#25StoriesFor25K
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For Shannon, the burden of FPLD is not one symptom or one diagnosis, it is the accumulation of many challenges, day after day, over decades. Help us MATCH $25,000 to bring more patient and caregiver voices to the EL-PFDD.

Donate: lipodystrophyunited.org/form/25-for-...
#25StoriesFor25K #ELPFDD
Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Shannon, a woman with shoulder-length gray-brown hair wearing a denim jacket. Her quote explains that the burden of FPLD is cumulative, including cardiomyopathy, metabolic disease, pain, fatigue, brain fog, sleep problems, autonomic dysfunction, reproductive complications, and loss of mobility—all affecting the same person every day. The graphic encourages donations to help send patients to the EL-PFDD.
August 31, 2026 at 1:30 AM
lipodystrophyunite.bsky.social
25 Stories for $25K | Kara
Rare disease patients shouldn’t have to become experts in appeals and denials just to access care. Help us MATCH $25K to bring more patient and caregiver voices to the EL-PFDD.
Donate: lipodystrophyunited.org/form/25-for-...
#25StoriesFor25K #ELPFDD #LipodystrophyUnited
Lipodystrophy United “25 Stories for $25K” campaign graphic featuring a smiling woman with dark wavy hair wearing a black blazer. A quote attributed to Kara reads: “Patients with rare diseases shouldn't have to become experts in appeals and denials just to access care.” The graphic encourages donations to help send patients to the EL-PFDD.
August 26, 2026 at 12:30 AM
lipodystrophyunite.bsky.social
For Rhonda, research is personal; a way to better understand herself and build a better future for her son and others. Help us MATCH $25K to bring more voices to the EL-PFDD. Your employer may match your gift, doubling your impact.

Donate: lipodystrophyunited.org/form/25-for-...
#25StoriesFor25K
Campaign graphic for Lipodystrophy United’s “25 Stories for $25K” featuring a smiling photo of Rhonda. Her quote explains that she has participated in every available study since 2007, first to understand her own condition and later to ensure her son has the knowledge he needs and to advance understanding of their rare disease. The graphic asks supporters to help send patients to the EL-PFDD through donations.
August 19, 2026 at 12:30 AM
lipodystrophyunite.bsky.social
Story 14: Rebekah 💙
Rebekah shouldn't have to prove her disease exists—and neither should you. Help us match $25K. Check if your employer matches donations to double your impact! Donate: lipodystrophyunited.org/form/25-for-...

#25StoriesFor25K #ELPFDD #Lipodystrophy
A campaign graphic for Lipodystrophy United's "25 Stories for $25K" fundraiser. On the right is a portrait of Rebekah, a woman with long light brown hair wearing a black floral blouse, smiling at the camera. A floral tattoo is visible on her upper arm. On the left is a quote that reads: "I heard back from my insurance company, and they stated, 'We do not know about this disease; it could be made up; we cannot cover something we do not know or speculate.'" At the bottom, the graphic reads: "It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD." The Lipodystrophy United logo appears in the top left, and "25 Stories for $25K" is displayed in the top right.
August 14, 2026 at 1:54 AM
lipodystrophyunite.bsky.social
Story 13: Crystal 💙
Crystal knows the fear of being told she's "too healthy" to qualify for treatment—and of losing access to a therapy that works. Help us match $25K to bring more voices to the EL-PFDD. Check if your employer matches donations!
#25StoriesFor25K #ELPFDD
A Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Crystal. On the right, Crystal is smiling at the camera, wearing glasses and a sleeveless black top. On the left, her quote reads: “I have experienced the uncertainty of trying medications, losing access, or their sudden loss of efficacy. I hope that I continue to get access to this medication, but if I do not, I am willing to take any risk necessary to try to access a treatment one day that I will always have access to.” At the bottom, the graphic reads: “It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD.”
August 12, 2026 at 12:30 AM
lipodystrophyunite.bsky.social
25 Stories for $25K | Story 11: Becky
Living with a rare disease often means living with uncertainty. Becky reminds us why more research and patient voices are important. Help us MATCH $25,000 for the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-...

#25StoriesFor25K #ELPFDD #Lipodystrophy
A campaign graphic for Lipodystrophy United's "25 Stories for $25K" fundraiser. Becky, a woman with long curly brown hair wearing a teal sleeveless top and shorts, is crouching and smiling as she gently holds the face of her black-and-white dog. At the top left is a quote that reads: "Most doctors don't know what to do with me because there isn't enough research to tell me what my future will look like. I still have a lot of questions that nobody seems to have the answers to." At the bottom, the graphic reads: "It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD." The Lipodystrophy United logo appears in the top left, and "25 Stories for $25K" is displayed in the top right.
August 6, 2026 at 11:17 PM
lipodystrophyunite.bsky.social
25 Stories for $25K | Story 10: Christine
After 43 years, Christine had to give up the life she loved because of lipodystrophy. Help us raise $25K to bring more patients to the EL-PFDD. 💙
Donate: lipodystrophyunited.org/form/25-for-...

#25StoriesFor25K #ELPFDD
A campaign graphic for Lipodystrophy United's "25 Stories for $25K" fundraiser. On the right is a portrait of Christine, a woman with short black hair wearing a sleeveless black dress with a decorative neckline, smiling outdoors in bright sunlight. A sunflower graphic partially overlaps the lower right corner of the image. On the left is a quote that reads: "Today, even basic activities like walking, sitting, and standing are painful. I struggle to exercise because I lack the strength and stamina, while the growing cost of appointments with multiple specialists and ongoing medical procedures continues to add financial stress." At the bottom, the graphic reads: "It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD." The Lipodystrophy United logo appears in the top left, and "25 Stories for $25K" is displayed in the top right.
August 5, 2026 at 12:00 AM
lipodystrophyunite.bsky.social
25 Stories for $25K | Story 9: Briana
We're sharing stories like Briana's to ensure those everyday experiences help shape the future of treatment. Help us match $25,000 to bring more patients and families to the EL-PFDD.
Donate: lipodystrophyunited.org/form/25-for-...
#25StoriesFor25K #ELPFDD
A campaign graphic for Lipodystrophy United's "25 Stories for $25K" fundraiser. On the right is a portrait of Briana, a woman with short light brown hair wearing purple-framed glasses and a sleeveless olive-green top. She is smiling at the camera, and colorful tattoos are visible on her upper arm and forearm. On the left is a quote that reads: "When I think about lipodystrophy, I don't just think about the labs or the symptoms. I think about the dash—that space between diagnosis and whatever comes next. It's how we spend that dash that matters most." At the bottom, the graphic reads: "It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD." The Lipodystrophy United logo appears in the top left, and "25 Stories for $25K" is displayed in the top right.
August 2, 2026 at 11:00 PM
lipodystrophyunite.bsky.social
25 Stories for $25K | Story 8: Jennifer
Success isn't just better lab results, it's having the energy to enjoy everyday life. Help us send patients to the EL-PFDD and ensure voices are heard.

Donate: lipodystrophyunited.org/form/25-for-...

#25StoriesFor25K #ELPFDD #LipodystrophyUnited
A campaign graphic for Lipodystrophy United's "25 Stories for $25K" fundraiser. On the right is a portrait of Jennifer, a woman with dark hair pulled back with gray streaks, wearing a bright green sleeveless top and smiling at the camera while seated. On the left is a quote that reads: "Success should not be measured only by lab results, but also by quality of life. It should mean having the energy to spend time with friends, attend family events, and participate in everyday activities without needing days to recover physically and mentally afterward." At the bottom, the graphic reads: "It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD." The Lipodystrophy United logo appears in the top left, and "25 Stories for $25K" is displayed in the top right.
July 31, 2026 at 12:00 AM
lipodystrophyunite.bsky.social
25 Stories for $25K | Story 7: Kenzo
Doing everything "right" doesn't mean the burden disappears. Help us raise $25,000 for the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-...
#25StoriesFor25K #ELPFDD #LipodystrophyUnited
A campaign graphic for Lipodystrophy United's "25 Stories for $25K" fundraiser. On the right is a portrait of Kenzo, a smiling young man with short dreadlocks, facial piercings, and visible neck and arm tattoos. He is wearing a black short-sleeved button-up shirt and looking off to the side with a broad smile. On the left is a quote that reads: "I've done everything that's ever been asked of me, strict diet, constant exercise, medications, clinical trials, and while those things have protected my metabolic health, they still haven't relieved the day-to-day burden of living with this disease." At the bottom, the graphic reads: "It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD." The Lipodystrophy United logo appears in the top left, and "25 Stories for $25K" is displayed in the top right.
July 29, 2026 at 12:00 AM
lipodystrophyunite.bsky.social
25 Stories for $25K | Story 4: Carminho
This is our chance to share what we need from future therapies designed for our bodies. Help us raise $25,000 to bring more patients and families to the EL-PFDD.
Donate: lipodystrophyunited.org/form/25-for-...

#25StoriesFor25K #ELPFDD #LipodystrophyUnited
July 21, 2026 at 10:28 PM
lipodystrophyunite.bsky.social
25 Stories for $25K | Story 1: Maryanna
As we count down to our EL-PFDD meeting, we're sharing 25 stories to raise $25,000 and help more patients and families attend in person. Every story matters. Every donation makes a difference.
Link coming soon!
#25StoriesFor25K #ELPFDD #LipodystrophyUnited
A campaign graphic for Lipodystrophy United's "25 Stories for $25K" fundraiser. On the right is a portrait of Maryanna, a woman with shoulder-length brown hair wearing a sleeveless black top, looking directly at the camera with a calm expression. On the left is a quote from Maryanna that reads: "More and more I learned to shove everything down—people have sympathy when you have a visible or well-known disease. No one wants to be around someone who is always tired, moody, and complaining about pain." At the bottom, the graphic reads: "It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD." The Lipodystrophy United logo appears in the top left, and "25 Stories for $25K" is displayed in the top right.
July 15, 2026 at 1:58 AM