#APSMatters
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Thank you for joining us for #APSAwarenessMonth! Your support helps raise the profile of APS across the UK.

What would you like to see for #APSAM27?

Stay in touch: aps-support.org.uk/get-involved...

From all at APS Support UK—thank you! #APSMatters #APSAM26
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#30’. Main text thanks people for reading and sharing the Awareness Month posts, and says that together we can create a more powerful voice to make ourselves heard, asking people to support and join the charity. It directs people to visit aps-support.org.uk. On the right is a pink megaphone icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 30, 2026 at 5:00 AM
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#AntiphospholipidSyndrome can mimic many other conditions—like #MultipleSclerosis, #RheumatoidArthritis, or Bell’s palsy—so misdiagnosis is common. If your symptoms don’t add up, ask about #APS.

🔗 cutt.ly/how-is-aps-d...

#APSAM26 #APSMatters #RareDisease
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#29’. Main text says that because APS can present with so many symptoms, people can sometimes initially be misdiagnosed. It lists common misdiagnoses including multiple sclerosis, rheumatoid arthritis and Bell’s palsy. On the right is a pink stethoscope and medical cross icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 29, 2026 at 5:00 AM
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Is #APS hereditary? Right now, there’s no single gene for APS, but some families are affected. More research is underway to find out if there’s a genetic link.

🔗 cutt.ly/aps-faqs

#APSAM26 #APSMatters #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#28’. Main text says we are often asked whether APS is hereditary and that, at the moment, we simply don’t know. It explains there may be some genetic linkage, but there is no single gene found in every patient with APS. It adds that there is anecdotal evidence supporting links in some families, and more research is starting to look at possible genetic links. On the right is a pink DNA helix icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 28, 2026 at 5:00 AM
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A new #APS diagnosis can feel overwhelming, but you’re not alone.

Learn more and connect with support groups & others who understand: aps-support.org.uk/self-help/ne...

#APSMatters #APSAM26 #RareDisease #APSAwarenessMonth #NewlyDiagnosed
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#27’. Main text says it can be isolating and frightening when you’re diagnosed with APS, but there are plenty of online support groups that can help you learn more about the condition from other people’s shared experiences. It directs people to visit aps-support.org.uk. On the right is a pink awareness ribbon icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 27, 2026 at 5:00 AM
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#AntiphospholipidSyndrome can affect your eyes—causing migraine aura (flashing lights or patterns) or, rarely, sudden vision loss in one eye due to clots. Any vision changes should be checked by your doctor.

🔗 cutt.ly/aps-and-the-...

#APSAM26 #APSMatters #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#26’. Main text says the eyes can often be affected in people with APS. It explains that, in addition to migraine aura such as flashing lights and patterns, visual loss, usually in one eye, can result from clots on the brain or optic nerve. On the right is a pink eye icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 26, 2026 at 7:14 AM
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Did you know APS can cause livedo reticularis?

~20% of people develop this red or blue, lacy skin pattern, usually on the knees, thighs, or upper arms, caused by tiny clots in the skin.

🔗 cutt.ly/aps-and-the-...

#APSAM26 #APSMatters #LivedoReticularis #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#25’. Main text says around 20% of people with APS have a skin condition called livedo reticularis. It explains this is a red or blue mottled, lacy pattern usually on the knees, thighs and upper arms, but it can also appear on the body. It adds that livedo reticularis is caused by tiny clots inside the blood vessels of the skin that reduce blood flow. On the right is a pink honeycomb-style pattern icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 25, 2026 at 5:00 AM
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🥱 Fatigue affects many people with APS. It can fluctuate between good and bad days, but managing fatigue helps improve daily life.

🔗 cutt.ly/coping-with-...

#APSAM26 #APSMatters #Fatigue #AutoimmuneDisease #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#24’. Main text says most people with APS will suffer from fatigue at some point because they have an autoimmune disease. It adds that fatigue does not tend to be constant, people can have good and bad days, and it’s important to learn how to manage fatigue so you’re not exhausted all the time. On the right is a simple pink tired face icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 24, 2026 at 5:00 AM
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APS can affect the kidneys — sometimes it’s the only sign.

Clots may cause high blood pressure or back/abdominal pain. Early detection is crucial.

🔗 cutt.ly/aps-and-the-...

#APSAM26 #APSMatters #KidneyHealth #AutoimmuneDisease #RareDisease #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#23’. Main text says that due to clots, kidney disease is not uncommon in APS and can be the first and only sign of the condition. It adds that early detection of kidney problems often improves the outlook for many patients, and that symptoms usually include high blood pressure and pain in the abdomen or back. On the right is a pink kidney icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 23, 2026 at 5:00 AM
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🩺 Need an APS specialist?

We’ve got a UK-wide directory built from patient recommendations — covering haematology, rheumatology, neurology & obstetrics.

🔗 cutt.ly/specialists-...

#APSAM26 #APSMatters #RareDisease #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#22’. Main text says: ‘Did you know that our charity maintains a comprehensive and up-to-date APS specialist directory?’ It explains that the list has been compiled thanks to patients sharing information and recommending doctors who have treated them. It says the directory covers all areas of the UK and includes haematologists, rheumatologists, neurologists and obstetricians. It directs people to visit aps-support.org.uk. On the right is a pink document icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 22, 2026 at 5:00 AM
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APS was first defined in the 1980s—but signs go back centuries. Queen Anne’s repeated pregnancy losses may mirror #APS. Today, we know aPL antibodies can cause serious clotting & obstetric issues. A long road to recognition.

🔗 cutt.ly/blood-tests

#APSAM26 #APSMatters
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#21’. Main text says APS was first defined in the early 1980s. It includes a historical note that the full-blown picture of the syndrome resembles the illness suffered by Anne Stuart, Queen of England in the 18th century, whose repeated miscarriages caused the end of the royal Stuart line and the Hanoverian succession. On the right is a pink illustration of Queen Anne. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 21, 2026 at 5:00 AM
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APS can cause more than miscarriage.

It’s also linked to pre-eclampsia and low birth weight.
Careful monitoring in pregnancy is vital for those with APS.

🔗 cutt.ly/aps-and-preg...

#APSAM26 #APSMatters #PregnancyHealth #HighRiskPregnancy #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#20’. Main text says that as well as causing recurrent miscarriage and stillbirth, APS can be responsible for other serious pregnancy problems such as pre-eclampsia and small, low-weight babies. It adds that careful monitoring of these high-risk pregnancies is vital. On the right is a pink icon of a pregnant person. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 20, 2026 at 5:00 AM
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Some #APS cases don’t meet full criteria.

🩸 #Seronegative APS = symptoms, no antibodies
🧠 #NonCriteria APS = antibodies, no clots

Rare but real — and still being researched.

🔗 cutt.ly/non-criteria...

#APSAM26 #APSMatters #APSResearch #AntiphospholipidSyndrome
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#19’. Main text says some people with APS don’t meet all the criteria. It explains that some people test negative in all three blood tests but still fulfil the clinical criteria, while others test positive in some blood tests but lack certain symptoms. It adds that these patients, who meet one set of criteria but not the other, are sometimes referred to as having ‘non-criteria APS’. On the right is a pink medical clipboard and pen icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 19, 2026 at 5:00 AM
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#APS can affect the heart valves too. ~30% of patients develop #HeartValveDisease, causing fatigue, breathlessness & fainting. In severe cases, it can lead to heart failure or surgery. Early monitoring is vital.

🔗 cutt.ly/aps-and-the-...

#APSAM26 #APSMatters #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#18’. Main text says it is estimated that 30% of people with APS will experience some form of heart valve disease. It lists symptoms including shortness of breath, feeling faint during exertion and fatigue, and explains that most cases are mild but more severe cases can lead to heart failure and may require surgery. On the right is a pixel-style pink heart icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 18, 2026 at 5:00 AM
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APS is diagnosed through blood tests:

🩸 Lupus anticoagulant (LA)
🩸 Anticardiolipin
🩸 Anti-beta2-glycoprotein1

LA doesn’t mean you have lupus — it detects antiphospholipid antibodies.

🔗 cutt.ly/blood-tests

#APSAM26 #APSMatters #Diagnosis #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#17’. Main text says APS is usually diagnosed with blood tests that detect antiphospholipid antibodies. It lists three tests: anticardiolipin, lupus anticoagulant (LA), and anti-beta-2-glycoprotein 1. It explains that the LA test has a confusing name: if you are positive for LA, you do not have lupus, but you do have antiphospholipid antibodies. On the right is an icon of a blood test tube. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 17, 2026 at 5:00 AM
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APS affects men too.

For every 7 women, 2 men are diagnosed — often after serious events like stroke or heart attack. Early testing is key.

🔗 cutt.ly/how-common-i...

#APSAM26 #APSMatters #RareDisease #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#16’. Main text says APS does not just affect women. It states that for every seven women, there are two men affected, and that women may be diagnosed earlier due to pregnancy problems. It adds that men often tend to be diagnosed after a serious clotting event such as a heart attack, stroke or DVT. On the right is a simple icon showing seven pink female figures and two purple male figures. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 16, 2026 at 4:45 AM
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Women with APS are 5x more likely to suffer stillbirth.

With the right treatment & monitoring, many can have successful pregnancies — early diagnosis is key.

🔗 cutt.ly/aps-and-preg...

#APSAM26 #APSMatters #PregnancyLoss #ReproductiveHealth #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#15’. Main text says that, in addition to recurrent miscarriage, people with APS are five times more likely to suffer a stillbirth. It adds that it is very important they are given the correct treatment and monitored regularly throughout these high-risk pregnancies. On the right is a pink circle containing a white foetus icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 15, 2026 at 5:00 AM
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APS often overlaps with other #autoimmune conditions. Lupus, RA, Sjögren’s & autoimmune thyroid disease are common in APS patients/family members. 30–40% of people with lupus also have antiphospholipid antibodies.

🔗 cutt.ly/related_cond...

#APSAM26 #APSMatters #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#14’. Main text explains that some people with APS may also have other autoimmune conditions, as may other members of their family. It lists related autoimmune ‘cousins’ including lupus, autoimmune thyroid disease, rheumatoid arthritis and Sjögren’s syndrome. It also states that between 30–40% of people with lupus will have antiphospholipid antibodies. On the right are several pink plus symbols. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 14, 2026 at 5:00 AM
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APS isn’t just a clotting disorder.

As an autoimmune condition, it can cause “low-grade” but debilitating symptoms like fatigue, joint pain, migraines, memory loss & brain fog.

🔗 cutt.ly/what-are-the...

#APSAM26 #APSMatters #BrainFog #Fatigue #Autoimmune #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#13’. Main text says: ‘It’s not just a blood clotting disorder!’ It explains that APS is an autoimmune condition and can also cause low-grade symptoms in many people, including migraines, joint pain, fatigue, memory problems and ‘brain fog’ that can make people forget names, dates, conversations and appointments. On the right is a pink brain icon wearing black glasses. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 13, 2026 at 5:00 AM
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APS may be behind heart attacks in younger people. ❤️

Around 20% of under-50s who suffer a heart attack have antiphospholipid antibodies. Testing for APS is vital in unexplained cases.

🔗 cutt.ly/aps-and-the-...

#APSAM26 #APSMatters #HeartHealth #Autoimmune #RareDisease
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#12’. Main text says research has found that around 20% of people under 50 who suffer a heart attack have antiphospholipid antibodies (aPL). It adds that anyone with a young, unexplained heart attack should be tested for APS. On the right is a pink heart icon with a white heartbeat line. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 12, 2026 at 5:00 AM
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APS can affect almost any part of the body.

Because blood flows everywhere, it may impact the brain, lungs, heart, kidneys, liver, skin, eyes & joints. Symptoms vary widely.

🔗 cutt.ly/what-are-the...

#APSAM26 #APSMatters #RareDisease #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#11’. Main text says that APS is a blood clotting disorder and, because blood flows throughout the entire body, nearly any organ can be affected. It lists the brain, eyes, ears, lungs, heart, kidneys, liver, bowel, skin, nails, bones and joints as areas that can potentially be affected to varying degrees. On the right is an icon of a human body showing internal organs. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 11, 2026 at 5:00 AM
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For 30% of people with APS, DVT is the first sign.

Clots in the leg (#DVT) can break off and travel to the lungs, causing a pulmonary embolism (#PE) — a life-threatening complication of #APS.

🔗 cutt.ly/aps-and-the-...

#APSAM26 #APSMatters #BloodClots #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#10’. Main text explains that with APS, blood clots can occur in the veins and lungs. It says that in the veins, this can take the form of Deep Vein Thrombosis (DVT), which can break free and travel to the lungs, where the clots are known as Pulmonary Emboli (PE). It also states that one study has shown DVT is the first sign of APS in 30% of people. On the right is an icon of several red blood cells. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 10, 2026 at 5:00 AM
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Today is #WorldAPSDay! 🩸

Join us in raising awareness of antiphospholipid syndrome and the people living with it every day.

💬 Share your story using:
#WorldAPSDay #APSAM26 #APSMatters #APSAwarenessMonth

🔗 Sign up for updates: cutt.ly/enews
APS Support UK graphic for World APS Day. Background shows close-up red blood cells. Top left: APS Support UK logo. A speech-bubble style panel has a bold heading: ‘Today is WORLD APS DAY!’ Text underneath reads: ‘Share this post and join APS Support UK in raising awareness of antiphospholipid syndrome.’ The APS Support UK logo appears again within the panel, and on the right is a large pink heart icon with a white blood drop cut-out in the centre. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 9, 2026 at 5:00 AM
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#CatastrophicAPS is rare but life-threatening.

It causes rapid, widespread clotting in vital organs — usually triggered by infection, surgery or trauma.

It affects <1% of APS patients but has a 39% mortality rate.

🔗 cutt.ly/catastrophic...

#APSAM26 #APSMatters #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large banner reads ‘APS Awareness Fact’ with ‘#08’. Main text explains that Catastrophic APS is the most feared and serious complication of antiphospholipid syndrome; in CAPS, blood clots can suddenly develop throughout the body and vital organs, usually linked to infection, trauma or surgery. It notes that CAPS is extremely rare (less than 1% of patients) but has a poor outlook with a 39% mortality rate. On the right is an icon of three red blood cells. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 8, 2026 at 5:01 AM
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What causes APS? We’re still working it out.

It’s linked to immune system overactivity, possibly triggered by genes, infections, hormones or medication — but research is ongoing.

🔗 cutt.ly/what-causes-it

#APSAM26 #APSMatters #Autoimmune #RareDisease #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#07’. Main text says: ‘The cause of APS is not yet known, but we do know that it stems from an over-activity of the immune system that appears to be triggered by something. This trigger may be caused by genes, infections, medication or hormones. Much research is still needed.’ On the right are several pink question marks, including one large question mark. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 7, 2026 at 5:00 AM
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It takes an average of 3 years to be diagnosed with APS.
That’s far too long.
How long did it take for you? What do you think needs to change? 🗣️
🔗 cutt.ly/how-is-it-di...
#APSAM26 #APSMatters #DelayedDiagnosis #RareDisease #APSAwarenessMonth
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#06’. The centre text is formatted like a quiz: ‘Q: How many years, on average, do you think it takes a person with antiphospholipid syndrome (APS) to be diagnosed?’ On the right, the answer reads ‘A: 3 years’ with a large pink number 3. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 6, 2026 at 5:00 AM