Margaret O’Hara
margaretohara.bsky.social
Margaret O’Hara
@margaretohara.bsky.social
Patient Advocate in #LongCovid and #HyperemesisGravidarum
Patient Involvement in Research in #NHS
Reposted by Margaret O’Hara
All authoritarian cults resemble one another.

All democracies are democratic in their own particular way.
October 9, 2026 at 4:42 PM
Reposted by Margaret O’Hara
Researchers found that SARS-CoV-2 spike and nucleocapsid proteins directly bind a pancreatic protein, triggering amyloid buildup, inflammation, and insulin-producing cell damage in monkeys.

A potential mechanism for post-COVID diabetes.

www.nature.com/articles/s41...
SARS-CoV-2 seeds IAPP aggregation and β-cell failure - Signal Transduction and Targeted Therapy
Signal Transduction and Targeted Therapy - SARS-CoV-2 seeds IAPP aggregation and β-cell failure
www.nature.com
October 9, 2026 at 7:14 AM
Reposted by Margaret O’Hara
In a normal information society, the big reveal that Exxon Mobil knew with certainty climate change was real from their own studies but poured money into denial groups would have ended the debate forever
A batch of previously undisclosed documents also reveals Exxon promoted climate-solution claims, such as its work on biofuels and carbon capture and storage, that its own scientists said were unlikely to reach commercial scale: arstechnica.visitlink.me/tPZG9V
Internal files add to evidence of an ExxonMobil climate deception campaign
Court filings reveal new details about Exxon's decades of internal climate deliberations.
arstechnica.visitlink.me
October 9, 2026 at 5:45 PM
Reposted by Margaret O’Hara
We have written to the JCVI before about the evidence that vaccination reduces the risk of developing Long Covid. We’ve now written AGAIN following their advice for autumn 2027
2 million #pwlc in the UK.
Yet #LongCovid isn’t mentioned in the latest advice.

www.longcovidsos.org/post/respons...
Response to the JCVI’s Autumn 2027 COVID-19 Vaccination Advice
On the 9th of October we wrote to the Joint Committee on Vaccination and Immunisation (JCVI) about their Autumn 2027 COVID-19 Vaccination Advice.
www.longcovidsos.org
October 9, 2026 at 1:29 PM
Omg he’s just a big f*cking baby!!! How can American politicians, even Republicans, suffer the embarrassment? What will it take?
October 9, 2026 at 5:17 PM
Reposted by Margaret O’Hara
Technical University of Munich researchers studied 102 Long COVID patients and found that weaker muscles and poorer recovery were linked to blood vessel dysfunction.

Higher SARS-CoV-2 spike antibodies were also associated with muscle impairment.

www.nature.com/articles/s41...
Handgrip strength parameters as predictors of post-COVID syndrome severity and muscle weakness in an observational study - Scientific Reports
Scientific Reports - Handgrip strength parameters as predictors of post-COVID syndrome severity and muscle weakness in an observational study
www.nature.com
October 8, 2026 at 1:58 PM
Reposted by Margaret O’Hara
Neutrality towards bogus medicine is not tolerance but a violation of medical ethics edzardernst.com/2026/10/neut...
Neutrality towards bogus medicine is not tolerance but a violation of medical ethics
Medical practice is often perceived through the lens of patient autonomy and non-judgmental care. In discussions regarding ineffective modalities like homeopathy, physicians are frequently advised to ...
edzardernst.com
October 8, 2026 at 9:21 AM
Recommend this excellent satirical article, for those who’re fed up of seeing health inequality described but not really addressed
How (not) to Write about Health Equity-- an excellent satirical article published in @plosglobalpublichealth.org 🧪

An encapsulation of the feel-good, do-nothing approach to health equity; the lived experience paragraphs resonated most.

Read the whole article here: journals.plos.org/globalpublic...
October 8, 2026 at 10:46 PM
Reposted by Margaret O’Hara
How (not) to Write about Health Equity-- an excellent satirical article published in @plosglobalpublichealth.org 🧪

An encapsulation of the feel-good, do-nothing approach to health equity; the lived experience paragraphs resonated most.

Read the whole article here: journals.plos.org/globalpublic...
October 8, 2026 at 12:16 PM
Reposted by Margaret O’Hara
We're looking for a Research Associate in Human Physiology, Immunology, and Long COVID to join our research team at Loughborough University:

lnkd.in/e3uBjs9z

Please share widely!
LinkedIn
This link will take you to a page that’s not on LinkedIn
lnkd.in
October 8, 2026 at 2:29 PM
Reposted by Margaret O’Hara
Siri, define "sycophant".
BAIER: The president says 'SI.' Are you into SI or AI?

BEZOS: I do like SI, because 'artificial' is not a very flattering thing. Like, nobody wants an artificial sweetener, artificial flavoring.
October 8, 2026 at 7:22 PM
Reposted by Margaret O’Hara
Sometimes it can feel like things are standing still. Especially for severe ME patients who can't easily participate in research. But in the Netherlands, they are being included.

archive.today/8DqOm

#pwME #longcovid #QVS #lyme #PAIS #severeME
October 8, 2026 at 8:27 PM
Reposted by Margaret O’Hara
None of this year's science Nobel Prizes have gone to women.

The number of these prizes to go to women remains at 27 out of more than 600.

See how many you can name in our quiz: www.nature.com/immersive/d4...
October 7, 2026 at 3:52 PM
Reposted by Margaret O’Hara
PLRC co-founder @ahandvanish.bsky.social spoke to @thesicktimes.org about the importance of illness duration in validating #LongCovid biomarkers:

“If your study has patients that are all over the place in terms of illness duration, that’s going to complicate the findings”
VIPER aims to fast track Long COVID biomarkers. Here’s how it works. - The Sick Times
Led by researchers at UCSF, the research program plans to validate promising candidates for noninvasive tests that can be used to advance clinical trials.
thesicktimes.org
October 7, 2026 at 6:47 PM
Reposted by Margaret O’Hara
We'll have a full analysis of the Conservatives' proposed inheritance tax cuts tomorrow. But, for now, three charts.

1. Who would benefit from the cuts?
October 7, 2026 at 6:30 PM
Reposted by Margaret O’Hara
1) 🔬 New funding opportunity for ME/CFS research! Solve is now accepting submissions for their Ramsay Research Grant Program!

Funding is between $50.000 - $150.000 depending on the category.

The deadline to apply is Friday, November 13, 2026.
October 7, 2026 at 7:20 AM
Reposted by Margaret O’Hara
The Covid wave in England is growing very fast, and the overall Covid risk level has been raised to High. As of 4 October, 1 in every 175 people were infected, up 34% on the previous week. We continue to recommend that Covid-Cautious people take full precautions in ALL indoor places.

A thread 🧵
October 7, 2026 at 5:49 PM
Reposted by Margaret O’Hara
New paper: Long COVID exposes a huge blind spot in how governments define “security.” We respond quickly to sudden, visible crises, but seem to accept mass disability as normal, even while it puts growing pressure on healthcare, the workforce, the economy and society.

Published: 28 September 2026
The securitization of global slow-onset risks/threats: long COVID, a case study - Globalization and Health
This paper investigates why Long Covid, despite affecting millions globally and posing a serious threat to public health and economic stability, remains largely absent from contemporary security agend...
link.springer.com
October 6, 2026 at 10:23 PM
Reposted by Margaret O’Hara
Today @thesicktimes.org: @davetuller1.bsky.social recaps the recent ISLC-PAIS conference in Amsterdam, featuring clinical trial updates, talks on PEM, and more. thesicktimes.org/2026/10/06/b...
Biological pathways and mechanistic trials centered at new Long COVID conference in Amsterdam - The Sick Times
Researchers, clinicians, and advocates gathered for the inaugural conference of the International Society for Long COVID and Post-Acute Infection Syndromes in the Netherlands in late August. The four-...
thesicktimes.org
October 6, 2026 at 4:54 PM
Reposted by Margaret O’Hara
I think every #pwME (from LC or before) has experienced the trauma and sheer surprise and shock of realising you are left to rot.

But one thing I will never get my head around is how the indifference remains intact despite being an illness that chains children to a bed, in worst hell imaginable.
"These Long COVID Superheroes may not be able to leap tall buildings in a single bound, but they’re showing us a world where listening to your body, standing up for your needs, resting, and leaning on others is true bravery"

📝: @heatherhogan.bsky.social

thesicktimes.org/2026/10/05/k...
Kids with Long COVID co-created their own superhero comic book - The Sick Times
Long Covid Superheroes showcases the bravery of asking for help, resting, and being compassionate with yourself and others.
thesicktimes.org
October 6, 2026 at 9:28 AM
Reposted by Margaret O’Hara
Here's the @perimeterinstitute.bsky.social write-up of today's physics Nobel Prize, featuring a quote from our director, particle physicist Marcela Carena, and one toward the end by me :)

perimeterinstitute.ca/news/francis...
Francis Halzen wins 2026 Nobel Prize in Physics | PI News
The 2026 Nobel Prize in physics was awarded to particle physicist Francis Halzen today “for decisive contributions to the IceCube Neutrino Observatory and the discovery of high-energy neutrinos of astrophysical origin.”
perimeterinstitute.ca
October 6, 2026 at 6:46 PM
Reposted by Margaret O’Hara
Last weekend, 16 members of the Hollinghurst and Hole families set off on their annual family fundraising walk. This year, they very kindly decided to raise money for Long Covid UK, as a member of their family has been impacted by the illness.

#Fundraisingheroes #LongCovidUK
October 6, 2026 at 4:01 PM
I remember once at a maternity related conference, so a room full of women, a delegate saying I have a headache does anyone have any painkillers.
Cue a mass rummaging in handbags, about half of delegates did indeed have painkillers. Women just carry them around bc we’re often in pain.
"The troubling paradox is that women experience more pain, yet their pain is also more likely to be dismissed, diagnosed late or undertreated ... This enormous study shows that the higher burden of pain in women is remarkably consistent across the body and in a remarkably diverse global population."
Women suffer more pain than men across the whole body, major global study finds
Researchers looked at pain around the world and across the human lifespan, finding steepest rise happens before age 55
www.theguardian.com
October 6, 2026 at 7:52 AM
Reposted by Margaret O’Hara
😕 🌎 🔥
October 5, 2026 at 3:30 PM
Reposted by Margaret O’Hara
“The harm you have done is incalculable. It’s not me who has been spreading great harm around the world. It’s you, mate.”

George Monbiot on being accused by Prof Michael Sharpe of “spreading” #LongCovid by writing about it and why he started writing about the #MECFS scandal.
October 6, 2026 at 7:07 AM