I used to think I had ME. Turned out I had Ankylosing Spondylitis. Taking anti inflammatories was like somebody had reduced the gravitational constant of the universe and I could suddenly run up the stairs again.
Now I am convinced ME is an auto immune condition.
Now I am convinced ME is an auto immune condition.
November 2, 2026 at 8:54 AM
I used to think I had ME. Turned out I had Ankylosing Spondylitis. Taking anti inflammatories was like somebody had reduced the gravitational constant of the universe and I could suddenly run up the stairs again.
Now I am convinced ME is an auto immune condition.
Now I am convinced ME is an auto immune condition.
Yesyesyes!! I become fully alive when everybody else is going to bed. Life was hard going to school and working- exhausted all the time. Now, I can't work due to fibromyalgia/spondylitis & depression/anxiety/PTSD so I can embrace being nocturnal.
October 29, 2026 at 11:46 PM
Yesyesyes!! I become fully alive when everybody else is going to bed. Life was hard going to school and working- exhausted all the time. Now, I can't work due to fibromyalgia/spondylitis & depression/anxiety/PTSD so I can embrace being nocturnal.
Medical update. All genetic testing came back negative for SAIDs. They now suspect Ankylosing Spondylitis. Having an MRI in a month to confirm or deny.
October 28, 2026 at 12:46 PM
Medical update. All genetic testing came back negative for SAIDs. They now suspect Ankylosing Spondylitis. Having an MRI in a month to confirm or deny.
along with POTS and Ankylosing Spondylitis but who's counting #chronicillness #multiplesclerosis #oilpainting #artistsoftiktok #oilpaint
October 29, 2026 at 7:23 PM
along with POTS and Ankylosing Spondylitis but who's counting #chronicillness #multiplesclerosis #oilpainting #artistsoftiktok #oilpaint
I get anxiety when i get back pain cause my dad has acondition that is genetic called ankylosing spondylitis 😭I should honestly get myself tested to see if i have the HLA-B27 Gene
October 28, 2026 at 8:50 PM
I get anxiety when i get back pain cause my dad has acondition that is genetic called ankylosing spondylitis 😭I should honestly get myself tested to see if i have the HLA-B27 Gene
I also have ankylosing spondylitis and Humira did help with HS but did nothing for AS
October 26, 2026 at 11:04 PM
I also have ankylosing spondylitis and Humira did help with HS but did nothing for AS
www.reddit.com/r/ankylosing... and this post is about what best works for people www.reddit.com/r/ankylosing...
Ankylosing Spondylitis
Welcome to the club no one wants to be in: r/ankylosingspondylitis! A place for patients of Ankylosing Spondylitis and other Axial Spondyloarthritis or nr-axSpA conditions. This is a highly moderated ...
www.reddit.com
October 27, 2026 at 4:22 AM
www.reddit.com/r/ankylosing... and this post is about what best works for people www.reddit.com/r/ankylosing...
"Amy, you know if this was a couple years ago, you would have your little TV out on the patio for the game. You'd be all bundled up and in a broken office chair."
Indeed I would.
F*ck Lupus.
F*ck Ankylosing Spondylitis.
F*ck pain and exhaustion, when I don't even f*cking do anything all day.
Indeed I would.
F*ck Lupus.
F*ck Ankylosing Spondylitis.
F*ck pain and exhaustion, when I don't even f*cking do anything all day.
October 27, 2026 at 11:45 PM
"Amy, you know if this was a couple years ago, you would have your little TV out on the patio for the game. You'd be all bundled up and in a broken office chair."
Indeed I would.
F*ck Lupus.
F*ck Ankylosing Spondylitis.
F*ck pain and exhaustion, when I don't even f*cking do anything all day.
Indeed I would.
F*ck Lupus.
F*ck Ankylosing Spondylitis.
F*ck pain and exhaustion, when I don't even f*cking do anything all day.
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v
#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
🔗
buff.ly/3CISx4v
#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
Name changes for Sjögren’s, axial spondyloarthritis ‘a big deal’ for researchers, patients
“Ankylosing spondylitis”? “Sjögren’s syndrome”? These terms may soon take on an antiquated feel not unlike “shell shock” or “consumption,” as both...
buff.ly
October 28, 2026 at 4:50 AM
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v
#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
🔗
buff.ly/3CISx4v
#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
Yeah it sucks. My diagnostic journey was similar; had abnormal bloods but nothing would show up on MRI / Xray.
Eventually after a lot of tests it turns out I likely have a rare form of psoriatic spondylitis, which attacks my joints, organs, tissue, so on.
Eventually after a lot of tests it turns out I likely have a rare form of psoriatic spondylitis, which attacks my joints, organs, tissue, so on.
October 27, 2026 at 12:28 PM
Yeah it sucks. My diagnostic journey was similar; had abnormal bloods but nothing would show up on MRI / Xray.
Eventually after a lot of tests it turns out I likely have a rare form of psoriatic spondylitis, which attacks my joints, organs, tissue, so on.
Eventually after a lot of tests it turns out I likely have a rare form of psoriatic spondylitis, which attacks my joints, organs, tissue, so on.
Just found out I may not have ankylosing spondylitis at all.
Being thrust back into "We don't know what is wrong with you is heartbreaking.
I have to get an MRI. Right now, there's an asterisk on my diagnosis meaning "subject to change"
Being thrust back into "We don't know what is wrong with you is heartbreaking.
I have to get an MRI. Right now, there's an asterisk on my diagnosis meaning "subject to change"
October 28, 2026 at 4:13 PM
Just found out I may not have ankylosing spondylitis at all.
Being thrust back into "We don't know what is wrong with you is heartbreaking.
I have to get an MRI. Right now, there's an asterisk on my diagnosis meaning "subject to change"
Being thrust back into "We don't know what is wrong with you is heartbreaking.
I have to get an MRI. Right now, there's an asterisk on my diagnosis meaning "subject to change"
Keep up to date with current research! A systematic review is a type of study which synthesizes data from multiple independent studies. This #MassageMonday, explore a systematic review of the efficacy of massage for clients with Ankylosing Spondylitis: bit.ly/3W0Ii5j
October 26, 2026 at 5:52 PM
Keep up to date with current research! A systematic review is a type of study which synthesizes data from multiple independent studies. This #MassageMonday, explore a systematic review of the efficacy of massage for clients with Ankylosing Spondylitis: bit.ly/3W0Ii5j
Not the point but...
As someone that was misdiagnosed with Ankylosing Spondylitis, turns out just regular arthritis!, there really wasn't FDA approved medication for that when this alleged overdose happened either?
As someone that was misdiagnosed with Ankylosing Spondylitis, turns out just regular arthritis!, there really wasn't FDA approved medication for that when this alleged overdose happened either?
October 23, 2026 at 3:37 AM
Not the point but...
As someone that was misdiagnosed with Ankylosing Spondylitis, turns out just regular arthritis!, there really wasn't FDA approved medication for that when this alleged overdose happened either?
As someone that was misdiagnosed with Ankylosing Spondylitis, turns out just regular arthritis!, there really wasn't FDA approved medication for that when this alleged overdose happened either?
Eventje een heel korte uitleg over sommige minder gekende dingen in dit lijstje.
October 31, 2026 at 1:34 PM
Eventje een heel korte uitleg over sommige minder gekende dingen in dit lijstje.
My #AxSpA Story for @spondylitis
When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...
When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...
Carrie Kellenberger
I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...
spondylitis.org
October 22, 2026 at 3:53 PM
My #AxSpA Story for @spondylitis
When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...
When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...
If you're a wrestling fan and you've never read the passage from Dewey "Missing Link" Robertson's memoir about his alleged "marijuana overdose," then you need to change that right now.
October 23, 2026 at 3:30 AM
If you're a wrestling fan and you've never read the passage from Dewey "Missing Link" Robertson's memoir about his alleged "marijuana overdose," then you need to change that right now.
MTF is excited to announce the winners of our 2026 Case Report Contest! Three case reports were selected, exploring the use of massage therapy for ankylosing spondylitis, knee osteoarthritis, and lumbar spine abnormalities. Find out more about the winners: bit.ly/26mtfcrc
October 22, 2026 at 2:57 PM
MTF is excited to announce the winners of our 2026 Case Report Contest! Three case reports were selected, exploring the use of massage therapy for ankylosing spondylitis, knee osteoarthritis, and lumbar spine abnormalities. Find out more about the winners: bit.ly/26mtfcrc
A 36-year-old woman presented with a 6-year history of gradually worsening low back pain and intermittent night sweats. On examination, she had a sharp, kyphotic angulation of the lower spine. Read the full case details: https://nej.md/4yZSdX9
October 21, 2026 at 10:00 PM
A 36-year-old woman presented with a 6-year history of gradually worsening low back pain and intermittent night sweats. On examination, she had a sharp, kyphotic angulation of the lower spine. Read the full case details: https://nej.md/4yZSdX9
🧬 Advancing treatment for ankylosing spondylitis.
A 52-week phase 3 randomized study in hLife evaluates the efficacy and safety of XKH004, a dual IL-17A/F inhibitor.
🔗 doi.org/10.1016/j.hl...
A 52-week phase 3 randomized study in hLife evaluates the efficacy and safety of XKH004, a dual IL-17A/F inhibitor.
🔗 doi.org/10.1016/j.hl...
October 21, 2026 at 9:39 AM
🧬 Advancing treatment for ankylosing spondylitis.
A 52-week phase 3 randomized study in hLife evaluates the efficacy and safety of XKH004, a dual IL-17A/F inhibitor.
🔗 doi.org/10.1016/j.hl...
A 52-week phase 3 randomized study in hLife evaluates the efficacy and safety of XKH004, a dual IL-17A/F inhibitor.
🔗 doi.org/10.1016/j.hl...
Do you headcanon El with selective mutism? Maybe with ARFID? Or maybe Ankylosing Spondylitis?
We’d love to hear you turn your headcanon into pitches for [IN]VISIBILITIES: A Stranger Things Disability Zine! Pitches open Oct 23 through Nov 15!
What are your El headcanons? Let us know in the replies!
We’d love to hear you turn your headcanon into pitches for [IN]VISIBILITIES: A Stranger Things Disability Zine! Pitches open Oct 23 through Nov 15!
What are your El headcanons? Let us know in the replies!
October 20, 2026 at 5:52 PM
Do you headcanon El with selective mutism? Maybe with ARFID? Or maybe Ankylosing Spondylitis?
We’d love to hear you turn your headcanon into pitches for [IN]VISIBILITIES: A Stranger Things Disability Zine! Pitches open Oct 23 through Nov 15!
What are your El headcanons? Let us know in the replies!
We’d love to hear you turn your headcanon into pitches for [IN]VISIBILITIES: A Stranger Things Disability Zine! Pitches open Oct 23 through Nov 15!
What are your El headcanons? Let us know in the replies!
It is the final SET of 19th annual Banding Together webathon for Spondylitis Association of America
Now: The Mighty Alrighty
$20 or more donation gets 46 song download
Listen, info for the entire weekend, & how to donate at https://blowupradio.com
#music #spondylitis
Now: The Mighty Alrighty
$20 or more donation gets 46 song download
Listen, info for the entire weekend, & how to donate at https://blowupradio.com
#music #spondylitis
BlowUpRadio.com - Where New Jersey Rock Lives
BlowUpRadio.com - where new jersey rock lives nj rock, nj concerts and nj band info
blowupradio.com
October 19, 2026 at 12:40 AM
It is the final SET of 19th annual Banding Together webathon for Spondylitis Association of America
Now: The Mighty Alrighty
$20 or more donation gets 46 song download
Listen, info for the entire weekend, & how to donate at https://blowupradio.com
#music #spondylitis
Now: The Mighty Alrighty
$20 or more donation gets 46 song download
Listen, info for the entire weekend, & how to donate at https://blowupradio.com
#music #spondylitis
Make a celebrity sick
Gilliankylosing spondylitis AnderSON-related neurodevelopmental disorder
Gilliankylosing spondylitis AnderSON-related neurodevelopmental disorder
Make a celebrity sick:
Covid Duchovny
Covid Duchovny
Make a celebrity sick:
Matthew Peridontitis
Matthew Peridontitis
October 18, 2026 at 1:06 PM
Make a celebrity sick
Gilliankylosing spondylitis AnderSON-related neurodevelopmental disorder
Gilliankylosing spondylitis AnderSON-related neurodevelopmental disorder
We are really close to hitting our goal for this year's Banding Together webathon.
A $20 or more donation to the Spondylitis Association of America will help us get there, and you get a download of the 46 song compilation
Donation link […]
[Original post on gardenstate.social]
A $20 or more donation to the Spondylitis Association of America will help us get there, and you get a download of the 46 song compilation
Donation link […]
[Original post on gardenstate.social]
October 19, 2026 at 9:08 PM
We are really close to hitting our goal for this year's Banding Together webathon.
A $20 or more donation to the Spondylitis Association of America will help us get there, and you get a download of the 46 song compilation
Donation link […]
[Original post on gardenstate.social]
A $20 or more donation to the Spondylitis Association of America will help us get there, and you get a download of the 46 song compilation
Donation link […]
[Original post on gardenstate.social]