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Post from X: Simmaron Research @RedefiningMECFS Our non-profit just completed Ph 1 of a treatment trial of #rapamycin in 100+ #ME patients, tracking autophagy markers. Our goal: develop a diagnostic to predict which patients are more likely to benefit from this drug. We'll publish Ph 1 results shortly and expand on Ph 2. 9:15 PM • 1/10/25 • 698 Views
January 19, 2025 at 1:30 PM
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MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...

#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity
NIH RECOVER TLC clinical trials for Long COVID. - Massachusetts ME/CFS & FM
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September 17, 2025 at 1:27 PM
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Stephanie Grach MD MS on X: "Had the honor of presenting the initial patient-reported outcomes of the collaborative rapamycin study led by @RedefiningMECFS at @ACPIMPhysicians #IM2025 today! Had an amazing time talking with clinicians from all over the country about advancing the knowledge and care of #MECFS https://t.co/HWaWHjjGia" / X
Had the honor of presenting the initial patient-reported outcomes of the collaborative rapamycin study led by @RedefiningMECFS at @ACPIMPhysicians #IM2025 today! Had an amazing time talking with clinicians from all over the country about advancing the knowledge and care of #MECFS https://t.co/HWaWHjjGia
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April 5, 2025 at 8:07 AM
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Thread on X by final author
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#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Thread by @ggottschalkPhD on Thread Reader App
@ggottschalkPhD: We @RedefiningMECFS and @AvikRoy74969264 are excited to share some early results of our low dose rapamycin project in its pre-print version here. Thanks to all the patients for partic...
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June 3, 2025 at 3:09 PM