#apsawareness
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apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #travelinsurance #travelsafety #travelingwithmedicine #traveltips #TravelSmart #medicine
June 12, 2025 at 6:49 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
July 1, 2025 at 11:11 AM
apsfaorg.bsky.social
Today, we'll discuss the symptoms of a stroke.

Share your story in the comments below!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #stroke #strokeawareness #neurology #awareness #prevention
June 13, 2025 at 12:52 PM
apsfaorg.bsky.social
#Lupus #Sjogrens #Scleroderm #Poymyosttis #Vasculitis #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters
June 17, 2025 at 6:57 PM
apsfaorg.bsky.social
to be enjoying your vacation!

If you have other #travel tips to share, please do so in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #TravelSafety #traveltips #travelsafetytips
June 12, 2025 at 10:43 AM
apsfaorg.bsky.social
antiphospholipid syndrome.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #collaboration #teamwork
June 9, 2025 at 6:24 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise
June 29, 2025 at 1:16 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #medicalert #emergencypreparedness #alertjewelry
June 7, 2025 at 6:17 PM
apsfaorg.bsky.social
There are some #statistics you can say out loud. How rare is #APS? Not so rare anymore. It really was misdiagnosed & underdiagnosed.

However, there is now the problem of overdiagnosing.

#AntiphospholipidSyndrome #APSAwareness #APSMatters #APSFA #apsawareness #apsresearch
June 2, 2025 at 6:50 PM
apsfaorg.bsky.social
or the emergency room.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot
June 28, 2025 at 6:44 PM
apsfaorg.bsky.social
How is APS Diagnosed? APS Awareness Month - Day 2:

Three blood tests are used to diagnose #APS.

Do you know what they are? You do now! How many do you have?

#APS #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawareness #apsawarenessmonth
June 2, 2025 at 1:35 PM
apsfaorg.bsky.social
We thank you for supporting us for 20 wonderful years!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #twentyyearanniversary
June 9, 2025 at 10:24 AM
apsfaorg.bsky.social
your stories in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #women #reproductive #obstetrics #ReproductiveHealthCare #miscarriages #Pregnant #pregnancyloss #stillborn
June 11, 2025 at 10:08 AM
apsfaorg.bsky.social
Raise your hand if you will raise money for the APSFA in June.

Fifty percent (50%) of the money raised goes towards research! 

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD26 #raredisease #charity #donate #APS #APSAM26
May 31, 2026 at 5:03 PM
apsfaorg.bsky.social
Raise Your Hand: Raise your hand if you will raise money for the APSFA in June. Fifty percent (50%) of the money raised goes towards research!

#APS #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters
#apsresearch #apsawarenessmonth #antiphospholipidsyndrome #APS
May 31, 2025 at 11:41 PM
apsfaorg.bsky.social
during pregnancy and plan your pregnancy ahead of time.

Any words of wisdom to share, ladies?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
June 11, 2025 at 8:48 PM
apsfaorg.bsky.social
Comment below with your tips and tricks for getting out of the fog!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #brainfog #invisibleIllness #invisibleillnesses #spoonielife #spoonie #raiseawareness
June 14, 2025 at 10:34 AM
apsfaorg.bsky.social
the stage is yours....... Please, also share in the comments below.

We may even publish yours in our #newsletter.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #storytime #apsawarenessmonth #apsresearch #WTD25 #personalstory #mystory
June 10, 2025 at 12:25 PM
apsfaorg.bsky.social
Symptoms of heart valve disease may resemble those of other medical conditions.

Always see your doctor for a diagnosis.

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #cardiac #heart #cardiology #heartvalvedisease #irregularbets #HeartHealth #HeartValveSurgery
June 8, 2025 at 6:10 PM
apsfaorg.bsky.social
APS is an autoimmune disorder where the immune system produces antibodies that mistakenly attack normal proteins in the blood, especially phospholipid-binding proteins. These antibodies increase the risk of abnormal blood clots.

#AntiphospholipidSyndrome #APSAwareness #APSFA #primer
June 1, 2025 at 4:05 PM
apsfaorg.bsky.social
Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.

#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS
apsfa.org
June 29, 2025 at 1:45 PM
myseveralworlds.com
"A light bump, pinch or punch can add a new bruise to the endless collection. I’m often surprised to find a new one hidden somewhere on my body" @achronicvoice.com
🔗
buff.ly/3edF31G

#AntiphospholipidSyndrome #PulmonaryEmbolism #ChronicPain #APSAwareness #AntiphospholipidSyndrome #APS
buff.ly
June 8, 2025 at 4:42 AM
apsfaorg.bsky.social
If you're diagnosed with Antiphospholipid Syndrome (APS), it's essential to take all possible steps to reduce your risk of developing blood clots.

What other ideas do you have to add to this list?

#AntiphospholipidSyndrome #APSAwareness #APSMatters #APSFA #apsawarenessmonth #mentalhealth
June 13, 2025 at 6:38 PM
apsfaorg.bsky.social
Myth: Only older or sick people get blood clots

Fact: Anyone can get a blood clot, even if they are young - that includes children and healthy people.

When did you first start clotting?

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #WTD25 #raredisease #APS
June 27, 2025 at 7:54 PM
apsfaorg.bsky.social
A good site for more info is: tinyurl.com/y5o7l9qd

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #medicalgraphic #autoimmune #raiseawareness #zebrastrong #rarediseases #chronicillnesswarrior
Mottled skin (livedo reticularis): Causes, treatment, and more
Mottled skin can develop for various reasons, including low circulation, septic shock, and some chronic health conditions. Learn more here.
tinyurl.com
June 10, 2025 at 7:25 PM