Julie Flygare
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remrunner.bsky.social
Julie Flygare
@remrunner.bsky.social
240 followers 14 following 3 posts
President & CEO of Project Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #TEDx & Aspen Ideas Speaker, Brown University & BCLaw Alum
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Reposted by Julie Flygare
projectsleep.bsky.social
Lights 🎬 Camera 🎥 MERCH DROP ⭐ 2026 #WorldNarcolepsyDay Gear is HERE!

This year, we’re rolling out the red carpet for #narcolepsy #awareness and letting real stories shine! 🌟 Order your gear now in time for World Narcolepsy Day on Sept 22! ➡️ www.bonfire.com/store/projec...

#Disability #Advocacy
August 14, 2026 at 4:44 PM
Reposted by Julie Flygare
projectsleep.bsky.social
‼️ CBS affiliate WREG News features scholarship recipient Gabby Gault on navigating life with idiopathic hypersomnia as a student in high school!
youtube.com/shorts/L8orZ... #HealthNews #IdiopathicHypersomnia #College #HighSchool #Student #Disability
Idiopathic Hypersomnia in the News with Student Scholarship Recipient
YouTube video by Project Sleep
youtube.com
August 17, 2026 at 2:12 PM
Reposted by Julie Flygare
projectsleep.bsky.social
"Are there #treatments for #narcolepsy?" We get this question a lot. 📋 So we put together an updated overview of how narcolepsy is treated, from nighttime oxybates to wakefulness-promoting treatments.

Get more tips! ➡ project-sleep.com/narcolepsy-n...

#Neurology #Medsky #Sleep #SleepMedicine
August 20, 2026 at 8:39 PM
remrunner.bsky.social
What Does Oxytocin, the “Love Hormone,” Have to Do with Narcolepsy? Fascinating new research on social interactions with cataplexy: project-sleep.com/oxytocin-nar...
What Does Oxytocin Have to Do with Narcolepsy? | Project Sleep
A new study identifies an oxytocin-responsive brain pathway involved in socially triggered cataplexy. Learn what this discovery means for people living with narcolepsy.
project-sleep.com
August 14, 2026 at 9:50 PM
Reposted by Julie Flygare
projectsleep.bsky.social
Meet all 31 of our 2026 #narcolepsy #scholarship recipients at project-sleep.com/2026-narcole...
Meet the 2026 Jack & Julie Narcolepsy Scholarship Recipients | Project Sleep
Project Sleep is honored to introduce our 31 recipients of the 2026 Jack & Julie Narcolepsy Scholarship. Learn more about each recipient!
project-sleep.com
July 27, 2026 at 4:08 PM
remrunner.bsky.social
Historic moment: Huge thanks to the tireless scientists and clinical trial participants who made this progress possible!
projectsleep.bsky.social Project Sleep @projectsleep.bsky.social · Aug 5
#BREAKING: The FDA has approved ORZEYFUL (oveporexton) on August 5, 2026, making it the first #orexin agonist approved for adults living with #narcolepsy type 1 in the United States.
🧠✨

To read more, visit project-sleep.com/orzeyful-fda...

#Breakthrough #Health #Medsky #SleepMedicine #Neurology
First orexin agonist, Takeda's Orzeyful, receives FDA Approval for narcolepsy type 1 in the United States in a news release from Project Sleep on August 5, 2026.
August 14, 2026 at 9:48 PM
Reposted by Julie Flygare
projectsleep.bsky.social
Did you know that the U.S. federal government does not currently fund public #sleep #health? ⭐ #TakeAction to help us change that! ➡️ project-sleep.com/summer-2026-...

#PublicHealth #ChronicIllness #Advocacy #HealthAdvocacy #SleepMedicine #Awareness #HealthEducation
August 11, 2026 at 5:58 PM
Reposted by Julie Flygare
projectsleep.bsky.social
“For that to lead to a whole new treatment modality is exciting for those of us that live with type 1 #narcolepsy.” Read the Forbes article on the FDA ORZEYFUL approval featuring Julie: https://www.forbes.com/health/conditions/fda-approves-orzeyful-narcolepsy-type-1-lmandp5/ #Medsky #SleepMedicine
Forbes article on the FDA approval of narcolepsy drug ORZEYFUL, featuring Project Sleep CEO Julie Flygare. Read the full text article on Forbes' website at the link in caption. Second section of the Forbes article on the FDA approval of ORZEYFUL, exploring the way the medication works to address the root cause of narcolepsy. Project Sleep CEO Julie Flygare is quoted regarding her own promising interactions with the drug during its clinical trials, specifically regarding wakefulness and cataplexy. Third section of the Forbes article on the FDA approval of ORZEYFUL, exploring the toll of misconceptions for people living with narcolepsy. Project Sleep CEO Julie Flygare is quoted throughout the excerpt, discussing the disconnect between others' assumptions of what narcolepsy will look like and the debilitating and at times terrifying reality of her symptoms. Final excerpt of the Forbes article on the FDA approval of ORZEYFUL, which discusses the hope that this drug will provide. Project Sleep CEO Julie Flygare "hopes the new drug can provide others with relief and continues to raise awareness about narcolepsy through Project Sleep." Read the full text article on Forbes' website at the link in caption.
August 12, 2026 at 3:16 PM
remrunner.bsky.social
Hi @matthorsnell.bsky.social!
November 13, 2024 at 11:13 PM