My pain
My fatigue

Agreeing to flare together at the most inconvenient time possible.

Credit Unknown

#ChronicTruths #MySeveralWorlds
#FibromyalgiaAwarenessMonth #ASAwarenessMonth #MEAwarenessMonth

My pain
My fatigue

Agreeing to flare together at the most inconvenient time possible.

Credit Unknown

#ChronicTruths #MySeveralWorlds
#FibromyalgiaAwarenessMonth #ASAwarenessMonth #MEAwarenessMonth

I had my first rheum appointment in Canada yesterday after waiting 5 months. (Today is also 5 months since I left Taiwan.)

Parts were good & parts were uneasy.

Today, I'm revisiting what anti-TNF meds do to me & why I now carry an epi pen.

#AxSpA #ASAwarenessMonth #MySeveralWorlds #anaphalaxis

"If arthritis could be cured with diet and supplements,
1 in 5 of us would NOT be
living with the exquisite agony of arthritis!"

Carrie Marshall
MySeveralWorlds.com

❓️Did you know I sell t-shirts?

➡️ Check comments for details.

#ASAwarenessMonth #axSpA #PsoriaticArthritis #ArthritisAwareness

Ankylosing spondylitis
You stand until it hurts so you sit
You sit until it hurts so you lie down
You lie down until it hurts so you stand.
Wash and repeat.

Credit Nikki @gahno BlueSky

#ASAwarenessMonth
#AxSpA #MySeveralWorlds
#NotOnlyBackPain

How all #Spondy folks think of their spines:

Cervical - trash
Thoracic - bullshit
Lumbar - garbage
Sacrum - worthless
Coccyx - no

#ASAwarenessMonth #ChronicMeme #MySeveralWorlds #AxSpA

For #ASAwarenessMonth

#AxSpA Symptom Checker: Signs & Symptoms
✔️ Back pain that starts early in life
✔️ Has it lasted more than 3 months?
✔️ Do you wake up from pain at night?
✔️ Are you stiff in the morning
#SpA is a complex disease. Its severity and progression varies greatly among individuals.

AxSpA: #Everydaychallenges

It has been more than a decade since have been able to kneel or bend my knees in this manner

❓What are some simple things you can no longer do because of arthritis?

#ASAwarenessMonth #MySeveralWorlds
#LaceUpForAxSpA #NotOnlyBackPain
#WalkYourASOff

My #AxSpA Story for @spondylitis

When I was diagnosed with #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help #AxSpA patients like me. #disability
🔗
spondylitis.org/patient-stor...

#ASAwarenessMonth

My reality with D2T (difficult to treat) & mostly med resistant inflammatory arthritis is nine biologics between 2021 and 2025.

That is an absurd number to go through in such a short time, but that is how insidious my arthritis is.
#ASAwarenessMonth #MySeveralWorlds #WorldASDay #NotOnlyBackPain

Did you know these factors work together to identify #axSpA? Tell your PCP if you have persistent back pain.

Identify Spondyloarthropathy (SpA)

✔️ Skin
✔️ Colitis/Crohn's
✔️ Relatives
✔️ Eyes
✔️ Early Morning Stiffness
✔️ Nails
✔️ Dactylitis
✔️ Enthesitis
Paul Kirwan
#MySeveralWorlds #ASAwarenessMonth