#Vasculitis
COVID is an airborne *vasculitis.*
People know at this point that covid isn't really a respiratory infection right? It's an infection that happens to spread via respiratory systems but that causes system wide inflammation. The flu is a respiratory infection. It sticks to your lungs for the most part. Covid doesn't.
March 16, 2024 at 1:30 PM
It's nice reconnecting with people on a new platform, and it feels like a fresh start as my body is healing up! For those that haven't been on other platforms and haven't seen updates, this year I got diagnosed with a rare disease called GPA Vasculitis: www.vasculitisfoundation.org/education/va...
Granulomatosis with Polyangiitis – Vasculitis Foundation
www.vasculitisfoundation.org
October 19, 2024 at 1:49 AM
A niche frustration I have as someone with vasculitis is when Covid gets referred to as "airborne vasculitis." It's not–it needs to appear a certain way in a biopsy and blood test results for it to be so.

Yes, Covid can trigger vasculitis (as w/ other infectious diseases) but it's not vasculitis.
August 10, 2025 at 5:31 PM
And like...no one really questions if vasculitis is real. And I had a clear-cut case of it. And I dealt with that!
September 24, 2026 at 11:30 PM
Hitting my 10 year anniversary in a few weeks of when I was told after a week long hospitalization that my undiagnosed vasculitis was "anxiety."

If you've never been sick, let me tell you, being gaslit over your symptoms is very shitty.
I’m genuinely shocked at the people on here who think long covid isn’t real. Seriously? Your actuaries, departments of health even the freaking department of defense know it’s real. Apparently people used to think MS wasn’t real. There’s a long history of telling sick people they’re crazy.
September 24, 2026 at 11:29 PM
As someone who actually has inflammation problems (vasculitis), the way these quacks have used "inflammation" to push pseudoscience grinds my gears.
wtf is this nonsense? He thinks he can understand kid’s “mitochondrial challenges” just by looking at them?

This is an insane person.
August 28, 2025 at 12:39 AM
Airborne vasculitis
October 20, 2023 at 12:11 PM
I'm going to scream tomorrow as a vasculitis haver if very rare instances of Covid triggering vasculitis come up in the Covid vaccine ACIP meeting tomorrow. Be warned. I get vaccinated against Covid because I don't want an infectious vascular disease making my vascular condition worse.
September 18, 2025 at 10:23 PM
This gives me so much hope as someone who is on a boatload of meds just to make it so I can function with vasculitis.
Developed initially to target and kill tumors, they are now being engineered to target cells that are contributing to autoimmune diseases, like antibody-producing B cells.
#Science 🧪
‘They don’t have symptoms’: CAR-T therapies send autoimmune diseases into remission
Engineered T cells that have been used to treat ulcerative colitis, rheumatoid arthritis and lupus show promising results.
www.nature.com
November 29, 2025 at 12:17 AM
Getting accommodations for my then undiagnosed vasculitis was mission impossible.
July 6, 2025 at 8:01 PM
Without my meds for my vasculitis, I will be hospitalized. I have strong opinions on this.
April 9, 2025 at 12:52 AM
Covid was in essence an inhaled vasculitis. An airborne, cascading inflammatory microthrombotic storm.
November 24, 2024 at 7:58 PM
Vasculitis mention, as a vasculitis haver, that rarely happens
September 18, 2025 at 6:21 PM
Josh @pulmcrit.bsky.social tackles ICU management of DAH incl ANCA vasculitis

emcrit.org/ibcc/dah/#tr...

On PLEX: yes that doesn’t help DAH at all

However, in some patients, it helps save a few months off dialysis - small effect

#NephSky #emimcc
Pulmonary vasculitis & diffuse alveolar hemorrhage (DAH)
CONTENTS Diffuse Alveolar Hemorrhage (DAH) Clinical presentation Radiology Bronchoscopy Causes Evaluation Management ANCA-associated vasculitis (GPA & MPA) Definitions Clinical features Laboratory fin...
emcrit.org
September 25, 2026 at 12:52 AM
Vasculitis Patients Need Multiple COVID Vaccine Boosters.

"People with vasculitis may need at least 3 or 4 vaccinations for COVID-19 before they start to show an immune response against SARS-CoV-2 infection, new research has suggested."

Source: archive.md/HAvtr
February 19, 2025 at 10:48 PM
I would just like to say, I do a pretty good job as a disability reporter, while exisiting with vasculitis, ME/CFS, a TBI and more. It's not easy, but I make a pretty good effort.
October 28, 2025 at 12:59 AM
That my undiagnosed vasculitis was anxiety after I was hospitalized for a week with rough symptoms.
A question from Reddit that I'll answer here:
"What's the most unhinged thing a doctor has said to you with a straight face?"
August 8, 2026 at 2:19 AM
Well, I fell for the first time in five years today (stress-induced vasculitis stuff). Bodies do really keep score.
September 11, 2025 at 10:09 PM
Organ failure is not needed for a vasculitis diagnosis. It made no sense.
June 15, 2025 at 8:21 PM
I've been too sick to be in university before due to uncontrolled vasculitis. Let alone getting Long Covid, I don't want Covid, which has a vascular mechanism, to worsen my vasculitis (also vascular).
October 19, 2025 at 8:12 PM
My sibling has GPA, a Vasculitis disease. Guess who identified the use of cancer drugs to turn it from a 95% 5 year mortality rate to 93% 5 year remission rate?
August 2, 2026 at 11:52 PM
Case report of ANCA-associated vasculitis (a systemic autoimmune disease affecting blood vessels), newly diagnosed one month after COVID-19 infection

#LongCovid

link.springer.com/article/10.1...
Newly diagnosed ANCA-associated vasculitis after COVID-19 infection: a case report - Journal of Medical Case Reports
Background Antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis is a systemic autoimmune disease characterized by mononuclear cell infiltration and small and medium-sized blood vessel dest...
link.springer.com
January 20, 2026 at 12:41 AM
As someone currently on HCQ for my vasculitis, I'd very much like there not to be a shortage due to it being promoted for nonsense reasons.
May 6, 2025 at 1:10 AM
For my rare type of vasculitis, see people running into this behavior based off of FB posts. Like, doctors aren't even digesting their own literature. I like my vasculitis doc who is quite honest with the fact we don't have good options for persistent fatigue.
March 7, 2026 at 11:57 PM
Today is World Suicide Prevention Day. I'm glad to be here. Debilitating chronic pain and other symptoms made me not want to be shortly before my vasculitis diagnosis and for a year after. It can get better. I hope for all chronically ill people to suffer a little less.
September 11, 2025 at 12:38 AM