📣Join our webinar 'Embedding the Patient Voice at the Centre of a National Quality Improvement Programme: Learning from the National Cancer Audit Collaborating Centre'
🗓️ Mon 22/06, 9:30–10:30am. Register here: bit.ly/3Q8jxl8 #NPaDD @usemydata.bsky.social @hqip.bsky.social @natcan-news.bsky.social
🗓️ Mon 22/06, 9:30–10:30am. Register here: bit.ly/3Q8jxl8 #NPaDD @usemydata.bsky.social @hqip.bsky.social @natcan-news.bsky.social
Embedding the patient voice in the centre of a national quality improvement
Sign up and join this National Patient Data Day #NPaDD 2026 usemydata umbrella event
bit.ly
June 17, 2026 at 10:04 AM
📣Join our webinar 'Embedding the Patient Voice at the Centre of a National Quality Improvement Programme: Learning from the National Cancer Audit Collaborating Centre'
🗓️ Mon 22/06, 9:30–10:30am. Register here: bit.ly/3Q8jxl8 #NPaDD @usemydata.bsky.social @hqip.bsky.social @natcan-news.bsky.social
🗓️ Mon 22/06, 9:30–10:30am. Register here: bit.ly/3Q8jxl8 #NPaDD @usemydata.bsky.social @hqip.bsky.social @natcan-news.bsky.social
Salivary gland cancer is rare, but raising awareness can lead to earlier diagnosis and better outcomes.
However, research is decades behind other cancers.
Sharing data is vital to inform understanding and develop effective treatments & therapies.
www.salivaryglandcancer.uk
#SGCDay
#UseMyData
However, research is decades behind other cancers.
Sharing data is vital to inform understanding and develop effective treatments & therapies.
www.salivaryglandcancer.uk
#SGCDay
#UseMyData
October 2, 2025 at 9:15 AM
Salivary gland cancer is rare, but raising awareness can lead to earlier diagnosis and better outcomes.
However, research is decades behind other cancers.
Sharing data is vital to inform understanding and develop effective treatments & therapies.
www.salivaryglandcancer.uk
#SGCDay
#UseMyData
However, research is decades behind other cancers.
Sharing data is vital to inform understanding and develop effective treatments & therapies.
www.salivaryglandcancer.uk
#SGCDay
#UseMyData
The webinar was the result of an invitation to present, from the patient focussed charity, useMYdata, who ran an number of online events in recognition of #nationalpatientday.
During the webinar, Frank talked about his involvement in the audit, and living beyond a diagnosis of non-Hodgkin lymphoma.
During the webinar, Frank talked about his involvement in the audit, and living beyond a diagnosis of non-Hodgkin lymphoma.
September 17, 2026 at 2:03 PM
The webinar was the result of an invitation to present, from the patient focussed charity, useMYdata, who ran an number of online events in recognition of #nationalpatientday.
During the webinar, Frank talked about his involvement in the audit, and living beyond a diagnosis of non-Hodgkin lymphoma.
During the webinar, Frank talked about his involvement in the audit, and living beyond a diagnosis of non-Hodgkin lymphoma.
A valued Member of #useMYdata and a huge voice in lobbying for collection & use of patient data to improve outcomes for MBC patients, Jo demanded that patients be heard and counted to make change: “Without data, how can we make any progress?” #JoTaylor we salute your courage & determination.
We honour Jo Taylor - founder of METUPUK and tireless advocate for people living with Metastatic Breast Cancer. Through her courage and determination, Jo changed the conversation around MBC, inspiring action, progress, and hope.
#JoTaylor #METUPUK #LegacyOfChange
#JoTaylor #METUPUK #LegacyOfChange
November 7, 2025 at 12:38 PM
A valued Member of #useMYdata and a huge voice in lobbying for collection & use of patient data to improve outcomes for MBC patients, Jo demanded that patients be heard and counted to make change: “Without data, how can we make any progress?” #JoTaylor we salute your courage & determination.
Big thanks to @rorycj.bsky.social, a #useMYdata Member and speaker at our #NationalPatientDataDay for championing the patient voice and highlighting the importance of sharing good news stories about how our health data benefits research and our own care.
open.substack.com/pub/rorycell... Health data - time to tell an upbeat story. I told the National Patient Data Day conference it was high time the Research community was a bit bolder in explaining the importance of sharing health data
Health Data - Time to Tell an Upbeat Story
The problem, I told the National Patient Data Day event in Leeds yesterday, could be summed up in one Guardian headline:
open.substack.com
July 10, 2025 at 10:11 AM
Big thanks to @rorycj.bsky.social, a #useMYdata Member and speaker at our #NationalPatientDataDay for championing the patient voice and highlighting the importance of sharing good news stories about how our health data benefits research and our own care.
“I naively thought that the NHS, being a national organisation, would have access to data just like a bank or building society.”
#useMYdata Member David Snelson on the impact for patients of NHS's labyrinthine systems for collecting and sharing our patient data @financialtimes.com on.ft.com/3ZnPerQ
#useMYdata Member David Snelson on the impact for patients of NHS's labyrinthine systems for collecting and sharing our patient data @financialtimes.com on.ft.com/3ZnPerQ
Patient data could power the NHS. Much of it is still stuck on paper
The UK wants a technological revolution in healthcare but complex information systems will make that hard to deliver
on.ft.com
May 21, 2025 at 3:26 PM
“I naively thought that the NHS, being a national organisation, would have access to data just like a bank or building society.”
#useMYdata Member David Snelson on the impact for patients of NHS's labyrinthine systems for collecting and sharing our patient data @financialtimes.com on.ft.com/3ZnPerQ
#useMYdata Member David Snelson on the impact for patients of NHS's labyrinthine systems for collecting and sharing our patient data @financialtimes.com on.ft.com/3ZnPerQ