Lucy
@wildlifelucy.bsky.social
Nature lover🐦, peace seeker, gentle soul. From engineer to psychology graduate. Now more husk than human🐌: Housebound Pw #MECFS #PoTS #CPTSD #Menieres
@cgatist.bsky.social Hi Chris, I wondered what is the best way to donate so that the funds go directly to your Sequence ME research, please? Thank you!
June 15, 2026 at 4:14 PM
@cgatist.bsky.social Hi Chris, I wondered what is the best way to donate so that the funds go directly to your Sequence ME research, please? Thank you!
Reposted by Lucy
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🚨 People with ME need your help.
ME is a devastating and misunderstood disease, with its symptoms affecting an estimated 1.35 million people in the UK. For many, it means not only losing their health, but also their independence and the life they once knew.
#pwME #MECFS
⬇️
🚨 People with ME need your help.
ME is a devastating and misunderstood disease, with its symptoms affecting an estimated 1.35 million people in the UK. For many, it means not only losing their health, but also their independence and the life they once knew.
#pwME #MECFS
⬇️
April 27, 2026 at 10:13 AM
Reposted by Lucy
And #ME isn't like other illnesses
#ME isn't accurately taught at MedSchool
Many Drs don't follow the @nicecomms.bsky.social g'lines for #ME
Funding for biomedical research into ME is far lower than other illnesses
#ME is widely stigmatised
#pwME are dying unnecessarily under @england.nhs.uk care
#ME isn't accurately taught at MedSchool
Many Drs don't follow the @nicecomms.bsky.social g'lines for #ME
Funding for biomedical research into ME is far lower than other illnesses
#ME is widely stigmatised
#pwME are dying unnecessarily under @england.nhs.uk care
Watch the full program BBC Lifeline for Action for ME (9 mins)
www.bbc.co.uk/iplayer/epis...
Lifeline donation page
donationportal.co.uk/lifeline/app...
www.bbc.co.uk/iplayer/epis...
Lifeline donation page
donationportal.co.uk/lifeline/app...
Lifeline - Action for ME
Montell Douglas presents an appeal on behalf of Action for ME, a charity that provides support and advocacy for people of all ages affected by ME.
www.bbc.co.uk
April 27, 2026 at 11:25 AM
And #ME isn't like other illnesses
#ME isn't accurately taught at MedSchool
Many Drs don't follow the @nicecomms.bsky.social g'lines for #ME
Funding for biomedical research into ME is far lower than other illnesses
#ME is widely stigmatised
#pwME are dying unnecessarily under @england.nhs.uk care
#ME isn't accurately taught at MedSchool
Many Drs don't follow the @nicecomms.bsky.social g'lines for #ME
Funding for biomedical research into ME is far lower than other illnesses
#ME is widely stigmatised
#pwME are dying unnecessarily under @england.nhs.uk care
Reposted by Lucy
Watch the full program BBC Lifeline for Action for ME (9 mins)
www.bbc.co.uk/iplayer/epis...
Lifeline donation page
donationportal.co.uk/lifeline/app...
www.bbc.co.uk/iplayer/epis...
Lifeline donation page
donationportal.co.uk/lifeline/app...
Lifeline - Action for ME
Montell Douglas presents an appeal on behalf of Action for ME, a charity that provides support and advocacy for people of all ages affected by ME.
www.bbc.co.uk
April 27, 2026 at 5:55 AM
Watch the full program BBC Lifeline for Action for ME (9 mins)
www.bbc.co.uk/iplayer/epis...
Lifeline donation page
donationportal.co.uk/lifeline/app...
www.bbc.co.uk/iplayer/epis...
Lifeline donation page
donationportal.co.uk/lifeline/app...
Surfacing for a moment; saying hey; sending love, & hoping a bumper show of hedgehogs brightens your day. Meet 8 of the 10 regulars to the feeder atm. Missing is young Brook (who’s just back from a 4 wk stay in hogspital) & Merlin (who’s shy, lol). /1 💙 #pwME #pwLC @warksmammalgroup.bsky.social
April 25, 2026 at 10:05 AM
Surfacing for a moment; saying hey; sending love, & hoping a bumper show of hedgehogs brightens your day. Meet 8 of the 10 regulars to the feeder atm. Missing is young Brook (who’s just back from a 4 wk stay in hogspital) & Merlin (who’s shy, lol). /1 💙 #pwME #pwLC @warksmammalgroup.bsky.social
Reposted by Lucy
I need just 400 people to help save my life!
It’s 40 days until I turn 40.
NEW BLOG POST: www.jkrowbory.co.uk/2026/03/40-d...
🫶
It’s 40 days until I turn 40.
NEW BLOG POST: www.jkrowbory.co.uk/2026/03/40-d...
🫶
March 19, 2026 at 6:55 PM
I need just 400 people to help save my life!
It’s 40 days until I turn 40.
NEW BLOG POST: www.jkrowbory.co.uk/2026/03/40-d...
🫶
It’s 40 days until I turn 40.
NEW BLOG POST: www.jkrowbory.co.uk/2026/03/40-d...
🫶
Reposted by Lucy
First update of 2026 (!), new poems and fundraising update: www.jkrowbory.co.uk/2026/03/firs...
First update of 2026, new poems, and fundraising update - Jenny Rowbory
It’s a bit late, but Happy New Year! I have something exciting to share with you today. First though, apologies for the lack of updates; it’s been a hard and
www.jkrowbory.co.uk
March 1, 2026 at 4:48 PM
First update of 2026 (!), new poems and fundraising update: www.jkrowbory.co.uk/2026/03/firs...
3 lovely visitors to the feeder last week. Eli, who’s been living in the Patio House for 3 wks, & 2 new arrivals unimaginatively called NewHogC & NewHogD, lol /1 #SpringIsComing
📽️ shows each hog as they enter the feeder & tuck in
@warksmammalgroup.bsky.social
📽️ shows each hog as they enter the feeder & tuck in
@warksmammalgroup.bsky.social
February 28, 2026 at 11:15 AM
3 lovely visitors to the feeder last week. Eli, who’s been living in the Patio House for 3 wks, & 2 new arrivals unimaginatively called NewHogC & NewHogD, lol /1 #SpringIsComing
📽️ shows each hog as they enter the feeder & tuck in
@warksmammalgroup.bsky.social
📽️ shows each hog as they enter the feeder & tuck in
@warksmammalgroup.bsky.social
Reposted by Lucy
1min of frantic froggie fornication from today. I put a security camera by the pond so I could see what they're up to. What a perv! There are easily 30+ of them at it, and a lot of the heads are just the ♂️ as the poor ♀️ is giving him a piggy back. #wildlifefrommywindow #ukgarden #frogs #spawnsurvey
February 23, 2026 at 12:18 PM
1min of frantic froggie fornication from today. I put a security camera by the pond so I could see what they're up to. What a perv! There are easily 30+ of them at it, and a lot of the heads are just the ♂️ as the poor ♀️ is giving him a piggy back. #wildlifefrommywindow #ukgarden #frogs #spawnsurvey
Reposted by Lucy
‘Let me blunt: everything about how the NHS handles ME is broken. From the perspective of a patient and carer, everything is on fire.’
February 10, 2026 at 9:35 AM
‘Let me blunt: everything about how the NHS handles ME is broken. From the perspective of a patient and carer, everything is on fire.’
For anyone wondering how Twiglet is getting on, she started hibernation in the Buddleja House 24th Dec. But, she was struggling (unable to maintain hibernation & rapidly losing weight). I intervened on Tuesday & she’s now at the rescue being treated for Fluke & Lungworm 🤞🙏💚
I’m sure you’ll all be pleased to know that Twiglet is eating well, demolishing a bowl of kitten biscuits most nights, & adding a variety of garden gleanings to her nest. I’m hoping she’ll do a bit of hibernating at some point. Sending love & strength to those who need it 💙 #pwME
February 8, 2026 at 4:02 PM
For anyone wondering how Twiglet is getting on, she started hibernation in the Buddleja House 24th Dec. But, she was struggling (unable to maintain hibernation & rapidly losing weight). I intervened on Tuesday & she’s now at the rescue being treated for Fluke & Lungworm 🤞🙏💚
This sweet boy has been in hibernation. Last night, he found his way into the food (protected from slugs & always available for hungry hogs) & moved into the Patio House. I think it might be Eli, a regular from last year. Spring is coming… 🌱 #pwME
February 8, 2026 at 3:57 PM
This sweet boy has been in hibernation. Last night, he found his way into the food (protected from slugs & always available for hungry hogs) & moved into the Patio House. I think it might be Eli, a regular from last year. Spring is coming… 🌱 #pwME
Reposted by Lucy
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
January 19, 2026 at 7:53 AM
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Reposted by Lucy
1) Moving paper by young ME/CFS researcher Katherine Cheston. She was aware of the great disability it causes but "encountering the reality of this suffering first-hand was still shocking and deeply saddening."
She gives examples of patients who do not get appropriate care.
She gives examples of patients who do not get appropriate care.
December 24, 2025 at 9:15 AM
1) Moving paper by young ME/CFS researcher Katherine Cheston. She was aware of the great disability it causes but "encountering the reality of this suffering first-hand was still shocking and deeply saddening."
She gives examples of patients who do not get appropriate care.
She gives examples of patients who do not get appropriate care.
An early Christmas present from the garden to us all #pwME #pwLC 💙 (too beautiful to keep to myself).
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
December 21, 2025 at 5:34 PM
An early Christmas present from the garden to us all #pwME #pwLC 💙 (too beautiful to keep to myself).
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
Reposted by Lucy
I wrote a Christmas gift guide! Who am I? Anyway, there’s lots of crap out there so get the best deal for the wildlife gardener in your life. Merry Christmas 🎄
open.substack.com/pub/katebrad...
open.substack.com/pub/katebrad...
Gifts for wildlife gardeners that really work
(Or, don't buy a hedgehog box that kills hedgehogs. Ok?)
open.substack.com
December 10, 2025 at 9:28 PM
I wrote a Christmas gift guide! Who am I? Anyway, there’s lots of crap out there so get the best deal for the wildlife gardener in your life. Merry Christmas 🎄
open.substack.com/pub/katebrad...
open.substack.com/pub/katebrad...
I’m sure you’ll all be pleased to know that Twiglet is eating well, demolishing a bowl of kitten biscuits most nights, & adding a variety of garden gleanings to her nest. I’m hoping she’ll do a bit of hibernating at some point. Sending love & strength to those who need it 💙 #pwME
December 1, 2025 at 11:50 AM
I’m sure you’ll all be pleased to know that Twiglet is eating well, demolishing a bowl of kitten biscuits most nights, & adding a variety of garden gleanings to her nest. I’m hoping she’ll do a bit of hibernating at some point. Sending love & strength to those who need it 💙 #pwME
Reposted by Lucy
Available to buy now: One Red Leaf at a Time Greetings Cards.
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis
Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.
theredtreeandme.substack.com
November 16, 2025 at 12:36 PM
Available to buy now: One Red Leaf at a Time Greetings Cards.
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
A slightly different edit to the one I put on Twitter. L➡️R: Robin, LongBoy, the growing hoglet & Honeysuckle. Robin ends up eating the floor biscuits scattered by Honeysuckle, lol. Hoglet leaves, then Honeysuckle, who does a big nervous 💩 & no-one else wants to go in there afterwards 🙈!
September 13, 2025 at 10:54 AM
A slightly different edit to the one I put on Twitter. L➡️R: Robin, LongBoy, the growing hoglet & Honeysuckle. Robin ends up eating the floor biscuits scattered by Honeysuckle, lol. Hoglet leaves, then Honeysuckle, who does a big nervous 💩 & no-one else wants to go in there afterwards 🙈!
Filling the kettle for my afternoon cuppa & I spotted a little orange butterfly fluttering about the mown meadow. Turned out to be an egg laying Small Copper, making the most of the Common Sorrel. She'd also brought a friend, a female Common Blue. 🧡☕️💙 #Gardening4Wildlife @bcwarwickshire.bsky.social
September 11, 2025 at 2:56 PM
Filling the kettle for my afternoon cuppa & I spotted a little orange butterfly fluttering about the mown meadow. Turned out to be an egg laying Small Copper, making the most of the Common Sorrel. She'd also brought a friend, a female Common Blue. 🧡☕️💙 #Gardening4Wildlife @bcwarwickshire.bsky.social
Reposted by Lucy
The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group
The process so far has been extremely progressive
I am hugely optimistic that a world-leading guideline will be produced
#pwME #MECFS
The process so far has been extremely progressive
I am hugely optimistic that a world-leading guideline will be produced
#pwME #MECFS
Myalgic Encephalomyelitis (ME) - HSE.ie
www.hse.ie
September 9, 2025 at 2:46 PM
Reposted by Lucy
Thinking of Savannah and hoping all clinicians and advocates can work together “at pace” (as government likes to say) for her best interests in accordance with needs of someone with severe ME.
💙
💙
🧵 Savannah update - please share widely.
Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
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Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
1/2
September 8, 2025 at 6:16 PM
Thinking of Savannah and hoping all clinicians and advocates can work together “at pace” (as government likes to say) for her best interests in accordance with needs of someone with severe ME.
💙
💙
In my wildest dreams, I don’t think I could ever have imagined that my garden would host a Sedge Warbler for an afternoon. Caught initially on the RING camera whilst I was curled up in bed. It hung around until the evening & I got to see/film it. More garden magic 💚 #WarksBirds
August 17, 2025 at 9:49 AM
In my wildest dreams, I don’t think I could ever have imagined that my garden would host a Sedge Warbler for an afternoon. Caught initially on the RING camera whilst I was curled up in bed. It hung around until the evening & I got to see/film it. More garden magic 💚 #WarksBirds