Ambitious about change
Visual minutes and photos by Raquel Durán
🎢 Equity
🔍 Solution focused
🚀 Ambitious about change
Visual minutes and photos by Raquel Durán