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sma-europe.bsky.social
📣 Reminder: our next #SMAcademy webinar is coming up soon!

“Towards understanding SMA as a multisystem condition”

🗓️ 15 Oct 2026
⏰ 14:00–15:30 CET

There is still time to register:
https://bit.ly/4zhaajY

#SMA #SMAEurope #SMAResearch
Green slide reminding readers about the upcoming SMAcademy webinar, “Towards understanding SMA as a multisystem condition,” taking place on 15 October 2026 from 14:00 to 15:30 CET. It notes that the SMAcademy Webinar Series is designed for patient advocates and that the Q&A session will be open to patient advocates only. Green closing slide with the SMA Europe logo, #WeAreOne, #SpinalMuscularAtrophy and www.sma-europe.eu.
October 9, 2026 at 8:11 AM
talkingsmacpod.bsky.social
We’re recording our SMACademy Awards episode, where we crown our best of 2024

What were your favorite movies, TV shows, video games, comics & other things in 2024 nerd culture?

#Retrospective #FalloutPrime #DeadpoolAndWolverine #Anime #TheWildRobot #WickedMovie #StarTrek #StarWars #Marvel #XMen97
December 26, 2024 at 5:21 PM
talkingsmacpod.bsky.social
We’re prepping for our first-ever SMACademy Awards and we want your input on your favorite things form 2023

Please fill out the survey here:

freeonlinesurveys.com/s/LvGC2OQS
December 27, 2023 at 7:56 PM
sma-europe.bsky.social
Applications open for SMA Patient Advocate Training (SMAcademy).

🗓 Info session: 22 May
📅 Deadline: 30 June

🔗 Join our info session to learn more: https://www.sma-europe.eu/sma-patient-advocate-training

#SMA #Advocacy #Awareness
A mustard-themed slide announcing the SMAcademy Patient Advocate Training, featuring a white community icon. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "SMA Europe's SMA Patient Advocate Training is a unique, SMA-focused training to equip advocates with the knowledge and skills to represent people living with SMA.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Upon completion of all dedicated modules, trainees receive the SMA Patient Advocate Training Certificate issued by SMA Europe.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Learn more and apply here.” with a down pointing finger to a QR code in the center. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right.
May 8, 2026 at 11:06 AM
sma-europe.bsky.social
Applications open for SMA Patient Advocate Training

📅 Deadline: 30 June

🔗 https://www.sma-europe.eu/sma-patient-advocate-training

#SMA #PatientAdvocacy #Awareness #Training #Advocacy
A mustard-themed slide of reminder of the application of the SMAcademy Patient Advocate Training, featuring a white announcement icon. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "SMA Europe's SMA Patient Advocate Training is a unique, SMA-focused training to equip advocates with the knowledge and skills to represent people living with SMA.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Upon completion of all dedicated modules, trainees receive the SMA Patient Advocate Training Certificate issued by SMA Europe.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Learn more and apply here.” with a down pointing finger to a QR code in the center. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right.
May 26, 2026 at 10:30 AM
sma-europe.bsky.social
Final reminder: SMA Patient Advocate Training 📢 

📅 Apply by 30 June

Build your advocacy for Spinal Muscular Atrophy

🔗 https://www.sma-europe.eu/sma-patient-advocate-training

#SMA #PatientAdvocacy #Training #Advocacy
A mustard-themed slide of reminder of the application of the SMAcademy Patient Advocate Training, featuring a white announcement icon. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "SMA Europe's SMA Patient Advocate Training is a unique, SMA-focused training to equip advocates with the knowledge and skills to represent people living with SMA.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Upon completion of all dedicated modules, trainees receive the SMA Patient Advocate Training Certificate issued by SMA Europe.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Learn more and apply here.” with a down pointing finger to a QR code in the center. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right.
June 25, 2026 at 10:50 AM
sma-europe.bsky.social
Reminder: SMA Patient Advocate Training info session

🗓 22 May, 15:00

Join our info session to learn more.

🔗 https://www.sma-europe.eu/sma-patient-advocate-training

#SMA #PatientAdvocacy #Awareness #Training #Advocacy
A mustard-themed slide of reminder of the Info Session of the SMAcademy Patient Advocate Training, featuring a white announcement icon. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "SMA Europe's SMA Patient Advocate Training is a unique, SMA-focused training to equip advocates with the knowledge and skills to represent people living with SMA.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Upon completion of all dedicated modules, trainees receive the SMA Patient Advocate Training Certificate issued by SMA Europe.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Learn more and apply here.” with a down pointing finger to a QR code in the center. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right.
May 12, 2026 at 9:02 AM
sma-europe.bsky.social
Reminder: SMA Patient Advocate Training

📅 Apply by 30 June

Build your advocacy for Spinal Muscular Atrophy

🔗 https://www.sma-europe.eu/sma-patient-advocate-training

#SMA #PatientAdvocacy #Training #Advocacy
A mustard-themed slide of reminder of the application of the SMAcademy Patient Advocate Training, featuring a white announcement icon. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "SMA Europe's SMA Patient Advocate Training is a unique, SMA-focused training to equip advocates with the knowledge and skills to represent people living with SMA.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Upon completion of all dedicated modules, trainees receive the SMA Patient Advocate Training Certificate issued by SMA Europe.” The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right. A mustard-themed slide with a text reads "Learn more and apply here.” with a down pointing finger to a QR code in the center. The SMA Europe logo is positioned in the top left, with a green “All together. One Goal.” stamp in the top right.
June 9, 2026 at 10:02 AM
sma-europe.bsky.social
The first #SMAcademy SMA Patient Advocate Training cohort has started. 🌍 19 trainees from 17 countries are beginning a six-month programme designed to strengthen the knowledge and skills needed for effective SMA patient advocacy. 🔗  https://www.sma-europe.eu/smacademy
#SMA #PatientAdvocacy #WeAreOne
September 25, 2026 at 10:02 AM
sma-europe.bsky.social
Join our next #SMAcademy webinar:

“Towards understanding SMA as a multisystem condition”

🗓️ 15 Oct 2026
⏰ 14:00–15:30 CET

Explore SMA beyond motor function, including bone, metabolic, cardiovascular and vascular involvement.

🔗 https://bit.ly/4yK4Ipk

#SMA #SMAEurope #SMAResearch
September 24, 2026 at 8:12 AM
sma-europe.bsky.social
📣 Last reminder: Our next #SMAcademy webinar is coming up!

Long-term responses to disease-modifying treatments in SMA

🗓️ 15 September
⏰ 17:00–18:30 CEST
🎙️ Tina Duong, MPT, PhD

🔗 Register via QR code. 

#SMA #Research #WeAreOne
September 8, 2026 at 11:02 AM
sma-europe.bsky.social
📣 Reminder: Our next #SMAcademy webinar is coming up!

Long-term responses to disease-modifying treatments in SMA

🗓️ 15 September
⏰ 17:00–18:30 CEST
🎙️ Tina Duong, MPT, PhD

🔗 Register: https://shorturl.at/M1FFJ

#SMA #Research #WeAreOne
September 2, 2026 at 3:04 PM
sma-europe.bsky.social
Join our new #SMAcademy webinar! 📣

“Long-term responses to disease-modifying treatments in SMA”

🗓️ 15 September 2026
⏰ 17:00–18:30 CEST
🎤 Tina Duong, MPT, PhD

🔗 https://shorturl.at/JKRq4

#SMAEurope #SMAResearch #WeAreOne
July 31, 2026 at 12:02 PM
sma-europe.bsky.social
Coming soon! 📣 Join us on 17 June, 14:30–16:00 CET, for our SMAcademy webinar on “Patient Experience Data.” Explore how lived experience can become meaningful data for advocacy, research, and care. 🔗 https://bit.ly/4uWdnmE #SMA #WeAreOne
An orange colored slide text reads: "Don’t miss our upcoming SMAcademy webinar! “Patient Experience Data: Turning lived experience into meaningful data.” TODAY! From 14.30 to 16.00 CET. An orange slide with SMA Europe's logo and website address.
June 16, 2026 at 11:01 AM
sma-europe.bsky.social
Don’t miss our upcoming SMAcademy webinar! 📣 “Patient Experience Data: Turning lived experience into meaningful data”
🗓️ 17 June 2026
⏰ 14:30–16:00 CET
Explore how SMA communities can turn lived experience into meaningful data for advocacy, research, and care.
🔗 https://bit.ly/4uWdnmE
#SMA #WeAreOne
An orange colored slide text reads: "Don’t miss our upcoming SMAcademy webinar! “Patient Experience Data: Turning lived experience into meaningful data.” June 17, 2026, from 14.30 to 16.00 CET.” An orange slide with SMA Europe's logo and website address.
June 10, 2026 at 12:01 PM
sma-europe.bsky.social
Join our new SMAcademy webinar 📣

“Patient Experience Data: Turning lived experience into meaningful data”

🗓️ 17 June 2026
⏰ 14:30–16:00 CET

Explore how SMA communities can turn lived experience into meaningful data for advocacy, research, and care.

🔗 https://bit.ly/4uWdnmE

#SMAcademy #WeAreOne
An orange colored slide text reads: "Join Our SMAcademy webinar! “Patient Experience Data: Turning lived experience into meaningful data.” June 17, 2026, from 14.30 to 16.00 CET.” An orange slide with SMA Europe's logo and website address.
May 25, 2026 at 9:02 AM
sma-europe.bsky.social
Join our new SMAcademy webinar! 📣 
Register for the webinar here: https://forms.office.com/pages/responsepage.aspx?id=nJq9KGEhVEm68wL1hwme9J1kOvEpT-9Kke7QB-DNUyVUMlZKWjdBVUpQMUtEVUg3OTZQNVg2Ujc1NC4u&route=shorturl 
#SMAEurope #webinar #sma #awareness #smacademy
A blue-colored slide says "Design, launch, impact: how to run a successful awareness campaign" Wednesday 28th May 2025 14.30 to 16.00 CET.” centered, the SMA Europe logo in the top left corner appears. A blue slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
May 25, 2025 at 8:28 AM
sma-europe.bsky.social
Join our new SMAcademy webinar! 📣 
Register for the webinar here: https://forms.office.com/pages/responsepage.aspx?id=nJq9KGEhVEm68wL1hwme9J1kOvEpT-9Kke7QB-DNUyVUMlZKWjdBVUpQMUtEVUg3OTZQNVg2Ujc1NC4u&route=shorturl 
#SMAEurope #webinar #sma #awareness #smacademy
A blue-colored slide says "Design, launch, impact: how to run a successful awareness campaign" Wednesday 28th May 2025 14.30 to 16.00 CET.” centered, the SMA Europe logo in the top left corner appears. A blue slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
May 14, 2025 at 10:01 AM