Jeni Baykoca
@jenibaykoca.bsky.social
PhD student developing @navigatems.bsky.social
Building an app for people living with MS who experience distress.
Building an app for people living with MS who experience distress.
Reposted by Jeni Baykoca
Living with MS? We’re recruiting adults in Great Britain to help us improve the Navigate MS app.
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...
September 7, 2026 at 10:37 AM
Living with MS? We’re recruiting adults in Great Britain to help us improve the Navigate MS app.
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...
Looking for people living with MS!
With the MS Society and King's College London, we created an app to support MS symptom management, including:
1. Pain
2. Psychological distress
3. Sexual difficulties
Try the programme that interests you and tell us how we can improve it: tinyurl.com/yw6dk6uu
With the MS Society and King's College London, we created an app to support MS symptom management, including:
1. Pain
2. Psychological distress
3. Sexual difficulties
Try the programme that interests you and tell us how we can improve it: tinyurl.com/yw6dk6uu
August 24, 2026 at 1:47 PM
Looking for people living with MS!
With the MS Society and King's College London, we created an app to support MS symptom management, including:
1. Pain
2. Psychological distress
3. Sexual difficulties
Try the programme that interests you and tell us how we can improve it: tinyurl.com/yw6dk6uu
With the MS Society and King's College London, we created an app to support MS symptom management, including:
1. Pain
2. Psychological distress
3. Sexual difficulties
Try the programme that interests you and tell us how we can improve it: tinyurl.com/yw6dk6uu
Reposted by Jeni Baykoca
📱Why do we stop using health apps, and is that always a problem?
A new blog from King's IoPPN PhD student Jeni Baykoca explores what helps people living with long-term conditions engage with mobile health apps.
www.maudsleybrc.nihr.ac.uk/news/why-do-... @kingsioppn.bsky.social
A new blog from King's IoPPN PhD student Jeni Baykoca explores what helps people living with long-term conditions engage with mobile health apps.
www.maudsleybrc.nihr.ac.uk/news/why-do-... @kingsioppn.bsky.social
August 12, 2026 at 1:00 PM
📱Why do we stop using health apps, and is that always a problem?
A new blog from King's IoPPN PhD student Jeni Baykoca explores what helps people living with long-term conditions engage with mobile health apps.
www.maudsleybrc.nihr.ac.uk/news/why-do-... @kingsioppn.bsky.social
A new blog from King's IoPPN PhD student Jeni Baykoca explores what helps people living with long-term conditions engage with mobile health apps.
www.maudsleybrc.nihr.ac.uk/news/why-do-... @kingsioppn.bsky.social
The first paper from my PhD is now published in @jmirpub.bsky.social !
We brought together evidence from 19 systematic reviews to understand what may help people with long-term conditions stay engaged with mobile health apps.
A helpful read for anyone interested in digital health and engagement.
We brought together evidence from 19 systematic reviews to understand what may help people with long-term conditions stay engaged with mobile health apps.
A helpful read for anyone interested in digital health and engagement.
What keeps people engaged with mobile health apps?
We brought together evidence from 19 systematic reviews covering 262 studies to understand what helps, or gets in the way, for people living with long-term conditions.
Read the paper and practical guidelines: doi.org/10.2196/88382
We brought together evidence from 19 systematic reviews covering 262 studies to understand what helps, or gets in the way, for people living with long-term conditions.
Read the paper and practical guidelines: doi.org/10.2196/88382
July 27, 2026 at 2:24 PM
The first paper from my PhD is now published in @jmirpub.bsky.social !
We brought together evidence from 19 systematic reviews to understand what may help people with long-term conditions stay engaged with mobile health apps.
A helpful read for anyone interested in digital health and engagement.
We brought together evidence from 19 systematic reviews to understand what may help people with long-term conditions stay engaged with mobile health apps.
A helpful read for anyone interested in digital health and engagement.
I had such a lovely time at MS Frontiers last week, and it felt really special to share some of the work we’ve been doing on Navigate MS!
Last week, our PhD students Emily, Goretti and Jeni from the Navigate MS project attended MS Frontiers 2026 at the University of Edinburgh.🧡
They shared work on the Navigate MS pain, distress and sexual difficulties programmes, highlighting how psychological support can help people living with MS.
They shared work on the Navigate MS pain, distress and sexual difficulties programmes, highlighting how psychological support can help people living with MS.
June 23, 2026 at 8:13 PM
I had such a lovely time at MS Frontiers last week, and it felt really special to share some of the work we’ve been doing on Navigate MS!
Reposted by Jeni Baykoca
Participants needed 📢
Can you help Rupali with their research?
Looking for women aged 18+ living with long-term pain and taking prescribed pain medication to share their experiences. Your voice could make a real difference 💜
Please take part or share: forms.cloud.microsoft/pages/respon...
Can you help Rupali with their research?
Looking for women aged 18+ living with long-term pain and taking prescribed pain medication to share their experiences. Your voice could make a real difference 💜
Please take part or share: forms.cloud.microsoft/pages/respon...
May 18, 2026 at 11:00 AM
Participants needed 📢
Can you help Rupali with their research?
Looking for women aged 18+ living with long-term pain and taking prescribed pain medication to share their experiences. Your voice could make a real difference 💜
Please take part or share: forms.cloud.microsoft/pages/respon...
Can you help Rupali with their research?
Looking for women aged 18+ living with long-term pain and taking prescribed pain medication to share their experiences. Your voice could make a real difference 💜
Please take part or share: forms.cloud.microsoft/pages/respon...
Reposted by Jeni Baykoca
New Study: Does your menstrual cycle affect your MS symptoms?
This study is funded by the MS Society UK and supported by MS Together.
To take part, visit ms-menstrualcycle.co.uk/newcastle-la...
This study is funded by the MS Society UK and supported by MS Together.
To take part, visit ms-menstrualcycle.co.uk/newcastle-la...
May 5, 2026 at 9:23 AM
New Study: Does your menstrual cycle affect your MS symptoms?
This study is funded by the MS Society UK and supported by MS Together.
To take part, visit ms-menstrualcycle.co.uk/newcastle-la...
This study is funded by the MS Society UK and supported by MS Together.
To take part, visit ms-menstrualcycle.co.uk/newcastle-la...
Imagine you’ve just given birth after a pregnancy with GDM, and you’re also feeling low or overwhelmed.
Would breastfeeding feel straightforward?
We studied this in 2,800+ women in Iran with @kingsioppn.bsky.social &Isfahan University of Medical Sciences. Graphic below
Paper: tinyurl.com/3z36f54j
Would breastfeeding feel straightforward?
We studied this in 2,800+ women in Iran with @kingsioppn.bsky.social &Isfahan University of Medical Sciences. Graphic below
Paper: tinyurl.com/3z36f54j
April 23, 2026 at 7:52 AM
Imagine you’ve just given birth after a pregnancy with GDM, and you’re also feeling low or overwhelmed.
Would breastfeeding feel straightforward?
We studied this in 2,800+ women in Iran with @kingsioppn.bsky.social &Isfahan University of Medical Sciences. Graphic below
Paper: tinyurl.com/3z36f54j
Would breastfeeding feel straightforward?
We studied this in 2,800+ women in Iran with @kingsioppn.bsky.social &Isfahan University of Medical Sciences. Graphic below
Paper: tinyurl.com/3z36f54j
Reposted by Jeni Baykoca
A new project is exploring how women living with MS experience menopause, aiming to identify gaps in care and support.
Research in this area is still limited, so this study will help improve understanding and future support. 💜
ms-uk.org/news/new-pro...
#MSUK #MSResearch #LivingWithMS
Research in this area is still limited, so this study will help improve understanding and future support. 💜
ms-uk.org/news/new-pro...
#MSUK #MSResearch #LivingWithMS
New project to explore how women with MS experience menopause
ms-uk.org
April 15, 2026 at 1:16 PM
A new project is exploring how women living with MS experience menopause, aiming to identify gaps in care and support.
Research in this area is still limited, so this study will help improve understanding and future support. 💜
ms-uk.org/news/new-pro...
#MSUK #MSResearch #LivingWithMS
Research in this area is still limited, so this study will help improve understanding and future support. 💜
ms-uk.org/news/new-pro...
#MSUK #MSResearch #LivingWithMS
Reposted by Jeni Baykoca
Planning a break or day out but not sure where to start?
Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊
Comment below if you have any trips or days out planned for 2026!
ms-uk.org/blog/plannin...
Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊
Comment below if you have any trips or days out planned for 2026!
ms-uk.org/blog/plannin...
Planning accessible days out and breaks in the UK
ms-uk.org
April 15, 2026 at 1:17 PM
Planning a break or day out but not sure where to start?
Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊
Comment below if you have any trips or days out planned for 2026!
ms-uk.org/blog/plannin...
Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊
Comment below if you have any trips or days out planned for 2026!
ms-uk.org/blog/plannin...
Reposted by Jeni Baykoca
📢We are inviting people with MS to take part in Patient and Public Involvement (PPI) to help us ensure a new app is relevant, useful, and works as intended.
Click the link below or message us directly if interested!
forms.cloud.microsoft/e/REfPC4e5zQ
Click the link below or message us directly if interested!
forms.cloud.microsoft/e/REfPC4e5zQ
April 15, 2026 at 2:05 PM
📢We are inviting people with MS to take part in Patient and Public Involvement (PPI) to help us ensure a new app is relevant, useful, and works as intended.
Click the link below or message us directly if interested!
forms.cloud.microsoft/e/REfPC4e5zQ
Click the link below or message us directly if interested!
forms.cloud.microsoft/e/REfPC4e5zQ
Reposted by Jeni Baykoca
Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: [email protected]
March 27, 2026 at 9:55 AM
Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: [email protected]
Reposted by Jeni Baykoca
Considerations for family planning with multiple sclerosis. Authors @drruthdobson @KerstinHellwig pubmed.ncbi.nlm.nih.gov/41925496/
April 4, 2026 at 12:06 AM
Considerations for family planning with multiple sclerosis. Authors @drruthdobson @KerstinHellwig pubmed.ncbi.nlm.nih.gov/41925496/
Reposted by Jeni Baykoca
Multiple sclerosis (MS) has more than doubled in recorded prevalence in England from 2000 to 2020, increasing by 6% per year, largely due to improved diagnosis and longer life expectancy, finds a new study by UCL and Imperial College London researchers.
www.ucl.ac.uk/news/2026/ma...
www.ucl.ac.uk/news/2026/ma...
Multiple sclerosis doubles in prevalence while survival rates improve
Multiple sclerosis (MS) has more than doubled in recorded prevalence in England from 2000 to 2020, increasing by 6% per year, largely due to improved diagnosis and longer life expectancy, finds a new ...
www.ucl.ac.uk
March 30, 2026 at 10:40 AM
Multiple sclerosis (MS) has more than doubled in recorded prevalence in England from 2000 to 2020, increasing by 6% per year, largely due to improved diagnosis and longer life expectancy, finds a new study by UCL and Imperial College London researchers.
www.ucl.ac.uk/news/2026/ma...
www.ucl.ac.uk/news/2026/ma...
Reposted by Jeni Baykoca
So lovely to get this package from @thehealthpsych.bsky.social to celebrate the upcoming publication of It’s All In Your Body.
If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...
If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...
January 30, 2026 at 12:10 PM
So lovely to get this package from @thehealthpsych.bsky.social to celebrate the upcoming publication of It’s All In Your Body.
If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...
If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...
Real lived experience shaping tools for people with MS
If this speaks to you, please consider getting involved 💙
If this speaks to you, please consider getting involved 💙
You’re living this. We’re listening.
Help shape a new app supporting people with MS and psychological distress.
💻 Online | 💷 £25/hour
Interested? [email protected]
#MSCommunity #multiplesclerosis #coproduction #MS #research
Help shape a new app supporting people with MS and psychological distress.
💻 Online | 💷 £25/hour
Interested? [email protected]
#MSCommunity #multiplesclerosis #coproduction #MS #research
February 10, 2026 at 2:21 PM
Real lived experience shaping tools for people with MS
If this speaks to you, please consider getting involved 💙
If this speaks to you, please consider getting involved 💙
Reposted by Jeni Baykoca
This retrospective study from Norway of over a million people found that maternal diabetes is linked to doubling of future risk of multiple sclerosis of the child (HR 2.15 (95% CI, 1.37-3.37). pubmed.ncbi.nlm.nih.gov/41525064/
January 12, 2026 at 9:40 PM
This retrospective study from Norway of over a million people found that maternal diabetes is linked to doubling of future risk of multiple sclerosis of the child (HR 2.15 (95% CI, 1.37-3.37). pubmed.ncbi.nlm.nih.gov/41525064/
We’re looking to include example scripts and real tips on what helped you share your MS diagnosis with friends, family, colleagues, or bosses.
Let us know!
Let us know!
We’re building an app for people living with MS.💙
We’d like to include real examples and tips on how you chose to disclose your MS to friends, family, or at work.
If you’re comfortable sharing your experience, please comment, DM, or email [email protected]
We’d like to include real examples and tips on how you chose to disclose your MS to friends, family, or at work.
If you’re comfortable sharing your experience, please comment, DM, or email [email protected]
November 20, 2025 at 9:42 AM
We’re looking to include example scripts and real tips on what helped you share your MS diagnosis with friends, family, colleagues, or bosses.
Let us know!
Let us know!
Reposted by Jeni Baykoca
Brain scans reveal that mindfulness meditation for pain is not a placebo
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Brain scans reveal that mindfulness meditation for pain is not a placebo
Brain scans reveal that mindfulness meditation engages different neural pathways compared to placebo, demonstrating that pain relief from mindfulness meditation is not the result of the placebo effect...
www.eurekalert.org
November 15, 2025 at 12:56 PM
Brain scans reveal that mindfulness meditation for pain is not a placebo
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Thrilled to have won Best Oral Presentation at the Health Sciences DTC Symposium🎉
I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk.
Pictured: me, the same height of the laptop stand😄
@kingsioppn.bsky.social
I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk.
Pictured: me, the same height of the laptop stand😄
@kingsioppn.bsky.social
November 18, 2025 at 2:52 PM
Thrilled to have won Best Oral Presentation at the Health Sciences DTC Symposium🎉
I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk.
Pictured: me, the same height of the laptop stand😄
@kingsioppn.bsky.social
I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk.
Pictured: me, the same height of the laptop stand😄
@kingsioppn.bsky.social
Such an energising session!🤗
I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.
Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊
I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.
Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊
November 16, 2025 at 11:04 AM
Such an energising session!🤗
I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.
Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊
I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.
Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊
There’s no holiday from type 1 diabetes (T1D). The constant management can take a real toll on mental health.
We have been looking at how to best detect and support mental health difficulties in people living with T1D.
I wrote a blog post that breaks it down in an easy read 📝
We have been looking at how to best detect and support mental health difficulties in people living with T1D.
I wrote a blog post that breaks it down in an easy read 📝
Type 1 diabetes is often called a 24/7 condition – it demands constant management
Our researchers are investigating how people with type 1 diabetes experience mental health difficulties, which ones, and their severity. Read @jenibaykoca.bsky.social on new findings:
www.kcl.ac.uk/mental-disor...
Our researchers are investigating how people with type 1 diabetes experience mental health difficulties, which ones, and their severity. Read @jenibaykoca.bsky.social on new findings:
www.kcl.ac.uk/mental-disor...
September 10, 2025 at 12:02 PM
There’s no holiday from type 1 diabetes (T1D). The constant management can take a real toll on mental health.
We have been looking at how to best detect and support mental health difficulties in people living with T1D.
I wrote a blog post that breaks it down in an easy read 📝
We have been looking at how to best detect and support mental health difficulties in people living with T1D.
I wrote a blog post that breaks it down in an easy read 📝
Can we study mental health in people with type 1 diabetes at scale? 🧠📊
We tested it and it’s doable.
Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next!
Link to article: rdcu.be/eCYFj
#T1D #MentalHealth #Research
We tested it and it’s doable.
Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next!
Link to article: rdcu.be/eCYFj
#T1D #MentalHealth #Research
August 29, 2025 at 8:46 AM
Can we study mental health in people with type 1 diabetes at scale? 🧠📊
We tested it and it’s doable.
Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next!
Link to article: rdcu.be/eCYFj
#T1D #MentalHealth #Research
We tested it and it’s doable.
Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next!
Link to article: rdcu.be/eCYFj
#T1D #MentalHealth #Research
Reposted by Jeni Baykoca
1️⃣ NEW *open access* measure alert 🧵 We’ve just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S003... It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️
doi.org
May 23, 2025 at 8:32 AM
1️⃣ NEW *open access* measure alert 🧵 We’ve just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S003... It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️
Looking forward to speaking at the
@midshealthpsych.bsky.social Conference! ✨
I'll be presenting on user engagement in mHealth apps for adults with long-term conditions.
Get your tickets below and let’s chat about all things health psychology!
🎟️ f.mtr.cool/tbvntqqauj
@midshealthpsych.bsky.social Conference! ✨
I'll be presenting on user engagement in mHealth apps for adults with long-term conditions.
Get your tickets below and let’s chat about all things health psychology!
🎟️ f.mtr.cool/tbvntqqauj
May 8, 2025 at 2:18 PM
Looking forward to speaking at the
@midshealthpsych.bsky.social Conference! ✨
I'll be presenting on user engagement in mHealth apps for adults with long-term conditions.
Get your tickets below and let’s chat about all things health psychology!
🎟️ f.mtr.cool/tbvntqqauj
@midshealthpsych.bsky.social Conference! ✨
I'll be presenting on user engagement in mHealth apps for adults with long-term conditions.
Get your tickets below and let’s chat about all things health psychology!
🎟️ f.mtr.cool/tbvntqqauj