Cure NF2 Foundation UK & Europe
@nf2biosolutionsuk.bsky.social
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2 Schwannomatosis.
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing.
Learn more at curenf2.org.
#endNF2
Learn more at curenf2.org.
#endNF2
October 5, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing.
Learn more at curenf2.org.
#endNF2
Learn more at curenf2.org.
#endNF2
Something exciting is coming in 2027!
There is no better time to support our charity and our mission! Fix the Gene Change lives!
We are putting the FUN into fundraising with an opportunity for you to join us in raising funds where-ever you are in the country.
Repost and Share
#schwannomatosis
There is no better time to support our charity and our mission! Fix the Gene Change lives!
We are putting the FUN into fundraising with an opportunity for you to join us in raising funds where-ever you are in the country.
Repost and Share
#schwannomatosis
October 1, 2026 at 5:03 PM
Something exciting is coming in 2027!
There is no better time to support our charity and our mission! Fix the Gene Change lives!
We are putting the FUN into fundraising with an opportunity for you to join us in raising funds where-ever you are in the country.
Repost and Share
#schwannomatosis
There is no better time to support our charity and our mission! Fix the Gene Change lives!
We are putting the FUN into fundraising with an opportunity for you to join us in raising funds where-ever you are in the country.
Repost and Share
#schwannomatosis
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves. it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 30, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves. it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 29, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
*** FUNDRAISING NEWS ***
This October, our very own Clare is getting her trainers on again to raise funds for Cure NF2 Foundation.
Running in honour or her family Scott, Olivia & Zac who all live with NF2.
Support Clare here: www.peoplesfundraising.com/donation/cla...
#endNF2 #schwannomatosis
This October, our very own Clare is getting her trainers on again to raise funds for Cure NF2 Foundation.
Running in honour or her family Scott, Olivia & Zac who all live with NF2.
Support Clare here: www.peoplesfundraising.com/donation/cla...
#endNF2 #schwannomatosis
September 28, 2026 at 9:01 AM
*** FUNDRAISING NEWS ***
This October, our very own Clare is getting her trainers on again to raise funds for Cure NF2 Foundation.
Running in honour or her family Scott, Olivia & Zac who all live with NF2.
Support Clare here: www.peoplesfundraising.com/donation/cla...
#endNF2 #schwannomatosis
This October, our very own Clare is getting her trainers on again to raise funds for Cure NF2 Foundation.
Running in honour or her family Scott, Olivia & Zac who all live with NF2.
Support Clare here: www.peoplesfundraising.com/donation/cla...
#endNF2 #schwannomatosis
Its sunday on the blog!
And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read.
curenf2.org/avastin-diar...
Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read.
curenf2.org/avastin-diar...
Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 27, 2026 at 9:01 AM
Its sunday on the blog!
And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read.
curenf2.org/avastin-diar...
Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read.
curenf2.org/avastin-diar...
Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Join our new podcast script "In Our Shoes: NF2 and Me"
If you live with NF2 and feel comfortable answering a few questions about your experiences, your insight could help shape something meaningful To take part msg or you can email me [email protected]
#schwannomatosis
If you live with NF2 and feel comfortable answering a few questions about your experiences, your insight could help shape something meaningful To take part msg or you can email me [email protected]
#schwannomatosis
September 26, 2026 at 10:01 AM
Join our new podcast script "In Our Shoes: NF2 and Me"
If you live with NF2 and feel comfortable answering a few questions about your experiences, your insight could help shape something meaningful To take part msg or you can email me [email protected]
#schwannomatosis
If you live with NF2 and feel comfortable answering a few questions about your experiences, your insight could help shape something meaningful To take part msg or you can email me [email protected]
#schwannomatosis
Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: Tuesday 13th October 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/Uq97GQJTy83G...
Guest speaker Katherine a yoga instructor
#schwannomatosis
Date: Tuesday 13th October 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/Uq97GQJTy83G...
Guest speaker Katherine a yoga instructor
#schwannomatosis
September 25, 2026 at 9:01 AM
Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: Tuesday 13th October 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/Uq97GQJTy83G...
Guest speaker Katherine a yoga instructor
#schwannomatosis
Date: Tuesday 13th October 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/Uq97GQJTy83G...
Guest speaker Katherine a yoga instructor
#schwannomatosis
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 24, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 23, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Reposted by Cure NF2 Foundation UK & Europe
Advancing neurofibromatosis research: a comparative review of animal models and their utility in dissecting the tumor microenvironment
Advancing neurofibromatosis research: a comparative review of animal models and their utility in dissecting the tumor microenvironment
News update via NF Bot
pubmed.ncbi.nlm.nih.gov
September 21, 2026 at 10:40 AM
Advancing neurofibromatosis research: a comparative review of animal models and their utility in dissecting the tumor microenvironment
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 22, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 21, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
We are celebrating one of our incredible fundraisers today
We are so very thankful to the TGC Ladies Captains Charity Day and our supporter Cathy Baglin who nominated us as their beneficiary of this wonderful event
The team raised over £1031
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
We are so very thankful to the TGC Ladies Captains Charity Day and our supporter Cathy Baglin who nominated us as their beneficiary of this wonderful event
The team raised over £1031
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 20, 2026 at 9:01 AM
We are celebrating one of our incredible fundraisers today
We are so very thankful to the TGC Ladies Captains Charity Day and our supporter Cathy Baglin who nominated us as their beneficiary of this wonderful event
The team raised over £1031
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
We are so very thankful to the TGC Ladies Captains Charity Day and our supporter Cathy Baglin who nominated us as their beneficiary of this wonderful event
The team raised over £1031
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Our supporter Helen Bray who lives with NF2 is organising a charity evening with the one & only Dan Patchett as Michael Buble
Where: Otley Social Club, Otley, LS21 2DP
When: Friday 6th November 2026
Get your tickets here ----> www.ticketsource.com/otley-social...
#schwannomatosis
#NF2support #nf2
Where: Otley Social Club, Otley, LS21 2DP
When: Friday 6th November 2026
Get your tickets here ----> www.ticketsource.com/otley-social...
#schwannomatosis
#NF2support #nf2
September 19, 2026 at 5:02 PM
Our supporter Helen Bray who lives with NF2 is organising a charity evening with the one & only Dan Patchett as Michael Buble
Where: Otley Social Club, Otley, LS21 2DP
When: Friday 6th November 2026
Get your tickets here ----> www.ticketsource.com/otley-social...
#schwannomatosis
#NF2support #nf2
Where: Otley Social Club, Otley, LS21 2DP
When: Friday 6th November 2026
Get your tickets here ----> www.ticketsource.com/otley-social...
#schwannomatosis
#NF2support #nf2
Reposted by Cure NF2 Foundation UK & Europe
Bridge-Disease Curriculum Transfer Enables Smartphone-Based Balance Assessment in Rare Neurologic Disorders
Bridge-Disease Curriculum Transfer Enables Smartphone-Based Balance Assessment in Rare Neurologic Disorders
News update via NF Bot
pubmed.ncbi.nlm.nih.gov
September 18, 2026 at 10:40 AM
Bridge-Disease Curriculum Transfer Enables Smartphone-Based Balance Assessment in Rare Neurologic Disorders
Reposted by Cure NF2 Foundation UK & Europe
Schwannoma
Schwannoma
News update via NF Bot
pubmed.ncbi.nlm.nih.gov
September 18, 2026 at 10:40 AM
Schwannoma
Our message is simple. Amplifying our mission to:
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.
Donate here:
www.peoplesfundraising.com/donation/nf2...
or (USA/Canada/Europe)
curenf2.org/donate/
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.
Donate here:
www.peoplesfundraising.com/donation/nf2...
or (USA/Canada/Europe)
curenf2.org/donate/
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 18, 2026 at 9:29 AM
Our message is simple. Amplifying our mission to:
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.
Donate here:
www.peoplesfundraising.com/donation/nf2...
or (USA/Canada/Europe)
curenf2.org/donate/
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.
Donate here:
www.peoplesfundraising.com/donation/nf2...
or (USA/Canada/Europe)
curenf2.org/donate/
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 17, 2026 at 9:01 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Reposted by Cure NF2 Foundation UK & Europe
Natural History Study of Patients With Neurofibromatosis Type 2 [RECRUITING]
Natural History Study of Patients With Neurofibromatosis Type 2 [RECRUITING]
News update via NF Bot
clinicaltrials.gov
September 15, 2026 at 10:29 AM
Natural History Study of Patients With Neurofibromatosis Type 2 [RECRUITING]
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 16, 2026 at 9:02 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
NADPH oxidase 3 inhibition preserves hearing in mice after stereotactic radiosurgery
#NF2 #schwannomatosis #vestibularschwannoma
www.sciencedirect.com/science/arti...
#NF2 #schwannomatosis #vestibularschwannoma
www.sciencedirect.com/science/arti...
www.sciencedirect.com
September 15, 2026 at 1:27 PM
NADPH oxidase 3 inhibition preserves hearing in mice after stereotactic radiosurgery
#NF2 #schwannomatosis #vestibularschwannoma
www.sciencedirect.com/science/arti...
#NF2 #schwannomatosis #vestibularschwannoma
www.sciencedirect.com/science/arti...
Reposted by Cure NF2 Foundation UK & Europe
Quantitative imaging of schwannoma captures heterogeneity and accelerates preclinical testing, revealing distinct impacts of targeted therapies
Quantitative imaging of schwannoma captures heterogeneity and accelerates preclinical testing, revealing distinct impacts of targeted therapies
News update via NF Bot
doi.org
September 13, 2026 at 4:06 PM
Quantitative imaging of schwannoma captures heterogeneity and accelerates preclinical testing, revealing distinct impacts of targeted therapies
Reposted by Cure NF2 Foundation UK & Europe
Variable Schwann cell merlin inactivation is targetable with TEAD1 inhibition in schwannomas
Variable Schwann cell merlin inactivation is targetable with TEAD1 inhibition in schwannomas
News update via NF Bot
doi.org
September 13, 2026 at 4:06 PM
Variable Schwann cell merlin inactivation is targetable with TEAD1 inhibition in schwannomas
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 15, 2026 at 9:02 AM
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis