𝗪𝗵𝗮𝘁’𝘀 𝗻𝗲𝘄 𝗶𝗻 𝘁𝗵𝗲 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹? 📰
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology

We were at #ASH25 in Orlando! Yesterday we presented our abstract on MPN Journal, a patient-driven platform for better tracking, communication, and real-world data. Huge thanks to @rubenmesamd.bsky.social, winner of the Ernest Beutler Prize, for supporting our work. #MPNJournal #PatientEmpowerment

𝗙𝗜𝗚𝗛𝗧𝗜𝗡𝗚 𝗙𝗔𝗧𝗜𝗚𝗨𝗘 𝗪𝗜𝗧𝗛 𝗠𝗣𝗡 𝗝𝗢𝗨𝗥𝗡𝗔𝗟 – A patient’s story 💡🏃‍♂️ Diagnosed with PV in 2020, I tracked symptoms daily & found a direct link between movement & fatigue. Exercise helped reduce symptoms. Personal experience—results may vary.
👉 See next post for more!

#MPN #MPNJournal #HealthData #PatientVoice

📰 𝗚𝗿𝗲𝗮𝘁 𝗻𝗲𝘄𝘀!
We’re proud to be mentioned in Hemato-Oncologie’s recent article about the MPN Tracking App, designed to support patients in managing their journey.👇 Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth

𝐌𝐏𝐍 𝗪𝗼𝗿𝗹𝗱-𝗧𝗿𝗮𝗻𝘀𝗳𝗼𝗿𝗺𝗶𝗻𝗴 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗲𝗻 𝗘𝗨𝗥𝗢-𝗡𝗘𝗧 𝟮𝟬𝟮𝟱
On May 15 in Zürich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!

🔗 Info: www.h-och.ch/ueber-uns/ve...

#EURO_NET2025 #MPN #research #hematology #mpnjournal

Want to learn more about this patient’s journey and insights?
🔗 www.linkedin.com/posts/mpn-jo...

#MPN #MPNJournal #PatientVoice

Attending #EHA2025 in Milan! Meet us to discover MPN Journal—a global, patient-driven platform for everyone living with myeloproliferative neoplasms. Empowering patients, advancing research. Let’s connect!
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions

🔥 𝐀𝐥𝐦𝐨𝐬𝐭 𝐓𝐢𝐦𝐞!
Just 5 days until the EVERYDAY BETTER MPN Challenge begins!
We’re still working hard behind the scenes — can’t wait to start this journey together. 💪
#MPNChallenge #EverydayBetter #MPNJournal #QualityOfLife #PatientSupport #PatientVoice #BloodDisorders #hematology

Great to see MPN Journal represented at #EHA2025 in Milan.
I’m not there in person, but I’m following along and proud of the progress our community is making!
#empowerpatients #ClinicalResearchSolutions #Hematology #MPNJournal

🚀 MPN Journal is live on Bluesky!
Since our launch on May 1st, we’ve supported the global MPN community with tools for profiles, symptom tracking, and knowledge sharing.
Excited to connect here—follow us for updates!
#MPN #HealthcareInnovation #MPNJournal

The MPN Journal Challenge has wrapped — with over 300 participants! 💙

And the key takeaway:
👉 Daily journaling helps you track how your symptoms, side effects and lifestyle patterns shift over time.

If you joined late, keep going. Your self-care journey continues beyond the challenge ✨ #mpnjournal

Want to lower your MPN symptom burden? 🌿
Join the 𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑 30-Day Challenge (starts Nov 1) — created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal → mpnjournal.com/challenge #MPNChallenge #MPNJournal

🌍 𝐎𝐧𝐥𝐲 𝟓 𝐃𝐚𝐲𝐬 𝐋𝐞𝐟𝐭!
Join the 30-Day “𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑” MPN Challenge, starting Nov 1 — 30 days of small, daily steps to reduce symptoms & improve quality of life. 💪

Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account 👉 mpnjournal.com/challenge

#MPNChallenge #EverydayBetter #MPNJournal

𝐌𝐏𝐍 𝐉𝐨𝐮𝐫𝐧𝐚𝐥 𝐧𝐨𝐰 𝐭𝐫𝐚𝐜𝐤𝐬 𝐬𝐩𝐥𝐞𝐞𝐧 𝐬𝐢𝐳𝐞, 𝐭𝐨𝐨! 🩺

So many of you were already logging it yourselves — now it's built into the app. Palpation, ultrasound, and CT/MRI, each with its own clear status labels.

#MPN #MPNJournal #BloodCancer 🧵

𝗧𝗼𝗴𝗲𝘁𝗵𝗲𝗿, 𝗪𝗲 𝗠𝗮𝗱𝗲 𝟮𝟬𝟮𝟱 𝗦𝗽𝗲𝗰𝗶𝗮𝗹
Together, we brought the MPN Journal to life — shaped by your experiences, feedback, and commitment.
Thank you for being part of this journey.
Onward to 2026. 💙 #MPNJournal #MPNWorld #TogetherWeBuild #PatientVoices #2025Recap #hematology #LookingAhead