#BioBank
📍ME/CFS Biobank Austria📍

An der #MedUniWien wurde eine Biobank Sammlung von Proben und med. Daten eingerichtet.
Die #ME/CFS Biobank Austria hat zum Ziel, die 1.🇦🇹 Biobank für ME/CFS-Proben aufzubauen.

Mit Zuverfügungstellung von Proben können Betroffene zur Forschungsförderung beitragen.

1/4
March 7, 2025 at 6:00 PM
Esto es gravísimo --> Confidential health records from UK BioBank project exposed online
www.theguardian.com/science/2026...
Confidential health records from UK BioBank project exposed online
Exclusive: Guardian investigation finds data from flagship medical research leaked dozens of times
www.theguardian.com
March 14, 2026 at 10:07 AM
✅ Published in @natureportfolio.nature.com today, the paper describing the initial whole-genome sequencing analysis of 500,000 UK Biobank participants.

Read here: www.nature.com/articles/s41...
Whole-genome sequencing of 490,640 UK Biobank participants - Nature
A study reports whole-genome sequences for 490,640 participants from the UK Biobank and combines these data with phenotypic data to provide new insights into the relationship between human variation a...
www.nature.com
August 6, 2025 at 3:17 PM
This is:

a) an easily foreseeable consequence of selling access to large datasets like the UK Biobank.

b) horrifying beyond belief. Biobank says that the data was deidentified, but in practice it is easily reidentifiable in many cases.
April 24, 2026 at 12:46 AM
Queensland Government to destroy ‘globally significant’ COVID vaccine study biobank.

A globally significant COVID vaccine study biosample bank is set to be destroyed, 2 years after Queensland government defunded the award-winning immune response research project.

Source: archive.md/4h1YC
April 15, 2025 at 1:23 AM
A project many years in the process, we’re pleased to present our work on multi-ancestry meta-analysis across a boatload of traits in the UK Biobank: www.nature.com/articles/s41...
Pan-UK Biobank genome-wide association analyses enhance discovery and resolution of ancestry-enriched effects - Nature Genetics
Genome-wide analyses for 7,266 traits leveraging data from several genetic ancestry groups in UK Biobank identify new associations and enhance resources for interpreting risk variants across diverse p...
www.nature.com
September 18, 2025 at 5:25 PM
Long- term air pollution exposure is associated with worse outcomes (hospitalizations, deaths) with Covid, and there is an interaction with genetic susceptibility to infection; among >110,000 UK Biobank participants
www.pnas.org/doi/full/10....
March 3, 2025 at 8:22 PM
📢 First bedrest samples arrive at @esa.int's new Exploration Biobank in Portugal.

🧪 +1400 tubes with blood, saliva, urine, stool and hair are now stored at –80°C in Europe's first biobank dedicated to human spaceflight research.

www.esa.int/ESA_Multimed...
First bedrest samples arrive at exploration biobank in Portugal
First bedrest samples arrive at exploration biobank in Portugal
www.esa.int
October 16, 2025 at 8:42 AM
Post by @steveharvey, not on Bluesky, on the UK Biobank latest release of 500k whole genomes:
A mind-blowing paper from the UK Biobank last week: whole genome sequencing of 490,640 participants.
September 1, 2025 at 10:38 AM
Even physical activity on weekends only (Weekend warrior, WW) linked with a significant favorable impact of all-cause mortality, cardiovascular mortality, cancer mortality
MVPA-moderate to vigorous physical activity
from UK Biobank, >90,000 participants
www.ahajournals.org/doi/10.1161/...
April 2, 2025 at 5:10 PM
Walking at a moderate or brisk pace and reduction of heart arrhythmias
heart.bmj.com/content/earl...
association from ~82,000 UK Biobank participants with accelerometers
open-access
Association of self-reported and accelerometer-based walking pace with incident cardiac arrhythmias: a prospective cohort study using UK Biobank
Objectives Dedicated studies aimed at investigating the relationship between walking pace and arrhythmia are limited. This study assessed associations between self-reported and accelerometer measured ...
heart.bmj.com
April 16, 2025 at 11:03 PM
First time on Bsky and first big announcement!

I am excited to announce that our new study explaining the missing heritability of many phenotypes using WGS data from ~347,000 UK Biobank participants has just been published in @Nature.

Our manuscript is here: www.nature.com/articles/s41....
Estimation and mapping of the missing heritability of human phenotypes - Nature
WGS data were used from 347,630 individuals with European ancestry in the UK Biobank to obtain high-precision estimates of coding and non-coding rare variant heritability for 34 co...
www.nature.com
November 12, 2025 at 5:57 PM
Obesity and brain/cognitive health in a large, systematic assessment of over 50,000 UK Biobank participants www.nature.com/articles/s44...
Long-term obesity impacts brain morphology, functional connectivity and cognition in adults - Nature Mental Health
Using data from the UK Biobank, the authors conducted a longitudinal analysis to measure the effects of obesity on cortical thickness, brain functional connectivity and cognitive abilities in middle-a...
www.nature.com
March 3, 2025 at 2:53 PM
Nature research paper: Whole-genome sequencing of 490,640 UK Biobank participants

go.nature.com/46EtTyW
Whole-genome sequencing of 490,640 UK Biobank participants - Nature
A study reports whole-genome sequences for 490,640 participants from the UK Biobank and combines these data with phenotypic data to provide new insights into the relationship between human variation and sequence variation.
go.nature.com
August 6, 2025 at 4:07 PM
The relationship between irregular sleep pattern and major adverse cardiovascular events in over 70,000 UK Biobank participants with accelerometer assessment, not titrated by sleep duration jech.bmj.com/content/earl...
November 27, 2024 at 5:48 PM
Wow, the Guardian journalists who just yesterday published about the network of race scientists getting funding from tech CEOs just broke another story that this group has accessed UK Biobank data without authorization. This is seriously bad for the integrity of science & a massive failure by UKBB
‘Race science’ group say they accessed sensitive UK health data
Exclusive: Fringe network recorded boasting of securing data from UK Biobank trove donated by 500,000 volunteers
www.theguardian.com
October 17, 2024 at 3:40 PM
Plasma proteins and brain aging.
Assessment of ~3,000 proteins in ~11, 000 UK biobank participants w/ over 11,000 MRI phenotypes
1. Brain aging is non-linear, with protein waves at ages 57, 70 and 78
December 9, 2024 at 4:07 PM
Whoops… i wonder how on earth that could possibly happen!!!?

Ask Wes Streeting or better still Palantir!!

www.theguardian.com/technology/2...
Private health records of half a million Britons offered for sale on Chinese website
Technology minister tells Commons ‘de-identified’ information from UK Biobank advertised for sale on Alibaba
www.theguardian.com
April 23, 2026 at 2:10 PM
How did I not include "We did a Mendelian Randomization in UK Biobank"?! 🤷🏻‍♂️

#EpiSky
I made one for 'types of paper in epidemiology and public health'
#EpiSky
November 18, 2024 at 2:19 PM
The strongest references are the NEJM study of more than 100,000 people and the Nature UK Biobank study, because the latter had brain scans from both before and after infection

Key refs:

• Hampshire et al., NEJM 2024 - cognition
doi:10.1056/NEJMoa2311330
September 25, 2026 at 9:37 PM
On Oxford Biobank. Plain scary

And Starmer is all starry eyed over Palantir.

bsky.app/profile/fasc...
The leader of the 'race science' network that apparently has illegitimate access to 500k medical records seems also to have links with Peter Thiel, founder of Palantir which runs the NHS Data Platform

www.theguardian.com/world/2024/o...
‘Race science’ group say they accessed sensitive UK health data
Exclusive: Fringe network recorded boasting of securing data from UK Biobank trove donated by 500,000 volunteers
www.theguardian.com
April 8, 2025 at 9:11 AM
Dazu ein Studiogespräch mit der Leiterin der ME/CFS Biobank Austria an der @meduniwien.ac.at Eva Untersmayr-Elsenhuber zum aktuellen Forschungsstand und mehr 2/2 on.orf.at/video/142988...
Expertin über ME/CFS - Aktuell nach eins vom 10.11.2025
Eva Untersmayr-Elsenhuber, Leiterin der Biobank an der MedUni Wien, legt den aktuellen Forschungsstand zur Krankheit ME/CFS dar.
on.orf.at
November 10, 2025 at 1:54 PM
In another milestone for human genetics, the world's largest set of whole-genome DNA sequences now encompasses data from nearly half a million people, described in this new @nature.com paper from @ukbiobank.bsky.social: 🧪👇
Whole-genome sequencing of 490,640 UK Biobank participants - Nature
A study reports whole-genome sequences for 490,640 participants from the UK Biobank and combines these data with phenotypic data to provide new insights into the relationship between human variation a...
www.nature.com
August 7, 2025 at 9:41 AM
“Our findings highlight that both self-report accuracy and selective participation are competing biases and sources of poor reproducibility for biobank-scale research” www.nature.com/articles/s41...
The impact of self-report inaccuracy in the UK Biobank and its interplay with selective participation - Nature Human Behaviour
Biobank data are extensively used. Schoeler and colleagues show that self-report inaccuracy and selective participation are sources of poor reproducibility for biobank-scale research.
www.nature.com
December 19, 2024 at 8:04 AM