Morning all, meeting up with choir friends today, David’s charity (SUDEP Action) is kicking off this morning with a walk and coffee/cake at a new cafe that’s donating 10% of takings and all tips. 🥰🥰
August 6, 2026 at 7:24 AM
Morning all, meeting up with choir friends today, David’s charity (SUDEP Action) is kicking off this morning with a walk and coffee/cake at a new cafe that’s donating 10% of takings and all tips. 🥰🥰
The gig our band did last night was for a friend of our lead guitarist, no charge for friends and family is our rule. They’ve just donated to SUDEP Action in David’s name, I’m so chuffed. 🥰🥰🥰
July 12, 2026 at 6:19 PM
The gig our band did last night was for a friend of our lead guitarist, no charge for friends and family is our rule. They’ve just donated to SUDEP Action in David’s name, I’m so chuffed. 🥰🥰🥰
Unexplained epileptic death is so common they gave it a name (sudep)
December 22, 2024 at 5:50 PM
Unexplained epileptic death is so common they gave it a name (sudep)
Today is #SUDEPActionDay2025 - raising awareness of Sudden Unexpected Death in Epilepsy (SUDEP).
Whether you are someone living with epilepsy or a friend/family of someone who is or if you’ve been bereaved by it, join SUDEP Action's mission to raise global awareness of SUDEP.
Whether you are someone living with epilepsy or a friend/family of someone who is or if you’ve been bereaved by it, join SUDEP Action's mission to raise global awareness of SUDEP.
October 15, 2025 at 10:02 AM
Today is #SUDEPActionDay2025 - raising awareness of Sudden Unexpected Death in Epilepsy (SUDEP).
Whether you are someone living with epilepsy or a friend/family of someone who is or if you’ve been bereaved by it, join SUDEP Action's mission to raise global awareness of SUDEP.
Whether you are someone living with epilepsy or a friend/family of someone who is or if you’ve been bereaved by it, join SUDEP Action's mission to raise global awareness of SUDEP.
Never used a smartwatch before but just got one with heart rate / O2 tracking to monitor my nocturnal seizures and make SOS calls for me. I am at severe risk of SUDEP and he will almost certainly save my life one day, even now that he's gone.
July 19, 2025 at 8:51 PM
Never used a smartwatch before but just got one with heart rate / O2 tracking to monitor my nocturnal seizures and make SOS calls for me. I am at severe risk of SUDEP and he will almost certainly save my life one day, even now that he's gone.
I'm epileptic, and one of my medications is now $1100/month. I literally can not afford it. Me seizure frequency has already increased. I am not looking forward to SUDEP. I hate this.
January 27, 2025 at 1:27 AM
I'm epileptic, and one of my medications is now $1100/month. I literally can not afford it. Me seizure frequency has already increased. I am not looking forward to SUDEP. I hate this.
Or SUDEP ... 🤬
December 28, 2025 at 9:20 PM
Or SUDEP ... 🤬
It's #PurpleDay!
I support this year’s theme of #StandUpToSeizures.
Today is an opportunity to raise awareness for the 630,000 people in the UK who have epilepsy. For more epilepsy info www.epilepsysociety.org.uk
#SUDEP #sudepawareness #SUDEPAction
I support this year’s theme of #StandUpToSeizures.
Today is an opportunity to raise awareness for the 630,000 people in the UK who have epilepsy. For more epilepsy info www.epilepsysociety.org.uk
#SUDEP #sudepawareness #SUDEPAction
March 26, 2025 at 4:23 PM
It's #PurpleDay!
I support this year’s theme of #StandUpToSeizures.
Today is an opportunity to raise awareness for the 630,000 people in the UK who have epilepsy. For more epilepsy info www.epilepsysociety.org.uk
#SUDEP #sudepawareness #SUDEPAction
I support this year’s theme of #StandUpToSeizures.
Today is an opportunity to raise awareness for the 630,000 people in the UK who have epilepsy. For more epilepsy info www.epilepsysociety.org.uk
#SUDEP #sudepawareness #SUDEPAction
RIP😭❤️ SUDEP is the scariest thing I have ever heard of. He was so talented too. I can’t imagine all of the greatness he may have done had he had the chance at the many years he deserved.
September 20, 2026 at 12:43 AM
RIP😭❤️ SUDEP is the scariest thing I have ever heard of. He was so talented too. I can’t imagine all of the greatness he may have done had he had the chance at the many years he deserved.
Each year, more than 1 in 1,000 people with epilepsy die from SUDEP.
People with poorly controlled epilepsy are at greatest risk of dying from SUDEP.
SUDEP takes more lives annually in the United States than sudden infant death syndrome (SIDS).
People with poorly controlled epilepsy are at greatest risk of dying from SUDEP.
SUDEP takes more lives annually in the United States than sudden infant death syndrome (SIDS).
October 21, 2025 at 8:56 AM
Each year, more than 1 in 1,000 people with epilepsy die from SUDEP.
People with poorly controlled epilepsy are at greatest risk of dying from SUDEP.
SUDEP takes more lives annually in the United States than sudden infant death syndrome (SIDS).
People with poorly controlled epilepsy are at greatest risk of dying from SUDEP.
SUDEP takes more lives annually in the United States than sudden infant death syndrome (SIDS).
Alice Katharine Hale was born on May 1, 1985, to George X. Hale & me.
#SUDEP - Sudden Unexpected Death in EPilepsy - took Alice from us in April 2015, 10 days before her 30th birthday.
She was brilliant, generous, kind, funny & well loved.
I talk about her often to keep her alive. She's worth it.
#SUDEP - Sudden Unexpected Death in EPilepsy - took Alice from us in April 2015, 10 days before her 30th birthday.
She was brilliant, generous, kind, funny & well loved.
I talk about her often to keep her alive. She's worth it.
January 1, 2025 at 7:26 PM
Alice Katharine Hale was born on May 1, 1985, to George X. Hale & me.
#SUDEP - Sudden Unexpected Death in EPilepsy - took Alice from us in April 2015, 10 days before her 30th birthday.
She was brilliant, generous, kind, funny & well loved.
I talk about her often to keep her alive. She's worth it.
#SUDEP - Sudden Unexpected Death in EPilepsy - took Alice from us in April 2015, 10 days before her 30th birthday.
She was brilliant, generous, kind, funny & well loved.
I talk about her often to keep her alive. She's worth it.
If anyone’s interested. SUDEP.org
I had no idea how many people, especially young people die of epilepsy. I will be putting David’s story on there next week. I will not let his death be forgotten or disregarded. #RaiseAwareness
I had no idea how many people, especially young people die of epilepsy. I will be putting David’s story on there next week. I will not let his death be forgotten or disregarded. #RaiseAwareness
Home | SUDEP Action
The only UK charity working alongside those who have lost loved ones to an unexpected epilepsy-related death.
SUDEP.org
May 9, 2026 at 9:22 PM
If anyone’s interested. SUDEP.org
I had no idea how many people, especially young people die of epilepsy. I will be putting David’s story on there next week. I will not let his death be forgotten or disregarded. #RaiseAwareness
I had no idea how many people, especially young people die of epilepsy. I will be putting David’s story on there next week. I will not let his death be forgotten or disregarded. #RaiseAwareness
Eu vivo nisso há anos.
O meu filho - SUDEP.
O meu filho - SUDEP.
September 9, 2023 at 2:17 PM
Eu vivo nisso há anos.
O meu filho - SUDEP.
O meu filho - SUDEP.
Paul accepted The 2026 Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP).
Who is next to accept the ramen challenge?
#slurpforseizuresafety
#ramenchallenge
#EndTheSUDEPSecret
#SUDEPAwareness
#epilepsyawareness
@markshaparinfdn.bsky.social
Who is next to accept the ramen challenge?
#slurpforseizuresafety
#ramenchallenge
#EndTheSUDEPSecret
#SUDEPAwareness
#epilepsyawareness
@markshaparinfdn.bsky.social
May 11, 2026 at 10:11 PM
Paul accepted The 2026 Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP).
Who is next to accept the ramen challenge?
#slurpforseizuresafety
#ramenchallenge
#EndTheSUDEPSecret
#SUDEPAwareness
#epilepsyawareness
@markshaparinfdn.bsky.social
Who is next to accept the ramen challenge?
#slurpforseizuresafety
#ramenchallenge
#EndTheSUDEPSecret
#SUDEPAwareness
#epilepsyawareness
@markshaparinfdn.bsky.social
SUDEP affects approximately 1 in 1,000 people with epilepsy. For decades, it was a risk many neurologists dismissed as too rare to discuss.
www.youtube.com/watch?v=sCKJ...
www.youtube.com/watch?v=sCKJ...
My Son Died of SUDEP: Tragic Loss Inspires Epilepsy Research
YouTube video by CURE Epilepsy
www.youtube.com
September 22, 2026 at 3:31 PM
SUDEP affects approximately 1 in 1,000 people with epilepsy. For decades, it was a risk many neurologists dismissed as too rare to discuss.
www.youtube.com/watch?v=sCKJ...
www.youtube.com/watch?v=sCKJ...
Yes, they can. www.epilepsy.com/complication...
Early Death & SUDEP | Epilepsy Foundation
SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. In SUDEP cases, no other cause of death is found.
www.epilepsy.com
March 28, 2025 at 4:45 PM
Yes, they can. www.epilepsy.com/complication...
I lost a friend to SUDEP in 2015. It was scary how sudden it was. I still think about him alot
The Life and Death of Disney's Cameron Boyce | Epilepsy and SUDEP Awareness
YouTube video by Petal Palmer
youtu.be
May 10, 2026 at 5:09 PM
I lost a friend to SUDEP in 2015. It was scary how sudden it was. I still think about him alot
Had a seizure. Took a klonopin. Feels like the hat man's polite cousin is chilling in the corner. I don't wanna SUDEP.
October 25, 2025 at 2:37 AM
Had a seizure. Took a klonopin. Feels like the hat man's polite cousin is chilling in the corner. I don't wanna SUDEP.
SUDEP or SUdden Death in Epilepsy affects about 1 in 1000 people with Epilepsy annually. - Have your doctors told you about your risks of SUDEP? #EpilepsyAwareness
brainablaze.com/the-brain-ab...
brainablaze.com/the-brain-ab...
026: Mortality - The Brain Ablaze Epilepsy Podcast
We stare down the monster that has plagued our Epilepsy community for decades, SUDEP, or SUdden Death from EPilepsy.
brainablaze.com
October 5, 2025 at 3:03 PM
SUDEP or SUdden Death in Epilepsy affects about 1 in 1000 people with Epilepsy annually. - Have your doctors told you about your risks of SUDEP? #EpilepsyAwareness
brainablaze.com/the-brain-ab...
brainablaze.com/the-brain-ab...
Sudden unexpected death in epilepsy #SUDEP is the leading cause of epilepsy-related mortality. Although the underlying mechanisms have historically remained shrouded in mystery, new findings from the lab of SMU biology professor Edward Glasscock are beginning to provide valuable clues. 🧪 #epilepsy
SMU biology researchers move closer to cause of Sudden Unexpected Death in Epilepsy
Sudden unexpected death in epilepsy (SUDEP) is the leading cause of epilepsy-related mortality. Although the underlying mechanisms have historically remained shrouded in mystery, new findings from the...
www.smu.edu
January 16, 2025 at 8:03 PM