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myseveralworlds.com
It's about time I got one of these! Who would use this?

"I need THIS in my life
A bean bag "bed" with built in blanket and pillow."

Credit Unknown

#MySeveralWorlds #SpoonieLife #LifeHacks
It's about time I got one of these! Who would use this? "I need THIS in my life A bean bag "bed" with built in blanket and pillow." Credit Unknown #MySeveralWorlds #SpoonieLife #LifeHacks
November 1, 2026 at 5:00 PM
myseveralworlds.com
"I will never judge a person who breaks down in tears over something small, because I know very well that they are not crying for that reason, but for everything they have been holding inside until that moment."

Credit Unknown

#MySeveralWorlds #BeKind #LifeLessons
"I will never judge a person who breaks down in tears over something small, because I know very well that they are not crying for that reason, but for everything they have been holding inside until that moment." Credit Unknown #MySeveralWorlds #BeKind #LifeLessons
October 29, 2026 at 4:30 PM
myseveralworlds.com
So glad I can clap back as an axSpA and fibro veteran patient ambassador when this happens.

Although I am embroiled in disputes with two hospitals & exercising my PHIPA rights to remove false info from my charts.

Credit @waysidewhelp

#MySeveralWorlds #MedicalGaslighting #PatientAdvocate
"Doctors tell me not to "google my symptoms". Bitch please, I'm using Google Scholar to read cutting-edge, peer-reviewed, published research on conditions you only have 1 barely-remembered outdated med school lecture on. We are not the same." Credit @waysidewhelp #MySeveralWorlds #MedicalGaslighting #PatientAdvocate #NoSir #NoMaam
October 30, 2026 at 4:07 PM
myseveralworlds.com
Ramifications of weak connective tissues in the ehlers-danlos syndromes

TISSUE WEAKNESS FROM EDS

SKIN FRAGILITY
UNSTABLE MAST CELLS
VASCULAR FRAGILITY
FUNCTIONAL GI ISSUES
LIGAMENT LAXITY

@izzy.kornblau @hips.dont.kill.my.vibe

#MySeveralWorlds #EDS #EhlersDanlosSyndrome #ConnectiveTissueDisease
Ramifications of weak connective tissues in the ehlers-danlos syndromes TISSUE WEAKNESS FROM EDS SKIN FRAGILITY Poor wound healing Abnormal scarring Hyperextensible skin UNSTABLE MAST CELLS Flushing Gl issues Anaphylaxis Hives VASCULAR FRAGILITY Blood pooling and POTS Fatigue Easy bruising Arterial aneurysms Autonomic dysfunction FUNCTIONAL GI ISSUES Nausea, vomiting Pain Gastroparesis, dumping syndrome Intestinal dysmotility LIGAMENT LAXITY Pelvic floor dysfunction Joint instability Joint pain, Migraine, muscle pain Frequent injuries, dislocations Tight, inflamed muscles and tendons Joint hypermobility Credit: @izzy.kornblau @hips.dont.kill.my.vibe #MySeveralWorlds #EDS #EhlersDanlosSyndrome #ConnectiveTissueDisease
November 2, 2026 at 3:23 PM
myseveralworlds.com
"Most people live in fear of some terrible event changing their lives.

For the chronically ill, this terrible event has already happened, and we have been let in on an amazing secret: You fight and you survive."
~Jaime Weisman

#MySeveralWorlds #ChronicTruths #LifeWithIllness
"Most people live in fear of some terrible event changing their lives. For the chronically ill, this terrible event has already happened, and we have been let in on an amazing secret: You fight and you survive. There is no other way. You adapt, and your life changes, but in the end you go on with whatever compromises you've been forcd to make, whatever losses you have been forced to endure. You learn to balance your fears with the simple truth that you must go on living." ~Jaime Weisman #MySeveralWorlds #ChronicTruths #LifeWithIllness
October 31, 2026 at 4:58 PM
myseveralworlds.com
A summary of nights this week...

"They knew I'd be too powerful if I could sleep at night."

Credit Unknown

#MySeveralWorlds #SleeplessNights #PrimaryInsomnia
A summary of nights this week... "They knew I'd be too powerful if I could sleep at night." Credit Unknown #MySeveralWorlds #SleeplessNights #PrimaryInsomnia
October 25, 2026 at 2:20 PM
myseveralworlds.com
When I get 'snakes in my brain', I know my fibromyalgia is going bonkers. It literally sounds like hissing snakes and I actually put snake emojis on my pain trackers to track it. ~ Carrie Marshall

#MySeveralWorlds #TeamFibro #SupportFibro #FibroNerds #FibromyalgiaAwareness 🐍🐍🐍
When I get 'snakes in my brain', I know my fibromyalgia is going bonkers. It literally sounds like hissing snakes and I actually put snake emojis on my pain trackers to track it. ~ Carrie Marshall #MySeveralWorlds #TeamFibro #SupportFibro #FibroNerds #FibromyalgiaAwareness 🐍🐍🐍
October 26, 2026 at 5:26 PM
myseveralworlds.com
A brief story of what happened to me at the CP Chamber Mixer and the event I attended on Tuesday with my bestie.

I paced, I sat, I stayed within two hours. I still suffered after!

#SpoonieLife #ChronicPainAwareness #ChronicIllnessAwareness #MySeveralWorlds
October 24, 2026 at 3:42 PM
myseveralworlds.com
"Most don't understand with chronic illness how symptoms stack. You're dealing with 10 things that pile on each other.

It's never one symptom that destroys you. Most of us can tolerate one. It's the combination that breaks us."

@thepotspostman.bsky.social

#ChronicTruths #MySeveralWorlds
"Something most don't understand with chronic illness is how symptoms stack. You're not dealing with one thing. You're dealing with ten things that pile on each other. It's never one symptom that destroys you. Most of us can tolerate one. It's the combination that breaks us." Credit: @ThePOTSPostman #ChronicTruths #ChronicIllnessWarrior #MySeveralWorlds
October 23, 2026 at 3:16 PM
myseveralworlds.com
"Between 20 to 40%
of people with arthritis experience a mental health disorder."

Image Credit Unknown

Stat from Arthritis Research Canada

#MySeveralWorlds #ArthritisAwareness #MentalHealthMatters #Depression
"Between 20 to 40% of people with arthritis experience a mental health disorder." Image Credit Unknown Star from Arthritis Research Canada #MySeveralWorlds #ArthritisAwareness #MentalHealthMatters #Depression
October 22, 2026 at 3:44 PM
myseveralworlds.com
The key for me here is IF I ASK because after 19 years, I don't want to hear suggestions anymore. Last week someone suggested weight training while having zero understanding that my spine and joints are ruined or that I suffer from extreme PEM.

Credit: skyepolk
#MySeveralWorlds #UnsolicitedAdvice
The key for me here is IF I ASK because after 19 years, I don't want to hear suggestions anymore. Last week someone suggested weight training while having zero understanding that my spine and joints are ruined or that I suffer from extreme PEM. "I actually don't mind receiving medical advice if: - I ask - you mention that you know it might not work for me, but just want to help/ suggest something to try if I haven't. But don't make assumptions that I haven't tried things or am doing something wrong and that's why I'm sick." Credit: skyepolk #MySeveralWorlds #UnsolicitedAdvice
October 27, 2026 at 3:57 PM
myseveralworlds.com
I chose two hours of joy to support my best friend at his event. I drove into the country, unloaded my wheelchair and had a fab time.

The cost of living always comes with harsh consequences?

"You overdid it & made me flare, b-tch
Me
Me"

Unkown

#MySeveralWorlds #FlareDay #ChronicPainAwareness
Last night I chose two hours of joy in supporting my best friend at his event. He has been planning it all year. I drove out into the countryside, unloaded my wheelchair, drove it across gravel, and then had a fab time with him and 25 women. It was SO worth it. But why does the cost of living your life come with such harsh consequences? That is life with complex health and chronic pain. "You overdid it & made me flare, b-tch Me Me" Credit: Unkown #MySeveralWorlds #HIPDay #FlareDay #ComplexCare #ChronicPainAwareness
October 21, 2026 at 2:29 PM
myseveralworlds.com
"Before I say yes, I calculate:

Will one moment of living cost me a day, a week or more?

Some people call it overthinking. But this is the math of chronic illness.

Every yes comes with a price only your body can see."

Credit: @cfshealth

#MySeveralWorlds #pwME #ChronicTruths
"Before I say yes, I calculate: • How long will I stand? • Will there be a place to sit? • How far will I have to walk? • Will the weather make it worse? • Is the pain worth it? • Will I regret it halfway through? • Will one moment of living cost me a day... a week? Some people call it overthinking. But this is the math of chronic illness. Every yes comes with a price only your body can see." Credit: @cfshealth #MySeveralWorlds #pwME #ChronicTruths
October 20, 2026 at 4:11 PM
myseveralworlds.com
A nice play on a familiar graphic... I turned it up a notch for us chronic folks!

Why you should never offer health advice...

Someone's health (illustrated as large circle)

What you know about it! (The tiny dot in the circle.)

Credit: Carrie Marshall

#MySeveralWorlds
#ChronicallyIconic
A nice play on a familiar graphic... I turned it up a notch for us chronic folks! Why you should never offer health advice... Someone's health (illustrated as large circle) What you know about it! (The tiny dot in the circle.) Credit: Carrie Marshall #MySeveralWorlds #ChronicallyIconic
October 18, 2026 at 3:50 PM
myseveralworlds.com
"Everyone is fighting a battle you don't know about.

Except for me.

I am complaining loudly about my battle. Everybody knows about it."

Credit Unknown

#MySeveralWorlds #Spoonie #ChronicMeme
"Everyone is fighting a battle you don't know about. Except for me. I am complaining loudly about my battle. Everybody knows about it." Credit Unknown #MySeveralWorlds #Spoonie #ChronicMeme
October 16, 2026 at 3:03 PM
myseveralworlds.com
❓How does hypervigilance manifest in you with fibromyalgia? We'd love to hear from you.

HYPERVIGILANCE in FIBROMYALGIA

Learn more...

Image @dearfibromyalgia

#MySeveralWorlds #TeamFibro #SupportFibro #hypervigilance #FibromyalgiaAwareness
❓How does hypervigilance manifest in you with fibromyalgia? We'd love to hear from you. @topfans HYPERVIGILANCE in FIBROMYALGIA Hypervigilance is a state of being constantly tense, on guard, and exceptionally aware of your environment. Hypervigilance is an unpleasant feeling. Not only do you notice sensations more readily, but you're also likely to be unable to divert your attention from them. PEOPLE LIVING WITH HYPERVIGILANCE CAN EXPERIENCE ANY OF THE FOLLOWING SYMPTOMS: ✔️ Jumpiness ✔️ Paranoia ✔️ Frequent head jerking and scanning the environment with your eyes ✔️ Distraction from important tasks, from speaking with others, and from entertainment ✔️ Agitation ✔️ Anger ✔️ Depression ✔️ Isolation ✔️ Sleep disturbance ✔️ A sense of helplessness ✔️ Dependence on others ✔️ A tendency to fight or argue with others ✔️ Exhaustion ✔️ A change in appetite Credit @dearfibromyalgia #MySeveralWorlds #TeamFibro #SupportFibro #hypervigilance #FibromyalgiaAwareness
October 17, 2026 at 2:36 PM
myseveralworlds.com
Top 5 barriers disabled people experience walking and wheeling

Quality of pavements 77%

Street clutter (A boards, ebikes, bins) 65%

Pavement parking 57%

Ebikes or scooters ridden on pavement 50%

Lack of dropped kerbs
50%

Credit Unknown
#MySeveralWorlds #DisabilityAwareness #DisabilityInclusion
Top 5 barriers disabled people experience walking and wheeling Quality of pavements (bumps, holes, tree roots etc) 77% Street clutter (A boards, ebikes, bins etc) 65% Pavement parking 57% Ebikes or scooters ridden on pavements 50% Lack of dropped kerbs 50% Credit Unknown #MySeveralWorlds #DisabilityAwareness #DisabilityInclusion
October 15, 2026 at 5:05 PM
myseveralworlds.com
"I gave up trying to get this sports bra off. It's a hat now."

Credit Unknown

#MySeveralWorlds #SpoonieHumor
"I gave up trying to get this sports bra off. It's a hat now." Credit Unknown #MySeveralWorlds #SpoonieHumor
October 12, 2026 at 2:44 PM
myseveralworlds.com
Especially true and often so appreciated by those of us living with chronic illness and/or disability.

What would you like to see on this list?

"When someone you know is going through a hard time... (text in ALT)

UNKNOWN

#FriendsGiving #MySeveralWorlds #FriendsGivingVibes
Especially true and often so appreciated by those of us living with chronic illness and/or disability. "When someone you know is going through a hard time, don't say "call me if you need anything", rather say: ✔️ I'm doing grocery shopping today, send me your list and I'll drop it off on the way home. ✔️ I'll fetch your kids from school this week. ✔️ I've made some dinner for you, what time can I drop it off? ✔️ I know you're not OK, tell me how you're feeling about everything. ✔️ I've booked a massage for you, the therapist comes to your house so you don't have to drive. ✔️ I'm taking your kids to the movies so you can have the afternoon off. ✔️ I've got time off this week, what can I do for you and how can I support you?" UNKNOWN #FriendsGiving #MySeveralWorlds #FriendsGivingVibes
October 13, 2026 at 2:54 PM
myseveralworlds.com
If a patient tells you that they are in pain, believe them. If a patient tells you they cannot take a certain med, believe them. If a patient discloses their personal health info to you in hopes that you can help them, BELIEVE THEM.

@misaonwheels.bsky.social

#MySeveralWorlds #DisabilityAwareness
"If a patient tells you that they are in pain, believe them. If a patient tells you they cannot take a certain medication, believe them. If a patient discloses their personal health information to you in hopes that you can help them, BELIEVE THEM. Credit: Misa On Wheels #MySeveralWorlds #DisabilityAwareness #ComplexCare #InvisibleDisabilitiesAwareness
October 11, 2026 at 7:12 PM
myseveralworlds.com
The Freedom to Move with #Spondylitis. The last time I wrote for @spondylitis I was testing an exoskeleton. Now I’m cruising in a Robooter X40. Let's learn about life in a #PowerWheelchair
🔗
spondylitis.org/patient-stor...

#SeeTheInvisible #MySeveralWorlds #InvisibleDisabilitiesWeek
The Freedom to Move with Spondylitis
Resilience and conviction—being your own advocate—aren’t unique traits, but for those of us navigating health challenges, they’re a way of life. We’re fighters. And that’s something to be proud of, wh...
spondylitis.org
October 12, 2026 at 5:14 AM
myseveralworlds.com
Reminder: seasonal changes make disabled people feel like shit.

It has to do with the
barometric changes.
Or we're witches.
We'll never say.

Credit: Crutches&SpookySpice

#MySeveralWorlds #AutumnVibes #Spoonies #DisabledLife
Reminder: seasonal changes make disabled people feel like shit. It has to do with the barometric changes. Or we're witches. We'll never say. Credit: Crutches&SpookySpice #MySeveralWorlds #AutumnVibes #Spoonies #DisabledLife
October 9, 2026 at 4:29 PM
myseveralworlds.com
Mirror: Lookin' good today.
Grocery store window: You could use some sleep.
Target checkout camera: T'was winter when she contracted the cholera, quickly succumbed & was buried in a shallow grave marked with a rough-hewn tombstone & wisps of lemongrass.
@paigekellerman.bsky.social

#MySeveralWorlds
Mirror: Lookin' good today. Grocery store window: You could probably use some sleep. Target checkout camera: T'was winter when she contracted the cholera, quickly succumbed, and was buried in a shallow grave marked only with a rough-hewn tombstone and wisps of lemongrass. Credit: Paige Kellerman @PaigeKellerman #MySeveralWorlds #SpoonieHumour #LifeWithPain
October 8, 2026 at 3:53 PM
myseveralworlds.com
Appropriate after spending the whole night at the Carleton Place Chamber of Commerce mixer masking my pain and migraine.

CHRONIC ILLNESS MASKING

Forcing yourself to keep plans even when you feel awful.

@THEMIGRAINENETWORK

#MySeveralWorlds #LifewithPain #Masking #InvisibleDisabilityAwareness
Appropriate after spending the whole night at the Carleton Place Chamber of Commerce mixer masking my pain and migraine. CHRONIC ILLNESS MASKING The invisible ways we pretend to be "okay,” even when we're not. Forcing yourself to keep plans even when you feel awful. Over-explaining or justifying why you can't do something. Powering through when you need rest. Saying "I'm fine" when you're anything but. Laughing to hide brain fog or confusion. Hiding mobility aids or medications out of embarrassment. Minimizing your symptoms so you don't seem "dramatic." Silently struggling because asking for support feels too vulnerable. Pretending noise or light isn't bothering you. Acting "normal" so no one worries. Apologizing for needing help. Smiling when you're in pain. Credit: @THEMIGRAINENETWORK #MySeveralWorlds #MigraineAwareness #LifewithPain #Masking #InvisibleDisabilityAwareness
October 7, 2026 at 6:23 PM
myseveralworlds.com
Here's the real truth:
If you smile, you're "doing better."
If you cry, you're "too emotional."
If you speak up, you're "difficult."
Pick your poison.

Credit @dear chronic pain

#MySeveralWorlds #ChronicIllnessAwareness
Here's the real truth: If you smile, you're "doing better." If you cry, you're "too emotional." If you speak up, you're "difficult." Pick your poison. Credit @dear chronic pain #MySeveralWorlds #ChronicIllnessAwareness
October 6, 2026 at 3:49 PM