MPN Journal
@mpnjournal.bsky.social
The MPN Journal empowers patients and unlocks rich, patient-reported data that can drive future hematology research. 🔗 Learn more and start your journey: https://www.mpnjournal.com/
𝐌𝐏𝐍 𝐉𝐨𝐮𝐫𝐧𝐚𝐥 𝐧𝐨𝐰 𝐭𝐫𝐚𝐜𝐤𝐬 𝐬𝐩𝐥𝐞𝐞𝐧 𝐬𝐢𝐳𝐞, 𝐭𝐨𝐨! 🩺
So many of you were already logging it yourselves — now it's built into the app. Palpation, ultrasound, and CT/MRI, each with its own clear status labels.
#MPN #MPNJournal #BloodCancer 🧵
So many of you were already logging it yourselves — now it's built into the app. Palpation, ultrasound, and CT/MRI, each with its own clear status labels.
#MPN #MPNJournal #BloodCancer 🧵
August 27, 2026 at 8:25 AM
𝐌𝐏𝐍 𝐉𝐨𝐮𝐫𝐧𝐚𝐥 𝐧𝐨𝐰 𝐭𝐫𝐚𝐜𝐤𝐬 𝐬𝐩𝐥𝐞𝐞𝐧 𝐬𝐢𝐳𝐞, 𝐭𝐨𝐨! 🩺
So many of you were already logging it yourselves — now it's built into the app. Palpation, ultrasound, and CT/MRI, each with its own clear status labels.
#MPN #MPNJournal #BloodCancer 🧵
So many of you were already logging it yourselves — now it's built into the app. Palpation, ultrasound, and CT/MRI, each with its own clear status labels.
#MPN #MPNJournal #BloodCancer 🧵
𝗘𝘅𝗽𝗹𝗼𝗿𝗲 𝘆𝗼𝘂𝗿 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹 𝘀𝗲𝘁𝘁𝗶𝗻𝗴𝘀 ⚙️
This short video gives you an overview of where to choose your landing page, find notification and email preferences, select your language and view your account details.
Our recommended landing page: Social 👥
#MPN #MPNPatients #Hematology #DigitalHealth
This short video gives you an overview of where to choose your landing page, find notification and email preferences, select your language and view your account details.
Our recommended landing page: Social 👥
#MPN #MPNPatients #Hematology #DigitalHealth
July 17, 2026 at 8:15 AM
𝗘𝘅𝗽𝗹𝗼𝗿𝗲 𝘆𝗼𝘂𝗿 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹 𝘀𝗲𝘁𝘁𝗶𝗻𝗴𝘀 ⚙️
This short video gives you an overview of where to choose your landing page, find notification and email preferences, select your language and view your account details.
Our recommended landing page: Social 👥
#MPN #MPNPatients #Hematology #DigitalHealth
This short video gives you an overview of where to choose your landing page, find notification and email preferences, select your language and view your account details.
Our recommended landing page: Social 👥
#MPN #MPNPatients #Hematology #DigitalHealth
Reposted by MPN Journal
🚀Our session on #Myelofibrosis with Dr. Ayalew Tefferi and Dr. Taha Bat is now available on YouTube!
➡️Watch the full session: youtu.be/Tv_qAKocb9Y?...
#MPN #Hematology #BoneMarrow #HemeHub #BloodDisorders
@mayocliniccancer.bsky.social @mayoclinic.org @mpnjournal.bsky.social @gmpnsf.bsky.social
➡️Watch the full session: youtu.be/Tv_qAKocb9Y?...
#MPN #Hematology #BoneMarrow #HemeHub #BloodDisorders
@mayocliniccancer.bsky.social @mayoclinic.org @mpnjournal.bsky.social @gmpnsf.bsky.social
May 24, 2026 at 12:00 AM
🚀Our session on #Myelofibrosis with Dr. Ayalew Tefferi and Dr. Taha Bat is now available on YouTube!
➡️Watch the full session: youtu.be/Tv_qAKocb9Y?...
#MPN #Hematology #BoneMarrow #HemeHub #BloodDisorders
@mayocliniccancer.bsky.social @mayoclinic.org @mpnjournal.bsky.social @gmpnsf.bsky.social
➡️Watch the full session: youtu.be/Tv_qAKocb9Y?...
#MPN #Hematology #BoneMarrow #HemeHub #BloodDisorders
@mayocliniccancer.bsky.social @mayoclinic.org @mpnjournal.bsky.social @gmpnsf.bsky.social
𝟭 𝘆𝗲𝗮𝗿 𝗶𝗻 🚀
Built, improved, and growing every day — thanks to you.
And we’re just getting started.
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
Built, improved, and growing every day — thanks to you.
And we’re just getting started.
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
May 1, 2026 at 3:28 PM
𝟭 𝘆𝗲𝗮𝗿 𝗶𝗻 🚀
Built, improved, and growing every day — thanks to you.
And we’re just getting started.
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
Built, improved, and growing every day — thanks to you.
And we’re just getting started.
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
🚀 𝗜𝗻𝘁𝗿𝗼𝗱𝘂𝗰𝗶𝗻𝗴: 𝗦𝗼𝗰𝗶𝗮𝗹
Post in your own language → everyone reads it in theirs 🌍
🔎 Search posts, comments & replies in your language
🔒 Anonymous
🎭 Custom name + avatar
📵 No algorithms
🌐 12 languages supported
➕ And so much more..
Try it out and join the conversation 👇
Post in your own language → everyone reads it in theirs 🌍
🔎 Search posts, comments & replies in your language
🔒 Anonymous
🎭 Custom name + avatar
📵 No algorithms
🌐 12 languages supported
➕ And so much more..
Try it out and join the conversation 👇
April 24, 2026 at 11:24 AM
🚀 𝗜𝗻𝘁𝗿𝗼𝗱𝘂𝗰𝗶𝗻𝗴: 𝗦𝗼𝗰𝗶𝗮𝗹
Post in your own language → everyone reads it in theirs 🌍
🔎 Search posts, comments & replies in your language
🔒 Anonymous
🎭 Custom name + avatar
📵 No algorithms
🌐 12 languages supported
➕ And so much more..
Try it out and join the conversation 👇
Post in your own language → everyone reads it in theirs 🌍
🔎 Search posts, comments & replies in your language
🔒 Anonymous
🎭 Custom name + avatar
📵 No algorithms
🌐 12 languages supported
➕ And so much more..
Try it out and join the conversation 👇
𝗔 𝗯𝗲𝘁𝘁𝗲𝗿 𝘄𝗮𝘆 𝘁𝗼 𝗻𝗮𝘃𝗶𝗴𝗮𝘁𝗲 🚀
Today we’re introducing a new feature.
Chat → input
Dashboard → insight
Settings → control
Now all connected.
One flow. Finally simple ✨
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
Today we’re introducing a new feature.
Chat → input
Dashboard → insight
Settings → control
Now all connected.
One flow. Finally simple ✨
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
March 20, 2026 at 11:00 AM
𝗔 𝗯𝗲𝘁𝘁𝗲𝗿 𝘄𝗮𝘆 𝘁𝗼 𝗻𝗮𝘃𝗶𝗴𝗮𝘁𝗲 🚀
Today we’re introducing a new feature.
Chat → input
Dashboard → insight
Settings → control
Now all connected.
One flow. Finally simple ✨
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
Today we’re introducing a new feature.
Chat → input
Dashboard → insight
Settings → control
Now all connected.
One flow. Finally simple ✨
More coming soon 👀
#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms
Reposted by MPN Journal
🩸Happening in 3 weeks!
➡️Register: hemehub.org/live-webinars
➡️Submit your cases: hemehub.org/case-submiss...
#Myelofibrosis #MPN #Hematology #HemeHub
@mayocliniccancer.bsky.social @mayoclinic.org @rarediseaseadvisor.bsky.social @gmpnsf.bsky.social
@mpnjournal.bsky.social @bsochaem.bsky.social
➡️Register: hemehub.org/live-webinars
➡️Submit your cases: hemehub.org/case-submiss...
#Myelofibrosis #MPN #Hematology #HemeHub
@mayocliniccancer.bsky.social @mayoclinic.org @rarediseaseadvisor.bsky.social @gmpnsf.bsky.social
@mpnjournal.bsky.social @bsochaem.bsky.social
🩸 Join us for an expert-led session with Ayalew Tefferi, MD, and Taha Bat, MD on patient cases and clinical insights in #myelofibrosis.
➡️Register: hemehub.org/live-webinars
➡️Case submissions: hemehub.org/case-submiss...
#MPN #Hematology #BoneMarrow #MedEd #HemeHub @mayocliniccancer.bsky.social
➡️Register: hemehub.org/live-webinars
➡️Case submissions: hemehub.org/case-submiss...
#MPN #Hematology #BoneMarrow #MedEd #HemeHub @mayocliniccancer.bsky.social
March 6, 2026 at 9:12 PM
🩸Happening in 3 weeks!
➡️Register: hemehub.org/live-webinars
➡️Submit your cases: hemehub.org/case-submiss...
#Myelofibrosis #MPN #Hematology #HemeHub
@mayocliniccancer.bsky.social @mayoclinic.org @rarediseaseadvisor.bsky.social @gmpnsf.bsky.social
@mpnjournal.bsky.social @bsochaem.bsky.social
➡️Register: hemehub.org/live-webinars
➡️Submit your cases: hemehub.org/case-submiss...
#Myelofibrosis #MPN #Hematology #HemeHub
@mayocliniccancer.bsky.social @mayoclinic.org @rarediseaseadvisor.bsky.social @gmpnsf.bsky.social
@mpnjournal.bsky.social @bsochaem.bsky.social
🚀 𝗡𝗲𝘄: 𝗔𝗽𝗽𝗼𝗶𝗻𝘁𝗺𝗲𝗻𝘁 𝗠𝗮𝗻𝗮𝗴𝗲𝗺𝗲𝗻𝘁
MPN Journal now lets patients manage appointments from the dashboard.
✔️ Create
✏️ Edit
🗑️ Delete
Helping patients stay organized and better prepared for conversations with healthcare professionals.
More features coming soon 🚀
#MPN #Hematology #Oncology #PatientCare
MPN Journal now lets patients manage appointments from the dashboard.
✔️ Create
✏️ Edit
🗑️ Delete
Helping patients stay organized and better prepared for conversations with healthcare professionals.
More features coming soon 🚀
#MPN #Hematology #Oncology #PatientCare
March 6, 2026 at 11:46 AM
🚀 𝗡𝗲𝘄: 𝗔𝗽𝗽𝗼𝗶𝗻𝘁𝗺𝗲𝗻𝘁 𝗠𝗮𝗻𝗮𝗴𝗲𝗺𝗲𝗻𝘁
MPN Journal now lets patients manage appointments from the dashboard.
✔️ Create
✏️ Edit
🗑️ Delete
Helping patients stay organized and better prepared for conversations with healthcare professionals.
More features coming soon 🚀
#MPN #Hematology #Oncology #PatientCare
MPN Journal now lets patients manage appointments from the dashboard.
✔️ Create
✏️ Edit
🗑️ Delete
Helping patients stay organized and better prepared for conversations with healthcare professionals.
More features coming soon 🚀
#MPN #Hematology #Oncology #PatientCare
👀 𝗛𝗮𝘃𝗲 𝘆𝗼𝘂 𝗻𝗼𝘁𝗶𝗰𝗲𝗱 𝘆𝗲𝘁?
Notes can now be created directly from your dashboard — now with multiple note types.
📝 Written
🎙️ Record consultations & listen back later
📎 Files & images
Edit anytime. Filter by period.
Better preparation for doctor appointments. 💙
#MPNsm #digitalhealth #hematology
Notes can now be created directly from your dashboard — now with multiple note types.
📝 Written
🎙️ Record consultations & listen back later
📎 Files & images
Edit anytime. Filter by period.
Better preparation for doctor appointments. 💙
#MPNsm #digitalhealth #hematology
February 24, 2026 at 6:16 PM
👀 𝗛𝗮𝘃𝗲 𝘆𝗼𝘂 𝗻𝗼𝘁𝗶𝗰𝗲𝗱 𝘆𝗲𝘁?
Notes can now be created directly from your dashboard — now with multiple note types.
📝 Written
🎙️ Record consultations & listen back later
📎 Files & images
Edit anytime. Filter by period.
Better preparation for doctor appointments. 💙
#MPNsm #digitalhealth #hematology
Notes can now be created directly from your dashboard — now with multiple note types.
📝 Written
🎙️ Record consultations & listen back later
📎 Files & images
Edit anytime. Filter by period.
Better preparation for doctor appointments. 💙
#MPNsm #digitalhealth #hematology
📊 𝗦𝘆𝗺𝗽𝘁𝗼𝗺 𝗕𝘂𝗿𝗱𝗲𝗻
A 0–100 score that shows:
• How heavy your physical symptoms are
• How lifestyle impacts them
• What truly makes a difference over time
We’re seeing very positive feedback on the impact of this graph — making the connection clear and actionable.
#healthtech #hematology #MPNsm
A 0–100 score that shows:
• How heavy your physical symptoms are
• How lifestyle impacts them
• What truly makes a difference over time
We’re seeing very positive feedback on the impact of this graph — making the connection clear and actionable.
#healthtech #hematology #MPNsm
February 17, 2026 at 10:18 AM
📊 𝗦𝘆𝗺𝗽𝘁𝗼𝗺 𝗕𝘂𝗿𝗱𝗲𝗻
A 0–100 score that shows:
• How heavy your physical symptoms are
• How lifestyle impacts them
• What truly makes a difference over time
We’re seeing very positive feedback on the impact of this graph — making the connection clear and actionable.
#healthtech #hematology #MPNsm
A 0–100 score that shows:
• How heavy your physical symptoms are
• How lifestyle impacts them
• What truly makes a difference over time
We’re seeing very positive feedback on the impact of this graph — making the connection clear and actionable.
#healthtech #hematology #MPNsm
𝗧𝗼𝗴𝗲𝘁𝗵𝗲𝗿, 𝗪𝗲 𝗠𝗮𝗱𝗲 𝟮𝟬𝟮𝟱 𝗦𝗽𝗲𝗰𝗶𝗮𝗹
Together, we brought the MPN Journal to life — shaped by your experiences, feedback, and commitment.
Thank you for being part of this journey.
Onward to 2026. 💙 #MPNJournal #MPNWorld #TogetherWeBuild #PatientVoices #2025Recap #hematology #LookingAhead
Together, we brought the MPN Journal to life — shaped by your experiences, feedback, and commitment.
Thank you for being part of this journey.
Onward to 2026. 💙 #MPNJournal #MPNWorld #TogetherWeBuild #PatientVoices #2025Recap #hematology #LookingAhead
December 31, 2025 at 1:53 PM
𝗧𝗼𝗴𝗲𝘁𝗵𝗲𝗿, 𝗪𝗲 𝗠𝗮𝗱𝗲 𝟮𝟬𝟮𝟱 𝗦𝗽𝗲𝗰𝗶𝗮𝗹
Together, we brought the MPN Journal to life — shaped by your experiences, feedback, and commitment.
Thank you for being part of this journey.
Onward to 2026. 💙 #MPNJournal #MPNWorld #TogetherWeBuild #PatientVoices #2025Recap #hematology #LookingAhead
Together, we brought the MPN Journal to life — shaped by your experiences, feedback, and commitment.
Thank you for being part of this journey.
Onward to 2026. 💙 #MPNJournal #MPNWorld #TogetherWeBuild #PatientVoices #2025Recap #hematology #LookingAhead
Reposted by MPN Journal
🎥 NEW: All videos from the 5th MPN Spring Symposium are now live on our new GMPNSF YouTube channel!
✔ Expert talks
✔ Patient testimonies
✔ AYA Roundtable
✔ Full event summary now available
A global MPN family in Barcelona.
🔗 www.gmpnsf.org/post/one-mpn...
#5thMPNS #MPNsm @mpnjournal.bsky.social
✔ Expert talks
✔ Patient testimonies
✔ AYA Roundtable
✔ Full event summary now available
A global MPN family in Barcelona.
🔗 www.gmpnsf.org/post/one-mpn...
#5thMPNS #MPNsm @mpnjournal.bsky.social
One MPN Family: YouTube Videos, Summary & Highlights from the 5th MPN Spring Symposium
Three Unforgettable Days as One MPN FamilyFrom 7 to 9 November 2025, Barcelona hosted the 5th MPN Spring Symposium, organized by the Global MPN Scientific Foundation (GMPNSF).More than 50 people atten...
www.gmpnsf.org
December 10, 2025 at 1:38 PM
🎥 NEW: All videos from the 5th MPN Spring Symposium are now live on our new GMPNSF YouTube channel!
✔ Expert talks
✔ Patient testimonies
✔ AYA Roundtable
✔ Full event summary now available
A global MPN family in Barcelona.
🔗 www.gmpnsf.org/post/one-mpn...
#5thMPNS #MPNsm @mpnjournal.bsky.social
✔ Expert talks
✔ Patient testimonies
✔ AYA Roundtable
✔ Full event summary now available
A global MPN family in Barcelona.
🔗 www.gmpnsf.org/post/one-mpn...
#5thMPNS #MPNsm @mpnjournal.bsky.social
We were at #ASH25 in Orlando! Yesterday we presented our abstract on MPN Journal, a patient-driven platform for better tracking, communication, and real-world data. Huge thanks to @rubenmesamd.bsky.social, winner of the Ernest Beutler Prize, for supporting our work. #MPNJournal #PatientEmpowerment
December 9, 2025 at 3:10 PM
We were at #ASH25 in Orlando! Yesterday we presented our abstract on MPN Journal, a patient-driven platform for better tracking, communication, and real-world data. Huge thanks to @rubenmesamd.bsky.social, winner of the Ernest Beutler Prize, for supporting our work. #MPNJournal #PatientEmpowerment
The MPN Journal Challenge has wrapped — with over 300 participants! 💙
And the key takeaway:
👉 Daily journaling helps you track how your symptoms, side effects and lifestyle patterns shift over time.
If you joined late, keep going. Your self-care journey continues beyond the challenge ✨ #mpnjournal
And the key takeaway:
👉 Daily journaling helps you track how your symptoms, side effects and lifestyle patterns shift over time.
If you joined late, keep going. Your self-care journey continues beyond the challenge ✨ #mpnjournal
December 3, 2025 at 1:00 PM
The MPN Journal Challenge has wrapped — with over 300 participants! 💙
And the key takeaway:
👉 Daily journaling helps you track how your symptoms, side effects and lifestyle patterns shift over time.
If you joined late, keep going. Your self-care journey continues beyond the challenge ✨ #mpnjournal
And the key takeaway:
👉 Daily journaling helps you track how your symptoms, side effects and lifestyle patterns shift over time.
If you joined late, keep going. Your self-care journey continues beyond the challenge ✨ #mpnjournal
⏳ 𝐒𝐞𝐯𝐞𝐧 𝐃𝐚𝐲𝐬 𝐋𝐞𝐟𝐭!
Only 7 days left in the MPN Journal 30-Day Challenge. Haven’t started yet? Begin today!
Already have an account? app.easybot.io/channelView?...
New here? mpnjournal.com/challenge
Take the first step toward feeling better every day. ✨
#EverydayBetter #MPNChallenge #Hematology
Only 7 days left in the MPN Journal 30-Day Challenge. Haven’t started yet? Begin today!
Already have an account? app.easybot.io/channelView?...
New here? mpnjournal.com/challenge
Take the first step toward feeling better every day. ✨
#EverydayBetter #MPNChallenge #Hematology
November 25, 2025 at 3:38 PM
⏳ 𝐒𝐞𝐯𝐞𝐧 𝐃𝐚𝐲𝐬 𝐋𝐞𝐟𝐭!
Only 7 days left in the MPN Journal 30-Day Challenge. Haven’t started yet? Begin today!
Already have an account? app.easybot.io/channelView?...
New here? mpnjournal.com/challenge
Take the first step toward feeling better every day. ✨
#EverydayBetter #MPNChallenge #Hematology
Only 7 days left in the MPN Journal 30-Day Challenge. Haven’t started yet? Begin today!
Already have an account? app.easybot.io/channelView?...
New here? mpnjournal.com/challenge
Take the first step toward feeling better every day. ✨
#EverydayBetter #MPNChallenge #Hematology
🌿 𝐘𝐨𝐮 𝐜𝐚𝐧 𝐬𝐭𝐢𝐥𝐥 𝐣𝐨𝐢𝐧 𝐭𝐡𝐞 𝟑𝟎-𝐃𝐚𝐲 “𝐄𝐯𝐞𝐫𝐲𝐝𝐚𝐲 𝐁𝐞𝐭𝐭𝐞𝐫” 𝐌𝐏𝐍 𝐂𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐞! 🌿
Join at your own pace — small steps for lasting lifestyle change & reduced symptom burden.
Inspired by Hamster in your Brain (Drs. Kreier & Biezefeld).
#EverydayBetter #MPNChallenge #MPN #EverydayBetter #MPNWorld #Hematology
Join at your own pace — small steps for lasting lifestyle change & reduced symptom burden.
Inspired by Hamster in your Brain (Drs. Kreier & Biezefeld).
#EverydayBetter #MPNChallenge #MPN #EverydayBetter #MPNWorld #Hematology
EVERYDAY BETTER - The 30-Day MPN Challenge
For 30 days, we’ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.
mpnjournal.com
November 7, 2025 at 11:19 AM
🌿 𝐘𝐨𝐮 𝐜𝐚𝐧 𝐬𝐭𝐢𝐥𝐥 𝐣𝐨𝐢𝐧 𝐭𝐡𝐞 𝟑𝟎-𝐃𝐚𝐲 “𝐄𝐯𝐞𝐫𝐲𝐝𝐚𝐲 𝐁𝐞𝐭𝐭𝐞𝐫” 𝐌𝐏𝐍 𝐂𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐞! 🌿
Join at your own pace — small steps for lasting lifestyle change & reduced symptom burden.
Inspired by Hamster in your Brain (Drs. Kreier & Biezefeld).
#EverydayBetter #MPNChallenge #MPN #EverydayBetter #MPNWorld #Hematology
Join at your own pace — small steps for lasting lifestyle change & reduced symptom burden.
Inspired by Hamster in your Brain (Drs. Kreier & Biezefeld).
#EverydayBetter #MPNChallenge #MPN #EverydayBetter #MPNWorld #Hematology
🚨 Last call!
The 30-Day “Everyday Better” MPN Challenge starts tomorrow! 🌿
Sign up today via the MPN Journal (also shared by email).
Kick-off webinar tomorrow 19:00 CET with Dr. Felix Kreier from Haus of Hamsters, MPN World (@gmpnsf.bsky.social) & ambassadors.
👉 mpnjournal.com/challenge
The 30-Day “Everyday Better” MPN Challenge starts tomorrow! 🌿
Sign up today via the MPN Journal (also shared by email).
Kick-off webinar tomorrow 19:00 CET with Dr. Felix Kreier from Haus of Hamsters, MPN World (@gmpnsf.bsky.social) & ambassadors.
👉 mpnjournal.com/challenge
EVERYDAY BETTER - The 30-Day MPN Challenge
For 30 days, we’ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.
mpnjournal.com
October 31, 2025 at 4:00 PM
🚨 Last call!
The 30-Day “Everyday Better” MPN Challenge starts tomorrow! 🌿
Sign up today via the MPN Journal (also shared by email).
Kick-off webinar tomorrow 19:00 CET with Dr. Felix Kreier from Haus of Hamsters, MPN World (@gmpnsf.bsky.social) & ambassadors.
👉 mpnjournal.com/challenge
The 30-Day “Everyday Better” MPN Challenge starts tomorrow! 🌿
Sign up today via the MPN Journal (also shared by email).
Kick-off webinar tomorrow 19:00 CET with Dr. Felix Kreier from Haus of Hamsters, MPN World (@gmpnsf.bsky.social) & ambassadors.
👉 mpnjournal.com/challenge
🌍 𝐎𝐧𝐥𝐲 𝟓 𝐃𝐚𝐲𝐬 𝐋𝐞𝐟𝐭!
Join the 30-Day “𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑” MPN Challenge, starting Nov 1 — 30 days of small, daily steps to reduce symptoms & improve quality of life. 💪
Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account 👉 mpnjournal.com/challenge
#MPNChallenge #EverydayBetter #MPNJournal
Join the 30-Day “𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑” MPN Challenge, starting Nov 1 — 30 days of small, daily steps to reduce symptoms & improve quality of life. 💪
Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account 👉 mpnjournal.com/challenge
#MPNChallenge #EverydayBetter #MPNJournal
EVERYDAY BETTER - The 30-Day MPN Challenge
For 30 days, we’ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.
mpnjournal.com
October 28, 2025 at 9:23 AM
🌍 𝐎𝐧𝐥𝐲 𝟓 𝐃𝐚𝐲𝐬 𝐋𝐞𝐟𝐭!
Join the 30-Day “𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑” MPN Challenge, starting Nov 1 — 30 days of small, daily steps to reduce symptoms & improve quality of life. 💪
Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account 👉 mpnjournal.com/challenge
#MPNChallenge #EverydayBetter #MPNJournal
Join the 30-Day “𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑” MPN Challenge, starting Nov 1 — 30 days of small, daily steps to reduce symptoms & improve quality of life. 💪
Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account 👉 mpnjournal.com/challenge
#MPNChallenge #EverydayBetter #MPNJournal
Want to lower your MPN symptom burden? 🌿
Join the 𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑 30-Day Challenge (starts Nov 1) — created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal → mpnjournal.com/challenge #MPNChallenge #MPNJournal
Join the 𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑 30-Day Challenge (starts Nov 1) — created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal → mpnjournal.com/challenge #MPNChallenge #MPNJournal
EVERYDAY BETTER - The 30-Day MPN Challenge
For 30 days, we’ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.
mpnjournal.com
October 17, 2025 at 7:47 PM
Want to lower your MPN symptom burden? 🌿
Join the 𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑 30-Day Challenge (starts Nov 1) — created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal → mpnjournal.com/challenge #MPNChallenge #MPNJournal
Join the 𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑 30-Day Challenge (starts Nov 1) — created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal → mpnjournal.com/challenge #MPNChallenge #MPNJournal
🚀 𝗣𝗿𝗼𝗱𝘂𝗰𝘁 𝗨𝗽𝗱𝗮𝘁𝗲: The MPN Journal is now smarter & easier than ever! Smarter charts, full medication control, weight tracking + big upgrades to lab results (SI & conventional units, smarter graphs, auto-conversion). 📊 #MPN #HealthTech
September 24, 2025 at 12:19 PM
🚀 𝗣𝗿𝗼𝗱𝘂𝗰𝘁 𝗨𝗽𝗱𝗮𝘁𝗲: The MPN Journal is now smarter & easier than ever! Smarter charts, full medication control, weight tracking + big upgrades to lab results (SI & conventional units, smarter graphs, auto-conversion). 📊 #MPN #HealthTech
📊 New questions, more data – for better research 🔬
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
August 15, 2025 at 10:39 AM
📊 New questions, more data – for better research 🔬
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
💭 In the MPN Journal app, 50% of patients report fear of disease progression. Half of them rate it 8 or higher. It's time for more awareness and psychosocial support. #MPN #FearOfProgression #QualityOfLife #hematology
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(258 characters)
July 25, 2025 at 3:26 PM
💭 In the MPN Journal app, 50% of patients report fear of disease progression. Half of them rate it 8 or higher. It's time for more awareness and psychosocial support. #MPN #FearOfProgression #QualityOfLife #hematology
(258 characters)
(258 characters)
📌 𝗦𝘁𝗮𝘆 𝗣𝗿𝗲𝗽𝗮𝗿𝗲𝗱 𝗮𝗻𝗱 𝗢𝗻 𝗧𝗼𝗽
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
July 11, 2025 at 9:37 AM
📌 𝗦𝘁𝗮𝘆 𝗣𝗿𝗲𝗽𝗮𝗿𝗲𝗱 𝗮𝗻𝗱 𝗢𝗻 𝗧𝗼𝗽
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
📰 𝗚𝗿𝗲𝗮𝘁 𝗻𝗲𝘄𝘀!
We’re proud to be mentioned in Hemato-Oncologie’s recent article about the MPN Tracking App, designed to support patients in managing their journey.👇 Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth
We’re proud to be mentioned in Hemato-Oncologie’s recent article about the MPN Tracking App, designed to support patients in managing their journey.👇 Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth
Hemato-oncologie | MPN-tracking app houdt patient journey bij
hemato-oncologie.nl
July 4, 2025 at 12:47 PM
📰 𝗚𝗿𝗲𝗮𝘁 𝗻𝗲𝘄𝘀!
We’re proud to be mentioned in Hemato-Oncologie’s recent article about the MPN Tracking App, designed to support patients in managing their journey.👇 Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth
We’re proud to be mentioned in Hemato-Oncologie’s recent article about the MPN Tracking App, designed to support patients in managing their journey.👇 Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth
𝗪𝗵𝗮𝘁’𝘀 𝗻𝗲𝘄 𝗶𝗻 𝘁𝗵𝗲 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹? 📰
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
June 27, 2025 at 10:16 AM
𝗪𝗵𝗮𝘁’𝘀 𝗻𝗲𝘄 𝗶𝗻 𝘁𝗵𝗲 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹? 📰
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology