@bec-hanley.bsky.social
Reposted
📢 Have experience with clinical trials and PPI?
Join the STAMPEDE3 PPI Group to help shape a prostate cancer trial exploring personalised treatment approaches.
We're looking for men with lived experience of prostate cancer.
✍️ Apply by 30 Sept by emailing [email protected].
Join the STAMPEDE3 PPI Group to help shape a prostate cancer trial exploring personalised treatment approaches.
We're looking for men with lived experience of prostate cancer.
✍️ Apply by 30 Sept by emailing [email protected].
September 24, 2026 at 8:51 AM
📢 Have experience with clinical trials and PPI?
Join the STAMPEDE3 PPI Group to help shape a prostate cancer trial exploring personalised treatment approaches.
We're looking for men with lived experience of prostate cancer.
✍️ Apply by 30 Sept by emailing [email protected].
Join the STAMPEDE3 PPI Group to help shape a prostate cancer trial exploring personalised treatment approaches.
We're looking for men with lived experience of prostate cancer.
✍️ Apply by 30 Sept by emailing [email protected].
Reposted
Our amazing Research Involvement Consultancy (we like to call it the RIC) has been involved in helping centre Long Covid patients in research, making sure their lived experience is taken into account in studies, and recruiting people to take part. See our latest post on FB or Instagram for more info
June 25, 2026 at 12:05 PM
Our amazing Research Involvement Consultancy (we like to call it the RIC) has been involved in helping centre Long Covid patients in research, making sure their lived experience is taken into account in studies, and recruiting people to take part. See our latest post on FB or Instagram for more info
Reposted
🆕 New publication alert!
A recent paper from our PPI group explores how we developed and delivered a PPI strategy and implementation plan.
We share a framework that other trial units can adapt to enhance the impact of their strategic PPI.
🔗 Read: link.springer.com/article/10.1...
A recent paper from our PPI group explores how we developed and delivered a PPI strategy and implementation plan.
We share a framework that other trial units can adapt to enhance the impact of their strategic PPI.
🔗 Read: link.springer.com/article/10.1...
Walking the walk: a case study of partnering with patients in designing and delivering a patient and public involvement implementation plan - Research Involvement and Engagement
Research Involvement and Engagement - Clinical Trials Units (CTUs) in the UK are required to integrate patient and public involvement (PPI) into their research and operational strategies to meet...
link.springer.com
March 3, 2026 at 4:24 PM
🆕 New publication alert!
A recent paper from our PPI group explores how we developed and delivered a PPI strategy and implementation plan.
We share a framework that other trial units can adapt to enhance the impact of their strategic PPI.
🔗 Read: link.springer.com/article/10.1...
A recent paper from our PPI group explores how we developed and delivered a PPI strategy and implementation plan.
We share a framework that other trial units can adapt to enhance the impact of their strategic PPI.
🔗 Read: link.springer.com/article/10.1...
Reposted
Help improve research on heavy periods! 🩸
Join our PPI Committee and share your lived experience.
🔗 Apply here: redcap.idhs.ucl.ac.uk/surveys/?s=3...
Join our PPI Committee and share your lived experience.
🔗 Apply here: redcap.idhs.ucl.ac.uk/surveys/?s=3...
February 26, 2026 at 9:30 AM
Help improve research on heavy periods! 🩸
Join our PPI Committee and share your lived experience.
🔗 Apply here: redcap.idhs.ucl.ac.uk/surveys/?s=3...
Join our PPI Committee and share your lived experience.
🔗 Apply here: redcap.idhs.ucl.ac.uk/surveys/?s=3...
Reposted
🔒 What happens to your data after you join a #ClinicalTrial?
We co-produced an animation with young people to explain how GDPR protects your information and ensures it’s handled securely.
@hralatest.bsky.social @pentafoundation.bsky.social
🎥 Watch here: www.youtube.com/watch?v=VlI6...
We co-produced an animation with young people to explain how GDPR protects your information and ensures it’s handled securely.
@hralatest.bsky.social @pentafoundation.bsky.social
🎥 Watch here: www.youtube.com/watch?v=VlI6...
What is GDPR?
YouTube video by MRC Clinical Trials Unit at UCL
www.youtube.com
January 27, 2026 at 3:20 PM
🔒 What happens to your data after you join a #ClinicalTrial?
We co-produced an animation with young people to explain how GDPR protects your information and ensures it’s handled securely.
@hralatest.bsky.social @pentafoundation.bsky.social
🎥 Watch here: www.youtube.com/watch?v=VlI6...
We co-produced an animation with young people to explain how GDPR protects your information and ensures it’s handled securely.
@hralatest.bsky.social @pentafoundation.bsky.social
🎥 Watch here: www.youtube.com/watch?v=VlI6...
Reposted
Inclusion by Design shares practical recommendations to tackle structural and cultural barriers to #PPIE in academic research, with input from @rdrukhub.bsky.social and @lifearc.bsky.social Translational Centres for #RareDisease Research. Read the report here: geneticalliance.org.uk/wp-content/u...
January 22, 2026 at 3:15 PM
Inclusion by Design shares practical recommendations to tackle structural and cultural barriers to #PPIE in academic research, with input from @rdrukhub.bsky.social and @lifearc.bsky.social Translational Centres for #RareDisease Research. Read the report here: geneticalliance.org.uk/wp-content/u...
Reposted
A group of patient and public involvement contributors have developed some key recommendations for researchers when engaging with under-served communities
The research was carried out by members of the Oxford Health and Oxford Biomedical Research Centre’s Diversity in Research Group
bit.ly/3LVLAC3
The research was carried out by members of the Oxford Health and Oxford Biomedical Research Centre’s Diversity in Research Group
bit.ly/3LVLAC3
January 20, 2026 at 10:05 AM
A group of patient and public involvement contributors have developed some key recommendations for researchers when engaging with under-served communities
The research was carried out by members of the Oxford Health and Oxford Biomedical Research Centre’s Diversity in Research Group
bit.ly/3LVLAC3
The research was carried out by members of the Oxford Health and Oxford Biomedical Research Centre’s Diversity in Research Group
bit.ly/3LVLAC3
Reposted
🎉 Big news!
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
Groundbreaking £50m MRC Centre will overhaul clinical trials for patients | MRC Clinical Trials Unit at UCL
www.mrcctu.ucl.ac.uk
December 18, 2025 at 4:09 PM
🎉 Big news!
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
Reposted
We believe the research community has a responsibility to make its findings accessible to those it aims to help.
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
Readable Research - MND, Parkinson's, Dementia & Stroke
Clear, simple summaries of Neuroscience research – read and reviewed by those who live beyond our labs at the University of Sheffield.
t.ly
November 27, 2025 at 9:15 AM
We believe the research community has a responsibility to make its findings accessible to those it aims to help.
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
Reposted
We put lived experience at the heart of our work – and want to empower others to do the same.
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
November 17, 2025 at 9:15 AM
We put lived experience at the heart of our work – and want to empower others to do the same.
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
Reposted
Free stickers suitable for flag-bearing lampposts. Send a large A4 envelope with a 1st class large stamp to me at Bragg Office, PO Box 6830 Bridport DT6 9BH and I’ll send you a sheet. #ReclaimtheFlag 🏴🏴🏴🇬🇧
October 5, 2025 at 3:57 PM
Free stickers suitable for flag-bearing lampposts. Send a large A4 envelope with a 1st class large stamp to me at Bragg Office, PO Box 6830 Bridport DT6 9BH and I’ll send you a sheet. #ReclaimtheFlag 🏴🏴🏴🇬🇧
Reposted
Earlier this year, Dr. Jane Goodall sat down for an interview for Brad Falchuk’s new Netflix series, Famous Last Words.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
October 5, 2025 at 9:23 PM
Earlier this year, Dr. Jane Goodall sat down for an interview for Brad Falchuk’s new Netflix series, Famous Last Words.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
Reposted
AI medical tools found to downplay symptoms of women, ethnic minorities
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
AI medical tools found to downplay symptoms of women, ethnic minorities
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
arstechnica.com
September 28, 2025 at 1:15 PM
AI medical tools found to downplay symptoms of women, ethnic minorities
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
Reposted
Deaths averted by vaccination since the 1970’s
August 30, 2025 at 11:48 AM
Deaths averted by vaccination since the 1970’s
Reposted
📣 Are you conducting research into #Covid19 or #LongCovid?
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
August 23, 2025 at 7:01 PM
📣 Are you conducting research into #Covid19 or #LongCovid?
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
Reposted
Need to write a Letter of Support but don’t know where to get started?
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
July 24, 2025 at 5:58 PM
Need to write a Letter of Support but don’t know where to get started?
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
Reposted
📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
May 27, 2025 at 8:10 PM
📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
Reposted
How can we ensure that virtual conferences like #PxP25 are rooted in accessibility?
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
An accessibility checklist for virtual conference - by and for patients - PxP
Checklist Developed by: Oluwafemi Ajayi, Rebecca Esparza, Rae Martens, and Shyamsundar Muthuramalingan Illustration by: Candace Ramjohn Blog by: Rebecca Esparza and […]
pxphub.org
July 3, 2025 at 8:11 PM
How can we ensure that virtual conferences like #PxP25 are rooted in accessibility?
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
#CRIGTAR25 key learning from Lucida Medical about involving patients in translational research
May 22, 2025 at 11:30 AM
#CRIGTAR25 key learning from Lucida Medical about involving patients in translational research
Reposted
"Every person that joins any trial is a hero."
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
May 21, 2025 at 8:52 AM
"Every person that joins any trial is a hero."
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
Reposted
People who take part in #ClinicalTrials and other research have a right to know the results of these studies.
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
April 17, 2025 at 11:31 AM
People who take part in #ClinicalTrials and other research have a right to know the results of these studies.
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
Reposted
Hatching at @kneppwilding.bsky.social has started! 🐣
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social
April 12, 2025 at 1:21 PM
Hatching at @kneppwilding.bsky.social has started! 🐣
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social