We are pleased to announce our first annual report, highlighting the journey,impact, and vision of PURA Foundation Australia. This report reflects commitment to transparency, accountability, and positive change
www.purafoundation.au/about

#rare #purafoundation #DEE #teamPURA #purasyndrome #research

This past weekend at the PURA Conference in Munich reminded us what makes rare disease research so special: bringing together families, clinicians, and researchers from around the world. We were honored to receive the PURA Hero Award 2026.

#Purafoundation #community #purasyndrome #Rare #TeamPURA

💜 PURA x The Florey.

In 2 weeks families, Foundation and scientists will gather to share research updates and Run As One. Together, we’re uniting the expertise of researchers with the lived experiences of families to accelerate life changing discoveries.

#PURAfoundation #purasyndrome #TheFlorey

February 28th is Rare Disease Day, a day where we recognise the millions of individuals around the world living with rare disease.
Although every diagnosis is different, one thing unites us all: the strength of community.

#Purafoundation #community #purasyndrome #Rare #puraperfect #TeamPURA

🏃‍♀️ Walk. Run. Give. Every Dollar Supports Research Progress 🧬

This August we’re taking part in the Sydney Marathon to raise vital funds for PURA syndrome research.

Donate here 👉 sm25.grassrootz.com/purafoundation

Every dollar goes directly towards new research, treatments and hope for families. 💜