#NF2awareness
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nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
October 6, 2026 at 9:01 AM
nf2biosolutionsuk.bsky.social
NF2 has about 400 different genetic mutations on chromosome 22
These mutations fall into several categories:
* Nonsense mutations
* Missense mutations
* Frameshift mutations
* Splice‑site mutations
* Large deletions or rearrangements
* Mosaic mutations
#endNF2 #NF2awareness #NF2 #schwannomatosis
January 4, 2026 at 3:14 PM
nf2biosolutionsuk.bsky.social
Deaf Awareness Week 2026

Dont be these people! choose inclusion and be #deafaware

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#deaf #deafAwafrenessWeek
May 10, 2026 at 9:30 AM
nf2biosolutionsuk.bsky.social
Deaf Awareness Week 2025
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2awarenessday #nf2journey #StrongerTogetherAgainstNF2
#deaf #deafAwafrenessWeek
May 6, 2025 at 5:57 PM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves. it can be truly life changing.
Learn more at curenf2.org.

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 30, 2026 at 9:01 AM
nfbot.bsky.social
We are delighted to announce that we are included in the new Rare Map from @LifeArc and @Rare Disease Research UK. The UKs first directory of rare disease organisations.

To find out more about Rare Map visit raremap.co.uk

#endNF2 #NF2awareness #NF2Schwannom
We are delighted to announce that we are included in the new Rare Map from @LifeArc and @Rare Disease Research UK. The UKs first directory of rare disease organisations. To find out more about Rare Map visit raremap.co.uk #endNF2 #NF2awareness #NF2Schwannom
News update via NF Bot
bsky.app
August 9, 2026 at 9:33 AM
nf2biosolutionsuk.bsky.social
Our message is simple. Amplifying our mission to:
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.

Donate here:
www.peoplesfundraising.com/donation/nf2...
or (USA/Canada/Europe)
curenf2.org/donate/

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 18, 2026 at 9:29 AM
nf2biosolutionsuk.bsky.social
On 11th march, our lead Clare and COO Jo attended the
@braintumourrsch.bsky.social members workshop which brings together scientists, clinicians, and funded research teams from across its Centres of Excellence.
Always a lovely day to meet other charities
#endNF2 #NF2awareness #NF2 #schwannomatosis
March 18, 2026 at 8:50 AM
nf2biosolutionsuk.bsky.social
We are delighted to announce that we are included in the new Rare Map from @LifeArc and @Rare Disease Research UK. The UKs first directory of rare disease organisations.

To find out more about Rare Map visit raremap.co.uk

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#nf2
August 9, 2026 at 9:00 AM
rarelife-solutions.bsky.social
On World #NF2Awareness Day, rareLife stands with individuals and families affected by neurofibromatosis type 2, a rare genetic disorder associated with tumors affecting hearing, balance, and neurologic function. Awareness drives earlier recognition, research, and progress in rare disease. #rareLife
May 22, 2026 at 2:06 PM
nf2biosolutionsuk.bsky.social
Deafness and hearing loss can severely impact those with NF2, it is a daily struggle of isolation and loneliness.
Many experience anxiety and uncertainty and/or depression – Coping with different issues, feelings of isolation or sadness.

#endNF2 #NF2awareness #schwannomatosis
May 6, 2026 at 10:12 AM
nf2biosolutionsuk.bsky.social
Come and join us at our Virtual Coffee Meet
Date: 19th May 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/jGkQbSzvcJ1v...

Fully accessible with live captions - See you there!

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2
May 4, 2026 at 4:02 PM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 29, 2026 at 9:01 AM
nfbot.bsky.social
Its sunday on the blog!

And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read.

curenf2.org/avastin-diar...

Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com

#endNF2 #NF2awareness #NF2Sc
Its sunday on the blog! And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read. curenf2.org/avastin-diar... Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com #endNF2 #NF2awareness #NF2Sc
News update via NF Bot
bsky.app
September 27, 2026 at 10:40 AM
nf2biosolutionsuk.bsky.social
Its sunday on the blog!

And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read.

curenf2.org/avastin-diar...

Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 27, 2026 at 9:01 AM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 24, 2026 at 9:01 AM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 23, 2026 at 9:01 AM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 22, 2026 at 9:01 AM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 21, 2026 at 9:01 AM
nf2biosolutionsuk.bsky.social
We are celebrating one of our incredible fundraisers today
We are so very thankful to the TGC Ladies Captains Charity Day and our supporter Cathy Baglin who nominated us as their beneficiary of this wonderful event
The team raised over £1031
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 20, 2026 at 9:01 AM
nfbot.bsky.social
Our message is simple. Amplifying our mission to:
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.

Donate here:
www.peoplesfundraising.com/donation/nf2...
or (USA/Canada/Europe)
curenf2.org/donate/

#endNF2 #NF2awareness #NF2Schwannomatosis #sc
Our message is simple. Amplifying our mission to: Fix the Gene, Cure NF2, Change Lives Join Us in achieving this. Donate here: www.peoplesfundraising.com/donation/nf2... or (USA/Canada/Europe) curenf2.org/donate/ #endNF2 #NF2awareness #NF2Schwannomatosis #sc
News update via NF Bot
bsky.app
September 18, 2026 at 10:40 AM
nfbot.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness
News update via NF Bot
bsky.app
September 17, 2026 at 10:40 AM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 17, 2026 at 9:01 AM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 16, 2026 at 9:02 AM
nf2biosolutionsuk.bsky.social
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
September 15, 2026 at 9:02 AM