#APSMatters
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apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #travelinsurance #travelsafety #travelingwithmedicine #traveltips #TravelSmart #medicine
June 12, 2025 at 6:49 PM
silvia-aps.bsky.social
2️⃣ Second session "Beyond the clot: challenges in obstetric antiphospholipid syndrome", chaired by Nathalie Costedoat-Chalumeau and Karoline Mayer-Pickel!
#RheumaPreg25 #APS #APSmatters #oAPS
May 9, 2025 at 10:38 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
July 1, 2025 at 11:11 AM
apsfaorg.bsky.social
Today, we'll discuss the symptoms of a stroke.

Share your story in the comments below!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #stroke #strokeawareness #neurology #awareness #prevention
June 13, 2025 at 12:52 PM
apsfaorg.bsky.social
#Lupus #Sjogrens #Scleroderm #Poymyosttis #Vasculitis #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters
June 17, 2025 at 6:57 PM
apsfaorg.bsky.social
to be enjoying your vacation!

If you have other #travel tips to share, please do so in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #TravelSafety #traveltips #travelsafetytips
June 12, 2025 at 10:43 AM
apsfaorg.bsky.social
antiphospholipid syndrome.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #collaboration #teamwork
June 9, 2025 at 6:24 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise
June 29, 2025 at 1:16 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #medicalert #emergencypreparedness #alertjewelry
June 7, 2025 at 6:17 PM
apsfaorg.bsky.social
or the emergency room.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot
June 28, 2025 at 6:44 PM
apsfaorg.bsky.social
We thank you for supporting us for 20 wonderful years!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #twentyyearanniversary
June 9, 2025 at 10:24 AM
apsfaorg.bsky.social
your stories in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #women #reproductive #obstetrics #ReproductiveHealthCare #miscarriages #Pregnant #pregnancyloss #stillborn
June 11, 2025 at 10:08 AM
apssupportuk.bsky.social
Today is #WorldAPSDay! 🩸

Join us in raising awareness of antiphospholipid syndrome and the people living with it every day.

💬 Share your story using:
#WorldAPSDay #APSAM26 #APSMatters #APSAwarenessMonth

🔗 Sign up for updates: cutt.ly/enews
APS Support UK graphic for World APS Day. Background shows close-up red blood cells. Top left: APS Support UK logo. A speech-bubble style panel has a bold heading: ‘Today is WORLD APS DAY!’ Text underneath reads: ‘Share this post and join APS Support UK in raising awareness of antiphospholipid syndrome.’ The APS Support UK logo appears again within the panel, and on the right is a large pink heart icon with a white blood drop cut-out in the centre. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 9, 2026 at 5:00 AM
apsfaorg.bsky.social
Raise your hand if you will raise money for the APSFA in June.

Fifty percent (50%) of the money raised goes towards research! 

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD26 #raredisease #charity #donate #APS #APSAM26
May 31, 2026 at 5:03 PM
apsfaorg.bsky.social
Raise Your Hand: Raise your hand if you will raise money for the APSFA in June. Fifty percent (50%) of the money raised goes towards research!

#APS #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters
#apsresearch #apsawarenessmonth #antiphospholipidsyndrome #APS
May 31, 2025 at 11:41 PM
apsfaorg.bsky.social
during pregnancy and plan your pregnancy ahead of time.

Any words of wisdom to share, ladies?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
June 11, 2025 at 8:48 PM
apsfaorg.bsky.social
Comment below with your tips and tricks for getting out of the fog!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #brainfog #invisibleIllness #invisibleillnesses #spoonielife #spoonie #raiseawareness
June 14, 2025 at 10:34 AM
apsfaorg.bsky.social
the stage is yours....... Please, also share in the comments below.

We may even publish yours in our #newsletter.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #storytime #apsawarenessmonth #apsresearch #WTD25 #personalstory #mystory
June 10, 2025 at 12:25 PM
apsfaorg.bsky.social
Clinical Features of APS: APS Awareness Month - Day 1:

Today we bring you the clinical features of #APS. Have you experienced any of the symptoms listed?

#GoBurgundy #APSMatters #apsresearch #APSFA #antiphospholipidsyndrome #apsawarenessmonth
June 1, 2025 at 6:09 PM
apssupportuk.bsky.social
#APSAwarenessMonth is here! 🩸
Join us throughout June as we share daily facts, stories & insights about #AntiphospholipidSyndrome — a rare autoimmune clotting disorder.
Follow, share & help raise awareness.
🔗 aps-support.org.uk
#APSAM26 #APSMatters #RareDisease #Autoimmune
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A speech-bubble style panel reads ‘APS Awareness Fact’ with ‘#01’. Headline: ‘June is antiphospholipid (APS) Awareness Month…’ Body text explains the annual campaign and that daily facts will be posted throughout June, encouraging people to like, share and comment. It invites viewers to visit aps-support.org.uk for common symptoms. Right side shows icons for like (thumbs up), heart, and share arrow. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 1, 2026 at 12:10 PM
apsfaorg.bsky.social
There are some #statistics you can say out loud. How rare is #APS? Not so rare anymore. It really was misdiagnosed & underdiagnosed.

However, there is now the problem of overdiagnosing.

#AntiphospholipidSyndrome #APSAwareness #APSMatters #APSFA #apsawareness #apsresearch
June 2, 2025 at 6:50 PM
apsfaorg.bsky.social
Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.

#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS
apsfa.org
June 29, 2025 at 1:45 PM
apsfaorg.bsky.social
If you're diagnosed with Antiphospholipid Syndrome (APS), it's essential to take all possible steps to reduce your risk of developing blood clots.

What other ideas do you have to add to this list?

#AntiphospholipidSyndrome #APSAwareness #APSMatters #APSFA #apsawarenessmonth #mentalhealth
June 13, 2025 at 6:38 PM
apsfaorg.bsky.social
How is APS Diagnosed? APS Awareness Month - Day 2:

Three blood tests are used to diagnose #APS.

Do you know what they are? You do now! How many do you have?

#APS #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawareness #apsawarenessmonth
June 2, 2025 at 1:35 PM
apssupportuk.bsky.social
APS can’t be cured, but it can be treated.
Most patients manage #APS with anticoagulants or antiplatelet meds like aspirin, warfarin, or heparin. Rivaroxaban may be an option for some.
🔗 cutt.ly/how-is-it-tr...
#APSAM25 #APSMatters #RareDisease #APSAwarenessMonth #Thrombosis
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#04’. Main text says: ‘Currently, there is no cure for APS… but the symptoms can be controlled with anticoagulant or antiplatelet drugs such as aspirin, clopidogrel, heparin and warfarin. Rivaroxaban is also used to treat some APS patients who meet a certain criteria.’ On the right is a pink pill icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 4, 2026 at 10:37 AM