Em🫧
@autisticems.bsky.social
She/her • 27 • Scotland 🏴 • mad, learning disabled, Autistic and non-speaking • Makaton and AAC user🌈
Things have been shit but old carers have come back to help because social work were literally leaving me to die. My physical health has gone downhill so fast. District nurses want to start me on new meds but can’t without care in place. I don’t know how much longer I can go on like this
April 13, 2026 at 3:28 PM
Things have been shit but old carers have come back to help because social work were literally leaving me to die. My physical health has gone downhill so fast. District nurses want to start me on new meds but can’t without care in place. I don’t know how much longer I can go on like this
Reposted by Em🫧
🎨 Lily Seika Jones / rivuletpaper
April 3, 2026 at 1:25 PM
🎨 Lily Seika Jones / rivuletpaper
Reposted by Em🫧
When people say, "Autistic people do (insert "challenging" behaviour X) because of their autism", they really mean "I don't know why they do it".
Autistic people have sensory, emotional or physiological reason(s) for doing this.
Find out what they are.
AUTISM ISN'T A REASON.
Autistic people have sensory, emotional or physiological reason(s) for doing this.
Find out what they are.
AUTISM ISN'T A REASON.
April 6, 2026 at 10:45 AM
When people say, "Autistic people do (insert "challenging" behaviour X) because of their autism", they really mean "I don't know why they do it".
Autistic people have sensory, emotional or physiological reason(s) for doing this.
Find out what they are.
AUTISM ISN'T A REASON.
Autistic people have sensory, emotional or physiological reason(s) for doing this.
Find out what they are.
AUTISM ISN'T A REASON.
Reposted by Em🫧
Wishing you a gentle April 🐾🤍
March 31, 2026 at 4:25 PM
Wishing you a gentle April 🐾🤍
The GP did a home visit for my eye the other day and they think its just from concussion and nothing more serious which is good. When they were doing checks they said my temp was high and they think I’ve got an infection. Can’t seem to get a break. I feel rubbish and I’ve been sleeping all the time
March 27, 2026 at 9:03 AM
The GP did a home visit for my eye the other day and they think its just from concussion and nothing more serious which is good. When they were doing checks they said my temp was high and they think I’ve got an infection. Can’t seem to get a break. I feel rubbish and I’ve been sleeping all the time
TW self harm?
I banged my head last week and since then I haven’t been able to see out my right eye properly. Everything is blurry and weird. I don’t know if it’s worth doing an econsult because I have no way to see my GP without support. I’m not sure what to do
I banged my head last week and since then I haven’t been able to see out my right eye properly. Everything is blurry and weird. I don’t know if it’s worth doing an econsult because I have no way to see my GP without support. I’m not sure what to do
March 23, 2026 at 12:27 PM
TW self harm?
I banged my head last week and since then I haven’t been able to see out my right eye properly. Everything is blurry and weird. I don’t know if it’s worth doing an econsult because I have no way to see my GP without support. I’m not sure what to do
I banged my head last week and since then I haven’t been able to see out my right eye properly. Everything is blurry and weird. I don’t know if it’s worth doing an econsult because I have no way to see my GP without support. I’m not sure what to do
Reposted by Em🫧
Reposted by Em🫧
Being autistic for me means I don't always process my emotions like others.
Sometimes I'm angry or sad for what feels like no reason. I know it's not for no reason, but I often don't know or find out what caused it.
Sometimes I'm angry or sad for what feels like no reason. I know it's not for no reason, but I often don't know or find out what caused it.
March 20, 2026 at 5:35 PM
Being autistic for me means I don't always process my emotions like others.
Sometimes I'm angry or sad for what feels like no reason. I know it's not for no reason, but I often don't know or find out what caused it.
Sometimes I'm angry or sad for what feels like no reason. I know it's not for no reason, but I often don't know or find out what caused it.
Ended up detained again. I’m back home now. I was in a&e for almost 2 days which is such a waste of resources when if I just had care in place I wouldn’t have needed to go. I’m exhausted from all of this. What is it going to take for me to get care in place??
March 18, 2026 at 12:55 PM
Ended up detained again. I’m back home now. I was in a&e for almost 2 days which is such a waste of resources when if I just had care in place I wouldn’t have needed to go. I’m exhausted from all of this. What is it going to take for me to get care in place??
Reposted by Em🫧
What a relief.
BREAKING: MSPs have rejected legislation to legalise assisted dying in a late-night landmark vote
March 17, 2026 at 10:21 PM
What a relief.
Doing a SAR request for your notes is a huge mistake if you’re already struggling
March 12, 2026 at 4:40 PM
Doing a SAR request for your notes is a huge mistake if you’re already struggling
I’m so tired of fighting against a system that does not care if I die
March 10, 2026 at 4:19 PM
I’m so tired of fighting against a system that does not care if I die
I applied for help with my heating earlier in the year through a website called lightning reach and I got so many free things from it. I got draft excluders, lightbulbs, hot water bottles, a flask, a huge electric blanket and loads more. I thought I’d share incase anyone else wants to apply
Find & apply for financial support | Lightning Reach
Lightning Reach is a support portal that makes it easy for people to find and apply for a wide range financial support in one place. Get your personalised list of support, from charitable grants, loca...
www.lightningreach.org
March 9, 2026 at 7:49 PM
I applied for help with my heating earlier in the year through a website called lightning reach and I got so many free things from it. I got draft excluders, lightbulbs, hot water bottles, a flask, a huge electric blanket and loads more. I thought I’d share incase anyone else wants to apply
Reposted by Em🫧
This International Women’s Day, we celebrate autistic girls and women. We celebrate their voices, their identity, and a future where autistic girls and women are recognised, supported and empowered.
#IWD2026
#IWD2026
March 8, 2026 at 8:03 AM
This International Women’s Day, we celebrate autistic girls and women. We celebrate their voices, their identity, and a future where autistic girls and women are recognised, supported and empowered.
#IWD2026
#IWD2026
Got detained yesterday for not taking my meds even though I can’t take them without carers? I ended up spending the whole day and night in a&e to only get 1 dose of my medication and then sent home. Back to no meds and I’m now too scared to ask anyone about it incase this happens again
March 7, 2026 at 9:49 AM
Got detained yesterday for not taking my meds even though I can’t take them without carers? I ended up spending the whole day and night in a&e to only get 1 dose of my medication and then sent home. Back to no meds and I’m now too scared to ask anyone about it incase this happens again
Reposted by Em🫧
A tiny flower of hope for you 🐈⬛🌼
March 3, 2026 at 5:51 PM
A tiny flower of hope for you 🐈⬛🌼
Old carers stocked me up on banana milkshakes that should last a while. No idea what to do about meds. I cant function without them and last time I ended up in hospital because of having none. I think I’ll email my social worker about respite care to see if that’s an option
March 2, 2026 at 11:06 AM
Old carers stocked me up on banana milkshakes that should last a while. No idea what to do about meds. I cant function without them and last time I ended up in hospital because of having none. I think I’ll email my social worker about respite care to see if that’s an option
Reposted by Em🫧
🧵 CW: Suicide, iatrogenic harm
In January 2024 I shared a questionnaire on twitter, asking people about their experiences of making a complaint to NHS mental health services. Its taken me a while to write up, but its finally published here.
1/15
www.psychiatryisdrivingmemad.co.uk/post/dismiss...
In January 2024 I shared a questionnaire on twitter, asking people about their experiences of making a complaint to NHS mental health services. Its taken me a while to write up, but its finally published here.
1/15
www.psychiatryisdrivingmemad.co.uk/post/dismiss...
Dismissal, Retaliation, and Institutional Betrayal: A Qualitative, Survivor-Led Study Exploring the Systemic Failures of NHS Mental Health Complaints Systems
A Qualitative, Survivor-Led Study Exploring the Systemic Failures of NHS Mental Health Complaints Systems
www.psychiatryisdrivingmemad.co.uk
March 1, 2026 at 3:12 PM
🧵 CW: Suicide, iatrogenic harm
In January 2024 I shared a questionnaire on twitter, asking people about their experiences of making a complaint to NHS mental health services. Its taken me a while to write up, but its finally published here.
1/15
www.psychiatryisdrivingmemad.co.uk/post/dismiss...
In January 2024 I shared a questionnaire on twitter, asking people about their experiences of making a complaint to NHS mental health services. Its taken me a while to write up, but its finally published here.
1/15
www.psychiatryisdrivingmemad.co.uk/post/dismiss...
The meeting was frustrating. No care will be in place because none can be found. I get that but it’s still not ok. Social worker told me to “manage through it” so I asked her if she had ever been in meds withdrawal or been left in so much pain you can’t move. She didn’t have an answer to that
February 27, 2026 at 5:06 PM
The meeting was frustrating. No care will be in place because none can be found. I get that but it’s still not ok. Social worker told me to “manage through it” so I asked her if she had ever been in meds withdrawal or been left in so much pain you can’t move. She didn’t have an answer to that
Reposted by Em🫧
Re: "profound autism"
The reason we stopped using functioning levels in autism years ago is not because all autistic people are the same and need the same support.
It's because the labels severe/mild/high/low are simplistic to the point of being meaningless, given the diversity of autistic people.
The reason we stopped using functioning levels in autism years ago is not because all autistic people are the same and need the same support.
It's because the labels severe/mild/high/low are simplistic to the point of being meaningless, given the diversity of autistic people.
February 27, 2026 at 10:34 AM
Re: "profound autism"
The reason we stopped using functioning levels in autism years ago is not because all autistic people are the same and need the same support.
It's because the labels severe/mild/high/low are simplistic to the point of being meaningless, given the diversity of autistic people.
The reason we stopped using functioning levels in autism years ago is not because all autistic people are the same and need the same support.
It's because the labels severe/mild/high/low are simplistic to the point of being meaningless, given the diversity of autistic people.
Old carers said they’re going to stop helping from Sunday. They feel like the longer they help out the longer social work will refuse to get help in. They’re coming to a meeting I have with my new social worker tomorrow to speak about it
February 26, 2026 at 2:12 PM
Old carers said they’re going to stop helping from Sunday. They feel like the longer they help out the longer social work will refuse to get help in. They’re coming to a meeting I have with my new social worker tomorrow to speak about it
Reposted by Em🫧
This is Wiley. He has never seen snow before and wants to make sure he gets a real good look at it. For science. 12/10 (IG: smileywileydog)
February 23, 2026 at 11:55 PM
This is Wiley. He has never seen snow before and wants to make sure he gets a real good look at it. For science. 12/10 (IG: smileywileydog)
I feel like no one wants me. Previous care company said they couldn’t meet my needs, all the ones before that couldn’t meet my needs and now more places are rejecting my housing applications because they can’t meet my needs. I hate being disabled. I hate needing support to stay alive
February 20, 2026 at 7:53 PM
I feel like no one wants me. Previous care company said they couldn’t meet my needs, all the ones before that couldn’t meet my needs and now more places are rejecting my housing applications because they can’t meet my needs. I hate being disabled. I hate needing support to stay alive