Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon.bsky.social on Wednesday, September 30

Hopefully we’ll see some of you there
irishmecfs.org/blog/wednesd...

Carers/parents/similar welcome.

#MEcfs #PwME

PRIME International Symposium 2-day hybrid event: 28-29 Sep.
New International Genetic Epidemiology of ME/CFS Consortium will be launched & early Career Researchers & Patient & Public Involvement Research Involvement Hub will present “exciting new research"
tinyurl.com/yhy8b8t6
tinyurl.com/5fuh2a9p

“I had to drop out as I got more and more ill.”

John Kieboom talking about how he became bedridden following the exercise therapy he was prescribed for #MECFS. Dutch TV report following the release of the PACE trial data in 2017. #MECFSScandal

In Sick Work, Emily Lim Rogers shows the unpaid labor it takes to be recognized as sick in the United States. Through a historical and ethnographic account of myalgic encephalomyelitis / chronic fatigue syndrome ( #ME/CFS)—a disease defined by disproportionate exhaustion after any form of exertion,

ME/CFS & menopause

Researcher Holly Ellerton is looking for women in the UK with ME/CFS who have experienced menopause in the last 5 years & who have been diagnosed with ME/CFS at least 1 year prior.

Scan the QR code or email [email protected]

£20 Amazon voucher for taking part

@wamesmecfs.bsky.social (The Welsh Association for ME/CFS Support) are hosting a webinar in which Swansea Bay Health Board’s Adferiad Service will be talking about how their service can support people with ME/CFS to self-manage.

Register online here: https://tinyurl.com/4ejcpra4

Cognitive dysfunction is an intense, deeply distressing symptom that can erode many aspects of life. Careers are impacted, hobbies become exhausting or impossible, and relationships grow strained under the weight of this symptom.

tinyurl.com/brainfogimpa...

Good luck to all our fantastic Action for ME runners taking on the #GreatNorthRun this Sunday! 🏃

Every pound raised helps us support people with ME, campaign for change and bolster research.

Feeling inspired? Join our 2027 team 👇
www.actionforme.org.uk/great-north-...
#Fundraising #MyalgicE

A couple of weeks ago it was my 3000th day bedridden. I drew this to mark the occasion. It's a long time for both illness-haver and carer
#MyalgicEncephalomyelitis #MEcfs
#ChronicIllness #DisabledArtists

“Imagine you had the flu and the worst hangover of your life at the same time.”

Emma Donohoe describing her experience of ME. She developed post-viral fatigue following glandular fever and says while pushing herself it eventually developed into ME. #MECFS